Chronic Constipation - Colonic Inertia - Has any one had the surgery to remove the colon?

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kcshvr
New Member


Date Joined Feb 2010
Total Posts : 12
   Posted 2/2/2010 12:31 PM (GMT -7)   
Hi. I am new to these boards, but from reading other posts, I am sure someone can help. I have had constipation my whole life (now 37). A year ago I went on WW and that is when my MAJOR problems started. The high fiber diet was not good. I went over a month without a BM. Even the trusty old enema didn't work. Meds for colonoscopy finally cleared me out. Since last Feb I have had tons of tests. One GI dr said there was nothing wrong with me, probably IBS. My 2nd GI doc referred me to a general surgeon who did laproscopic surgery to find the source of my chronic pain. This pain landed me in the hospital 2 times. It is generally in my lower left abdomen and sometimes in my lower back, near my rectum. During that surgery he discovered that my colon was severely elongated and there was a loop (like a pretzel) near my sigmoid colon. He also said I was packed with clay like stool. Since then, I have had a barium enema, which was a disaster. The test took over 2 1/2 hrs because my colon was so long and there was another loop in it near the small bowel. My surgeon said my colon is 50% longer than it should be with these 2 loops in it. He ordered a sitz marker test, which I go for x-ray tomorrow, but said he is thinking that surgery, full colon removal and hook up small bowel to rectum) might help. He said 85% of the time people feel so much better.

My whole like I have had different medical problems. One dr said I had fibromyalgia (not sure about that). But I am thinking that not having regular BM's could be putting toxins into my system causing me to feel crappy (no pun intended!) I have tried every laxative imaginable. They seem to work initially, then stop. My pain isn't as bad as it was, but I am thinking I may be getting use to feeling horrible. The pain was intermittent and now is there all of the time. I am completely exhausted.

Can someone who has the same problem respond. I would like to know if you had surgery and how it went (good, bad or indifferent).

Thanks.
KC

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 2/2/2010 5:25 PM (GMT -7)   
My grandma had issues much like yours...she had surgery for it when I was 12 or so, so I don't really remember too many details. Anyway, I know she had loops and "extra" colon, just like you do. They removed a good chunk of her colon, but not the entire thing. As far as I know, she's much better off than she was beforehand.
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Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son
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answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1314
   Posted 2/3/2010 7:23 PM (GMT -7)   
Go to the ostomies board and go to total colectomy part 31 and you can talk to several women with colonic inertia that have had total colectomies. You can also go to search and read all the way back to total colectomy part 1 all the way to the current one, part 31. I have colonic inertia too and a pelvic floor dysfunction. Please join us there. Tracy

sickofbeingsick2
Regular Member


Date Joined Dec 2009
Total Posts : 56
   Posted 2/4/2010 12:22 AM (GMT -7)   
As Tracy told you please join us in "TOTAL COLECTOMY PART 31"  I just joined this group at the beginning of January and everyone there has been soooo helpful!
 
Your symptoms sound almost the same as mine. My sitz marker test showed that I had colonic ineritia (CI). I had surgery on January 7, 2010 and the surgeon attached my small intestine to my rectum. In my opinion I wish I had this surgery sooner. With that being said I had surgery only 4 weeks ago. I have had some pain to go through that has been very scary and I am still trying to figure all of it out. At least I am going to the bathroom!
 
I wasn't able to have all of the testing that I think I should of had done before having this surgery because my insurance ended on Jan. 29th. By the time I found the group of laides in "TOTAL COLECTOMY PART 31" my surgery was already scheduled and if I didn't have it done then I wouldn't have had any health insurance coverage. They pointed out to me that all tests relating to your whole digestive system need to be done prior to this surgery. There are some ladies that have had this surgery and are still struggling with constipation! I do not know of all of these tests, but if you join us at "TOTAL COLECTOMY PART 31" there are many woman who will be glad to help you!
 
I hope you join us!

Post Edited By Moderator (LanieG) : 2/8/2010 2:12:44 PM (GMT-7)


mercyme
Regular Member


Date Joined Feb 2005
Total Posts : 310
   Posted 2/12/2010 10:34 AM (GMT -7)   
I am suffering with chronic constipation also. I never knew that having a very long colon was causing me all these problems until I read your post. I had a colonoscopy several years ago, and the doctor did tell me that I had a very long colon for someone my size, but he left it at that. I have to usually take something to help me go. He told me that I probably dealt with IBS issues also. I deal with bloating, stomach pain, don't go to the bathroom for days, and sometimes don't feel like I ever finish going. I'm so glad I read this, but sure don't want to go through surgery. I've had several surgeries but nothing to do with the colon. Brain surgery, back surgery, female surgery, crainoplasty surgery..think there may be another couple in there too. lol So glad I have someone that I can talk to now about my problem. Will be checking back to see how you guys are doing.

Be Blessed,

Mercyme/Cindy

ginamia
New Member


Date Joined Mar 2011
Total Posts : 3
   Posted 3/7/2011 7:44 AM (GMT -7)   
can anyone out there help. I am suffering so bad with colonic inertia. The last gi dr said make friends with a transplant surgeon. I can't go. I have tried all meds. Mag citrate hlps very little. I won't leave garbage in my house for 5 days but not pooping for 21 isn't a problem by some dr's standards . I look 9 months pregnant and am often asked if I am. Can a colectomy help? Will this large area under my chest ever go down and can I lose weight. Has anyone out there had a colectomy and actually felt normal SO very sad.

shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 3/8/2011 3:05 PM (GMT -7)   
kcshvr

Just fyi

"But I am thinking that not having regular BM's could be putting toxins into my system causing me to feel crappy (no pun intended!)"

This is called autointoxification and it doesn't happen.


"Is it dangerous for stool to remain in the colon for a long time period? Can this cause other diseases?
This belief dates from ancient times. Now, colon cleansing (colonics) is promoted by some to maintain "colon health." However, there is no foundation in science for this theory."

http://iffgd.org/site/learning-center/clinical-corner/high-colonic

Not that consitpation s a comfortable thing at all. But, you don't have to worry about toxins from it. Other problems yes.

This is free

Constipation, Colonic Inertia, and Colonic Marker Studies

Constipation is a common symptom. Treatment for constipation often includes lifestyle modifications such as increasing fluid intake, consuming more fiber, and exercising regularly. At times, the symptom of constipation can represent serious medical illnesses such as hypothyroidism or diabetes. Structural abnormalities of the colon, like colonic strictures or other diseases of the colon or rectum, may also cause constipation. It is therefore advisable to report constipation to your physician if it is persistent or difficult to manage. Tests and treatment are described.

http://www.iffgd.org/store/viewproduct/159
IBS Forum Moderator


I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.

shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 3/8/2011 3:08 PM (GMT -7)   
Good resources on Constipation.

http://www.aboutconstipation.org/


COMPREHENSIVE OVERVIEW OF CONSTIPATION

http://www.med.unc.edu/ibs/files/educational-gi-handouts/Comprehensive%20Overview%20of%20Constipation.pdf



•Treatments for Constipation


http://www.med.unc.edu/ibs/files/educational-gi-handouts/Treatments%20for%20Constipation.pdf
IBS Forum Moderator


I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.

StephiePpen
New Member


Date Joined Mar 2011
Total Posts : 1
   Posted 3/28/2011 9:52 PM (GMT -7)   
Hello- I am 27 and was diagnosed with colonic inertia when I was 19. At 21 I was put on adderall xr. This is an extended release stimulate that is generally used for attention deficit disorder. Since taking it I have a bm every day that I take it. It starts with slight cramping about 45 minutes after taking it and then a perfect relief of a bm. This also helps with the gloating and gas pains though it wares off around 5 pm and I do still get a little bloating after dinner. It has saved my life buy I am wanting to get pregnant soon and not sure what I will do then. I also take miralax everyday. It does absolutely nothing but it makes my doctor happy so I do it. I also usually skip taking addrall about twice a week.
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