IBS and chills

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Merri
Regular Member


Date Joined Aug 2006
Total Posts : 46
   Posted 8/8/2010 4:23 PM (GMT -6)   
Do any of you ever get a feeling of chills with a really bad IBS day? Sometimes I'll have a day where I have multiple trips to the BR with soft stools ( not diarrhea as such) and just feel rotten all day . queasy, chilly ( no temp) and I understand this is caused by the Vagas nerve that runs through the digestive system, and feel almost like a GI bug. I have had IBS that rules my life pretty much since I got my gall bladder out about 10 years ago. Of course stress makes it worse. Who isn't going to be stressed worrying if you'll have an attack while you are out. Tell me I'm not the only one who gets chills for some attacks.   

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1955
   Posted 8/8/2010 7:36 PM (GMT -6)   
You are not the only one who has chills after repeated IBS attacks. It happens to me a lot. It might be the middle of the summer and I'm wearing sweats (although we have central air). Sometimes I fall asleep with the heating pad on low, placed over my abdomen. I usually turn it off half way thru the night. But yes when I have D or the dumping that goes on for hours, I feel chilled, sometimes shaky, dizzy, achy even in my joints. And then ravenous, as if I haven't eaten in a long time, when I had just had a meal.

This IBS disease/disorder is an odd thing isn't it?

Sometimes if I feel the way you described and I'm traveling, it's really bad because someone will see me walk out of the bathroom (for that specific trip for a bm) and think - oh here's Mary, she's good to go, etc. When all I want to do is curl up in a ball, with a warm fleece blanket, heating pad, cup of tea, my dog, etc. The last thing I want to do is go somewhere or socialize. But they never understand this - at all. If they persist with questions, I ask how they feel when they have sudden D or a stomach virus, awful they say. I just say - welcome to my world. Of course then they look at me oddly, asking - do you have this everyday? As if I'm some kind of freak.

Usually I keep the details from others, which isn't easy but hey, it works for me.

But yes you are definitely not alone. And one more thing to note, when my body is doing it's natural purge thing (the dumping or all out D), I just let it happen. I no longer try to stop the bm's. Why you may ask? Well, it seems as if my body wants to do this and get rid of whatever it is that's offending my GI tract. When that episode is over, I do begin to feel better, rather quickly sometimes. And later I was glad I didn't try to stop the bm's or slow them down. But while they're going on, I feel awful.

Hope you feel better Merri.
- Rectal CA 4/29/99, Stage I, 90% sigmoid/15" of colon/GB removed, temporary colostomy, reversed 6-26-99
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Colace 50 mg, twice daily + Probiotic: Renew Life/Ultimate Flora/Critical Care/80 Billion daily

Merri
Regular Member


Date Joined Aug 2006
Total Posts : 46
   Posted 8/8/2010 8:34 PM (GMT -6)   
Thanks for answering. I feel less weird already. A couple of my daughters get this but one is better than she was and the other has mostly C ( which I tell her is neater) I go back and forth between the two. Even if I'm having a day somewhat like normal people I can't leave the house before 10 or 10:30. Except for a few things, I don't see where foods are causing the problem. I'm finally willing to factor in stress as I worry about it attacking when I'm not home but as I said it started with the gall bladder. Before that I went on tours through Europe etc. Now I couldn't picture myself on a bus tooling around Rome at 8 am anymore than I can imagine myself in outter space. Merri

Marsky
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Date Joined Jul 2007
Total Posts : 1955
   Posted 8/9/2010 7:23 AM (GMT -6)   
I also had my gall bladder removed but do not experience the yellow bile D, which often comes after the GB is taken out. When you have D, do you see yellow in the stool? If so, search back through old topics, one specific member has been very helpful in suggesting calcium supplements, to control D and other loose stools after your GB has been removed. She found success from daily calcium and you may too. I believe her nickname here is inape? I don't quite fall into this group, I no longer have the lower part of my colon but do not have a permanent ostomy (had a temporary one for 8 weeks after my resection back in 1999). I did try these calcium supplements (the large fruit flavored chewables ones with vitamin D added, I think the brand is Caltrate) but they never really gave me my old normalcy back (1 or 2 bm's per day and formed at that). They somewhat constipated me and made things worse. I've found other things to level out my bm output - daily Colace (mild stool softener for stool consistency) and a good probiotic.

I can relate to how reluctant you are to go on travel tours. I have changed my life completely around since I now have IBS like symptoms. I eat small, light and plain meals. I say no to a lot of social invitations and thrive on an empty calendar (although my husband and are empty nesters when our youngest daughter is away at college, we could go out more but he likes home cooked meals and staying home too now). I know of many friends in my age group - mid 50s - who have very busy social calendars. These people somewhat drive me nuts! They seem to want a medal for never being home, they work out at the gym, meet other couples for dinner, see plays, belong to country clubs, etc. I know they think I am lame for being home so much but I like being a home body. lol The biggest challenge I have in the summer is boating with my husband. We own a simple 18 ft bow rider (without a bathroom) and he loves boating. Anchoring and swimming/floating for an hour or more. This is our third year with the boat and I've come to realize eating and boating do not mix for me. So I skip the meal prior to boating, do not eat while on the boat and then I do okay. People say - you're not eating again? I say no bathroom. They look at the water and say - hello? I just laugh. They have no idea that whenever I go #1, 99.9% of the time I go #2 also. I can't help that, the stool is barely inside my "new" lower colon and it has to come out. The two go hand in hand now (I have about 20 bm's a day). Sure I'm going to go #2 in a lake. So I've just adjusted my intake to accommodate boating. It's funny though, at the end of the season when it's time to put the boat away for winter, my husband's so sad. I inwardly sigh and smile. He knows I feel like this but I don't rub it in his face either. But I am relieved I can take a 6 month break for all that adjusting my gut to the boating lifestyle. And even if we ever could afford a bigger boat with a bathroom, I've used marine toilets before. Most boat owners do not want you to go #2 in their marine toilet. So that's not even an option either although my husband said he'd make an exception for me.

All I know is I had it so good at one time - could eat anything and still have 1 bm a day. I didn't even realize I had it so good back then! Dang it!

Merri - you are most certainly not alone. Stick around, there are very nice members on this forum. You'll find comaraderie and support here. Certainly not judgement.

Mary/Marsky
- Rectal CA 4/29/99, Stage I, 90% sigmoid/15" of colon/GB removed, temporary colostomy, reversed 6-26-99
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Colace 50 mg, twice daily + Probiotic: Renew Life/Ultimate Flora/Critical Care/80 Billion daily

Post Edited (Marsky) : 8/9/2010 6:27:29 AM (GMT-6)


shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 8/9/2010 11:21 AM (GMT -6)   
Just fyi
 
worth reading
 

Table 1

Non-gastrointestinal symptoms more common in irritable bowel syndrome

patients than in comparison groups(5).

1. Headache

2. Dizziness

3. Heart palpitations or racing heart

4. Back pain

5. Shortness of breath

6. Muscle ache

7. Frequent urinating

8. Difficulty urinating

9. Sensitivity to heat or cold

10. Constant tiredness

11. Pain during intercourse (sex)

12. Trembling hands

13. Sleeping difficulties

14. Bad breath/unpleasant taste in

mouth

15. Grinding your teeth

16. Jaw pain

17. Flushing of your face and neck

18. Dry mouth

19. Weak or wobbly legs

20. Scratchy throat

21. Tightness or pressure in chest

 
Quite a few of these symptoms, can be from an over active nervous system, autonomic which governs homeostasis and body temp as well as many other systems and stressors both physical and mental.
 
I use to get this as well and eye titching sometimes and quite a few of the above symptoms.
 
The HPA axis is involved in this which helps govern a lot of body functions including digestion. Its kind of like your palms getting sweaty/clamy as well.
 
 

Forum Moderator


I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.

Merri
Regular Member


Date Joined Aug 2006
Total Posts : 46
   Posted 8/9/2010 7:19 PM (GMT -6)   
Many sufferers of IBS also have Mitral Valve Prolapse , especially the syndrome. IBS is one of the main "weird" symptoms that can tag along. I have MVPS and between the two can be at times an unhappy camper. I wonder how many members of this site have MVP as well.

shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 8/10/2010 12:41 PM (GMT -6)   
Merri, just wondering where you heard this information?
 
"Many sufferers of IBS also have Mitral Valve Prolapse"
Forum Moderator


I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.

Merri
Regular Member


Date Joined Aug 2006
Total Posts : 46
   Posted 8/10/2010 7:18 PM (GMT -6)   
I think it is more appropiate to say that many suffers of MVP ALSO seem to have IBS ( among a host of other symptoms) that would it seem have nothing to do with the heart. This information can be found in several books eg " Confronting Mitral Valve Proplase Syndrome" by Lyn Fredrickson, MSM . There are a few other books as well as a web site pertaining to this complex problem. Let me know if you want anymore titles. Note, I didnot say ALL have MVP nor that all MVP suffers have IBS as well. Just the unlucky ones have both. Having the prolapse without the syndrome doesn't seem to open the door for other annoying symptoms ( not serious just annoying)

shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 8/10/2010 10:20 PM (GMT -6)   
I understand merri.
 
IBS is a common functional gi disorder, but a distint clinical entity.
 
I asked in part because I search pubmed for both and didn't come up with anything.
 
I know people with Fibro and Chronic fatique it is more common. Just never heard of the MVP association before.
 
10 years on BB's though and I have seen quite a few people with MVP as well as IBS, but also a lot of different conditions.
 
 "Just the unlucky ones have both"
 
I agree and feel for you.
 
 
 
 
Forum Moderator


I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.
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