My 16 yr old daughter and IBS ???

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stclairt
New Member


Date Joined Oct 2009
Total Posts : 5
   Posted 10/19/2009 9:23 AM (GMT -7)   
Let me see if I can make a long story semi-short. Back in April/May/June my then 15 yr old daughter got pretty ill. What started as a 'stomach bug' ended in a nightmare. She had a 'bug' for a couple days of throwing up, then seems ok, the following week the 'bug' returned for a few days ... afterward it seemed to go away then the 3rd week the vomiting was so bad she was sick continually -- throwing up everything she ate and at this point she was eating only animal crackers and apple sauce. After her pediatrician tried Zofran (for nausea) with no results we went to a ped. gi dr. He did a wide range of blood tests, stool test, upper and lower GI x-ray. Those were clean and ok. The vomiting continued the weakness got worse so she had an endoscope (throat) and a sig-something to check the lower part of her colon. Those tests were OK. They were just with the idea that "this would pass" and gave her Prilosec. UGH. After a few more days, now like week 5-6 I told them she was really losing weight and not able to get out of bed due to weakness. They admitted her in the hospital, did an NG feeding tube ... and ordered a CT scan. The CT scan was 'normal' except showing a smaller but functioning kidney (unrelated). I felt so frustrated. I mean they found nothing but why was my daughter so ill? She had the feeding tube for about 5 days -- and after it was removed she started to be a little better, over the summer she gained strength and seemed OK. Now, 2 weeks ago, she got a stomach bug, it lasted for a week, she said she felt like she did before (but her younger brother was sick too so I thought it was indeed a bug) -- after a week she seemed to improve but after a few days it came back and came back hard like before. She was throwing up nearly everything she ate, vomiting 5-10 times a day. We went back to the dr on Friday, the gi specialist and they are leaning to IBS. Since all of those test were OK this is what they are looking at. I see vomiting is rare with IBS. The thing is her symptoms are stomach ache, vomiting, feels hot but doesn't run a fever, tho last week it was 99.4, she is NOT nauseas, she doesn't have bowel problems and no cramps, just aches -- she said her sides hurt, like the ribs but could be from the vomiting.
 
GI dr gave her Prolisec again and an anti depressant (did more blood work and order a snother stool test to be sure) -- we are on day 4 of the meds, no real improvement but to early to say I'm sure. She is missing school, I am extremely worried about her, its so stressful. I don't know if IBS is the 'real' reason she is sick and they said her ibs is worse with stress and since she is now behind in school that is flaring her IBS symptoms. They also want her to seek counseling too. I just feel lost and like I am losing my mind. Any ideas, thoughts, suggestions. I might just lose my mind :(

B00e00n00
Regular Member


Date Joined Mar 2009
Total Posts : 55
   Posted 10/19/2009 9:46 AM (GMT -7)   
I ask this everytime because I have seen many (not all but alot) of doctors not pay enough attention to diet when it comes to IBS. Diet is the most important factor in IBS IMO so I'm going to ask what is your daughter eating.
UC and IBS
Current Meds: Lialda 4 tab a day, Prontonix 40mg twice a day


OnTheRocks
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 10/19/2009 10:04 AM (GMT -7)   
I don't mean to sound judgemental, but something doesn't sit right with the fact that she was bad during school, better over the summer, and back to problems when school started. Is it possible there is something going on at school that could be causing this?
Dx: Supratrochlear nerve obstruction/compression & severe migraine.

Rx: Opana ER, Transdermal Scopolamine

PRN: Zofran, Opana IR, Actiq


Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 10/19/2009 10:44 AM (GMT -7)   
Or is she eating a hot lunch at school and not packing a more healthy, nutritious lunch from home?
- Rectal Cancer 4/29/99, Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, temporary colostomy, reversed 8 weeks later)
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Takes Colace 50 mg each evening


stclairt
New Member


Date Joined Oct 2009
Total Posts : 5
   Posted 10/19/2009 10:57 AM (GMT -7)   
Regarding school, its a stressful enviroment -- that is why they relate it to IBS, since IBS triggers symptoms with stress. As far as something else going on, not that I can see. She says there isn't. Maybe the counseling will help ... in any case.

The drs said IBS can be triggered with an 'bug' too which is what it looks like happened this time and last.

I'm just not sold on it being IBS when she has NO bowel symptoms.

As far as her diet. Since the illness, she is so careful with her eating, out of 'fear'. Right now she is a snacker. 100 cal packs, cookies, crackers, baked lays, somce fruit cups, gatorade, she's getting little to no protein right now. They want her to try the Boost but she has it in her head they will make her sick ...
I just don't know!!

stclairt
New Member


Date Joined Oct 2009
Total Posts : 5
   Posted 10/19/2009 10:58 AM (GMT -7)   
She packs her lunch every day, never eats school lunches. Usually protein bar (not since she was sick tho), baked lays, fruit cup/pears. She likes soup but when she is in this faze it won't stay down.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/19/2009 12:00 PM (GMT -7)   
I think it is quite normal for a 16 year old girl to consider school a stressful enviroment (it is a normal developmental stage). Especially if they have poopie problems.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


stclairt
New Member


Date Joined Oct 2009
Total Posts : 5
   Posted 10/19/2009 12:26 PM (GMT -7)   
Schools demands are stressful. She doesn't have poopie issues, no food will stay down and she vomits, it comes in cycles :(

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/19/2009 12:48 PM (GMT -7)   
Sorry I am having brain fart day I meant to say GI issues. I wonder if you have had a pill camera done on her? By just doing those small scopes they do not even see 18 feet of intestine.  Plus how are her periods, do they make her worse?


Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 10/19/2009 1:57:18 PM (GMT-6)


stclairt
New Member


Date Joined Oct 2009
Total Posts : 5
   Posted 10/19/2009 1:07 PM (GMT -7)   
I don't know about the scope, just said it was an EGD?! It was normal ...

Her cycle seems normal, every 28 days or so. I don't know if they make it worse or not, I cant seem to find a pattern.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 10/19/2009 1:09 PM (GMT -7)   
Have you taken her to a gynocologist?  My daughter had similar problems.  She would eat and all of a sudden have to vomit.  She lost a lot of weight and no one could find anything wrong with her.  Finally she went to the gynocologist.  It turns out she has endometriosis!  She had some outpatient surgery and she needs to take birth control pills to keep it under control but the vomiting has stopped and she feels great and has put weight back on.  It's worth a try.  It seems you have tried everything else first...just like we did. 
 
Let us know how it goes.  We really do care.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 10/19/2009 1:22 PM (GMT -7)   
An EGD and a fex sig or cscope miss many feet of intestine. I think a pill camera might be a good idea.


Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 10/20/2009 7:42:33 AM (GMT-6)


Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 10/20/2009 4:21 AM (GMT -7)   
Yes I agree high school can be rough. I was fortunate to go to an all girls school AND find quality, life long friends who were and are still there for me, to this day (35+ years later!).....

But I had one very rough 7th grade year. Felt into the wrong crowd, who made it a point to target me when I wouldn't shop lift with them, etc. Whatever they were into, I refused to do. And meanwhile all around were better choices for friends but I didn't see any of these possibilities, I just want those wild friends not to be wild.

I didn't have normal bm's that year either. I told an older sister of a friend (the nicest of that wild group) while I couldn't go in public. She said - you can really mess your body up that way. What my mom had been telling me all along too. But I didn't want to listen to mom's, doctors, etc.

Long story short, somehow I survived my 7th grade year, eventually made better friends, became that loyal, non catty friend in return and well decided to poop in public. Thank goodness I figured all of that out.

But I was a picky eater thru it all though, barely eat anything. I didn't really enjoy food until I was 20 and married. In charge of my own kitchen.

So yes being 16, in high school, with IBS issues can be one really rough time in life.

Being a snacker might be helpful to IBS, if the snacks are good for the gut. 1 banana, 1 cup of applesauce, 1 apple, 1 yogurt cup, 1 granola bar, small bag of pretzels, 1 bagel, etc. Just not french fries, deep fried foods, candy, junk food. See if you can suggest healthy snacks.

I find that if I eat small meals and much smaller portions than I ever did prior to my IBS, I feel so much better than if I consumed a very large meal.
- Rectal Cancer 4/29/99, Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, temporary colostomy, reversed 8 weeks later)
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Takes Colace 50 mg each evening


shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 10/20/2009 7:10 PM (GMT -7)   
These are excellent resources.

Welcome to aboutKidsGI.org. On this site you will find support and information about digestive disorders in kids and teens.

Functional gastrointestinal (GI) and motility disorders are common among children. Signs of these disorders include many symptoms that are long-lasting. They range from stomach pains to nausea or vomiting to bowel problems.

http://www.aboutkidsgi.org/

Talking about GI DisordersDo you have a digestive health question that you would like to talk about? Send your questions to ClinicalCorner@iffgd.org.

How do I know if my child really has an upset stomach, or is trying to avoid going to school?

http://www.aboutkidsgi.org/site/about-gi-health-in-kids/talking-about-gi-disorders
I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.

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