Out of control IBS

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honestwoman50
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Date Joined May 2009
Total Posts : 833
   Posted 10/24/2009 11:15 AM (GMT -7)   
Hello Everyone,
 
     Well my father passed away on Oct 14, and my IBS is way out of control.  I have had really bad weeks and last night almost went to the hospital.  My intestines are so swollen and painful and tons of trapped air.  Last night it got so bad that I was constantly burping to try to get the air out as I was so full it made me throw up a few times.  I have been really bad with this and my abdomen is so swollen and will not go down.  I feel as if there is a war going on in my intestines with all the pain and cramping and nausia.  My intestines spasm as if I am being kicked by a baby, you can actually see it through my shirt as if a alien is living inside me.
 
I am very depressed and sick and really cannot take it much longer.  I have a appt with the specialist 3 hrs away on the 17 of next month.  I hope that they can help me as I am about to lose it.  So sick with this crap I just want to give up because I never have any relief any more.  Hope that you are all doing better..
 
Leslie redface
Leslie King


shawn12
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Date Joined Jul 2004
Total Posts : 1293
   Posted 10/24/2009 11:49 AM (GMT -7)   
Leslie, sorry to hear about your father passing away, that can make it tough for sure, mine passed away about 3 years ago.

There are major connections to our mental states and stressors and IBS and our intestines.

Gut Feelings: The Mind-Body Connection

http://www.ahealthyme.com/topic/mindbodygut

http://ibs.about.com/od/symptomsofib1/a/braingut.htm

There are things to try to get relief.

Also depression and pain usally coexist as parts of the brain process both.

What are you doing to deal with the stress and what medications are you on? How about what your eating also?

You should read through these sites.

http://www.hopkins-gi.org/GDL_Disease.aspx?CurrentUDV=31&GDL_Disease_id=F5E21D6B-A88E-44F9-900F-7E295C50D38B&GDL_DC_id=D03119D7-57A3-4890-A717-CF1E7426C8BA

http://www.aboutibs.org/

http://www.med.unc.edu/medicine/fgidc/public_education_materials.htm
I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.


honestwoman50
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Date Joined May 2009
Total Posts : 833
   Posted 10/24/2009 2:03 PM (GMT -7)   
shawn12
Thank you right now I am on a starvation diet, just plain chicken noodle soup, Campbells...My doc put me on Buspar for anxiety.  I will read up on what you sent me thank you for you time.  Leslie
Leslie King


Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 10/24/2009 6:58 PM (GMT -7)   
Leslie - I am so very sorry to hear how awful you physically feel right now, not to mention emotionally too. I clearly understand why your GI tract is a mess right now. There have been a few times my gut has become so irritated and swollen, it seems as if there is a baby moving around in there. Like you, I've seen and felt the heaving, the rolling, the manipulating going on. A real tug of war - inside.

To those without IBS, they would tell you not to starve yourself right now.

But when my gut becomes like yours is right now, it does seem to help when I go light on solids. Just make sure you are taking in enough liquids though. Give your tract a chance to settle down and become less swollen and irritated.

Have you tried just eating white rice? Just a thought. Or the 4 foods for the brat diet - bananas, white rice, applesauce and toast. Even just one of them. Or the chicken soup too. Yes there is something very soothing about simple Campbell's Chicken Noodle soup isn't there?

Wish I could help you more but just wanted to say I hope you find relief soon and your gut calms down.
- Rectal Cancer 4/29/99, Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, temporary colostomy, reversed 8 weeks later)
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Takes Colace 50 mg each evening


honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 10/25/2009 9:50 AM (GMT -7)   
Marsky,  thank you.  There are so many foods that I cannot eat, so I am sticking to the soup, crackers, banannas kill me .  I find that I can eat a sm. amt of canned peaches, so its jello, toast , soup, and peaches for the moment.  This morning my guts have calmed down just a bit so I am thankful for that.  But forgot and drank coffee so now it is cramping up, oh well.
Have to run to the Airport today to take my sis there as she flew here for the funeral.  Got to run and thanks for your input..God Bless  Leslie nono
Leslie King


Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 10/25/2009 10:41 AM (GMT -7)   
Aww Leslie, this is a trying time I'm sure. When my father-in-law died I could not turn around a bad phase I get into. I tried everything. I had to cut early the last remaining post-funeral luncheon. I should have stayed much longer but since my husband and I had two cars there anyway, I left early. Hopefully no one thought it was odd but I had fulfilled my obligations and this was going into the evening. I know that many people remained for 2 or 3 more hours but I just could not stay. I had to keep running upstairs and using my sister-in-law's master bedroom bathroom. In the midst of conversations, I'd have to say - excuse me, and hurry off. Oh how I wished I had a normal gut that day. But like you, mine would not cooperate, at all.

My mother has a medical crisis in August, she was in the hospital for a month but is thankfully doing very, very well. My brothers and I had to read thru her paperwork. She has made me her executrix. Oh how I wished she hadn't done that. But I will someone get thru everything when this time comes someday too, hopefully, a long, long ways off. But why is that in family emergencies, our guts revolt the most? I know nerves are the culprit. My nerves were shot when my mom was in the hospital. I was living on bananas back then. Because I knew they'd agree with me the most.

Well, you hang in there dear and we'll all keep you in our prayers. I'm so, so sorry for your loss Leslie.

Hugs....Mary
- Rectal Cancer 4/29/99, Stage I, no treatment necessary
(5 hour colon resection: 90% sigmoid removed, 15 inches of colon removed, gall bladder removed, temporary colostomy, reversed 8 weeks later)
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Takes Colace 50 mg each evening


honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 10/25/2009 8:39 PM (GMT -7)   
Marsky,  thank you, yes stress makes everything worse.  I ate a little something today not much but my bowels will not move due to air holding everything up.  So in the morning I will drink some Mag. Citricate, to see if I can get my guts to back off.  Well had a long day so I will say goodnight.  My prayers are with you also.  Leslie
Leslie King


SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 10/26/2009 8:19 AM (GMT -7)   
I have IBS & had diahreah for years til I lost 50 lbs & had a Colonoscopy then was dx.I just watch what I eat,NO greasy foods period,not even corn though lately I can eat it without problems.....So Far So Good.........
SnowyLynne


gutastrophe
Regular Member


Date Joined Jul 2007
Total Posts : 319
   Posted 10/26/2009 9:34 AM (GMT -7)   
I'm guessing, from what you've described, that you're not having regular and thorough bm's? For me, that guarantees suffering in all the same ways you listed. When I get that bad, I do a mag cit "purge". At least I know I'll have relief for a day or two.

You're symptoms sound so much like mine and for me, it's a daily struggle to keep things moving in order to avoid all those nasty problems that go hand in hand with IBS C. I know it's been recommended to you before, but I'd like to again reiterate the effectiveness of belly massage. Getting in there with deep massage and really working those gas pockets can sometimes release not only the gas, but the impaction.

You're diet would absolutely KILL me. As much as it might turn you off right now, eating nothing but broth or noodles or white rice is only going to bind you more. If you can't stomach grains, you may want to try some cooked greens (collard, kale, mustard, spinach) or some baked winter squash (sweet potato, butternut, etc). They will deliver some necessary fiber without the "fireworks".

tmarie01
New Member


Date Joined Oct 2009
Total Posts : 1
   Posted 10/28/2009 8:33 AM (GMT -7)   
Hi Leslie,

I have same problems with gas and nausea. I take Bentyl to help with pain and spasm and Klonipin (Spelling is incorrect) to relax the intestines. In no time - I am feeling better and releasing gas. Talk to your doc about it and it can't hurt to try especially during stressfull times.

Hope this helps and I am sorry to hear about the loss of your father.

shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 10/28/2009 10:30 AM (GMT -7)   
Honestwomen50, it can be a problem NOT eating enough casuing pain, because of how the bowel works. If it goes long periods of time without food or very small amounts and then you eat, due to the way the bowel works that can increase pain in IBS. In a way its stressing the colon. Another issue in IBS is an altered gastro colonic responce, which I will post some about.

How fast after you eat are you in pain?
I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.


honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 10/28/2009 12:20 PM (GMT -7)   
Thanks so much
Leslie King


shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 10/28/2009 12:25 PM (GMT -7)   
Just curious about this aspect

How fast after you eat are you in pain? Within 15 minutes, a half hour an hour?
I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.


honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 10/28/2009 12:27 PM (GMT -7)   
shawn, as soon as food hits my stomach I can feel it starting to spasam
Leslie King


shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 10/29/2009 9:57 AM (GMT -7)   
honestwoman50

Do you get d when this happens or just pain or both.

Certain foods can trigger IBS, but very importantly in IBS.

Have you ever heard of the gastro colonic reflex?

It is altered in IBS, so just the act of eating can bring on symptoms in 15 minutes. This is not from a specific food in general, but like I said the act of eating. The stomach sends a signal to the large colon food is on the way and this triggers the lower colon. The amount of calories in a meal, especially fats are big triggers to this responce. Also like I mentioned above this can get worse from not eating and then eating, as its more a physical stressor to the bowel.

In the middle of this page are two graphs of a normal person sigmoid colon 15 minutes after they eat and an IBSers sigmoid colon. You will see the IBSers is off the chart.


Not usre if this will work

a normal person after eating the sigmoid colon

VIEW IMAGE

an IBS 15 minutes after eating and the sigmoid colon.

VIEW IMAGE

If these images didn't work here is the link.

http://www.webpotential.com/falcon/uploadpic/

---------------------------------------------

"Postprandial abdominal discomfort may be attributed to an exaggerated gastro-colonic reflex (the colonic contractile response to a meal), the presence of colonic high amplitude-propagated contractions, increased intestinal sensitivity (visceral hyperalgesia), or a combination of these. Fat ingestion may exaggerate hypersensitivity."

http://www.merck.com/mmpe/sec02/ch021666/ch021666a.html

---------------------------------------------

Basically what this means is the act of eating itself can cause a problem. The stomach sends a signal to the large intestines food is on the way and the lower intestines can overreact, casuing d. Part of this reaction, a big part actually is the amount of calories in the meal and fat. Fat is a big trigger to the reflex.

------------------------------------------- This is one reason why a lot of IBS sufferers sometimes think that a particular food is the culprit to symptoms.

"gastrocolic reflex

This is the reflex system that tells the colon to empty when food hits the stomach, or even in anticipation of a meal. This is why baby poops every time he nurses. It is also why kids with constipation complain of their belly aches right around mealtime. "

"Medical Dictionary

Definition: increase of muscle movement in the gastrointestinal tract when food enters an empty stomach; may cause the urge to have a bowel movement right after eating. "

In IBS this reflex is exaggerated. -------------------------------------------------------

"Why Symptoms Occur During normal digestion, foods are broken down in the stomach and small intestine so that their nutrients can be absorbed into the body. Undigested or partially digested portions -- mostly in liquid form -- then enter the large intestine colon where most of the water is reabsorbed. Movement through the intestines results from peristalsis, a wavelike contraction of muscles in the intestinal walls that propel their contents forward. When all is well, the end result is stool that is solid but soft enough to be excreted easily.

Diet, eating habits, stress, and various environmental factors can disrupt the normal function of the intestines. If the intestines squeeze too hard or not enough, the partially digested food can travel too rapidly or too slowly through the digestive system. Movement that is too fast will result in diarrhea, because not enough water is reabsorbed. Movement that is too slow can result in constipation, because too much water is absorbed. Overly hard squeezing (spasm) can result in cramps. However, the diarrhea of IBS can also occur without pain.

IBS symptoms occur after eating because of the gastrocolic reflex -- increased movement of the intestinal contents in response to food entering the stomach. The strength of this reflex can be influenced by the volume and temperature of the food and the number of calories. Large meals particularly high-fat meals and large amounts of cold beverages can trigger IBS attacks."


"Physiological Differences in IBS Patient Subgroups The gastrocolic reflex, a partly neurogenic process, refers to an increase in colonic motility induced by feeding. Postprandial deviations from the normal motility patterns lead to altered bowel habits. For example, a spastic colon eg, diarrhea-predominant IBS D-IBS is characterized by an exaggerated motility response to food intake. This exaggerated postprandial response also occurs in response to intraluminal distention or to an injection of cholecystokinin CCK -- a hormone released in the duodenum in patients with IBS."

http://www.medscape.com/viewarticle/418586_2

An empty colon also retains more gas and the colon can contract anywhere along the lenght of it, which then traps the gas and causes pressure and that causes more pain. Picture a long ballon tied in certain places along its length and the air trapped.

This is important aspects of foods and eatring in IBS and a lot of IBSers have it.

There are a lot of ways to work on all this.
I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.


honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 10/29/2009 10:39 AM (GMT -7)   
Shawn12,   When I first got IBS in 93 I use to have D, but now I just cant go because of the air that holds everything up.  I am really sick today and I do enemas every other day to get the air out so stuff will move.  But nothing has been moving in over a week so I will try what I call my intervention this morning and if nothing happens I am heading to the ER.  I get illisus, probably spelled wrong but they are gas loops, and I get them often.  So when I get those I spend like 3 day in the hospital with a NG tube in my nose.
Thanks for the other information and will try to get it after I do my thing this morning.  Hope you are doing well.  Leslie
Leslie King


shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 10/30/2009 7:54 PM (GMT -7)   
Hope you feel better soon Leslie. This is a tough condition for sure.
I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.


honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 10/30/2009 8:48 PM (GMT -7)   
SHAWN12, god, this is really a struggles isnt it.  Every day is such a challange....had  a couple of not so bad days...wow, take care...Leslie
Leslie King


jt80
Regular Member


Date Joined Sep 2007
Total Posts : 333
   Posted 11/21/2009 8:29 PM (GMT -7)   
Since being away when I was in the hospital I never read this post about your dad passing away I was in the hospital at the time.I'm so sorry for your loss and sorry that you've been having a difficult time with your IBS.I hoped things got better for you I know how stress can make things worse,I will keep you in my prayers things like that in life are so unexpected.I send good and warm thoughts your way always take care of yourself.

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 11/21/2009 8:34 PM (GMT -7)   
JT80, wow thanks so much yes its been really hard.  I finally got to see my specialist and they are doing the Sitz Marker test as we speak, I swallowed the pill thurs. and get xrays on tues and that will tell them a lot more.  Plus just found out I have to see a nurologist I am having sezieures....blacked out and ended up in the hospital.  Then mom fell and broke her foot, gosh always something, ya know.  Why were you in the hospital??  Hope you are well my friend.
 
Leslie
Leslie King


Angelios
New Member


Date Joined Dec 2009
Total Posts : 2
   Posted 12/17/2009 7:23 PM (GMT -7)   
Hi Honestwoman.
 
 I am in simmilar circumstance. I have post infectious IBS , have since sept 2009  after a spree of Reccurent C Diff Infections from Aprill to september.... Nothing seems to work except Tridural  (that is the canadian name for it) Very good for Ibs pain.
 
Unfortunately for me it causes sweating and hot flashes. I had to be put back on codine .
 
  If Anyone has any suggestions that might help I am open too them. I have tried the whole enchelada.  Fibre makes it worse and gassy , it flips back and forth from Diarriaha to Constipation, Constant 24 hour pain.  Right now there is no diareah but there is constant pain. I find that if I used a heating blanket on my abdomen it lessens alot , but is still constant.
 
 I am seeing a naturopath tomorrow.  Some claim Iberogahst works for them , it makes me sick because I am allergic to something in it.  Probiotics are really not helpfull at this point I find they make the gut pain magnify. VSL-3, etc etc , all winds up being rather expensive and more of a frustration than a help.
 
 
  I recently was put on over 2000 mg's of Vitamin d and I find my energy level is comming back but the gut pain won't leave. This was done because over 90% of the general public does not get the amounts of vitamin d they should during the winter and fall months due to lack of sun exposure.
 
 The emotional turbulance seems to magnigfy it and gets worse as we go forward. I cant do the things I love to do as the pain is too intense and the drugs are not permitting me too, I am feeling distanced from friends and relatives , I don't have very many days in a month where I can get things done so when I do I try to get as much as possible done. I worry about my relationship, we have been good for 8 years but when one of you is sick all the time it takes it's toll on you and the other person.
 
 I am exploring Accupuncture and a few other things if I find anything out I will let you know . Diecetol is garbage, as is Buscopam.
 
 Apparently 2 drugs that were used for the treatment of IBS were recently removed from the market as they were killing people. ( Not sure what they were ) I recently had to be put on Celexa for IBS as the sections of the gut involved are also ceretonin receptor areas and that is causing some of the depression I experience.
 
 

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 12/17/2009 10:50 PM (GMT -7)   
Angelious,  God I know how you feel and it is a daily battle.  I just wanted to let you know that Probiotics , were a living hell for me.  I am lactose intollerant, and the regular and the non lactaid ones did not work for me.  I have bought so many different thing to try get relief in any way has just about broke me.  For me vitamins are also a trigger for me, ibprophine, weird stuff.
 
I just wish you the best of luck.  Having a really bad night, so I cant even sit here and type.
Leslie
Leslie King


jt80
Regular Member


Date Joined Sep 2007
Total Posts : 333
   Posted 12/18/2009 11:26 AM (GMT -7)   
Hi honestwoman,I was in the hospital for manic depression and anxiety cause my IBS symptoms were really bad things were going downhill for me.I ended up in the hospital to get better which I know God was watching over me.Now things are extremely better got things undercontrol on new medications for my mental state and IBS been feeling better.IBS is a ***** and I understand how depressed you can get cause I got really depressed and just wanted to give up on life always thinking things are never going to get better.But they have and I'm so thankful to God for the improvement and progress I've made in both issues.So hang in there honestwoman it will get better believe me just have faith and ask for whatever you believe in to give you strength to get through.And watch things will change keep praying and fighting things do get better the Lord does not want us to be in pain sadness or to agonize in our lives.Just ask him to help and he will he does not give to much that you can not bare.So I'm keeping you as always in my prayers and wishing you good stomach and digesitve health good thoughts always you way take care God bless!:-)

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 12/18/2009 1:31 PM (GMT -7)   
jt80,  Glad to hear that your doing better.  I have been having one of the worst weeks and really a bad month.  Had to drink some Mag . Citriate today, yuck, its the 3 rd time this month.   Go for my anal/recaal memometer test up in Portland on monday, and still waiting for the second results of my EEG...  I hate it when I cant even eat my homemade soup, swollen like a pregnant woman, cramping, nausia, the whole thing.  But I am so happy to hear tht you are doing much better....Happy Holidays to you my friend...Leslie
Leslie King


jt80
Regular Member


Date Joined Sep 2007
Total Posts : 333
   Posted 12/18/2009 7:01 PM (GMT -7)   
aaw your such a sweetheart Happy Holidays to you too feel better. :-)
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