Nausea w/IBS......Could it be a wrong diagnosis?

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IBS_sucks
Regular Member


Date Joined Aug 2010
Total Posts : 47
   Posted 8/30/2010 3:51 AM (GMT -7)   
Really long post so get ready.
 
I am a 25 year old male. Two years ago I noticed a small ball of pain about the size of a baseball in my lower left side that never went away.  Noticed that I had more D then usual as well. A colonoscopy, abdominal CT, about five deferent blood tests that included lactose and gluten intolerance, stool sample for bacteria, food allergy test, and a barium test the dr. said I had IBS.  Got a second and third opinion and on the 3rd opinion the dr. took an x-ray and found that I was completely backed up. He told me to take 15 laxative pills on back to back days, to take care of it.
 
These test took about 6 months to have all of them.  During this time things just got worse, and still are getting worse.  It has now been two years since the pain started.  The pain/cramping can extend to cover from my belt line to my ribs.  I alternate between C and D.  The last year and a half I have had severe nausea and vomiting.  I would say 85% of the time I wake up (It is usually worse in the mornings) with nausea and it last until about noon on an average day, on bad days it does not go away.  I have had to wake up in the middle of the night to vomit, but a lot of the time I dry heave. Which cuases sharp pain in my stomache (the organ, not the general area).  I wish I would actually throw up as it hurts less.  Currently it has been 16 consecutive days I have woken up with nausea.
 
I have tried different diets, aloe juice, coconut, peppermint, avoid caffiene,  and eat close to 25 to 30g of fiber a day.  Medications that I have taken, but have not worked are:  amitiza, hyomax-sr, clidinium-chlordiazepoxide, amitriptyline, bentyl, and levbid.  I have tried two different anti-depression pills (wellbutrin and effexor) and they help with depression but not IBS symptoms.  For nausea I was on reglan and that worked okay for about the first month but does not anymore.  Also for nausea I have taken phenergan and zofran recently and they may take a little of the edge off about 15% of the time.  Miralax really doesn't do anything for me.  Lactulose is another laxative perscribed for me that only causes gas and bloating, but not the desired results.  I am stuck with just taking dulcolax when constipated, but it usually takes about 5 to 8 pills to work (recomended dose is 1 to 3).  I have also tried accupuncture and accupuncture wrist magnets.
 
I have vicodin for the pain that I can take only when I am in a diahhrea phase, because they cause constipation.  And I can take 1 ambien every three days if I am having trouble sleeping (I have been awake for over 72 hours suffering before).  If you have taken the time to read this extremely long post then you can probably tell how bad I have been suffering.  I am a newly graduated teacher and can't even teach becuase of this.  My Dr. doesn't want to do anything diferent or new anymore and just thinks that It will get better eventually.  Any help or suggestions would be nice. I am starting to think that maybe they have the diagnosis wrong as any IBS medication they give me does nothing!

IBS_sucks
Regular Member


Date Joined Aug 2010
Total Posts : 47
   Posted 8/30/2010 4:00 AM (GMT -7)   
O yeah, and I constantly have a mild fever 99.5 to 100 every evening, but no fever in the morning. Figure that one out???

shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 8/30/2010 1:36 PM (GMT -7)   
all the doctors you say were MD's or were some GI doctors.
 
Some poeple get nausea quite a bit with IBS, but actual vomiting is not really an IBS symptoms. Especially if its happening a lot. However a lot of the other symptoms sound like IBS. You might have more then one issue going on here.
 
Do you have weight loss?
 
some people temps also run a little higher then normal.
 
They have run a lot of tests on you.
 
There is a condition called Cyclic Vomiting Syndrome. I have seen a few IBSers with it over the years.
 
 
Have you ever heard of the use of gut directed hypnotherapy for IBS? It can be highly effective and a lot of times can also help non- gi symptoms, from sleep to other issues.
 
Does the nausea coincide with the pain at all?
 
Are you eating enough?
 
Sometimes it can be a medication as well.
 
for the constipation have they ever done a sitz marker test or test you for lower pelvic floor disorders?
 
 
IBS Forum Moderator


I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.

IBS_sucks
Regular Member


Date Joined Aug 2010
Total Posts : 47
   Posted 8/30/2010 6:39 PM (GMT -7)   
Have consulted two general MD's and I see a GI specialist in Olympia, WA and had a 2nd and 3rd opinion from GI specialist at OHSU in Portland and the University of Washington in Seattle. The vomiting is generally dry heaving, but ocassionally I do vomit. I actually know how to do self-hypnosis, but find it hard to hypnotize myself when symptoms are at there worst. A CD may be useful. If the pain is bad, then my nausea is generally bad. But I have also had bad nausea when the pain has been minimal. I definately think I have been eating enough as I have maintained the same weight for the last two years. No Stitz marker test. Although my family MD sugested I talk to the GI dr. about a gasteric pacemaker. However, two people I know that have that say they still suffer, some things are better and other things are worse after their surgery.

IBS_sucks
Regular Member


Date Joined Aug 2010
Total Posts : 47
   Posted 8/30/2010 6:53 PM (GMT -7)   
the Cyclic Vomiting Syndrome doesn't quite fit as the article says it is more episodic then what I am experiencing. I might get 1 to 3 days without nausea and then it is back to nausea for the next 5 to 15 days or so. But thanks for the info that is one I haven't heard of. I was thinking I might have IBS and Chronic fatigue syndrome as my research has found there is about a 50% likelihood of IBS users getting that disease. However, I don't know if I am as fatigued as most website say sufferers of CFS are. But most of the symptoms of CFS match mine along with IBS symptoms.

shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 8/31/2010 6:59 PM (GMT -7)   
IBSsucks, these helped me tremedously. I have a long histroy with them and help Mike. However I have seen 1000's benefit from them. These are highly specific IBS CD's.

http://ibsaudioprogram.com/

Do you live in the northwest? Portland. I know excellent IBS doctors here.

Not sure but the "Cyclic Vomiting Syndrome" might still be an issue perhaps, as I stated I know a few people with both and they all didn't meet an exact match, of course it might not be either, just putting it out there.

It could also be something to do with serotonin, as both nausea and IBS are implicated to serotonin dysregulation.

It may also be connected perhaps to the vagus nerve and pain.

You can be fatigued by just dealing with IBS issues. But woth asking a doctor about perhaps.

I can aks the experts I know as soon as I get a chance.
IBS Forum Moderator


I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.

shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 9/1/2010 10:23 AM (GMT -7)   
I am just posting this because its new
 

Neurogastroenterol Motil. 2010 Aug 19. [Epub ahead of print]

Spectrum of gastric emptying patterns in adult patients with cyclic vomiting syndrome.

Hejazi RA, Lavenbarg TH, McCallum RW.

Department of Internal Medicine, Paul L. Foster School of Medicine, Texas Tech University Health Sciences Center, El Paso, TX, USA.

Abstract

Abstract Background Cyclic vomiting syndrome (CVS) in adults is a disorder characterized by recurrent and stereotypic episodes of severe nausea, vomiting and abdominal pain separated by symptom-free intervals. Both rapid and delayed gastric emptying (GE) have been observed but the reports involved small numbers of CVS patients. Methods We performed a retrospective study of 92 adult patients who met Rome capital SHA, Cyrillic diagnostic criteria for CVS between 2003 and 2009 at the Kansas University Medical Center. Gastric emptying was measured by a standardized scintigraphic method involving a low fat (2%) isotope labeled egg white meal of 250 Kcal, with anterior and posterior gastric imaging in the standing position obtained at 0, 1, 2, 4 h after meal ingestion. Rapid GE was defined as <50% isotope retention at 1st h and/or <30% at 2nd h and delayed GE as >10% at 4 h. Key Results Ninety two patients were analyzed: 47 males and 45 females mean of age 37 +/- 12 years (range: 20-68 years). There were 27 patients with a personal history of migraine headache, 30 with history of marijuana use, 12 had diabetes mellitus (DM) and 10 had irritable bowel syndrome (IBS) as an accompanying diagnosis. Fifty four patients (59%) met criteria for rapid GE, 25 (27%) had normal GE and 13 (14%) had slow GE. Eighty percent of patients with co-existing IBS symptoms were identified as rapid. The subset with delayed emptying was often associated with narcotics use, DM and marijuana use (P < 0.05). Conclusions & Inferences (i) In adult CVS patients, GE is generally either rapid or normal. (ii) Cyclic vomiting syndrome is an important new etiology to explain the finding of rapid GE on a radionuclide test. (iii) The small subset of CVS patients (14%) whose GE was slow were explained by the role of narcotics and/or marijuana.

PMID: 20723071 [PubMed - as supplied by publisher]


IBS Forum Moderator


I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.
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