have you tried entocort? thats what im on, after 3 weeks of diarreha, day and night. It stopped my diarreha with the first dose, which is amazing cause i had tried everything else. Ive never had blood in my diarrhea, and hope i never do, but you m ight ask your doctor about it. I have lost lots of weight to, and am trying desperately to gain it back. It does suck, because when you have diarreha that much, you lose your electorlytes and get very dehyrated. So drink plenty of pedolite, thats what i do. I really will be praying for you, and i know how miserable you are. Take Care Pepper
Thanks for checking in, Lil! My two weeks post-Mayo has been fairly uneventful...I've seen my PCP twice and she is being awesome, 100% behind me on this. Willing to work with me instead of running as fast as possible in the other direction. She wants me to do a Prometheus test for IBD, is waiting for a culture to check for gut TB, wants some IgG and IgE antibody testing done for food allergies, and wants to send some blood and stools to this alleged "parasite guru" in Arizona she knows of. She's a regular M.D., an internist, but works in a new center with a couple of naturopaths and a nurse practitioner. She doesn't have that god-complex that many specialists I've seen have, and she's open to so many more options.
I tried the Levbid/Lomotil combo twice a day for 10 days; but I still had crazy D. I think the Levbid was effective for the cramps, though, which haven't been bothering me as much. It does kind of dry me out a bit, though. She thinks I'm malnourished after all this D and so put me on a good multi-vitamin with extra zinc (which supposedly helps some people with Crohn's disease), a fiber supplement to bulk me up, Questran for the days I'm like a garden hose (usually 1-2 days/week), and increased amounts of probiotics for now. She also told me to stop taking Zoloft, which I've been taking for three years, because she thinks it could be contributing to the diarrhea. I've been tapering for a while now, so going from 50 mg/day to none shouldn't be too bad.
I've had fevers every day for a few days now. Little ones, like 100 degrees, but enough to make me feel run-down. I've been slurping down the Tylenol like a crazy woman, but it doesn't seem to affect the temperature!
Today has been very bizarre indeed. I've gone like 8 times today, but all my stools have been soft and formed, which is a big deal for me. I haven't taken the Lomotil in a couple of days. I wonder if it's the fiber supplement or what?
Anyway...that's the news here...I'll update as I get new info. Thanks for the unwavering support!!
Lil, thank you again for your kindness! It is so nice to know that there are other people who are going through similar crap (pun intended) and always have an ear to lend. Yes, I do work, thank goodness - I don't know what I'd do if I was always in the house! I am a social worker for mentally ill kids. They keep my life thoroughly spiced. I'm 26 and blazingly single and live with two cats - oh my goodness, am I going to be that old spinster lady with the cats, sitting and crapping myself in my rocking chair? LOL. Anyway, my coworkers and friends are simply amazing, they are always there for me, making fun of my bathroom trips (I'll provide entertainment any way I can!). Work has also given me an extra 200 hours of paid sick leave this year and that has literally saved my butt. Health insurance isn't too bad either! I'm pretty lucky in that regard. I know a lot of people - most people - aren't nearly as lucky with their employers or insurers.
In a year or two I am off to either a) medical school to become an internist or b) a nurse practitioner program. I'll be focusing on public health either way, so I can keep up my travels (although some might say that's a really stupid idea, considering my garden-hose-like state over the past year, which may have something to do with my previous travels).
Yeah, usually my poops are watery, so having a day like today is quite an accomplishment. I did notice a little bit more gas, which usually isn't a problem for me. Did you know the average person is supposed to fart 12 times a day? We should start a poll!
Post Edited (7Lil) : 10/7/2005 9:33:27 AM (GMT-6)
Franky...they did a stool culture to see if tuberculosis is settling in my gut. I was exposed to the lovely TB when I lived in Africa and spent nine months on isoniazid, an anti-TB drug, but the docs said it still could be lurking around in there and causing this nastiness. I kind of doubt it, but who knows?
I am totally going to start a diarrhea and a fart poll. And maybe a "how many of us are 20-something spinsters living in apartments that smell like cat pee and diarrhea?" poll. Let me see if I can figure out how to do it. If I can't, someone should!
Hey Keri, join the 26 with IBS club! Looks like I have to get myself a cat. j/k
I thought most people farted in their sleep. Your body doesn't care if it is awake or sleeping... when you have to let one go, you have to let one go. It is especially easy to pass gas while sleeping because your sphincter muscle isn't tense, so it just comes out. LOL Scary when you think about having a "sleep over" with someone for the first time.