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NiRo
Regular Member


Date Joined Aug 2009
Total Posts : 198
   Posted 8/22/2010 12:11 PM (GMT -7)   
Hi All,

I am new to this forum as I usually hang around the UC forum. However, I am starting to believe that I am going to soon be hit with an IBS diagnosis. Here is my story...

I think I had some infectious cause (probably viral) of diarrhea causing me to go 12-14 times a day at the end of July. It eventually went down to 6-8 times a day on it's own, but I still didn't have much of a life so I went to the hospital. All sorts of tests were run (colonoscopy, ct scan, small bowel series, celiac, stool tests for the things you can actually look for, etc.) while I was in the hospital for 3 days and everything checked out good. They found my colitis to be in good shape, no crohn's, no celiac (although I did have a semi-high reaction to gluten), no appendicitis, etc.

The doctor released me from the hospital and prescribed me donnatal to get me through the virus as thats what we all thought it was. Thus far, the donnatal has been working remarkably well (unless my system flushed out the virus) even though I only take it 2 times a day (before breakfast and before dinner). I do not have the extended release version due to some mistake by the pharmacy. I have also been on gluten free for a trial run since I got back home. It has been VERY difficult, especially since I am a vegetarian as well. I tried not taking the donnatal yesterday on the advice of the doctor as we both thought at this point it was not doing much. I also had some cake yesterday, knowing full well I was re-introducing gluten. Well this morning, the diarrhea returned. Now, it wasn't like the 12-14 times I had a couple weeks ago, but I definitely had diarrhea. I really don't want to be on the Donnatal forever. I was wondering if there are folks out there with any advice in general and even those who can comment on their experiences w/ donnatal? It definitely makes me sleepy, but mostly at night so it's not totally bad.

As always...thanks for the help!
Diagnosed with Pancolitis (Moderate in 4/5th of the colon, Mild in 1/5th) in July 2009
Lialda 4x a day (2x in the morning, 2x at night)
Rowasa Enema 3x a week (M,W,F)
Align (Probiotic) 1x a day
Fish Oil 4x a day
Multi-Vitamins (includes B-12, Vitamin D, Vitamin C) 1x a day
Life long vegetarian...

shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 8/22/2010 12:32 PM (GMT -7)   
I have taken donnatol in the past without much success.

However with some of these drugs people react differently.

It maybe a virus upset your gut and its just going to take a while to get better. Especially on top of colitis. It can take a while for the gut to settle down sometimes. Months perhaps.

Is it crohn's or microscopic colitis?

Again hopefully this will go away in time. But if it turns out to be IBS perhaps we can help.
Forum Moderator


I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.

NiRo
Regular Member


Date Joined Aug 2009
Total Posts : 198
   Posted 8/22/2010 12:43 PM (GMT -7)   
Thanks for the response Shawn.

Definitely not Crohn's or microscopic colitis...(biopsies taken showed UC and so far no signs of Crohn's in colonoscopy via terminal ileum or small bowel series). I did a pill cam test, but will take a week to get the results I was told.

I didn't realize something viral would take that long to flush through my system even with the colitis. I don't have pain at all...but I do have gurgling and stomach growling especially when I lay down. At this point, to have any quality of life it seems I need to take the Donnatal. I fear I am slowly getting depressed too. Argh! GI issues are the worst.
Diagnosed with Pancolitis (Moderate in 4/5th of the colon, Mild in 1/5th) in July 2009
Lialda 4x a day (2x in the morning, 2x at night)
Rowasa Enema 3x a week (M,W,F)
Align (Probiotic) 1x a day
Fish Oil 4x a day
Multi-Vitamins (includes B-12, Vitamin D, Vitamin C) 1x a day
Life long vegetarian...

shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 8/22/2010 4:48 PM (GMT -7)   
Got it, but you have UC?
 
It can take a while for the gut to normalize in some people after an enteric infection.
 
"gurgling and stomach growling" is not to much of a problem, more annoying and an upset gut more annoying. So you know stress can increase this somwhat.
 
I see your taking probiotics. You want to help restore good bugs.
 
Pain or discomfort is a must for an ibs diagnoses.
 
However not for functional d which is like IBS, without pain or discomfort.
 
Depression can make things worse for sure, even mess with the bacteria in the gut. This can contribute to things getting better faster, so I would work on that if you can.
 
"Argh! GI issues are the worst." I agree they can be very bad.
 
Hopefully you recover soon from this and its not something else. They tested you pretty good it seems. Did they do blood work?
 
Forum Moderator


I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.

shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 8/22/2010 4:49 PM (GMT -7)   
By the way do you have an idea what this might have been?

"infectious cause (probably viral)" stomach flu or from foods or do you know?
Forum Moderator


I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.

NiRo
Regular Member


Date Joined Aug 2009
Total Posts : 198
   Posted 8/22/2010 5:24 PM (GMT -7)   
I think the culprit was some domino's garlic bread I ate to be quite honest. I don't know the exact virus because the stool tests don't pick up all of them (they only test for salmonella, e.coli, c. diff and giararda) I believe unless the CDC is involved. The reason my doctor thinks it was viral is because of my WBC differential results - my leukocytes were quite high even though I was on IV prednisone (they put me on it for a couple days just in case it was the colitis) as well as me having a low grade fever and night sweats the first couple of days. I also went from being normal on Friday to going 12-14 times on a Saturday...so the overnight symptoms kind of point to an infectious cause...
Diagnosed with Pancolitis (Moderate in 4/5th of the colon, Mild in 1/5th) in July 2009
Lialda 4x a day (2x in the morning, 2x at night)
Rowasa Enema 3x a week (M,W,F)
Align (Probiotic) 1x a day
Fish Oil 4x a day
Multi-Vitamins (includes B-12, Vitamin D, Vitamin C) 1x a day
Life long vegetarian...

shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 8/23/2010 9:11 AM (GMT -7)   
Got it, I am also a chef and familar with different kinds of food poisonings that's why I asked.
IBS Forum Moderator


I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.

NiRo
Regular Member


Date Joined Aug 2009
Total Posts : 198
   Posted 8/23/2010 9:19 AM (GMT -7)   
cool...at this point, i have decided to go back on the donnatal since it works so well...but wean it off instead of stopping it over night like I did (go from 2 pills, to 1.5, to 1, to .5, to 0). I also am going to stay gluten free until I am totally off the donnatal and then some because if I do add gluten back now, I am sure the donnatal will mask the symptoms.

Once I am stable, I will slowly re-introduce the wheat. Hopefully the pill cam will find something by then - but I doubt it! Thanks for listening/reading and if you have any other advice, please let me know! GI disorders are the most frustrating I think to deal with. It's been a hell of a month!
Diagnosed with Pancolitis (Moderate in 4/5th of the colon, Mild in 1/5th) in July 2009
Lialda 4x a day (2x in the morning, 2x at night)
Rowasa Enema 3x a week (M,W,F)
Align (Probiotic) 1x a day
Fish Oil 4x a day
Multi-Vitamins (includes B-12, Vitamin D, Vitamin C) 1x a day
Life long vegetarian...

NiRo
Regular Member


Date Joined Aug 2009
Total Posts : 198
   Posted 8/23/2010 9:26 AM (GMT -7)   
Shawn -

I meant to ask you...is functional diarrhea a subtype of IBS or considered a totally independent disease? I haven't read much about it before. Does it involve the small intestines or just the large intestine/colon? Any information you have would be great - thanks.
Diagnosed with Pancolitis (Moderate in 4/5th of the colon, Mild in 1/5th) in July 2009
Lialda 4x a day (2x in the morning, 2x at night)
Rowasa Enema 3x a week (M,W,F)
Align (Probiotic) 1x a day
Fish Oil 4x a day
Multi-Vitamins (includes B-12, Vitamin D, Vitamin C) 1x a day
Life long vegetarian...

shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 8/23/2010 11:11 AM (GMT -7)   
There are some thrity functional disorders of different parts of the digestive system.
 
This explains them.
 
 
IBS and Functional d are "functional bowel disorders" but others can effect different parts of the digestive system.
 
 
Hope that helps, ask away any questions you may have I might be able to answer for you.
IBS Forum Moderator


I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.
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