Does anyone feel better at home?

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jodi569
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Date Joined Feb 2005
Total Posts : 98
   Posted 4/6/2005 12:34 PM (GMT -7)   
I was wondering if anyone else feels better when they are home than when they are out? I have noticed my IBS symptoms are calmer almost non-existent when I am home. It is only when I know that I am going out that the symptoms start up. Its when I spend the most time in the bathroom. If anyone else feels this way please let me know how you deal with it. I know at this point of my IBS that it is more pschological because of the bad experiences I have had in the past. Now I fear they are going to happen again. I fear the embarrassment the most. I don't care if people know I have IBS I just don't want to lose control of my bowels around them. I also never feel that I completely eliminated my bowels so when I get into a car I have to do my best not to think about it or I will have to go the bathroom instantly. I have created some ways of dealing with it, but its still a BIG problem for me. I want to be free of FEAR. Any comments or suggestions would be great. Luckily I challenge myself everyday and don't give into the fear all the way and stay home. I am just looking for advise from people who can relate in one way or another. My IBS is almost always loose-not C or D anymore. 

dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 4/6/2005 12:45 PM (GMT -7)   
My IBS acts up more when I am away from home because of my anxiety disorder. I will get very bad stomach pains when I know I have to be in crowds, etc. As we all know, IBS acts up with stress and emotions. We also stress when we are out because we don't know if we are going to have access to a bathroom and even if there is one there is the embarrassment of going to a public restroom. When I had IBS-D, I would take Immodium every day before going to work which would stop me up. Ironically, now I have IBS-C and my doctor told me that my diverticulosis was most likely caused by the prolonged abuse of the Immodium. But still haven't figured out which came first for me, the anxiety or the IBS.


"Slow down and everything you are chasing will come around and catch you."
- John De Paola


eric1826
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Date Joined Dec 2004
Total Posts : 55
   Posted 4/6/2005 3:40 PM (GMT -7)   
I also have the same problem. I find that the vibration of the car or the subliminal thoughts that a restroom isn't immediately available can cause my stomach to act up.It is nice to know that I am not the only one who deals with this issue. I always drive when I go anywhere. I do not trust that anyone else will get to a restroom fast enough and driving helps keep me occupied so I won't dwell on my stomach. Other than not eating all day I would like some tips as well.
 
 
Oh man I too used to abuse Immodium's. I should look into that. Thanks

jodi569
Regular Member


Date Joined Feb 2005
Total Posts : 98
   Posted 4/6/2005 5:54 PM (GMT -7)   

Eric, I too always drive wherever I go. I feel much less anxious. My friends are used to it and I think my husband enjoys being chauffered around :) As far as eating I must be honest I eat just about everything. Although I prefer eating at home because the food doesn't give me the same reaction as a restaurant. I do try to limit foods that will make me sick but as you probably know what works for us today won't tomorrow. At this point it doesn't matter what I eat somewhere along the way it all makes me sick. I stopped trying to figure the food thing out. I just want to be able to travel and be free like "normal" people. I miss being free of fear. How about you? Do you even remember what it's like to feel that way? I always wonder what it's like to know you have to go to the bathroom but you have the control to hold it in until you are home. Once upon a time I lived that way. How about you? Thanks for your comment. You have answered some of my other posts and it seems you and I have similiar problems.

Thanks again.


drdebi
New Member


Date Joined Apr 2005
Total Posts : 1
   Posted 4/25/2005 6:32 PM (GMT -7)   
I read these posts, and it is just like I wrote them all.  My life changed several years ago, and now whenever I go out at night, there is the constant worry about getting to a bathroom on time.  Just the worry will cause me to have to go!  I have tried very hard not to let it control my life, but it still does.  Whenever I go out at night for dinner, I load up on Immodium early in the day and that seems to help.  When I travel I take Immodium beforehand.  I have heard of too many people with bowel problems created by the constant use of Immodium so I try not to take it except when going out.  My problem is almost always right after eating supper.  I too drive myself whenever possible.  I never travel with my office anymore because I am afraid of something embarrassing happening.   Feeling in control actually helps me.  I know that after a few close calls, or accidents, it becomes more of a mental condition.  I am constantly fighting to maintain some normalcy in my life, but it is a constant struggle.

jodi569
Regular Member


Date Joined Feb 2005
Total Posts : 98
   Posted 4/26/2005 8:06 AM (GMT -7)   
drdebi,
I am in your corner. It is the most frustrating thing. I am always late because I won't leave home until I go to the bathroom and alot of times I can't go. The second I get in the car and start thinking about it-bam now I have to go. Than I start to get nervous I won't make it to a bathroom. Like I have said in my previous post I have had 2 accidents in my life. These situations forever changed the way I live my life. I am so afraid that I will lose control in front of people. I can say to some extent with the help of hypnosis and yoga I try taking a deep breath and than exhale. Sometimes it does help. I also try to distract myself from it. I will make alot of phone calls when driving that too helps. Otherwise I play the same game day after day. The funny thing is most of the time if I am driving home I am fine. Because of course I know that is my safe place. As far as taking imodium I only take it when absolutely necessary. For me that is giving in to the fear too much. Believe me though I have had to give in plenty of times. Try and challenge yourself. That is probably the best thing you can do. I make sure to go out everyday even when I am nervous. Know all the places that have bathrooms on your journey that will also help you calm down. If you know you can pull over and go use a public bathroom you will be fine. I have gone pretty much everywhere. I always feel better afterwards anyway. I feel my best when I go out and am able to conquer the feeling and not go at all. Most important keep yourself occupied as much as possible. Remember there is a bathroom in all restaurants. Next time you go out try not to take imodium and see how it goes. Hit the bathroom at home first than tell yourself I only have to make it to my destination point. Going home is easy. Let me know how you do.

tenn
New Member


Date Joined Apr 2005
Total Posts : 3
   Posted 4/26/2005 8:45 AM (GMT -7)   
eyes   You might have already tried this but I looked up some restricted fiber diets that sure seem to make sense. It has the foods that solidify waste without binding. Maybe if you form a controlled fiber gameplan with some phisical workouts like daily bodybuilding ( 20 minutes ) your body will have the confidence to take control over any mental ( nerves) hangups. It would be better to think about about muscle growth and toneing than worring about bm's. Might sound strange but confidence in your bodys ability can give you a positive rush. Trying to help tenn

jodi569
Regular Member


Date Joined Feb 2005
Total Posts : 98
   Posted 4/26/2005 11:25 AM (GMT -7)   
ty tenn. I appreciate any advise. I used to workout religously but stopped about 4 months ago when I moved out of state. Its funny that you wrote this today because I just came back from an orientation at a new gym I joined. Any type of physical activity has helped. In the case of moving things around, but as far as the mental part that is still a challenge I have yet to overcome. I will keep you posted if things get better. I am going to try a pilates class which my cousin takes and said has helped her stomach problems. She also has IBS (newly diagnosed) not to the extent that I have it but I am hoping pilates will have the same effect for me. Thanks again.

k.y
New Member


Date Joined Apr 2007
Total Posts : 7
   Posted 4/13/2007 9:13 PM (GMT -7)   
 Im 15 years old and I have the same thing .
I stay at home right now and dont go to school because of that,its not that i dont wanna study its just that i have severe IBS when im in class probably becuz of anxiety so now i wanna do homeschoolong but my private school doesnt let me i dont know how to deal with it im so stressed and depressed i lost all my friends its horrible.NOw im going to a psy but it doesnt rly help me and the medicament either i think the best way to cure it when your older ,not at school ,is just to relax,do good stuff for yourself go to a trip for example, and have a non-stressful job and most importantly having ppl around you who have the same problems as you like who understand you so you dont feel lonely if you live that life for a while i think all the problems will go away after some time... But now for the ones that go to school i dont have any resolution but home schooling and 4 the ppl who go to private schools i rly dont know just like in my case maybe someone from here could help me and others like me?

Post Edited (k.y) : 4/13/2007 10:17:34 PM (GMT-6)


7Lil
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Date Joined Apr 2005
Total Posts : 3269
   Posted 4/13/2007 9:16 PM (GMT -7)   
Has your phychologist/phychiatrist talked to you about anti-anxiety medication? Maybe even an antidepressant? I know you're super young for this, but it might be just what you need to get through school. Anxiety plays a huge part in IBS and if you can get that under control then you might be just find going to school.
Are you currently on any meds (OTC or RX)?


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k.y
New Member


Date Joined Apr 2007
Total Posts : 7
   Posted 4/13/2007 9:22 PM (GMT -7)   
I dont know she gives me all those 'breathe in breath out'exercises to do and well she didnt talk about those i might try its just that ive tryied soooo many medicaments that dont help that im too despered and im not sure about them anymore i mean i dont belive in them anymore cuz nothing works ..

dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 4/13/2007 9:24 PM (GMT -7)   
I feel for you as I started having IBS symptoms at 14 and it was very hard. I went to school but that was because I didn't have a choice and my parents basically dragged me but I learned that I had to take charge and talk to my teachers if I needed them to understand. They did and let me leave to go to the bathroom without warning and gave me a desk next to the back door as to not attract attention. I was lucky (well not really) that my problems were mostly at night so my day times were a bit better but that also meant almost no sleep.

There are antispasmodics also that will calm your intestines that seem to spasm more when you are anxious and not calm. These may be a little better for your age.

I totally understand though where you are coming from. I had friends in HS but I felt like I burdened them a lot because in order to hang out, they had to come to my house so I could be comfortable near my own bathroom. I didn't socialize a lot outside of the house. My mom was great though and always made my friends feel welcome and they liked being there but I sure wished I had the times to go out and hang out other than home.
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


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brandii
Regular Member


Date Joined Apr 2007
Total Posts : 46
   Posted 4/14/2007 5:35 AM (GMT -7)   
Stress and anxiety are sure triggers for IBS symptoms in most cases. I am fine when I am at home or in a comfort zone with close friends and family with an accessible washroom nearby. I seem to tense up before stressful situations like a meeting, interview, or social get-together and start thinking about the problem even before it starts. Practising Yoga or some relaxing technique definitely helps, and one should make it a regular routine. Taking additional medication (like Imodium) is not the solution and could lead to worse problems in the long run. Managing IBS seems to be a lot of work; I hope someone comes up with a workable solution soon.

ryleigh
Regular Member


Date Joined Dec 2005
Total Posts : 251
   Posted 4/14/2007 5:55 AM (GMT -7)   
Hello All,   Try not to let it get to the point that I am at!!  I never leave the house..  My husband bought us a moterhome so I could travel with my family...  I have had this for 15 years..  The last 5 have been homebound..  I really need therapy..  Anyway do anything to not to get to my point in life..  Take Care

Ryleigh


bennettgirl
Regular Member


Date Joined Apr 2007
Total Posts : 36
   Posted 4/16/2007 12:31 PM (GMT -7)   
 
 
Hello all,
 
I am new to all this IBS.  A little info about me.  I am a single mom of 2 wonderful teenage children.  I started a new job this past January.  In all reality, I didnt like the job.  I had always worked for myself and I went to a office job where I was sitting still 8 hours a day.  I hated it.
Late February I woke up one morning I felt like I need to have a bowel movement.  I felt like I didnt get cleaned out good.  I started having alot of gas pressure and couldn't seem to get rid of it.  I would sit an belch and be really bloated.  Then I would take gas medicine and then I would get dirreaha.  alot of times I would get gas pressure built up on my left side and it would just burn and burn until I went to the bathroom or until the gas goes on down.  Its agrravating.
I finally have went to a gastrointerologist.  He told me I had IBS.  Gave me 2 perscriptions and told me to take Fiber One.  told me it would take a whole month to get back to normal
 
I do notice that my symptoms are a minimum when I am at home and doing what I want. 
I have had aniexty and panic attacks in the past. 
 
I am just glad to know that there are people out there that know what I am expericing.
 
bennettgirl

dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 4/16/2007 12:38 PM (GMT -7)   
Welcome bennettgirl,

Welcome to the site. You will find lots of good info and people who are going through the same thing. Sometimes just good to talk to people in the same boat.

I also have AP disorder and I know how it can affect IBS, its awful. Are you still with the same job or doing something different? Please keep posting, I hope you enjoy it here :-)
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


http://www.healingwell.com/donate


bennettgirl
Regular Member


Date Joined Apr 2007
Total Posts : 36
   Posted 4/16/2007 1:11 PM (GMT -7)   
 
 
No, I am still at the new job.  I am liking better and better each day.  See I used to clean houses for a living so I was up and moving everyday and I left when I got through.  Now, I have to stay at work for 8 hours. 
I got freakout when I started having these symptoms.  The gas would get trapped on my left side and I would have so much pressure.  It would even burn at some times.  I explained all this to the doctor.
 
 
 

Merri
Regular Member


Date Joined Aug 2006
Total Posts : 46
   Posted 5/4/2007 12:10 PM (GMT -7)   
I think we are all in this together. I'm going into NY city in June to see a show and am starting to fret about it already. We all do the same (take imodium before we go anywhere) I have diviticulos as well as IBS and really would rather let nature take it's course. I really was hit with this when I got my gall bladder out. I am tires of hearing " caused by stress". I find that a great cop out when the doctor can't cure you: blame the patient. This then causes more stress. Of course we are stressed. How much calmer would we all be without this problem? I go between C and D and take Bentyl . I try with 10 mg although the usual dose is 20 mg. I can always take a second one if it's not effective. Gas x sometimes works and beano isn't bad. My family dr wants me to take Lexapro but I'm very hesitant about something you take            every  day. I now use 1/2  valium if I need it. Helps a little when I know I'm blowing it all out of proportion. Merri                                            

Keriamon
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Date Joined Jun 2005
Total Posts : 2976
   Posted 5/4/2007 2:33 PM (GMT -7)   
Have you tried Welchol for the D, Merri? That's the only thing that stops my post-gall bladder D problem (rather, I take it daily, which I wouldn't want to do with Imodium, which will also stop my D).

I just saw an ad on the web for chewable Imodium AD that they claim work faster than the pills!

Merri
Regular Member


Date Joined Aug 2006
Total Posts : 46
   Posted 5/4/2007 4:07 PM (GMT -7)   
Dear Keriamon, In a book called "IBS The First Year" by Heather Van Vorous ,it states on page 3 if your IBS symptoms are D predominant and began after your gall bladder was removed an rx drug called Questran can " cure your IBS" . You must take it for the rest of your life but your IBS is gone. I read it and don't know if it's true but I worth asking your doctor. I go back and forth so it doesn't pertain to me. Merri

7Lil
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Date Joined Apr 2005
Total Posts : 3269
   Posted 5/4/2007 4:30 PM (GMT -7)   
Hi Merri,
Welchol and Questran are essentially the same thing. The thing with Welchol is that we, here on the board, have noticed little to no side effects. Whereas with Questran, members have experienced gas and bloating.


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Merri
Regular Member


Date Joined Aug 2006
Total Posts : 46
   Posted 5/4/2007 7:31 PM (GMT -7)   
That is interesting. I brought the book to my gastro dr and he poo pooed it. As a nurse might I say this doesnot surprise me too much. A couple of things I've learned along the way: ginger ( it comes in a candy form from the health food store) is good for the nausea that often accompanies an attack, and if any of you get chills with a bad attack, this is from the Vegas nerve which runs down through the digestive system. These are worrisome things to a sufferer and unfortunately not the type of information most doctors give without the patient asking. Of course this information won't cure you but I for one, like to understand what is happening to me. It is impowering I think.( Ginger is also in tea form) Any ideas to combat gas and bloating I surely would like to hear. Merri

7Lil
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Date Joined Apr 2005
Total Posts : 3269
   Posted 5/4/2007 7:39 PM (GMT -7)   
Peppermint is good for gas.... As long as you don't have acid reflux.
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Copy_Right_R
New Member


Date Joined May 2007
Total Posts : 1
   Posted 5/18/2007 7:01 AM (GMT -7)   
IBS-D

first time poster, but i know about the "Safe At Home" feeling, its the best feeling ever knowing that the toilet is only a few metres away from me.

i feel for the people who have had IBS since they were in school, luckily i got mine when i was around 19. if i had mine in school who knows what could of happened. the thing i can remember about my IBS first starting was rumbling in the stomach ( i think from not eating all day, i used to do that at school, not eat all day and then pig out at home after school ) then it progessivly got worse to the point where i had my first accident (worst feeling ever) but luckily no one saw it.

At that point i knew something was wrong. i think my IBS stems from the fact that i had real bad anxiety when i was between 16 - 19 (sounds stupid but i was afraid of what people would think of me and my family). My whole family knew that i had some sort of problem with crowds and my sisters always used to give me crap about it, no doubt making it worse. also at the time i had absolutely no friends (i dont know if anyone else knows how alone a person feels when they dont have anyone to talk to) because i broke all ties with friends after finishing school.

then about 2002 i started fighting that anxiety feeling, i made some new friends and started going out and doing stuff with my friends, but the IBS didnt subside, it actually got worse. thats when i thought maybe diet was the reason, ever since i can remember i have been a dairy and pasta eater, other than a few vegetables here and there my main diet was eggs, milk, pasta, cheese and bread. i changed my diet to include more fiber and changed from white to wholemeal bread, i ate more vegetables and less milk and nearly cut out eating eggs. thats didnt help one bit (although im still on this diet now).

my usual day runs like this....

wake up 6.30am - Feel Totally fine
eat breakfast 7am - Feel fine
about 7.30am - start getting the sick feeling in my stomach
7.45am - gas builds really quickly and bloating starts
8.40am - leave for work, about 5 mins into the drive i feel like crapping myself its that bad.
get rid of a lot of the gas before i start work.
just after i eat at lunchtime i get gas 10x worse than in the morning, cramps and bloating set in.
get rid of all that gas

cycle repeats itself until i get home when it magically disappears and im fine.

my girlfriend says why dont you go to the toilet while your at work instead of holding it in till you get home, i answer to that - about 15mins after going to the toilet the gas buildup is about 50x worse than at lunchtime, so its either hold it in or let it out and experince a lot worse pain.

i have tried a few pills, but i really want to try an anxiety one, i havent tried any yet, im currently trialing Yakult, ill be giving that a good 2 months too see if anything changes.

well thats all i wanted to say, maybe a bit too much for a reply but i just wanted to add my 2 cents

dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 5/18/2007 7:23 AM (GMT -7)   
Hi Copy Right R,

I just wanted to welcome you to Healing Well :-) and than you for sharing your story.

I think that many people will relate to what you go through. If you have tried all of the commercial gas reliefs (gas X, beano, etc) and you are still having problems, you may want to try the charcoal that is usually right next to it. It can help when the gas is bad. There are many others here that have their own way of dealing with it so hopefully you can get some tips. Beano seems to work well for me, but not so much for others.

You may also want to start a new thread so your post doesn't get overlooked.

If you are having anxiety than it can make your IBS worse. I'm on Klonopin for my anxiety and notice when I'm not so anxious, my whole body feels better.

Take Care
"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Klonopin 2mg/day (tapering to PRN), Miralax 17g, Supplements


http://www.healingwell.com/donate

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