Diverticulosis - Anyone Got this too???

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Amberleaf
New Member


Date Joined Oct 2005
Total Posts : 1
   Posted 10/13/2005 12:04 PM (GMT -7)   
Hi - I'm new on this site but I really feel so alone with this problem.  Earlier this year (after years of symptoms) had Barium Enema which showed multiple 'diverticulae' all through the large bowel.
 
Symptoms I have are horrendous bloating, crampy sharp pain lower left abdo when constipated or trapped wind.  I don't actually have diarrhoea but very loose stools and the need to go frequently alternating with constipation - I swing back and forth.  Stress, sitting all day in the office only makes it worse.  Not being able to 'pass wind' when one's body says so results in bloating and cramps.  The bloating eventually makes me feel nauseated and not keen to eat as I feel I'm just 'filling up' and it's not passing through anywhere!
 
Although the diagnosis was given earlier in the year, so far I was not been given any meddication to cope with the alternating loose stools, cramps in fact all the symptoms you get when you have a nasty tummy bug.  Then also the other side of the coin when having experienced a week of that you swing the other day and gradually get more and more constipated and bloated apart from being told take Senakot or Lactulose.
 
I've just moved house and a new patient at a new surgery so we're back to square one!  But due to all the stress with the house move and 'cancer' scare this all triggered by 'tail end' to really play up and was prescribed Mebervene. Not sure how this works and whether the horrendous bloating, trapped wind plus also being very windy and full will ease.  Is anyone else on this medication?  Have you any tips on diet etc. anything that I could try perhaps ??? eyes
The Consultant at the hospital enclosed a leaflet with his letter informing me of the diagnosis and what it is but confused  other than 'self help' i.e. Senakot or Lactulose when constipated I'm at a bit of a loss as to what to do.
 
Until I moved in August, I lived close enough to work to walk in every day - 35 mins walk there and back and as we all know walking is good for you.  Now I live 12 MILES away and have to drive, then catch a bus from the Park and Ride. Work as an audio typist again means I'm sitting down all day - none of this I can change and it's not doing my system any good.  Anyone got any suggestions how to get round the sudden lack of general 'activity'?  And no, I'm not in good physical shape for a gym or swimming as I have osteo-arthritis in both hips sad   So - is there any 'relief' for me that someone can suggest please :-)

Post Edited (Amberleaf) : 10/13/2005 1:15:20 PM (GMT-6)


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 10/13/2005 12:20 PM (GMT -7)   
Hi Amber,
Welcome to Healing Well :)
I have diverticulosis as well as IBS.  Your symptoms with the gas, diarrhea, and constipation sound like IBS.  Like you, when I was diagnosed with diverticulosis.  I didnt' get much of anything... actually I didn't even get a leaflet.  I got a lab report saying that I had it but nothing describing what it was except a piece of paper that said that I needed to contact my doctor right away and it was urgent.  Gosh, what a way to scare a person... it turns out that I had a case of diverticulitis.  It would have helped if they gave me info :)
Here is some good info:
http://www.mayoclinic.com/invoke.cfm?objectid=82C205AC-1DE9-41F7-AE8F092447A0648A
Hugs, Des
Co-Moderator ~ IBS Forum
 
"If you don't like something change it; if you can't change it, change the way you think about it" - Mary Engelbreit
 
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Joan M
Veteran Member


Date Joined Jan 2006
Total Posts : 1972
   Posted 10/17/2010 6:12 AM (GMT -7)   
this can be a serious problem but nobody talks about it. everything is fiber, fiber, fiber and with that i had a lot of fecal incontinence. am doing very much better without all the fiber, fiber fiber and that is for sure! doctors make so much money and all they do is guess, guess, guess. in the old days, it was don't eat anything with seeds, now it is seed city, fiber, fiber, fiber

shawn12
Veteran Member


Date Joined Jul 2004
Total Posts : 1293
   Posted 10/17/2010 10:37 AM (GMT -7)   
Amberleaf

Do you have IBS and diverticulae?

http://www.iffgd.org/site/gi-disorders/other/diverticulosis

The info that dbab gave you is good information.
IBS Forum Moderator


I am not a doctor. All information I present is for educational purposes only and should not be subsituted for the advise of a qualified health care provider.

Please make sure you have your symptoms diagnosed by a medical practitioner or a doctor.

neutron
New Member


Date Joined May 2011
Total Posts : 2
   Posted 5/14/2011 9:04 PM (GMT -7)   
I had a colonoscopy a few years ago, and was told that I had diverticuli in my colon. I have been suffereing from lower GI bleeding off and on for about 10 years, and I'm trying to learn how to control it/limit it as much as I can. It always flares up when I'm under a lot of stress and/or when I've been working long hours, although sometimes it hits me when I'm well rested and totally relaxed.

I've been eating a lot more fiber, and walking more, but that only helps a little, it still flares up every couple of weeks or so. I've lost so much blood over the years, that I also have anemia, hypotension (low blood pressure), and at times POTS (postural orthostatic tachycardia syndrome...racing heartbeat & a severe lightheadedness when standing up/moving around, to the point of almost passing out). I try to take vitamin B12 and iron every day, and that helps my energy levels.


My basic pattern is I'll be relatively fine for a week or two, and have normal BMs...then out of the blue, I'll get diarrhea. Often I'll get malabsorption later that same day (mostly liquid BMS which are foamy and greasy). Then later the blood will start, soon to be followed by the passage of bloodclots. This usually goes on for two days or more (sometimes 4 or 5, but a good fiber intake seems to shorten the bouts of blood/bloodclots in my BMs).

Fatigue seems to hit me a lot worse as soon as I start developing these symptoms. I don't know if its something to do with malabsorption, or the anemia getting worse due to blood loss- even after just a little blood loss, my energy levels usually drop a lot. The malabsorption is relatively new for me, but its been a regular part of my symptoms for at least 6 months now, and I've been having problems with a little leaking out and staining my pants (thank God no one has noticed yet, but its mortifying when this happens).

I don't have insurance, and haven't seen a doctor since my colonscopy,so I am trying to manage my health on my own, but I just seem to be getting progressively worse. The complications from my divertulosis sometimes bother me more than the diverticulosis itself does. Any advice anyone has is greatly appreciated.

Vitamins? Foods? I don't have a great diet and have only started realizing recently what a dramatic effect the food we eat has on our bodies. I'm trying to excercise more, but my tachycardia , anemia, and low blood pressure makes it difficult.

Post Edited (neutron) : 5/14/2011 10:11:31 PM (GMT-6)


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23413
   Posted 5/15/2011 7:58 PM (GMT -7)   
Neutron, you really should see your doctor. Perhaps call them and see if they will be willing to work with in regards to payments. Diverticulosis with bleeding can have so many complications (as you are aware) but not only with a bit of bleeding, if the pockets go deep enough you can rupture and get sepsis or possibly bleed uncontrollably.

Can you eat salt? I have low blood pressure and I was advised to increase my salt intake after I almost passed out. Since increasing my salt, my bp has been a bit more on the stable side. Oh and lots of water with the high salt diet.

I also take a fiber supplement, Citrucel. I have increased my fiber intake too but I found that in addition to that, the fiber supplement really helps. Have you been avoiding nuts, seeds and hard to digest food such as corn? My GI said that they found that nuts and seeds don't bother Diverticulosis but I get very uncomfortable when I ingest them. So I listen to my body.
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(50mgs)/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis~GAD-Klonopin (.25mgs)~Rosacea-Metrogel/Elidel~IBS~Diverticulosis~Fibromyalgia

crampygrammy
Regular Member


Date Joined Aug 2008
Total Posts : 85
   Posted 5/16/2011 1:38 PM (GMT -7)   
Joan M said...
this can be a serious problem but nobody talks about it. everything is fiber, fiber, fiber and with that i had a lot of fecal incontinence. am doing very much better without all the fiber, fiber fiber and that is for sure! doctors make so much money and all they do is guess, guess, guess. in the old days, it was don't eat anything with seeds, now it is seed city, fiber, fiber, fiber
LOL I agree whole heartedly and I'm sticking to my low-residue diet supplemented with a multi vitamin. It works best for me tongue

Joan M
Veteran Member


Date Joined Jan 2006
Total Posts : 1972
   Posted 5/18/2011 1:45 PM (GMT -7)   
hi...what is a low-residue diet. I seem to be better off as a meat and potato person but I LOVE FRUIT.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23413
   Posted 5/19/2011 4:54 AM (GMT -7)   
A low residue diet is to avoid any food that is hard to digest. And to eat simple things such as rice, chicken, potatoes, fish etc. Raw fruit and veggies are in the "high residue" or fiber diet. Cooked veggies and fruits are okay on the low residue diet because the body doesn't have to work as hard to break it down.
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(50mgs)/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis~GAD-Klonopin (.25mgs)~Rosacea-Metrogel/Elidel~IBS~Diverticulosis~Fibromyalgia

Joan M
Veteran Member


Date Joined Jan 2006
Total Posts : 1972
   Posted 5/19/2011 5:06 PM (GMT -7)   
thanks, i looked it up and some fruits are allowed like melon, canned fruit

fruit juices except prune juice
applesauce, apricots, banana (1/2), cantaloupe, canned fruit cocktail, grapes, honeydew melon, peaches, watermelon

will check it out more. do you think that small meals are a good idea for ibs. since it helps with losing weight...guess it is a good idea. still have 30 lbs to lose though i am 6 foot tall so it is not as super horrible as it might sound.

so long and thank you.
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