What Are Your Symptoms?

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Nosilla73
Regular Member


Date Joined Dec 2009
Total Posts : 29
   Posted 12/27/2009 7:13 PM (GMT -7)   
Hi All,
 
Since 2001 have had weird "episodes". For the first five years it was mainly pelvic pain but seemed to be accompanied by gas and bloating. After five years my Gyno finally gave me a hysterectomy and I found out I had a painful disease in my uterus called adenomyosis. So I thought 2006 was the year I got my life back. Not so!
 
Six months after surgery I had a terrible pain in my right side and an intense  feeling to have a bowel movement and yet I did not need to go. I ended up in ER where they thought I had appendicitis. After a CT scan and some blood work they ruled out my appendix, gave me a pain shot and sent me home with instructions to go back to my doctor. These "episodes" kept happening every 1-5 months up until earlier this year when I finally gave in to my Gyno and took birth control pills because he thought possibly my ovaries (which was the only thing left after hyster) were acting up.
 
Ok, bear with me because I know so far it sound like I have only had female problems, but these painful side pains are ALWAYS accompanied by terrible gas, bloating, and nausea. For a year now I have been real sick. One cold or flu after another and these "episodes" of gas, nausea and bloating. This last episode started October 31 with alot of pain while having a bowel movement. Not because it was hard, but I could literally feel it moving through and it hurt when it got to the spot on my right side that had pain. The past 7 weeks I have lost 15 lbs, I am terribly nauseated ALL THE TIME, I get gas if I eat anything and periodically I get terrible right side pain (low). I have been to my primary doctor twice. First time she gave me antibiotics which didn't help, second time she referred me to my rheumatologist, my gyno,  and the gastroenterologist! She mentioned something about possible Crohn's but I don't think my symptoms are that severe. I have only had diahrrea three times in 7 weeks. I usually have a bowel movement every day, but sometimes it has mucus, or it is real soft. Sometimes it appears to be normal.
 
This is the worst "episode" I have ever had. I have never lost this much weight. I am weak and tired all the time. I am grateful I have been off work for the past week and have another week off because I work at a school or I would not be able to go. Sometimes my heart beats real fast and I get weak and out of breath. I am only 36 years old, I am not very overweight (maybe 15 lbs), I have no other health concerns, I do not take any medication aside from the birth control pills for my ovaries. I feel like I have been trapped inside this body that doesn't work properly at times for so long and I feel like I am going nuts. I have a colonoscopy scheduled for January 14. Does a colonoscopy show IBS? I thought my doctor said and IBS diagnosis is made only after ruling everything else out.
 
Over the course of three years I have completely eliminated caffeine, fast food, frozen food or any food with perservatives, I even went on a gluten free diet for a spell until the rheumatologist tested me and I was negative for Celiac Disease, I drink no soda. I have been on a meat free diet, a tofu only diet, a raw foods diet, low carb, and the list goes on and on and on. All in the attempts to make these "episodes" go away.
 
So I guess what I want to know is does anyone else struggle with these symptoms? How were you diagnosed?
 
Thanks for reading this long post and I cherish your input.

farcry
Regular Member


Date Joined Oct 2009
Total Posts : 25
   Posted 12/27/2009 11:15 PM (GMT -7)   
I have general abdominal pain that sometimes moves around, sometimes stays in one area along with gas. Sometimes have have flares where I get stomach cramps about an hour after eating along with loose stools or diarrhea. When I have those flares a BM makes me feel better. Sometime I also have bouts of constipation that may last as long as 10 days at the longest. Then sometimes I have no symptoms at all. It can vary from week to week but usually I have some combo of 1-2 of the above.

IBS is usually a diagnosis of exclusion. This means if after all the other tests, including colonoscopy, they've not found anything wrong with you then they will likely believe you have IBS. They should do a scope to check for IBD as well as other things. Other possible tests they might run are: small bowel follow through, pill cam and they have serology blood tests but those are controversial.

farcry
Regular Member


Date Joined Oct 2009
Total Posts : 25
   Posted 12/27/2009 11:31 PM (GMT -7)   
One more thing...Not that I'm stalking you or anything but I noticed you had a post in the Crohn's forum about your Boxer. First off, let me just say I'm very very sorry for your loss. As a dog owner myself I understand how hard it is. Secondly, and the reason for my #2 post is that a major stress like that could easily make IBS act up. Anyway, I truly hope you feel better.

chrissmi3th
New Member


Date Joined Dec 2009
Total Posts : 1
   Posted 12/28/2009 1:40 AM (GMT -7)   
Hi I have for a number of years suffered from similar problems. I have bloating / gas / pain/ diarrohea etc etc..
As you have said if they find after exploration nothing they say this is IBS . Oct 2008 I they tried to put the camera up there ... would not go so they ended up doing a  Barium enema.I found that because I have had various operation for other things over the years . Hysterectomy @28 , Rupture at 5! Apendix at 33 . I have Adhesions , the bowel is twisted & a bit of a mess  So I get pockets of Gunk! stuck in .there
 The reason I mention this is that after all this painful & unpleasant  trouble I found that the Picolax I had to take prior to the exam, must have cleaned out all the pockets & mucus and for the last 14 mths I have had no gas problems & with the use of Fiber Gell I have been Ok. Now the probs have started again & I plan to buy & Picolax & repeat the clean. Has anyone else found a similar cleaning helperd with there problem or have similar problems

Nosilla73
Regular Member


Date Joined Dec 2009
Total Posts : 29
   Posted 12/28/2009 7:23 AM (GMT -7)   
Thank you Farcry and Chrissmi3th for your input and comments!
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