Day 4 of Major Flare

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smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 7/24/2010 6:38 AM (GMT -7)   
Tuesday night I felt a sharp pain in my right side and noticed a large lump about 2 and a half inches long and that wide. The lump remained there all night and the pain was intermitent, coming and going. Wed morning I was up at my regular time of 5:15am and the lump was still there and the pain was much worse. AS I tried to put my pants on the simple act of lifting my right leg high enough to put in my pant leg was excruciating. I was finally dressed and started my morning routine of making lunches for everyone and within 15 minutes of being up and moving around the pain had me doubled over and rushing to the bathroom as quickly as I could get there. By 6:30 am I couldn't move, couldn't breathe and was doubled over!! By 8:00 am my daughter was rushing me to emerg! The lump was still there and the doctor on call was going to send me to see a surgeon about the lump, he was quite concerned.
They did an ultrasound, bloodwork and gave me a needle for the pain and a shot of Buscopan to stop my bowels from spasming. I felt better but that day I had 7 bm's. Mine is always gut wrenching pain, doubled over and almost screaming because it hurts so bad but it is always hard, but lots and lots. Not diarehha, but the opposite, hard and lots of it. The lump was my bowel simply being so extended and full and because I am so thin, having lost over 10 pounds in the last two months, it was showing up in my belly. Gross!!! But it hurt so bad!!
 
So once the needles kicked in and the blood work came back normal and the ultra sound results were good they sent me home and said to come back if it got any worse.
 
I managed to make it through the rest of the day and Thursday was bad. Off and on all day I was running to the bathroom with the overwhelming urge to go! But coudln't!! I took my pills after super Thursday night and by 11:30 that night I was in huge agony again!!! Again my daughter took me to emerg and they gave me a stronger dose of pain meds by needle and a shot of gravol to settle my tummy and sent me home with the instructions to follow up with my family doctor on Friday. I couldn't move except from the couch to the bathroom all day Friday.
 
Today, Saturday? The pain is just as bad!! And I am having bouts of diarehha!! But still feeling constipated but the pain is unreal!!!!
 
How long will this continue and what can I do to make it stop?? This is day four and i am so tired of hurting and not being able to do anything except sit on the couch and the toilet!!!
Any ideas on how to make it stop???
 
Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA,IBS (Irritable Bowel Syndrome) Acid Reflux,
Taking Plaquenell, Folic Acid, Synthroid,Nexium, Singulair,extra Strength tylenol when needed,and Zytram.


Squattie
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Date Joined Jul 2005
Total Posts : 669
   Posted 7/24/2010 8:19 AM (GMT -7)   
Wow Connie, I sure do feel for you.

That same thing happened to my 81 yr. old mother last week. She hadn't had a bowel movement of any significance for several days and was miserable. She had the pain in the right side and horrible urgency and pain at the rectum area.

She ended up in ER three times in 5 days. Turns out she had impaction of hard feces and the doctor had to go in and break it up by hand. Then he ordered some Golytely (drink you take before a colonoscopy). She came home about 10 lbs. lighter.

Her pain from the urgency and not being able to go was just awful...and they didn't give her anything for pain at any time...because narcotics are constipating. Poor lady. Well, she's okay and still recovering. Now we just have to get her over her new found fear of eating and pooping.

Hope things turn out well for you real soon.
.....Squattie


shawn12
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Date Joined Jul 2004
Total Posts : 1293
   Posted 7/24/2010 10:59 AM (GMT -7)   
Connie

I know people have probably said this before, but relaxing may help the pain.

"Mike suggests How to Relax Your Tummy Muscles


Firstly you have identified that your stomach is not relaxing. However you know it can, becuase you have done it in the past. OK so just take a few moments and study your breathing..

If your chest rises when you breathe in then you are taking big breaths, not deep breaths which you should be A deep breathe is when you chest stays still, and your tummy moves out.

To get it as it as it should: First lie down. Put a book on your tummy, and breathe your breathe into your tummy and feel the book begining to rise. (Don't force your tummy muscles out - let the breath fill your tummy )<You will have to concentrate a little to start with. Do this with your eyes open. Once you are doing that comfortably, put the book on your chest. breathe into your tummy and keep the book still. Your tummy should move, not your chest. This happens quite naturally at night when we sleep - (assuming you don't have any breathing health problems)

Do this with your eyes open too.When you have mastered that, put the book back onto your tummy, take gentle breaths and breathe into your tummy under the book again. This time with your eyes closed. Then after 6 successful deep breathes, open your eyes, put the book back on your chest, close your eyes and let the breathe go into the tummy again, chest remaining still. OK, When you can do this, do it without the book. You will notice a difference in the calming, and your stomach relaxing. To help think of each breathe having a relaxing colour, and the colour relaxes your stomach even more. Try this a few times a day and let me know how you go on. This is just gentle control of breathing patterns. So easy, we do it in our sleep anyway. "


It may help. Kind of like the anitspasmatics, but can also help close the pain gate.
However hopefully you can see a doctor soon or the pain lets up.

also out of curiosity why the weight loss?

I also would not take the extra Strength tylenol at this time.

I feel for you and it sounds like a bad flare up. I hope you feel better soon.
Forum Moderator
 
I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 7/24/2010 12:02 PM (GMT -7)   
Aww Squattie I feel so bad for your MOM!!! That is horrible, I know how she feels! My problem when I get like this is that I get the pain like I am going to have diarehha but it's hard and big lumps of poo and lots and lots of it at a time!!
I hope your MOm gets some relief soon!!!

Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA,IBS (Irritable Bowel Syndrome) Acid Reflux,
Taking Plaquenell, Folic Acid, Synthroid,Nexium, Singulair,extra Strength tylenol when needed,and Zytram.


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 7/24/2010 12:06 PM (GMT -7)   
Hi Shawn, thanks for the breathing and relaxing tips!
I realized today that if I could sit and relax and control my breathing that it seemed to help. Or maybe it was just the pain pill kicking in.

I will try that technique and hope that it works, I was so tired adn in so much pain today that i actually cried for the first time out of this whole flare. My poor husband didn't know what to do or say.

I have Lupus as well as RSD and Thyroid disease so I am not sure what the exact cause of weight loss is from. I am 5'5 and only wiegh 110 pounds, very underweight and at a high risk of getting an infection of some sort according to my Lupus specialist.

I will let you know about the breathing technique. I sure hope it works!! Thanks again,
Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA,IBS (Irritable Bowel Syndrome) Acid Reflux,
Taking Plaquenell, Folic Acid, Synthroid,Nexium, Singulair,extra Strength tylenol when needed,and Zytram.


shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 7/24/2010 1:10 PM (GMT -7)   
Hopefully they help.
 
Its well known that relaxtion techniques can help calm pain and gut pain.
 
I get very severe pain as well. It used to be I would work myself up when in that kind of pain, I think everyone does to an extent. But I did gut directed hypnotherapy and learn to relax my brain gut axis and it helped tremedously.
 
But just the pain by itself can cause more anxiety and distress and this increases the pain and makes the muscles in the gut tighter and hurt even more.
 
This was from a chat with the experts, top researchers on IBS and functional gi and motility disorders.
 
"psychophysiological arousal is the core of treating functional gi disorders. There is so much distress, anxiety, antisipatory anxiety, and negative reaction to symptoms, that calming the mind and body often makes a significant difference to symptoms." 
 
anxiety can even contribute to constipation.
 
But its really important stress and anxiety don't cause IBS, they just can make it a lot worse and are part of the mechanisms involved in triggering the symptoms.
 
another thing that can help is distraction, trying to distract your mind from your gut and feelings.
 
"

Recent studies point to an increased sensitivity of the sensory nerves in the intestines. Normal movements of your intestines may be perceived as cramps or other discomfort.

The intestines share nerve pathways with the brain. In many situations, when the brain reacts to something – like the sound of a dentist's drill – the intestines, or gut, pick up the same signals and react.

The majority of people will ultimately have some kind of gastrointestinal (GI) symptom when exposed to stressful situations. If your GI system is a bit too reactive, you will experience symptoms in more types of stressful situations than someone else will whose gut is not quite as reactive. What is stressful for one person may not be stressful to another, and lots of people don't even realize it when they get stressed – they just feel sick.

Finally, there is the "gate theory" of how pain is experienced. When pain originates at some point, nerve messages pass through something like a gate on their way to the brain. The wider open the gate is, the more pain that is experienced. By thinking about and focusing on the pain site, we open the gate. Plus, feelings of anger or worry or sadness can open the gate.

However, we can also help close the gate. Turning attention away from the site or feeling of pain, through relaxation or focusing on some other activity, can help close the gate and lessen or even eliminate pain.

A well-known phenomenon that demonstrates this is that of the athlete who plays a game while injured, oblivious to the pain. The athlete is completely focused on the game and does not feel pain. Then, after the game is over, the athlete turns attention to the injury and feels pain."

http://www.aboutkidsgi.org/site/about-gi-health-in-kids/talking-about-gi-disorders

 

while the above is a question to a doctor about a kid with functional abdominal pain, its still applies.

 

 

 

 
 
 
 
 
 
Forum Moderator
 
I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.


Yum Yum
New Member


Date Joined Jul 2010
Total Posts : 3
   Posted 7/28/2010 1:05 AM (GMT -7)   
Hi,
Hope you're doing better now and that the pain has gone!

I don't really like taking prescription medecines unless I have to so a lot of the time I rely on herbal remedies. I posted IBS relief yesterday (maybe you read it?) but have found that supplements such as peppermint oil, fennel artichoke, psyllium husk and vitamin b & magnesium help a lot as they can reduce the symptoms such as the cramps, flatulence, constipation and help to soften the stools. I take a table that combines these 3 times a day.....it has helped me so much. Like shawn said, relaxing is the key....I know its so hard to try and relax when the pain is bad but try your best.

Also, I've been using a tens machine on the bottom of my back. A lot of the time my pains radiate from the front to my back and down my legs. So the past couple of times it's been bad, I've put on the tens machine, turned it up to max and tried to relax either in bed or on the sofa......becuase i can feel it working on my back it can distract me from the feeling of the cramps and most of the time I manage to have a little sleep (which is a blessing when the pain can sometimes last for a week!!)

Yum yum

smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 7/28/2010 5:48 PM (GMT -7)   
Thanks Shawn and Yum Yum!
Finally after 6 days of the intense pain I feel better!! I started feeling better Monday afternoon. That was a horrible time for me and I am in no hurry to go through it again anytime soon or ever!!!

I am on so much medication because I have Lupus and RSD as well as IBS I am fearful of mixing herbal pills into the mix but will talk to my doctor and see what she says. I do have a tens machine, I should try that on my back, never thought of it.
Thanks for the advice.

Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA,IBS (Irritable Bowel Syndrome) Acid Reflux,
Taking Plaquenell, Folic Acid, Synthroid,Nexium, Singulair,extra Strength tylenol when needed,and Zytram.


shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 7/29/2010 11:03 AM (GMT -7)   
smokeyswife

Glad to hear things improved for you.
Forum Moderator
 
I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 7/29/2010 11:40 AM (GMT -7)   
Thanks! It was horrible and I wasnt sure if I could do another day feeling that rough!

Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA,IBS (Irritable Bowel Syndrome) Acid Reflux,
Taking Plaquenell, Folic Acid, Synthroid,Nexium, Singulair,extra Strength tylenol when needed,and Zytram.


shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 7/29/2010 2:11 PM (GMT -7)   
Connie, just fyi. Its good to know some of these things before or when the attack comes on. When your in pain like that the bodies neurbiological stress alarm is activated and can cause more pain and symptoms.


Gut Feelings: The Surprising Link Between Mood and Digestion

http://www.ahealthyme.com/article/primer/101186767

USING RELAXATION:
COPING WITH FUNCTIONAL GASTROINTESTINAL DISORDERS

http://www.med.unc.edu/medicine/fgidc/using_relaxation.pdf

Olafur S. Palsson, Psy.D.
Associate Professor of Medicine, School of Medicine, UNC-Chapel Hill
Hypnosis is a treatment method which still carries an aura of mystery that,
unfortunately, continues to be promoted by misrepresentations in movies and stage
shows for entertainment. In reality, there is little mysterious about hypnosis
anymore. It is a well-researched clinical technique which was formally accepted as a
treatment method by the American Medical Association and the American
Psychological Association over thirty years ago. Clinical hypnosis is currently used
by thousands of clinicians in the U.S. to treat both psychological and medical
problems.

Until recently, the possibility of using hypnosis to treat gastrointestinal problems had
received little attention. In the last 15 years, however, research has shown that
hypnosis can influence gastrointestinal functioning in powerful ways, and that it is
particularly effective in helping patients with irritable bowel syndrome (IBS) and to
control nausea and vomiting

http://www.med.unc.edu/medicine/fgidc/effects_of_hypnosis_on_gi_problems.pdf

http://www.ibshypnosis.com/


The Neurobiology of Stress and Emotions

By: Emeran A. Mayer, M.D.
UCLA Collaborative Centers for Integrative Medicine, UCLA School of Medicine, California


We often hear the term "stress" associated with functional gastrointestinal (GI) disorders, such as irritable bowel syndrome (IBS). Many patients experience a worsening of symptoms during times of severely stressful life events. But what is stress? How often does it occur? How does our body respond to stress? This article explores the mechanisms that link stress and emotions to responses that have evolved to ensure survival and that, in the modern world, affect health—including gastrointestinal function.

http://www.ibs.med.ucla.edu/Articles/PatientArticle003.htm

These are all from top highly respected IBS researchers.
Forum Moderator
 
I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.


SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 7/29/2010 5:44 PM (GMT -7)   
Watching what you eat is what helped me.........
SnowyLynne

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