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mrmagoo
Regular Member


Date Joined Oct 2005
Total Posts : 78
   Posted 10/17/2005 8:08 AM (GMT -7)   
Hello all, I stumbled across these forums today looking for somewhere I could actually feel not so alone :) My poor wife just doesn't understand.

My Story: (Quick Version)
Stressed out life style, bad eating habbits, and a new night shift office job took me from a 175 lb fit individual to a nearly 230lb lard butt. I started having sever pains about 4 years ago, Dr. kept telling me it was ulcers and putting on prev-paks and other such solutions, which seemed to help some. After 3 years of fighting this thing month to month, they finally sent me to a GI. I love my GI, the nicest man, and helped me out a ton. I have had a colonoscopy, a billion cat scans, sonagrams, you name it I have just about had it. And all in all, they were wastes of money. The final solution, or decision was that they didn't know what was wrong, so I had IBS, and Acid Refulx. So now I live (if its living) on Nexium, and a few other odds and end pills.

My life is not nearly as bad as some of the stories I have read on here, so I feel somewhat lifted by your misfortune but at the same time realize it could get worse; and I also feel extremely sorry for those individuals that must go through such hell.

My symptoms mostly aggrivate me of a morning, if I can make it through lunch I am usually ok. Then usually at least once a month, I spend that day all in the John, or at least running back and forth, with the cramps the times I am not. There have been days I wanted to pull out the kitchen knife and just start wacking away. My wife always want to go out to eat, or to a show, or anything; but I am very weary of when & where we go, and the fact that I have a bathroom phobia does not help things. Our marriage has been very rocky due to the episodes I suffer, I nearly missed our wedding over this stupid disease or Syndrome as they call it.

I do not think the Dr.s really understand the emotional and physical toll this syndrome takes on a soul. It takes everything you have sometimes to even get out of the bed. I know alcoholics, and drug users that are in better mental states than I am because of this stupid syndrome.

Anyway, sorry about the ranting, I am having a few issues this morning, as with most mornings. I am glad I found this place.

7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 10/17/2005 9:07 AM (GMT -7)   
Hi Mrmagoo, welcome to the IBS forum! I hope we can help you.... I know that I have received a lot and support from this site.
First off, I'm sorry you are feeling so terrible and it is taking such a toll. I hear you TRUST ME. I was/am feeling the same way. I can't imagine living like this for the rest of my life. I can REALLY get depressed about it. My family sees it too. Yesterday my mom watched old home videos and said to me "What happened to you? You used to be such a happy child." It made me sad to think that my mom is worried, and in some way she feels responsible.
Your wife may not understand how bad it is for you. Have you given her any resources on IBS, has she researched it at all? There is a post on here that goes WAY back that has a link to a word doc that explains all about IBS, and how we feel, to a non-IBSer. It is great... I emailed it to my friends and family. Maybe you could give it to your wife. Let me look around for the link (I'll be back.)
Anyway, the most important thing is for you to come to terms with this. Don't let it control you. Alter your diet.... eat healthy and cut out fast food. Also, it helps to eat small meals more ofter throughout the day. When you go to a restaurant with your wife try ordering something with little fat and not stuffing yourself. You may want to take a little Imodium before you leave the house to put you more at ease; that's what I do. You may also want to try taking calcium daily to control your D. IT REALLY DOES HELP.
I hope this helps you some.


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7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 10/17/2005 9:31 AM (GMT -7)   
I found the link! See if you can get your wife to read it:
http://www.ibsgroup.org/main/brochure.html
 
In my 1st post I said this was a Word doc - it's not, sorry.  (I copied it into a Word doc and sent it via email to friends & family.)


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Post Edited (7Lil) : 10/17/2005 11:32:24 AM (GMT-6)


mrmagoo
Regular Member


Date Joined Oct 2005
Total Posts : 78
   Posted 10/17/2005 11:12 AM (GMT -7)   
Hey thanks, I will see if she will read it :)

Let me ask a question, I really only have D once a month if that, I usually just have thin stringy mucusy stools, and on bad days I feel like I have a match lit in my torso; but most of the time (after months, and months of brainwashing) I can control some of the urges, and can tell the difference between a real need, and just nerves.

My family is the same way, I am 25 years old, and used to be able to do anything, althletic, smart, outgoing, you name it I did it; but now, I sit at home on my PC most of the time.

My GI prescribed me with Darvoset for the pain, which seems to help, as well as Vicodin that I had for a toothache, but both are just cover ups and usually result in an even worse day down the line, so I try to avoid them as much as possible.

And my stupid company is sending me to Mexico in January, I am already stressing and have no idea how I am going to handle something like that. I have never flown, am scared out of my mind, and do not want to go, but I cannot get out of it.

7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 10/17/2005 12:05 PM (GMT -7)   
Mrmagoo, all I can tell you is to try and enjoy your trip. Mexico, depending where you go, is beautiful. I would suggest you take some Imodium the morning of your flight. Also, DO NOT DRINK THE WATER whatever you do. Even be careful eating produce that has been washed in their water. When I went to Cancun a few years back I stayed in an extravagent resort that had clean water (they told us it was purified). I only ate and drank there, and never got sick. If you stay in a resort type place then I wouldn't worry too much about the water. Otherwise, beware.
Please don't think I'm rude or inconsiderate by saying this but I have to... you are lucky if you are only having D once a month. Many of us have it daily or weekly. When you are not having D are you constipated? If not, you might want to try calcium or sticking to an antispasmodic when needed. FYI... probiotics are excellent to take during or after a D attack.
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Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 10/17/2005 1:08 PM (GMT -7)   

Mrmagoo, it sounds like there's a lot going on in your life that seems to be stressing you out big time.  That is just not good for your tummy; your tummy is telling you to make changes!  If pain is your major symptom, you have to keep a pain diary and figure out when it is the worst and when it is the least intrusive.  I like the 1-10 scale; 1 being no pain, easy breezy, and 10 being immobile/crying/gasping-for-air-on-the-floor/worst-pain-ever.  Obviously the narcotics aren't helping you very much.  If you've had all kinds of scans and scopings, it seems there is no apparent organic cause for the pain.  People don't like to hear that pain can be in their heads, but the fact is, any pain is real.  Even if you are having pain from being stressed out, it is still pain! 

Luckily, there is something you can do about it.  You have to identify sources of stress in your life.  Write down the most major factors contributing to your stress and rank them in order of how overwhelming they are to you.  Like a) I have never been on a plane and I'm scared to death of flying but I have to for my job; b) my wife is not supportive of this very bothersome tummy trouble; c) I feel lazy/bad about myself because I haven't worked out in a while; or whatever might be bugging you.  Then, you have to identify solutions.  You have to take charge! 

Have you ever seen a counselor or therapist?  Sometimes this, too, can be a waste of money unless you find someone you really connect with, but obviously you need more support than you are currently getting.  A place like this is a good place to start. 

Medically speaking, there are other meds out there that may help besides narcotics (which are actually quite constipating).  Like Lil mentioned, anti-cholinergics (anti-spasmodics) like dicyclomine or hyoscyamine can stop the stomach from contracting too much and this can cut down on the pain.  You say that Darvocet is helping, though, so keep taking it!  If you're only having diarrhea (and by diarrhea I mean very loose or watery stools) once a month, I wouldn't worry about that too much; if it's a bad day, just pop some Imodium, most people respond very well to it.

I feel like I was kind of long-winded without much concrete help, but I can clarify later...basically, stress can do a number on people's bodies, and you really need to identify the source of the stress and get some help in dealing with it before it overtakes you!


mrmagoo
Regular Member


Date Joined Oct 2005
Total Posts : 78
   Posted 10/17/2005 1:09 PM (GMT -7)   
Oh, I know I am very fortunate to have what I have, compared to what it could be. To actually classify most days for me, I do not really know, constipation maybe. I mean I have a bm at least once a day, now the consistancy of the bm varies, somedays its hardly anything, others its a good bit. I do think the pipes get a little backed up if you know what I mean. And its after a few of those days that a bad day usually comes. So by the true definition of constipation, no; but the fact that I know its not normal, yes.

Fourth of July I was stupid and had hot dogs and hamburgers for like 3 days straight, the 4th day I thought I was going to die. I have a severe pain in my lower left side, thought I had a hernia (sp?); and was in the john all day. Even the pain killers didn't help. I stay away from hot dogs, other than the occasional one.

But like we have both said, I am one of the lucky ones, mine is not as bad as it could be. The Dr. thinks the prolonged exposure to stomach acid from the years of ignorant Family Doctors, took its toll, and now I have to attempt to brainwash my gut back to functioning correctly, doubt that will happen, but its worth a shot. Thanks to events in elementary and high school I am very bathroom aphobic and having a bm in a public restroom causes me to have an anxiety attack. Over the past 6 months, however, I have slowly started overcoming that fear, left with no other choice, I had to.

I hope that I can learn from those here, and maybe provide some help for others. I need to seriously work on my diet, as do most of us probably.
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