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sam851
New Member


Date Joined Mar 2010
Total Posts : 3
   Posted 3/21/2010 6:00 PM (GMT -7)   
I have had D for over 2 years. It is impossible to hold down a job. I have had to leave 3 jobs because of > 30 bouts a day, sometimes only 3. It all depends on if I eat or not. I went to a GI doc @ 18 mos ago, paid cash for a colonoscopy, and had 2 small polyps removed (no cancer), and was diagnosed with diverticulitis. The nice GI told me he refused to diagnose me with "a disease" because I wouldn't get insurance. He did put me on 2 Lialda a day, didn't do anything for me, after taking it for 6 months. I had to write to the drug co for free meds, but I made to much money and had to pay $86 for a 3 mo supply, good deal! I saw my reg doc a few months ago and had blood tests and stool test...$800., no blood, no mucus, no celiac dx. So what the heck? I have never had anyone tell me what I can and cannot eat. I eat all the time and drink plenty of fluids so I don't get dehydrated. My doc has now sent me a form to send to Proctor and Gamble for Asacol.
My stool is mostly water, with intermittent flecks of stool. I recognize foodstuffs that I have eaten, will probably never eat again, and recognize the fact that my body is not digesting the food. There has never been occult blood or pus/mucus, that I can recognize. The bm is ALWAYS so foul that I am humiliated beyond belief to allow others in my bathroom.
I am so tired. I feel so helpless and don't really know what to do anymore. I am so stressed out. I wonder, will I EVER have a real bowel movement again? I mean seriously. How can I hold down a job? Oh, thats right, no job, no insurance. This really sucks.
I am not sure why I am writing tonight other then the fact I have read tons of posts on IBS and UC and just needed a little hug. A virtual one.
Is there anyone else that cannot work? My doc wants me to apply for SSI disability but I refuse. I am not ready to throw in the towel. I WANT to work. I want to be normal.
Sorry, I had to get this down tonight.
 
No dx
Multiple healthfood "fixes", as in:
Acidophilus, Natures Sunshine Cramp Relief, NS Blood Build, NS Intestinal Soothe and Build, Align, Phazyme, multiple bottles of Loperimide. Also a bunch of other otc healthfood store stuff.
 
I am not dissing healthfood or the stores, not at all. I am just frustrated and am not mad at them or anyone at all. I am over 50 and female.
 
Thank you

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 3/25/2010 2:04 PM (GMT -7)   
Hi Sam. So sorry to read you are struggling so much. I wish I had answers for you but I'll do my part in bumping up this topic so others see it. Hopefully you'll receive replies. Your topic was becoming buried and I had hoped by now someone had advice for you.
- Rectal CA 4/29/99, Stage I, 90% sigmoid/15" of colon/GB removed, temporary colostomy, reversed 6-26-99
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Colace 50 mg each evening


mlopez
New Member


Date Joined Mar 2010
Total Posts : 5
   Posted 3/31/2010 5:35 AM (GMT -7)   
Hi Sam,

I don't know if this will help but you might like to look at this site: www.shepherdworks.com.au. I've been recently diagnosed with fructose malabsorption. I've only been on the diet about a week, but I'm already seeing an improvement in symptoms. I only get watery stools every few weeks so my condition is obviously nothing compared to what you are going through, but I thought I'd post this in the hope that it can be of some help to you.

Regards,
:-)

sam851
New Member


Date Joined Mar 2010
Total Posts : 3
   Posted 3/31/2010 6:22 AM (GMT -7)   
Isn't it weird, the different things our bodies go through? I am so greatful for any information or ideas. I am going to check that site out right now.
 
I was, and am, feeling so helpless and hopeless. I do appreciate anything! Thank you so much, and have a great day!
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