Really long post so get ready.
I am a 25 year old male. Two years ago I noticed a small ball of pain about the size of a baseball in my lower left side that never went away. Noticed that I had more D then usual as well. A colonoscopy, abdominal CT, about five deferent blood tests that included lactose and gluten intolerance, stool sample for bacteria, food allergy test, and a barium test the dr. said I had IBS. Got a second and third opinion and on the 3rd opinion the dr. took an x-ray and found that I was completely backed up. He told me to take 15 laxative pills on back to back days, to take care of it.
These test took about 6 months to have all of them. During this time things just got worse, and still are getting worse. It has now been two years since the pain started. The pain/cramping can extend to cover from my belt line to my ribs. I alternate between C and D. The last year and a half I have had severe nausea and vomiting. I would say 85% of the time I wake up (It is usually worse in the mornings) with nausea and it last until about noon on an average day, on bad days it does not go away. I have had to wake up in the middle of the night to vomit, but a lot of the time I dry heave. Which cuases sharp pain in my stomache (the organ, not the general area). I wish I would actually throw up as it hurts less. Currently it has been 16 consecutive days I have woken up with nausea.
I have tried different diets, aloe juice, coconut, peppermint, avoid caffiene, and eat close to 25 to 30g of fiber a day. Medications that I have taken, but have not worked are: amitiza, hyomax-sr, clidinium-chlordiazepoxide, amitriptyline, bentyl, and levbid. I have tried two different anti-depression pills (wellbutrin and effexor) and they help with depression but not IBS symptoms. For nausea I was on reglan and that worked okay for about the first month but does not anymore. Also for nausea I have taken phenergan and zofran recently and they may take a little of the edge off about 15% of the time. Miralax really doesn't do anything for me. Lactulose is another laxative perscribed for me that only causes gas and bloating, but not the desired results. I am stuck with just taking dulcolax when constipated, but it usually takes about 5 to 8 pills to work (recomended dose is 1 to 3). I have also tried accupuncture and accupuncture wrist magnets.
I have vicodin for the pain that I can take only when I am in a diahhrea phase, because they cause constipation. And I can take 1 ambien every three days if I am having trouble sleeping (I have been awake for over 72 hours suffering before). If you have taken the time to read this extremely long post then you can probably tell how bad I have been suffering. I am a newly graduated teacher and can't even teach becuase of this. My Dr. doesn't want to do anything diferent or new anymore and just thinks that It will get better eventually. Any help or suggestions would be nice. I am starting to think that maybe they have the diagnosis wrong as any IBS medication they give me does nothing!