I had the Panca Anca (whatever they're called!) tests done and had the results within days. It would definitely be something a doctor should check before making any decisions without seeing ulcers in a colonoscopy or small bowel follow through. I am surprised the Mayo clinic didn't check those right away.
What has your typical diet been throughout this ordeal? Also - how are your nutrient levels (i.e. iron, B12, etc). People with IBD are often lacking in those. My only low item was iron, but I was severly anemic two years ago when I was pregnant and never took supplements to restore those levels. Also - do you have any relatives with IBD? I found out I had two so I totally freaked out and just told myself I had it too. I bet in the long run you will end up getting better, and hopefully I will, too. It is just a depressing thing to not know what the final answer will be.
I am in Santa Cruz, Bolivia. My husband and I are in US gov't jobs here. I really love it here - except for the lack of shopping malls and Target! You all don't know how spoiled you are!
LOL, NO WAY do I have something that's never been dubbed before. That is just way too dramatic for me! I'm sure it's just something stupid and ridiculous like one of my little African parasites coming back to haunt me and hiding away in some deep recess of my soul. Or something.
I totally, 100% agree with the tone of your post. Maybe I WILL move to France...or Romania! Always wanted to go there...