Brutal Week Of Pain

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smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 11/1/2009 9:34 AM (GMT -6)   
This past week was BRUTAL!! The pain started Monday night after supper. It started on my right side and within 30 minutes I was doubled over and feeling like I was going to pass out with the pain. I usually get pain on my right side with IBS and then it goes around to the left side but this time it stayed on my right side. UNTIL, Tuesday afternoon and then it switched over to my left side and it just went down hill from there. I couldn't poop and every time I would get the pain it would come with lots of pressure in my bottom. I would try and I would be doubled over and the sweat was dripping off of me. This went on from Monday night to Thursday. Finally Wed. night I couldn't take the pain anymore and my husband took me out to Emerg. Once there the doctor told me there was nothing to do but go home and eat lots of fiber. I was devastated to know that I had to go home and suffer, exactly what I had been doing since Monday night.

Thursday morning I finally worked up the nerve to eat a bowl of cereal with Pyssllum(not sure how to spell it without getting up and looking at the box) Fiber in it and guess what? It helped, the pain slowed down, I was able to have a bm and it went from bad to better as the day went on.

I still have pain and my bm's are not back to normal for me yet but at least the doubling over pain has gone away and I hope this doesn't happen for a long time again if ever!

How do you deal with a flare up like this? I have gone two years without one this bad, the doctor told us at emerg that my bowels were shrinking and that is why I had so much pain.

I need to find some foods that are high in fiber that won't trigger these episodes as I find that lots of foods set off flares for me.

Any advice?
Thanks so much
Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA,IBS (Irritable Bowel Syndrome) Acid Reflux,
Taking Plaquenell, Folic Acid, Synthroid,Nexium, Singulair,extra Strength tylenol when needed,and Zytram.


shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 11/1/2009 12:49 PM (GMT -6)   
I get severe pain and have had this for 39 years, the best thing I have done for the pain seriously is gut directed hypnotherapy which is one of the most effetive treatments out there for IBS statistically.

about.com - Consistently Successful
Research has consistently shown hypnotherapy to be an effective form of treatment for many individuals who suffer from IBS. Treatment effects include:

Decrease in abdominal pain

Reduction in diarrhea episodes

Reduction of chronic constipation

Decrease in visceral hypersensitivity

Positive effect on motility

Improved quality of life

Reduced doctor visits

Reduced use of medication

Decrease in depression and anxiety

Results are maintained long after treatment ends


about.com, May 5th 2008


WebMD - All Central Symptoms Improve
"All central IBS symptoms improved substantially from treatment in both studies. In conclusion, hypnosis improves IBS symptoms through reductions in psychological distress and somatization. Improvements were unrelated to changes in the physiological parameters measured


In a British study of 204 patients in which more than two-thirds of them were initially helped by hypnotherapy, 81 percent of those maintained the improvement up to five years after the treatment. Learning to practice stress-reduction and relaxation techniques can be as helpful as learning which foods to avoid.

New York Times, Sep 2nd 2008

So, researchers have recently taken an entirely new approach, focusing more on the head than on the plumbing. Studies have shown that mind-body techniques such as cognitive-behavioral therapy and hypnosis are effective at reducing the symptoms of irritable bowel syndrome, which causes pain and altered bowel movements

USnews.com

If you have any questions let me know.
I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.


jamies.mom
Regular Member


Date Joined Dec 2006
Total Posts : 53
   Posted 11/7/2009 2:20 PM (GMT -6)   
I have flares like this. They got so bad, with a lot of bleeding that I was misdiagnosed with colitis at first. I used to get them about every three or four months, and it felt like my insides had turned to goo and I was dying. Chills, hot flashes, sweating and so much pain I thought I would pass out from it. At one point I was in a public restroom in a stall with almost all of my clothes off because of the hot flashes. A flare could be over in an evening, or last for days. I just came out of almost two years without having any bad flare like that, but now have had a few in the past two months that lasted for an evening each. I know to avoid soft serve ice cream, and to keep coffee to one a day. I know there are other triggers I am sure, but I have yet to find them all. Maybe spinach. I think part of the reason I am having fewer flares is that I am learning how to use my triggers to work for me. If I have not had a BM for a few days, then I will play a computer game and have an extra cup of coffee, and sure enough nine times out of ten I will go right away and get relief.
But when a bad flare does occur, I wait until the D stops, and then I take a hydromorphine pill to deal with the lingering spasms and pain. I am worried though that I Will not be able to get more of this miracle pill. It was given to me when it was thought I had colitis, and now that it is known to be "just" IBS, I wonder if they will stop. I cringe at the thought, because literally nothing else can touch the pain. I spoke to my GI about the severity of pain and the flares, and he just said that yeah, IBS can be like that. Sorry for the long post.
fibromyalgia, Irritable Bowel, restless legs, polycystic ovarian syndrome.


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 11/8/2009 6:27 PM (GMT -6)   
Hi Jamie's mom
 
I hear you about the hot flashes. Do you get nauseaus too when you are in a flare like this?
I have found that if I were to eat, say a granola bar for instance on an empty stomach, within 20 minutes I would be in agony , with severe cramping, pain and hard stool.
 
I was so discouraged when my husband took me to emerg this time and the doctor told me the same thing, that is how IBS can be . I knew that, all I was wanting was for the pain to go away. Now I am going to be extra careful in watching what I eat and what triggers a flare and what is safe to eat.
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA,IBS (Irritable Bowel Syndrome) Acid Reflux,
Taking Plaquenell, Folic Acid, Synthroid,Nexium, Singulair,extra Strength tylenol when needed,and Zytram.


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1645
   Posted 11/9/2009 8:30 AM (GMT -6)   
I've had a really bad week too with bad pain and sweats. I have IBS and IBD and I swear I don't know which is worse. I have to take 1/2 a loritab for the pain. After 20 years and lots of anti spasmodic meds that don't work, I had to go to this. Luckily, I don't have to take it every day. Antidepressants help me a lot. The side effects suck though. I have gained 50 pounds since I started taking them 10 years ago. zoloft seems to be the best for my colon but it does give me reflux and seems to be the worst for the weight gain. I'd like to try the new drug for fibromyalgia to see how that works.
diagnosed 1/09 with "diverticular colitis" ?? location: sigmoid colon
localized scleroderma & IBS, low thyroid,claritin, advair, singulair, lisinopril, progesterone, colazal, fish oil, synthroid, zoloft, wellbutrin, VSL#3 probiotic, Vit. D
Blood test positive for Crohn's via prometheus ibd serology panel
 


shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 11/9/2009 12:10 PM (GMT -6)   
One thing is you don't want to take narcotics for IBS, except occasionlly if its really bad under a doctors supervision, because long term it can make the pain much worse, by lowering the pain thresholds of nerves in the gut.

The Narcotic Bowel Syndrome: Clinical Features, Pathophysiology and Management

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2074872/

If your getting symptoms right after you eat, its from the act of eating and not the food itself. This is part of the gastro-colonic responce.

"Dr. Drossman: Shawn - eating causes stretching of the stomach when the stomach strecthes it releases hormones or peptides that stimulate the lower bowel. Because people with IBS overrespond to stimuli (like peptide release) you get an exaggerated motility response and pain, so smaller meals reduce this "

The the gastro colonic reflex?

It is altered in IBS, so just the act of eating can bring on symptoms in 15 minutes. This is not from a specific food in general, but like I said the act of eating.

In the middle of this page are two graphs of a normal person sigmoid colon 15 minutes after they eat and an IBSers sigmoid colon. You will see the IBSers is off the chart.

http://www.webpotential.com/falcon/uploadpic/

"Postprandial abdominal discomfort may be attributed to an exaggerated gastro-colonic reflex (the colonic contractile response to a meal), the presence of colonic high amplitude-propagated contractions, increased intestinal sensitivity (visceral hyperalgesia), or a combination of these. Fat ingestion may exaggerate hypersensitivity."

http://www.merck.com/mmpe/sec02/ch021666/ch021666a.html

Basically what this means is the act of eating itself can cause a problem. The stomach sends a signal to the large intestines food is on the way and the lower intestines can overreact, casuing d. Part of this reaction, a big part actually is the amount of calories in the meal and fat. Fat is a big trigger to the reflex.

-------------------------------------------
This is one reason why a lot of IBS sufferers sometimes think that a particular food is the culprit to symptoms.

"gastrocolic reflex

This is the reflex system that tells the colon to empty when food hits the stomach, or even in anticipation of a meal. This is why baby poops every time he nurses. It is also why kids with constipation complain of their belly aches right around mealtime. "

"Medical Dictionary

Definition: increase of muscle movement in the gastrointestinal tract when food enters an empty stomach; may cause the urge to have a bowel movement right after eating. "

In IBS this reflex is exaggerated. -------------------------------------------------------

"Why Symptoms Occur During normal digestion, foods are broken down in the stomach and small intestine so that their nutrients can be absorbed into the body. Undigested or partially digested portions -- mostly in liquid form -- then enter the large intestine colon where most of the water is reabsorbed. Movement through the intestines results from peristalsis, a wavelike contraction of muscles in the intestinal walls that propel their contents forward. When all is well, the end result is stool that is solid but soft enough to be excreted easily.

Diet, eating habits, stress, and various environmental factors can disrupt the normal function of the intestines. If the intestines squeeze too hard or not enough, the partially digested food can travel too rapidly or too slowly through the digestive system. Movement that is too fast will result in diarrhea, because not enough water is reabsorbed. Movement that is too slow can result in constipation, because too much water is absorbed. Overly hard squeezing (spasm) can result in cramps. However, the diarrhea of IBS can also occur without pain.

IBS symptoms occur after eating because of the gastrocolic reflex -- increased movement of the intestinal contents in response to food entering the stomach. The strength of this reflex can be influenced by the volume and temperature of the food and the number of calories. Large meals particularly high-fat meals and large amounts of cold beverages can trigger IBS attacks."



also it could help to limit carbohydrate intake.

IBS Diet

http://www.aboutibs.org/site/about-ibs/management/ibs-diet/

IBS and foods

http://www.ibshealth.com/ibsfoods2.htm

http://www.ibshealth.com/ibsfoods.htm

One thing about the hypnotherapy for IBS and pain is that its very safe, natural and a comfortable form of treatment, you don't have to do anything but get comfortable and listen and can be used in combination with meds.

Why Consider Hypnosis Treatment for IBS?
by Olafur S. Palsson, Psy.D.


Hypnosis is only one of several approaches to treating irritable bowel syndrome and may not be the most suitable option for all patients (click here for discussion of treatment options for IBS). However, hypnosis treatment has some advantages which makes it an attractive option for many IBS sufferers with chronic and severe symptoms:

- It is one of the most successful treatment approaches for chronic IBS. The response rate to treatment is 80% and better in most published studies to date.

- The treatment often helps individuals who have failed to get improvements with other methods (see for example: Whorwell et al., 1984, 1987; Palsson et al., 1997, 2000).

- It is a uniquely comfortable form of treatment; relaxing, easy and generally enjoyable.

- It utilizes the healing power of the person's own mind, and is generally completely without negative side effects.

- The treatment sometimes results in improvement in other symptoms or problems such as migraine or tension headaches, along with the improvement in IBS symptoms.

- The beneficial effects of the treatment last long after the end of the course of treatment. According to research, individuals who improve from hypnosis treatment for IBS can generally look forward to years of reduced bowel symptoms.

http://ibshypnosis.com/whyhypnosis.html

You can do it from home or see a therapist, but its very important its gut-directed or gut specific and for IBS.

Some of the sweats, eye twiching, flashes, tense muslces, nausea, is part of the bodies reaction to the stress of it all, both physically and mentally.

This is also worth reading.

IBS – Beyond the Bowel:
The Meaning of Co-existing Medical Problems

http://www.med.unc.edu/medicine/fgidc/ibs_beyond_the_bowel.pdf
I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.

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