14 weeks post gallbladder surgery and still have nausea--please help

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lillye
Regular Member


Date Joined Jul 2011
Total Posts : 179
   Posted 11/23/2011 9:37 PM (GMT -6)   
I haven't been on this forum in awhile but still am having digestive issues...I have had to date CT scan of the abdomen, ultrasound of abdomen, endoscopy (showed inflammation), colonoscopy, gastric emptying study, small bowel study, intravaginal ultrasound, chest x-ray and x-rays of left shoulder, ribs and shoulder, MRI of the thoracic spine and a myriad of blood tests checking liver and pancreatic enzymes and I HIDA scan....all normal except the endoscopy and HIDA scan...
I had the gallbladder removed but soon after had all the same symptoms: reflux,nausea, bile diarrhea, pain in left abdomen and ribs Etc.
I was put on Carafate, Protonix, xanax to sleep, plant based digestive enzymes, aloe vera juice......in addition I have eaten gluten free for 2 weeks now am and dairy free....
Still i have lots of nausea and some pain in left ribs...I rarely get the diarrhea anymore and rarely feel the reflux...
Has anyone else gone through this? I think I have bile reflux because my endoscope showed inflammation in my stomach...I am so frustrated because I have lost 17 pounds and am so skinny but find it difficult to eat much---I gain a few pound then get nauseous again and lose them-------Please let me know if you have experienced this and/or have successfully gotten over it.....Thanks so much and many blessings...

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1955
   Posted 11/24/2011 10:28 AM (GMT -6)   
I have a nephew who had his GB out a year ago. He has experienced severe GERD and nausea as well. His doctor has put him on the Cholestyramine powder. He said it has greatly helped him but he also avoid certain foods, such as cheese or foods high in fat.

I have the other end of this post GB spectrum, repeated bm's and occasional all out dumping episodes. Leaving me depleted of all stool (very similar to a bowel prep). I tried the powder after my nephew said it really helps him (he's only 23 and wanted his life back as well). It only helped me for a week and then stopped. I have now gone off of it.

I would ask your doctor for an Rx for it. Can't hurt to try it, mine was only $10.00. If you do try the powder, make sure you brush your teeth well after ingesting it, it can damage tooth enamel.
- Rectal CA 4/29/99, Stage I, 90% sigmoid/15" of colon/GB removed, temporary colostomy, reversed 6-26-99
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Colace 50 mg, twice daily + Probiotic: Renew Life/Ultimate Flora/Critical Care/80 Billion daily

lillye
Regular Member


Date Joined Jul 2011
Total Posts : 179
   Posted 11/24/2011 10:44 AM (GMT -6)   
He was nauseated for a year? I have lost so much weight because it is hard to eat with this nausea---did he lose weight?
Thank you for answering my post---I just feel so afraid sometimes that they have missed something or that I will never get better...

Marsky
Veteran Member


Date Joined Jul 2007
Total Posts : 1955
   Posted 11/24/2011 11:21 AM (GMT -6)   
No, not a year only a few months. His doctor explained how many people w/o their GB's experience a full range of symptoms, because the bile either gets dumped into the small intestine or it backs up into the stomach, hence his GERD symptoms. I think he lost weight too and has found that if he skips the powder, his symptoms return.
- Rectal CA 4/29/99, Stage I, 90% sigmoid/15" of colon/GB removed, temporary colostomy, reversed 6-26-99
- Chronic IBS/D symptoms, multiple bm's, on low residue diet
- Colace 50 mg, twice daily + Probiotic: Renew Life/Ultimate Flora/Critical Care/80 Billion daily

lillye
Regular Member


Date Joined Jul 2011
Total Posts : 179
   Posted 11/24/2011 11:48 AM (GMT -6)   
I do take protonix and carafate as well as digestive enzymes but will ask my doctor about this powder. this is so difficult to live with because nausea makes you feel so poorly. Did he stay nauseated most of the day for those few months? My nausea had gotten better but it is back and I am going through a four day cycle where it doesn't let up...I am just so tired of being afraid and feeling badly---Thank you for your time...I hope you have a Happy Thanksgiving.

frus789
Regular Member


Date Joined Aug 2011
Total Posts : 26
   Posted 11/24/2011 9:07 PM (GMT -6)   
I had my gallbladder removed in Sept. 2011. I usually do not have nausea anymore. However, I will get lower stomach pains, bloating, and discomfort. It usually starts after I eat. I had CT scans done in sept. I had an upper endoscope done in Aug. The endoscope showed a ring in my lower esophagus. The GI wants to do a Colonoscopy. I take Protonix. I too am tired of feeling sick. I am not as sick as I was and having the gallbladder removed did help my symptoms.

Lilye- I am sorry you are not feeling better. Did you look into Sphincter of Oddi dysfunction to see if that is a possibility for your symptoms?

My sister said Ginger pills help her with nausea.

lillye
Regular Member


Date Joined Jul 2011
Total Posts : 179
   Posted 11/24/2011 11:49 PM (GMT -6)   
I have had so many tests and don't really want an ERCP done because it causes most people to develop pancreatitis.....After researching the internet I think i might have bile reflux or gastroparesis ---well hopefully----because I am imagining all kinds of terrile scenarios. But hopefully, with all the testing I have had, they would have found it.
Your problem sounds like bile reflux, which mine may be too...That ring in the esophagus is usually caused by acid or bile reflux...This is all so frustrating and scary. I couldn't even be with my family on Thanksgiving because I felt so nauseous. Digestive issues are all horrible but I think nausea is the worst. Let's keep in touch. I got tested yesterday for stomach emptying---that could be what I have but who knows...Blessings...lillye

rufous57
Regular Member


Date Joined Apr 2011
Total Posts : 120
   Posted 11/29/2011 12:37 AM (GMT -6)   
Hi Lilly,

Sorry to hear you are not feeling better. Have you gotten the results from your gastric emptying test yet? Gasteoparesis can definitely cause nausea. Did you have the Endoscopy before or after your gallbladder surgery? If it was after the surgery, did the Gastroenterologist actually see bile in your stomach or is he just guessing Bile Reflux? I understand your fear of the ERCP, however, it may be the only way to determine if you have the Sphincter of Oddi Dysfunction, however, I was reading that SOD causes a tremendous amount of pain not nausea? Has your GI considered an MRCP? Ask your doctor about taking something called Domperidome, you will have to get it in Canada, but it may help with your nausea, this has gone on for such a long time!

Take care, Ruth

lillye
Regular Member


Date Joined Jul 2011
Total Posts : 179
   Posted 11/29/2011 4:34 PM (GMT -6)   
I didn't have the endoscope again after surgery but before...My doctor called about an hour ago to tell me my gastric emptying test came back in the normal range but the very low end of normal so he is going to try me on something called domperidome compunded by a pharmacy...I really did have this same nauseous feeling before the surgery and now most of the time...At night sometimes it is a bit better but it is still there...
How are you doing? I hope well...
What kinds of issues did you have after your gallbladder surgery?

rufous57
Regular Member


Date Joined Apr 2011
Total Posts : 120
   Posted 12/1/2011 10:51 PM (GMT -6)   
You know when you first described your problem with nausea, gasteoparesis was the first thing I thought of! Before the doctors figured out my gallbladder was non-functioning, they thought I had it also, that and many other things... Without testing me, I was told to try taking Reglan, but I never got the gastric emptying test done and I never took the medication because my HIDA scan came back with an ef of 10%. Have you gotten the Domperidome yet? As I understand it, you have to order it from Canada and it isn't covered by insurance so it could be costly? But it supposedly helps the motility and nausea. I am so sorry you couldn't enjoy your Thanksgiving and hope you feel better soon!

My gallbladder surgery helped me immensely, once I got over the initial post surgery problems! Sure I have to continue to eat no fat or I am running to the restroom, and I still do stick to that. I still have trouble eating raw salads and veggies, tomato sauce, red meat, citrus fruits, coffee, tea, chocolate, spicy food and of course no fried or greasy foods. Thanksgiving was okay because I only ate turkey breast meat, plus I cooked the meal so I made my own baked potato where everyone else had mashed potatoes. Things like that are annoying but I am getting used to it. At the moment, my problems with the internal rectal prolapse have been under control, but the last few weeks I had some abdominal pains and when I had blood work done, my liver enzymes were elevated. The third set of bloodwork was back to normal, so that was a relief!

Please let us know how you're doing with the new medication and I hope you get some relief from the nausea! Ruth
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