urgent I mean now! bathroom trips

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wearyRAsufferer
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Date Joined Mar 2010
Total Posts : 2322
   Posted 7/27/2010 10:15 AM (GMT -7)   
When I have to go- I have to go. There is practically no holding back. I have veered off the road, parked crookedly in the lot and have hobbled with clenched cheeks to the bathroom in a fast food place or store. I know where every bathroom is located.... there have been times I just could not hold tight enough and I have crapped myself :(
Is anyone else like that?
What are your coping mechinisms?
 
Sometimes I have to do long car trips with my boss and I always fear this is going to happen to me and I will be embarrassed. he drives.
 
I usually take a xannax before bed and a couple of immodium. More immodium in the morning. I figure if it happens maybe I'll be too bound up for anything to escape...LOL
 
Does anyone have any suggestions or commiseration?

shawn12
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Date Joined Jul 2004
Total Posts : 1293
   Posted 7/27/2010 10:39 AM (GMT -7)   
Your not alone at all.

There is quite a bit that can be done about this, but have you ever heard of gut direct hypnotherapy for IBS?

This is a public site from a top IBS researcher. You might want to read it. If you have any questions let me know.
 
 
The hypnotherapy helped me greatly with all my symptoms, which I can list if you want.

CBT is also another method shown to help this as well.

I can also in part explain the mechanisms for you which can also help. For example part of this has to do with the bodies fight or flight response.


Forum Moderator
 
I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.


Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 7/27/2010 10:43 AM (GMT -7)   
I would be this way while traveling if I kept eating. When I travel, even locally on any given day if I know I have to spend a lot of time in the car, I ease back on eating and then resume eating when I'm home again. In other words, I already know that just the act of eating, will induce the multiple rounds of bm's and I'm not having any part of that!

I also looked carefully at my diet years ago and started a food journal. Many here will suggest one to you.

By keeping track of every single thing you are eating and drinking, you begin to see a pattern form. Note when you have a great day and then subsequent days, eat the foods that agreed with you and gave you minimal IBS.

Immodium is good for urgent situations, however when I take it, it immed. slows down bm's but I pay for taking it the next day. It doesn't quite constipate me, but it somewhat binds everything up inside and then I have trouble with internal swelling and relieving bm's.

So I've discovered I'd rather pre-empt the onslaught of repeated bm's, by eating a different way (pulling back from meals prior to traveling, but I make sure I consume liquids) and definitely by eating a plain diet (the low residue diet).

I began a daily probiotic in early May and have noticed less IBS trouble. It seems to level everything out and quiet down my gut. You could look into trying the one I take, it's found at health food stores and is somewhat pricey for 30 pills (approx. $45). The brand I take is listed in my bio.
- Rectal CA 4/29/99, Stage I, 90% sigmoid/15" of colon/GB removed, temporary colostomy, reversed 6-26-99
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Colace 50 mg + Renew Life/Ultimate Flora/Critical Care/80 Billion daily


herhonor
New Member


Date Joined Jul 2010
Total Posts : 1
   Posted 7/28/2010 4:30 AM (GMT -7)   
I have had IBS since, the earliest I remember, 1984. NO BOWEL CONTROL, period. It got worse in 1987. I would have to pull off and use the bathroom ANYWHERE I could. I couldn't eat and go anywhere because I'd have diarrhea. This cut out any kind of trips. Then I had my gall bladder removed. OH BOY did it get worse then! Still, I wouldn't ask a doctor what to do because I was too embarrassed.
 
All of this time, I had Multiple Sclerosis as well and didn't know that until 2006 when I was dx'd with Secondary Progressive MS. This affected my control as my brain isn't communicating with my rectal muscles. I can barely contract in that area SO if I even did try to hold it in, which was pointless anyway as you all know, I couldn't.
 
Well, here's the GOOD news! I finally did tell my doctor. I've been wearing Depends for a year, having accidents has become more and more frequent. Not once a year, a month, but more than once a WEEK. She just happened to remember a medication used for cholesterol that causes such bad constipation, she had actually stopped prescribing it. Her nurse's mother was using this med. for the same thing as me and having wonderful results. The name of the medicine is "PREVALITE POWDER, 4 GRAMS."  She gave me a recommended dosage but told me to adjust it to my specific needs, as I am already on a cholesterol medication and this medicine is completely harmless as far as I know. It's an orange flavored powder you mix with water or juice and take it as needed. PLEASE, mix it with cold orange juice. Mixing it with water nearly choked me. Now, she prescribed me 2 scoops a day. I have learned I can do with a half a scoop and be just fine all day and still usually go to the bathroom at night. If I'm not leaving the house, I don't take it at all so I can use the bathroom. Listen THIS stuff works like a CHARM! In the 26 or so years I have been "in the closet" about this disorder, this is the first glimmer of hope I've seen! I mean I can eat FRIED food, drink caffeine, go shopping, anything I want and NO FEAR of losing bowel control! I AM ELATED! THIS is the key!
 
Please, go to your doctor and ask them for Prevalite Powder. Adjust it to your specific needs and I promise you, you WILL be amazed! I really thought I would suffer from this forever, and true, I'm not cured, but it isn't an issue now! It's truly a miracle to me. Oh, and NO MORE DEPENDS!
 
Let me know if you get it and how it works for you. I'm SO happy about this(and NO doctor really thinks to prescribe it for diarrhea) I wanted to help others. Good luck!

SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 7/28/2010 5:07 AM (GMT -7)   
After 10 years being ignored by my Dr I had a colonoscopy it showed nothing.I kept telling my Dr it is IBS! well after another 5 years he sends me to a diff.Gastro.Bingo yes I do have IBS.When will Drs learn to listen??? I also have Dementia so I guess he thought I didn't know what I was talking about. JERK!
I had the blowouts but depends or assurance saved me many times.......
I now watch what i eat,no greasy foods,thats a given for me it'll cause IBS to react big time....It's like picking your battles with food...............Learn what you can or cannot eat........
SnowyLynne


wearyRAsufferer
Veteran Member


Date Joined Mar 2010
Total Posts : 2322
   Posted 7/30/2010 7:37 AM (GMT -7)   
Thanks to all for your responses! I did not yet read in depth about the hypnosis but I did see there is a place in my area that does this and I want to read further as it seems like an interesting idea. Especially since my IBS is more stress related than dietary. Of course it is best to avoid certain foods when I know I'm prone because it triggers it as well. I was dx'd when I was about 19 and took Librax for awhile but I didn't want to take medication like that all the time so I learned coping skills and it's really just become a way of life. My mom who is 82 has had it all her life too and is crapping her pants more regularly poor thing, because she just can't get to the restroom. My daughter who is a teacher also has it and she gets herself all upset thinking she may have to bolt her class room in embarrassment. Last year they had to have a lock down drill where she knew she would be in a locked class room, lights off and no access to a bathroom for at least an hour- I can't tell you how stressed she was over this. It would be a surprise day to make it authentic so there was no preparing for it. Luckily it went OK with no events.

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1956
   Posted 7/30/2010 7:47 AM (GMT -7)   
wearyRAsufferer - I would be extremely stressed out to be locked in a classroom for one hour. There have been times over the past 11 years where a sudden emergency situation arose and I immediately stopped eating. I jokingly refer to it as - emergency mode. For example, my mom had a stroke/head trauma last August and was in the hospital for 1 month. My brothers/wives, etc. wanted to keep going to the hospital cafeteria or out to eat. After a while of trying to find something to eat or not eat at all, I began packing food for each day that I knew agreed with my touchy gut - a banana, small cup of applesauce, Club crackers, etc. And that is all I ate when I was away from home that day. They all knew - oh okay, she's not ordering food or eating with us.

You just have to do what you need to do to get thru urgent situations like this.

If my husband and I are socializing in the evening, I skip dinner. But I eat a healthy lunch. And a yogurt cup.

I like to give myself a 4 hour window of no food before events. And then either eat very lightly or not at all.

This country is obsessed with eating, IMHO. Social invites almost always involve eating. Sometimes I just wish people were not so obsessed with eating all the time. My life would be a whole lot simpler. lol

But I have made one observation over the years - most people are not noticing what I am not eating. So that's been rather nice. I used to imagine all that they were thinking and then stress out about their reactions to my non-eating.

Silly thoughts when you think about it.

But I didn't arrive at my current approaches to IBS overnight, it took a daggone long time to get here!

People can survive without food. I should know, I do so for specific reasons.
- Rectal CA 4/29/99, Stage I, 90% sigmoid/15" of colon/GB removed, temporary colostomy, reversed 6-26-99
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Colace 50 mg, twice daily + Renew Life/Ultimate Flora/Critical Care/80 Billion daily

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