H. Res 1309 - House Resolution for IBS

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shawn12
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   Posted 5/5/2010 11:57 AM (GMT -7)   
Passed on to me from the IFFGD
 

Hi Shawn,

As you may know we have been working for some time on Capitol Hill to raise awareness and increase research funding. Last Thursday (April 29) a Resolution we drafted was introduced in the U.S. House of Representatives in support of IBS and FGIDs research and awareness. Now we need everyone interested to write to their House Member and ask them to support H. Res. 1309. Details are on our web page at http://www.iffgd.org/site/advocacy/legislative-alerts/action#natlres. We'd appreciate it if you could help us spread the word.

I'm at DDW all week. Hope you are doing well.

Thanks,

Bill


I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.


Joan M
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Date Joined Jan 2006
Total Posts : 1978
   Posted 5/8/2010 12:37 PM (GMT -7)   
I did it today, thanks Shawn...hopefully others have done it or will.

shawn12
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Date Joined Jul 2004
Total Posts : 1293
   Posted 5/9/2010 9:21 AM (GMT -7)   
Thank you Joan, I seriously hope others will do the same, so far I posted this on three IBS BB's and your the third person to do send one. I can't stress how really important this is and how much it can help, bring about awreness and more funding for research and help.

Please write to your representives, ITS REALLY IMPORTANT and you can make a difference.
I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.


shawn12
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Date Joined Jul 2004
Total Posts : 1293
   Posted 5/14/2010 10:34 AM (GMT -7)   
I hope others keep up the prssure on your representitives, so more arwareness and research is done for IBS. Again, This is really important and YOU& can make a difference.
I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.


shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 5/18/2010 10:40 AM (GMT -7)   
I hope 148 people have done this. Please keep the pressure up for more research and awareness through your representitives.
I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.


shawn12
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Date Joined Jul 2004
Total Posts : 1293
   Posted 6/6/2010 5:33 PM (GMT -7)   
bump, this is still very important to contact representives.
Forum Moderator
 
I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.


stepjrn
Regular Member


Date Joined Jun 2010
Total Posts : 40
   Posted 6/15/2010 10:33 AM (GMT -7)   
Hello to all. Shawn, you know me from other forums and chats, and some others may recognize me as well under a few different user names. I have had IBS for about 2 1/2 years. (probably low level PI, formerly pain predominant, sort of A/M, now not particularly anything predominant, but  many GI and related non-GI symptoms daily no matter what I've done, which is almost everything reputable currently in existence.)
 
Anyway, I've browsed here occasionally but decided to register and post today to bump up this thread for more visibility and add to Shawn's comments. He is right, it really is very important for those of us with IBS and people without IBS who support us to speak out. As a person with many years of personal and professional experience pre-IBS in health and disability advocacy and related issues,  I can say that IBS has a lot less in terms of almost everything compared to other common conditions, and some pretty obscure ones too: awareness, funding, reliably effective treatments without going through tons of trial and error, local medical professionals and facilities in every area that really understand them, community support services, research, support from the general public, etc. And I live in a major metropolitan area and know how to navigate the system. A lot of the time IBSers haven't been as organized as other groups in speaking out, and we don't get many really good opportunities often either. But this House Resolution is a major one that we shouldn't let slip away.
 
If you're a U.S. citizen, please write your Representative and ask him or her to support H. Res. 1309. Use your real name and contact information. Tell a bit of your experiences with IBS. It doesn't have to be a perfect letter, but it should show that you and the rest of us are many, many real people with real needs. Please also consider asking any relatives, friends, coworkers, classmates, Facebook friends, whoever has been supportive of you in your IBS struggles to write their Representatives as well, or at least pass the word. Some of them may do so. Some of them may not, but in any case, by asking, you will raise awareness among people without IBS.
 
If your Representative is already one of the sponsors (They're listed on the page Shawn linked), please consider writing to say thank you. If you've already written and your Representative doesn't sign on soon, consider writing again and telling a different part of your story to educate him/her on IBS, not as it is in the textbooks, but as we live it.  Advocacy is how things get done in this country. The resolution is making progress, but there's a long way to go.
 
Thanks for reading.

shawn12
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Date Joined Jul 2004
Total Posts : 1293
   Posted 6/15/2010 4:39 PM (GMT -7)   
 
good to see you here and for posting your comments  and your help and support. Hope your doing okay.
 
 
 
 
 
Forum Moderator
 
I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.


stepjrn
Regular Member


Date Joined Jun 2010
Total Posts : 40
   Posted 6/16/2010 9:48 AM (GMT -7)   

Thanks, Shawn. Glad to help. I know from experience that it can get disheartening being almost the only one bumping up threads like this and wondering if more than a few of us are following up.

I'm doing the best I can, as we all are, but it's not easy. I'll be more okay if we can get this resolution passed. :)


stepjrn
Regular Member


Date Joined Jun 2010
Total Posts : 40
   Posted 6/19/2010 9:56 AM (GMT -7)   
According to IFFGD's Facebook post and this link directly to the status page of H. Res. 1309 at the Library of Congress, another Representative signed on yesterday.

http://thomas.loc.gov/cgi-bin/bdquery/z?d111:h.res.01309:

shawn12
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Date Joined Jul 2004
Total Posts : 1293
   Posted 6/19/2010 11:36 AM (GMT -7)   
Glad to hear that stepjrn and hope they all do.
Forum Moderator
 
I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.


shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 6/20/2010 5:39 PM (GMT -7)   
This has information on this

http://www.med.unc.edu/medicine/fgidc/collateral/digest/Spring_2010_Digest.pdf
Forum Moderator
 
I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.


stepjrn
Regular Member


Date Joined Jun 2010
Total Posts : 40
   Posted 7/14/2010 7:43 AM (GMT -7)   

Bumping this up from the bottom of page 2 because I haven't seen much action on this lately and as far as I know, it's still at 8 Representatives. (initial sponsor and 7 co-sponsors) A simple majority is 219! It's still important to write and to call and let Congress know we want and need this. It will not happen by itself.

 

 


shawn12
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Date Joined Jul 2004
Total Posts : 1293
   Posted 7/18/2010 10:20 AM (GMT -7)   
I really hope everyone is doing this for all IBSers.
Forum Moderator
 
I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.


stepjrn
Regular Member


Date Joined Jun 2010
Total Posts : 40
   Posted 7/23/2010 9:41 AM (GMT -7)   
IFFGD's Facebook page is reporting 2 more co-sponsors from Florida and North Carolina.

shawn12
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Date Joined Jul 2004
Total Posts : 1293
   Posted 7/30/2010 10:10 AM (GMT -7)   
Bump for support
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I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.


stepjrn
Regular Member


Date Joined Jun 2010
Total Posts : 40
   Posted 8/2/2010 12:41 PM (GMT -7)   
An influential Representative from NY has signed on. We're now up to 11 total from 7 states and Washington, DC. If your Representative is one of them, please say thank you. If your Representative is not one of them, please write or call for his or her support, and if you've done it already a while ago, and nothing has happened, consider doing it again. Persistence works, and this is very important for all IBSers.

Post Edited (stepjrn) : 8/2/2010 2:48:23 PM (GMT-6)


shawn12
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Date Joined Jul 2004
Total Posts : 1293
   Posted 8/2/2010 4:54 PM (GMT -7)   
stepjrn

Thanks for letting us know and updating this, I hope people do this and add their support. It will be a better world.
Forum Moderator


I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.

stepjrn
Regular Member


Date Joined Jun 2010
Total Posts : 40
   Posted 8/6/2010 8:13 AM (GMT -7)   
Congress is on recess from Monday August 9 to Labor Day in the US. This means they will be back in their local districts. It would probably be a good time to write, call, or visit local offices too, or attend any public meetings they might hold locally. Let our legislators and the general public hear about H. Res 1309 and IBS.

The only reason I know 95% of the stuff I do about IBS is because I took the initiative, made connections and now know where to look and whom to ask for reputable information. Under the circumstances, we can't really expect non-IBSers to understand the problems unless we are willing to take the time to tell them.

stepjrn
Regular Member


Date Joined Jun 2010
Total Posts : 40
   Posted 9/11/2010 9:03 AM (GMT -7)   
Bumping this up from page 3. Congress goes back in session on Monday September 13. Asking your Representatives for support and spreading awareness with non-IBSers who are or may be supportive of the cause is very important. This is one of the most concrete things any U.S. citizen can do toward a better future for all IBSers. If you have not already, please do so. If you did so a while ago and your Representative has not responded, try again.

Incidentally, next week is also National Invisible Chronic Illness Awareness Week whereby the sponsor is encouraging bloggers with invisible illnesses to blog about them. How about it?
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