"PROCTALGIA FUGAX"...Sudden,Sharp Rectal pains? PART II

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Ides
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   Posted 1/31/2012 8:11 PM (GMT -6)   
This is a continuation of a thread started some years ago on this subject.
 
To read previous posts on this subject, visit here: PROCTALGIA FUGAX"...Sudden,Sharp Rectal pains? Part I
 Feel free to share your experiences below.
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Post Edited (Ides) : 1/31/2012 6:14:59 PM (GMT-7)


bill bobson
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Date Joined Feb 2012
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   Posted 2/4/2012 9:40 PM (GMT -6)   
Hello, folks! This is not how I wanted to spend 3:30 a.m.

You can guess what I'm suffering from. I wanted to chime in and concur with some of the theories and observations presented here.

First some basics: I am 33 yrs old, male, in more or less good health. I have been suffering from PF for probably six months. I expect in the past six months I have gotten it five or six times. I have not gotten an official diagnosis.

Some of what I will type here is bound to sound strange to some. But I'll include it for what it's worth.

My attacks are always at night, 1-3 hours after going to sleep. They are not the bad, debilitating kind that some have on here. But they are bad enough that I have to get out of bed, try a BM -- and even the once or twice I have managed one, it doesn't automatically fix it.

There *is* a correlation between PF and sex. Tonight I had sex -- but it was probably eight hours or more before bedtime. And as a matter of fact, at some point in the past six months, the following happened: during an orgasm, the contractions were so strong they seemed to reach into my anus, clenching it so tightly that it hurt. It had never happened before and wasn't pleasant. I correlate that event -- which happened once powerfully and once or twice more to a lesser extent -- with whatever is going on with it/me now.

Also, I think there is a *dehydration* angle. Again, in the past six months, something happened that was unprecedented in my own case. I had a very difficult BM with pain almost indistinguishable from the PF, with the pain occurring in just the same place. But the problem, the likely cause seemed to be: one end of the stool was dried out. At the time I connected this with getting drunk the night before. And again, I am experiencing this tonight and I was drunk last night.

I had some Metamucil tonight -- no fun at 3 am. I have suspicions that diet is involved as well. Again, in my case this has only been happening in the past six months. During this time I have been living in rural Italy with a pasta-only diet that I'm not used to. The only fiber I get is a small amount of pulp in orange juice in the morning, and very rare vegetables at lunchtime. I have wondered whether pasta every night now for almost a year has contributed.

Also, in the past almost-a-year, I have been sitting on my rear end here in this computer chair for ten hours a day or more (for a variety of reasons). The seat is not a good one, and I sit directly on a cheap padded cushion which, truth be told, means my weight is pretty squarely pressed against the perineum area all day and night long.

I feel for the folks who've got it worse than I've got! This is bad enough: I was dead tired tonight after a drunk night last night. Now I have to sit up at 3 am in the cold and type my own little tale here, pleading like Hamlet's father.

I wish you all well!

Vs Time
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Date Joined Feb 2012
Total Posts : 4
   Posted 2/4/2012 10:27 PM (GMT -6)   
You pointed out dehydration, I wonder if that is true.
I now realize I have a "condition". I thought it was a random occurrence until it happened again. In the middle of the night I was awakened suddenly with this intense pain in my rectum. All I could do is extend my legs and try to press on the area to make it go away (the way I used to do mid-of-night calf charley horses when I was little). Nothing would help it go away. I went to the toilet, nothing helped.

Problem is, I didn't know what to do with myself. I couldn't just lay there, because the pain was too intense. Then I started feeling like my body was going to sign off. I guess that is what is known as "impending doom". This happened to me before, and I staggered to the bed to lay down. I couldn't even lay propped up a bit, it had to be flat, or I would feel my head swaying in dizziness. I switched on the ceiling fan just to help me relax. Then I got nauseated (I knew that was coming), and threw up on the floor.

This impending doom feeling finally took over and I must have passed out or went into a deep sleep, because the next thing I knew it was morning. The last thing I remembered thinking as the fan was blowing on me was, "I hope I make it out of this."

For me it's: Rectal spasm (about 5 min) --> Swaying head/dizziness --> Nausea +/- vomiting --> Impending doom --> Pass out --> Wake up the next morning.

I had not drank a lick at work all day, and had not eaten all day (exc. breakfast) because I was so busy, and got home really late at night, and ate late, i.e., wasn't friendly to my body that day. So maybe those conditions had something to do with it.

Post Edited (Vs Time) : 2/4/2012 10:41:35 PM (GMT-7)


Tinlou
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Date Joined Jun 2010
Total Posts : 390
   Posted 2/7/2012 10:47 AM (GMT -6)   
What is so mysterious about this, for me is that it doesn't seem to have any real rhyme or reason to it. Since most of us obviously have IBS here it may have something to do with our sensitivity in that area. Anything can set it off, orgasm, certain food, and probably when we are having a bad IBS day it can react. It may go away for a while but suddenly show up and always in the middle of the night! Why is that? Apparently our bowels like to be annoying even then...AS of late mine have become milder for some reason but still it is enough to wake me up in the middle of the night.

Dave1011
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Date Joined Feb 2012
Total Posts : 1
   Posted 2/8/2012 5:47 AM (GMT -6)   
Apparently, PF is what I have suffered with for the past 31 years. I can get these during waking hours, but usually at night while asleep as most others are reporting. Many of the posts indicate relief from walking around. I have found that this only intensifies the pain and its duration. I'll get out of bed and go to the recliner and wait it out. If during the day, I have to find a place to sit. I have described this to my M.D. as feeling like a pair of pliers are about 6 inch deep, grabbing whatever they can find and twisting.

Two questions.... An earlier post stated that sitting on a hard object (i.e. a baseball) provides relief. Have other tried this and does it in fact work? Also, does my description sound like PF? My MD has no idea.

Tinlou
Regular Member


Date Joined Jun 2010
Total Posts : 390
   Posted 2/8/2012 10:32 AM (GMT -6)   
I don't mean to sound gross here but I have tried everything and the only thing that has worked and lessened the duration is actually squeezing the sphincter muscle in and out repeatedly and quickly as if you are trying to hold in a bowel movement. It isn't perfect but it seems to help better than walking around or trying to have a bowel movement which never seems to happen even though it feels like I do.

Quixote38
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Date Joined Feb 2012
Total Posts : 1
   Posted 2/14/2012 12:04 AM (GMT -6)   
Hi. im new here and have suffered with PF for about 5 years. Mine is caused directly from stress! What I was FINALLY able to do to get the horrible pain to stop, was sitting on a tennis ball on a hard surface. It was a miracle relief, at 2AM! Hopefully this will help someone else. :)

Larry 2
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Date Joined Feb 2012
Total Posts : 2
   Posted 2/15/2012 11:44 AM (GMT -6)   
I had to get rid of hand gun. Wake up always at 2 to 4 am. I have had some serious pain in my 55 years of life. But, was not pre paired for this. I was embarrassed to tell anyone (how could a pain in the bum) be so bad...? I tried everything. Then divine providence led me to this site. Was not aware so many people had similar versions of this. I'm still looking for a permanent way of "getting to the bottom" no pun intended of how to fix this problem...so it may help someone else I want to post my situation. At the first sign (usually waking up knowing what's to come" shear torturous un-imaginable slow growing pain I took my wife's abutamol inhaler and puffed it three time's...it almost instantly cut the pain down by about seventy percent... and kept at that level for the duration usually about 15 to twenty min's or so. Until the "event" was over.. I take one klonapin a night for bad nerves (helps me sleep. And I sometimes need "belladonna" for IBS I will be talking to my doctor about a permanent solution who can live like this...? I can go for a couple of months with no "events" or have them once or twice or three times a month...This pain is so severe for me that when I know it's coming on just the idea of what's to come is terrifying... I hope someday there is a "permanent fix" for this. All the very best...!

Larry 2
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Date Joined Feb 2012
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   Posted 2/15/2012 12:20 PM (GMT -6)   
 
I would also like to say. This problem only started after I had my fist colonoscapy and they took a biopsy...? bit a piece of my colon off to test for cancer (I guess this is standard procedure) I would be very interested if there is any correlation to the onset of others having symptoms after having a colonoscopy... maybe they are not supposed to be biting off a part of your colon for testing or maybe the part they bit off was a nerve ending that would initiate these types of problems.I know this would not apply to everyone ,it just seems strange about the timing of this as I have never had any problem until a couple of months after my first colon examination. 

bhorshoe
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Date Joined Feb 2012
Total Posts : 1
   Posted 2/16/2012 7:43 AM (GMT -6)   
Interesting Larry. I'm 43 and I have suffered from this occasionally for a few years, and it was a few years ago I also had my one and only colonoscopy. I don't think any biopsy was taken, but similar timing. On the occasions I've had this, it's always been in the middle of the night, and have been woken up from the intense pain. I know this sounds out-there, but each and every time I've had an extreme erection also, which I believe in not unusual. The first time I had an attack I had no idea what to do, but because of the erection I did what guys sometimes do to pass the time... :) And believe it or not, the pain stopped within a few minutes. I guess if this is related to a cramp in the levator-ani muscle, then I guess it makes sense that the muscle release one gets from said activity could relax all the muscles in that area. I guess I've had an attack maybe 10 times in the last couple of years, and each time I've had it I've quickly pulled my first relief method out..and it's worked each and every time. I have never come across any other mention of this 'cure' (lol!) anywhere else, but maybe worth a try as it seems to work for me.

William Smith
Regular Member


Date Joined Feb 2012
Total Posts : 36
   Posted 2/16/2012 11:01 AM (GMT -6)   
Hi there Bill,

I am aware that with IBS you can get rectal pains and itching/irritation, due to reccuring diahrea or other factors. Have you ruled out that it could possibly be piles or haemorroids? These are like little tiny balls that hang from inside the anus and can sometimes be painful after sex even 8 hours after sex. It's worth going to see your local GP as you may have internal piles which you might not know about. Do you have IBS? Because I was wondering weather it could be something else. Do you get abdominal pains (mainly lower) when you get these rectal pains? Also, if you don't mind me saying.. during sex you might have over-exerted yourself which might have caused your anus to hurt. Have you ever experienced bleeding from your rectum?

I hope this helps.

Vs Time
New Member


Date Joined Feb 2012
Total Posts : 4
   Posted 2/17/2012 7:06 AM (GMT -6)   
I've been trying to think of an analogous description of the pain. I came up with:

waking up to what feels like someone just hammered a huge nail into my tailbone (and I mean, the tip end of the bone). Then. at the same time, my anal muscles spasmed in the open "bearing down" (not closed tight) position, as though it's waiting for you to push something out. But there's nothing there. Between the lodged nail and the spasmed open anal tissue, some neurological pathway gets activated and I am sent into a dizzy spell until I pass out. (I really don't think it's anxiety .)

Things I know that is not causing the pain for me (I think it could vary by individual. (of note, I am female):
Irregularity of BMs -- I am on super high fiber diet
Colonoscopy - - I have had one before, but it was many months before I ever had this. I had no biopsy.
Hx of IBS - I haven't had any symptoms of this.
Sexual activity - Never happened anytime around this.

Things I suspect, but not sure:
Totally random occurrence with no specific controllable factors.
Stress - But I would expect it to occur more often.
Dehydration - I often don't drink enough water.
Electrolyte imbalance - I am on diuretics.
Poor sleep position/surface -
Personality type - meticulous, high strung - they could be right about this one.

I have only had 2 occurences over a 9 month period. I hope to never have it again. But if I do, I have tennis balls ready (haven't tried it, yet). They are in the freezer in prep for that dreaded day. (I hope they don't explode).

Post Edited (Vs Time) : 2/17/2012 5:17:43 AM (GMT-7)


Jar
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Date Joined Feb 2012
Total Posts : 1
   Posted 2/17/2012 6:26 PM (GMT -6)   
I have just been diagnosed with this and my doctor prescribed diltiazem in a 2% cream. It has been supposedly shown to be effective. Has anyone else been prescribed this?

Post Edited (Jar) : 2/17/2012 4:38:03 PM (GMT-7)


augustine
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Date Joined Feb 2012
Total Posts : 1
   Posted 2/20/2012 2:20 PM (GMT -6)   
I have suffered with this for oover twenty years and find that if i am dehydrated i am more likely to get an attack so do try to drink loads water especially pre menstral due date when more likely to get dehydrated or constipated for some reason if i do get attack i stay in bed as safer and the more i tell myself it will soon pass and embrace the pain it seams to go away quicker i hope this may help someone else suffering

MrHadEnough
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Date Joined Feb 2012
Total Posts : 1
   Posted 2/22/2012 9:31 AM (GMT -6)   
Hello all, I’m a 46 year old man and a long time fellow sufferer.

So, after 15 years of this, this is what I do.
That feeling of throbbing discomfort starts. The warning. Usually I wake up with it happening. I have enough time to rush to the kettle for a cup of very hot water to drink, don’t know why it helps. Maybe to flush kidneys out or to help to pass wind. I also get a flannel cloth wet with very cold water. I start touching my toes - bent over exercises. Getting dizzy and faint I make it to the bed and place the cold wet cloth on my forehead. This apart from feeling nice seems to stop me passing out i think. Must be a severe drop in blood pressure. I NEVER sit on the toilet as trying for a BM always made it much much worse. I can never lie on my sides or stomach iether.
I lie flat on my back with my legs up on the bed like I’m giving birth and start pressing my fingers down hard on my lower belly; like doing an aggressive appendix exam, all around there. (In fact i had my appendix out in case that has something to do with it?) i keep the pressure on all the way through, maybe its pushing out blocked gas? Occasionally I lift my knees up to my chest and hold them there. This helps me greatly.

Slowly it starts to subside after 20 min or so but it’s likely not over. I learnt if i move too early it comes back with a vengeance. I wait a good few minutes with it definitely gone before Ii slowly place my legs back down on the bed. I always feel cold, trembly and very very tired. and sad. sob. poor us.
I think yeast might be a factor. I used to eat loads of pizzas, bread, drank lager and buckets of coffee. Maybe its wheat intolerance who knows?
I’d pay real money to cure this dreadful condition. I’m so fed up with it. I never know when its going to happen and dread it coming on while on a plane, or train or anywhere outside. It seems to be easing off now I’m older but last night's attack was a 7 on my Richter scale 10 being a pass out!

Ill check out the TIPNA website and their Levator Spasms caused by Pudendal Nerve Entrapment theory. Ill also try the inhaler muscle relaxant and the garlic supp and tennis ball. Thank you all for that.

At least we've found a name for it.

Narf
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Date Joined Mar 2012
Total Posts : 5
   Posted 3/5/2012 7:05 PM (GMT -6)   
I have been experiencing the symptoms most of you have been talking about, for years. The past year the pains have become more frequent; once a month, in the middle of the night, like the rest of you. I wake up crying, it hurts so bad. The only thing that seems to relieve the pain, is 2,000 mg of Ibuprofen, and that takes a good 1/2 hour to kick in. I went to several doctors and recently had a colonoscopy, but nothing was found. No one seemed to know why I was having these pains. I am glad I researched this myself and found out what it could possibly be. Thanks to all of you for sharing. Anybody take anything else to relieve the pain??

Vs Time
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Date Joined Feb 2012
Total Posts : 4
   Posted 3/5/2012 10:59 PM (GMT -6)   
Just to let you know, 2000 mg of ibuprofen is a bit much. Most adults don't need more than 800mg. You would be at risk for bleeding of stomach lining.

I'm sorry I don't have any relieving factors to add, I haven't found any myself. I had an episode 3 nights ago. This time I didn't pass out because I followed another post's recomm to lie on back with feet up.

The tennis ball didn't work for me. I had a ball I had stored in freezer, it helped detract me from the severity of the pain. but regardless I had to wait it out (approx 10-15 min).

I wonder how many people who visit here are professionals? I read its common in doctors.

Narf
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Date Joined Mar 2012
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   Posted 3/6/2012 7:54 AM (GMT -6)   
Thanks for the info. The reason I take so much is because 1,000 mg. just doesn't do it! I know it isn't good for you, but I guess when you are in that much pain, you don't think about it at the time! Next time I will try laying on my back with my feet up. Thanks!

Meene
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Date Joined Mar 2012
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   Posted 3/7/2012 12:26 AM (GMT -6)   
I've just discovered this thread and wanted to share my story. I'm a 41 yr old healthy female, apart from acid reflux which I've managed for years. I had my first pf attack about 8 months ago and it lasted over 3 hrs! Now I've given birth and had kidney stones which are apparently 2 of the most painful things to go through and I have to say that pf attacks in my opinion are right up there in the same pain threshold. The pain came out of nowhere and had me on my knees within seconds, I couldn't move and could barely breathe. I was home alone and couldn't get off the floor to even get painkillers. After 2 hrs I slowly crawled to the kitchen and took some panadol and buscopan which is an anti spasmodic. Once they kicked in I managed to get into bed but the length and intensity of the spasm left me feeling vulnerable to another attack for days later. It felt as though I was having tiny spasms for days.

Today I felt another coming on and got straight into painkillers, buscopan and bed and luckily it didn't come on, or it did but lasted seconds only. The only connection I can make is that both times I had an upset stomach, tight lower back going through the gluteus and legs and possible dehydration. I had completely altered my diet since the first attack and no longer eat bread, dairy or high carb meals. I now drink 4 liters of water per day but yesterday and today I haven't consumed a fraction of the water that I should have. My attacks have been during the daytime and I'm scared to death of them as when they hit ou just don't know how long it will last..

I'm curious as to what kind of supositories are being used? I can't even imagine inserting one when the pain is so intense.

I certainly don't feel like I'm suffering alone anymore and everyone living through this hell is somewhat of a comfort.. Sorry guys that sounds horrible as I wouldn't wish this on anyone and hope that people continue to post and share anything which may help to manage/control this terrible condition.. peace and good health to all!

Narf
New Member


Date Joined Mar 2012
Total Posts : 5
   Posted 3/7/2012 8:02 AM (GMT -6)   
Sorry you are going through this. The pain is horrible, I know. I think everybody's body is different, as far as what might bring this on. I drink plenty of water and don't eat much of what disturbs you; so I think everybody is different, although the pain is still the same! I was surprised when I researched this how many people were experiencing the same pain. I got more from this thread than any doctor I went to! Good Luck!

hayley3
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Date Joined Mar 2012
Total Posts : 4
   Posted 3/8/2012 8:30 PM (GMT -6)   
I would get these before my colonoscopy but they were more like a quick twinge. But now the pain is excruciating and I do feel as if I'm needing to have a BM but just can't. If I take magnesium capsules EVERY day I don't get them anymore. I also get esophageal spasms and with those you pray for death to end your pain they are soooo bad. But the magnesium helps those too. For emergencies such as the rectal pain, I keep the powered form on hand..it seems to take effect quicker esp on an empty stomach.

Narf
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Date Joined Mar 2012
Total Posts : 5
   Posted 3/9/2012 7:20 AM (GMT -6)   
Thanks for the tip, Haley3, I will try this!

IBS-D2012
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   Posted 3/10/2012 6:56 PM (GMT -6)   
Maybe switching out to naproxen for a while might help....it is also antiflamatory. After my broken pelvis healed, I started having these knife like pains in my rectum. They definitely get one's attention. What helped me some was laying on my side, and taking a frozen pack (like that blue gel) wrapped in a washcloth and tucking inbetween my cheeks. Don't leave on there more than 10 min. It seems to help take the sharpness out of it, and calm it down.

Narf
New Member


Date Joined Mar 2012
Total Posts : 5
   Posted 3/11/2012 7:55 AM (GMT -6)   
thanks for the info. I can't naproxen, but will try the ice pack! I will try just about anything!!

IBS-D2012
New Member


Date Joined Mar 2012
Total Posts : 6
   Posted 3/11/2012 7:39 PM (GMT -6)   
I hear ya!!! We get to that point don't we! Hope it helps, and you had nothing to lose in trying it!
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