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New Member

Date Joined Sep 2005
Total Posts : 5
   Posted 4/25/2010 11:14 AM (GMT -6)   
I have suffered from ibs for ten years now and I had my ups and downs. It's been hard for me to keep a job due to the fact that ibs can interfere with a person's daily activities. I wish that normal people would understand how hard it is and embarrasing to deal with ibs on a daily basis. I cannot stand ignorant people who instead of learning about ibs often think that it's all in your head. But I often tell myself that you cannot blame people for been ignorant about the subject and I know that if they were in my shoes they wouldn't be able to deal with ibs. I do not wish ibs on anyone, but some times i think that some people deseve it because they would then understand what you are going thru and know how hard it is to deal witn ibs on a daily basis. I ask god for patience and to allow me to deal with the anger that I sometimes feel inside of me when dealing with ignorant people. I now would like to thanks everyone who took the time to read this message because it is the only way that I can vent my frustration.

Regular Member

Date Joined Nov 2008
Total Posts : 360
   Posted 4/27/2010 8:55 AM (GMT -6)   
I can empathize with you completely. I am 60 and having a rough time with IBS, Colitis, and needing to be on a gluten and dairy free diet and have arthritis. *sigh* People think it is all in my head and can't understand why I eat "weird" things instead of fast foods. The staff at this school delight when we get donuts, treats, burgers, fries and all kinds of goodies. I pull out my gluten free pretzels and try to avoid everyone eating all the foods I crave.

People wave food in front of my face, or insist on telling me how yummy their loaded pizza is. I have been told I should drink aloe juice or eat coconut, or munch on sunflower seeds (this one nearly killed me), or buy some potion over the Internet, do yoga, sleep with a sound machine.

I can't eat what others eat. I can't work like others work. I can't play like others play. I can't go to restaurants like others can. Thankfully I have a wonderful husband who is very supportive. He and I eat our own dinners for the most part. Breakfast and lunches are at work for me.

I ask God for the same patience and calmness as you do. Most days I can handle it... days like today... when I feel so yucky... I can't.
Presently on: 600 mg. Remicade every 5 weeks
                   Venofer infusion every 5 weeks
                   B12 every 5 weeks              
                   12 Asacol daily
                   Zofran as needed
Dealing with Colitis since 2003, Gastro-Paresis, Reflux, IBS, GERD and Gluten and Dairy Intolerance and last but certainly not least - Arthritis.  Am officially a senior citizen - how lovely :P
"Food is in my dreams and in my nightmares!"

New Member

Date Joined Apr 2010
Total Posts : 3
   Posted 4/27/2010 10:10 AM (GMT -6)   
Does IBS really get that bad? I am 17, and have had it for about two or three years, and I just deal with a lot of pain, and constant diarrhea. I try to not eat th greasy foods and eat fiber, but being 17 and in a poor family, sometimes fast food is the only option. I am sorry for both of you. I understand your frustration. I wish people at school, including the staff, would be a little more understanding...

Veteran Member

Date Joined May 2009
Total Posts : 833
   Posted 5/5/2010 2:30 PM (GMT -6)   
  Yes IBS is really that bad.  Its terrible and it takes control of your whole life and affects all aspects of it.  I thought I had IBS till I did research and found out that my colon was not working at all. So had it removed and now I am well, guess all the IBS symptoms were just from my colon because I no longer have those problems.
Gosh your so young to deal with this, I shall pray for you....
Leslie King
  1984 Tubligation  1992 Diagnosed with Thyroid tumor    
1993 Gallbladder Removed  1997 Hysterectomy  1998 Carpol Tunnel 
 1999 Spinal Cord Surgery for a Anacroid Syst
2001 Lower Lumbar Fusion L4-5  
2003 Sigmoid Colon Resection
 2006 Right Knee Replacement 2005 Breast Reduction
 2008 RE-did the Lower Lumbar Fusion/ lamanoctomy
2010 DX: colonic Inertia/ Pelvic Floor Disorder
2010 Total Colectomy ABD W/O proctectomy; w/Ileosto

New Member

Date Joined Apr 2010
Total Posts : 3
   Posted 5/5/2010 2:55 PM (GMT -6)   
Thanks Les. It's really bad currently and it sucks, becuase we graduate soon, and I have to keep  running to the bathroom...    I wish there was some way to stop it,  or cure it.   Arg.  ~Squeekie

Veteran Member

Date Joined Jul 2007
Total Posts : 1956
   Posted 5/5/2010 9:52 PM (GMT -6)   
I have IBS-D symptoms because I had my lower colon removed. So I can relate. While I don't quite fit in with any one specific GI forum, I have found support here and just recently the UC forum. I tend to have internal swelling too so that's oh so fun - not.

Been at this for 11 years and it's been a process. I first figured out the diet I needed to be on, low residue for the most part. I strictly ate only foods on the diet for 2 full years. Then I began to tweak it a bit and sneak in more fruit, etc. But I'll never be able to go crazy with a high fiber diet. Unless I want to spend the day in the bathroom!

Early on I wanted to educate others about my situation. Why? I don't really know why! Maybe I was hoping they'd somehow understand and lend support. So I tried THAT approach for quite a while. Then after a few years of disappointments, I decided to give people very short versions of why I have so much trouble. That worked for a while too.

And now? They assume it's my stomach acting up and guess what? I allow them to think it's my stomach! Why? Because they don't really want to hear talk about colons, bm's, D, upheaval in the gut. They seem to stop after stomach. So there have been countless times I've not always felt well, I pat my stomach (which really is for my colon, he he) and they ask - aw, tummy upset? I just smile and nod.

They even like to give me advice. Their Aunt Betsy or Uncle Bob had an ulcer and here's what he tried. And it worked.

I listen intently, nod my head and thank them for my advice.

A therapist would tell me I'm doing myself a disservice by pretending or ignoring what is really going on with me. lol! To that, I say hey walk a day in my shoes. And be surrounded with people who can eat anything they want, when they want and then have one, normal dump a day. And not clog a toilet either.

So this is my approach - I deal with it, I do a lot of pretending on the outside - that growl, sure that means I'm just hungry. You and I know it's not hunger but non-IBSer's have no clue.

I used to want to give them a clue. No more.

Sorry if my post is blunt but it's taken me 11 years to reach this realization. I am definitely in that acceptance place. I accept the fact that I no longer have a normal colon. And make the best of it.

Oh but I have lousy, bad days. I come here when I do. Again, people with normal colons? They'll never, ever understand. Not in a million years. Heck, sometimes even GI docs and colorectal surgeons often do not even understand all that we go thru.

So stick around, vent, post and we'll listen. I'll always listen. And give you that virtual pat on the hand, as if to say - I know this sucks, big time, hang in there.
- Rectal CA 4/29/99, Stage I, 90% sigmoid/15" of colon/GB removed, temporary colostomy, reversed 6-26-99
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Colace 50 mg + Ultimate Flora Critical Care 50 Billion daily

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