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j2345
New Member


Date Joined Jun 2010
Total Posts : 2
   Posted 6/18/2010 5:38 PM (GMT -7)   
I have been suffering with IBS symptoms for 7 years, getting steadily worse. I've been reading the forum for some time and i really wanted to get some advice from people as i feel so isolated suffering from this. Nobody truely understands unless you've suffered the terror of an attack and the pain and humilation that can go with that. When people say "its in your head" its infuriating as i would do anything to live a normal life like my friends and not have to worry. I realise this forum gets a lot of posts asking for simular advice i guess im just looking to see what has worked and hasnt worked for people.

After suffering with IBS-D through may late teens i finally plucked up the courage to go and see the doctor (i was too embarrased to go before) but after a disasterous weekend away with a friend i couldnt go on any further. (I had been using immodium to cover short term symptoms, and avoided all other situations were i couldnt feel control, but in a small hotel room with paper thin walls in the bathroom theres no where to hide).

Initially had been suffering with a small amount of abdominal cramps but the symptoms are gas, LOTS, after eating anything which turns uncotrollable within an hour or two (my stomach rumbles a lot with it as well) with occasionally D. But as the years have gone on the D part of the symptoms have gotten much worse. I was diagnosed in April with IBS-D and given Spasmodal to help with pain. I didnt really work for me. I have found teas to be much more beneficial for the pain (peppermint and fennel) with a hot water bottle. This means i can easily deal with any occasional pain (which im extremely thankful for, having read some peoples experiences) but the D and gas are so much worse since, and made worse by the stress of having it or the prospect that it might occur which aggrevates the situation. I feel miserable with it all.

But i feel like i dont wanna hide any more and its taken a lot of courage to even post on this forum. My social life is reducing further and further as i cant commit to anything for the fear i will have an attack and i cant even consider starting a relationship the way i am currently.

I have been looking at various options but there is so much conflicting information on the internet, i wanted to ask for advice?

I have been looking at food intolarence (Lactose and fructose) but have struggled to cut them out completly as im vegetarian and its hard to reduce it. Ive also looked at wheat, but my symptoms dont appear to worsen after exclusivley eating this. I dont know if the stress of a possible upcoming attack may result in it actually happening, like a self fulfilling prophecy.

For my stress ive been considering using CBT (cognitive behavioural therapy) and Hypnotherapy - Has anyone had any good experiences with this?

I've been told that soluble fiber may help me, but ive been warned that this produces a lot of gas so therefore im reluctant to try it (i have to sit in a lot of meetings for my job so im scared of the consquences)

If anyone could help i would be very grateful.

Thanks

Post Edited (j2345) : 6/18/2010 6:41:58 PM (GMT-6)


shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 6/18/2010 6:27 PM (GMT -7)   
I am glad you posted. Yes living with IBS for a lot of people is really bad and many share your feelings.
 
There is a lot of conflicting advise out there, but there is also some really good advise and information out there as well. I will do my best to help you out, although it should go slowly to learn and read some important things about it all.
 
I highly recommend hypnotherapy and will post information on it all from experts.
 
CBT is also a good chhoice and they are different methods, which I will go over with you.
 
I will also post some diet information.
 
There are some meds that may help with pain as well.
 
Diary and fructose can be a problem with some people and it can exasperate IBS, although it doesn't cause it.
 
Stress and anxiety canbe major factors for flare ups, but again they don't cause it either, but you can really reduce the symptoms.
 
Have you ever read this?
 
 
Part of the key for relief or better management is treating both the gut and the brain. This usally has the best outcomes for people with moderate or severe IBS.
 
Is there something you want to start on first? Foods, stress ect..?
 
Forum Moderator
 
I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.


lizabeth8719
New Member


Date Joined Feb 2010
Total Posts : 10
   Posted 6/19/2010 3:04 PM (GMT -7)   
j2345,

I am sorry to hear about your situation. Bravo to you for having the courage to post on this forum! This is definitely not an easy condition to live with and can be extremely frustrating at times to deal with. I would be curious to find out what types of tests you have had performed? Have you ever been tested for food allergies? It can be very difficult to detect your own food allergies. I found some information on the IBS Treatment Center website that helped me understand this concept for my own case. They list five main reasons why this difficulty occurs when trying to detect your own food allergies...
1) Even on an elimination diet, you may not have truly eliminated all of your allergenic foods...
2) You may react to more than one food...
3) Time: You must eliminate the offending food or foods for extended periods of time - several days or even weeks - before your symptoms improve
4) Quantity: If your body is intolerant to a particular food, a tiny speck of it may be enough to trigger symptoms...
5) Even if you avoid all of the right foods, you may have both a food allergy and a bacterial imbalance in your digestive tract. Either of these can cause IBS alone, and often they are found together.

They recommend having a formal food allergy blood test performed, which would give you accurate results. I had this done (looking at both IgG and IgE reactions) and found it extremely helpful; I ended up having food allergies that I would have never been able to figure out if it were not for the test.

j2345
New Member


Date Joined Jun 2010
Total Posts : 2
   Posted 6/20/2010 6:50 AM (GMT -7)   
Thanks for both of your replies

The only test ive had done is a blood test seeing liver, thyroid function, kidney fuction etc. All came back fine.

I guess i need to tackle the food part of it first. However i have just bought a CBT book recommended by a psychologist to me. So im goin to go through that while i look at the food element to see if it helps.

I have done a lot of research on food allegy tests but many people have told me there inconclusive and sketchy to im reluctant to pay out for one. However it seems like its been really helpful for you. Did your symptoms reduce when cutting out what was recommended? I completly understand about how cutting out food might not help as i know a lot of diary/fructose/wheat is hidden in a lot of food.

Ive started keeping a comprehensive food diary of when i get symptoms and hopefully it will bring something up.

I havent yet returned to the doctor, as she was quite dismissive of me last time. I got very emotional as it was a huge thing for me to get the courage to go, but she was very blunt with me. Now the pain is no longer really an issue, i cant see anything else she could prescribe for the gas and the D, so have to date not gone back.

Thanks for the support.

shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 6/20/2010 9:16 AM (GMT -7)   
IBS is NOT caused by foods or food allergies, different problem. Although some foods can upset the gi tract or some people have both.

IBS has not been found to be generated by a bacterial imbalance or infection. Unless its Post infectious IBS and then the orginal infection goes away and a person is left with cell changes in the gut.

an IgG food allergy test is not a legitmate food allergy test.

I would NOT personally recommend the IBS treament center.
Forum Moderator
 
I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.

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