JT80, I know exactly what you mean by the lonelyness and being home bound. I can relate on everything you said, except that my IBS has been way out of control for over a good month. I think I am going to ask my doc for some stress meds, but I know he wont do it...he does not like to give anyone anything that may be addictive and that can be abused.
I have had a man who has been trying to meet me for over a year, I met him online. Every week he asks me if he can come meet me on the weekend and I always say no because I never know if I am going to have a good day and I dont want to be all sick with all this and try to be up-beat and meet him, when I am miserable. I am surprised that he still wants to meet me after all this time, makes me feel terrible that I have not said yes yet.
I have been going through a lot of nights with no sleep, and that just makes me even more tired. It seems like I cannot win, my insurance has to approve the bio-feed back that I need to relax my muscle so I can poop...so I am hoping that the treatments work cuz I am at the end of my rope.
In the past couple of months, I am ashamed to say that at least one to two times a month, I get so tired of the pain and swelling, that I will drink just so I dont have to feel. So I know I cant do it, and dont want to get into a situation with drinking either. Don't think I will because I dont like the taste of beer or alcohol or how it makes me feel the day after, I was just wanting to get away from my misery.
But I am so happy for you that your doing better. Are you on any new meds that are helping you feel better?
Take care and I hope the new year brings us all relief.