Today's visit to Meg (says a lot when you can call a doc by her first name)!

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Sarita
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   Posted 11/3/2005 4:48 PM (GMT -7)   
I went to her about my burning rump.  She took a look at my rump and confirmed that I have both hemorrhoids and skin tags and says my burning poo is probably the result of an inflamed internal hemmie.  After perusing my food diary, she advised me to go off dairy altogether for a week - no milk, cheese, yogurt, or anything with the word "milk" listed in the ingredients! - to see what that does.  Just as an experiment before my food allergy tests come back.  Also to start drinking - drumroll please - aloe vera juice (anyone feel like joining in a vomit-fest?).
 
She also took a look at my very sore left hip.  I developed that almost three months ago and haven't figured out the source; my knees have been bugging me too.  But those are mild compared to the other issues, so I said I'll ignore those as long as I can.  She seemed to think that was okay.
 
She said that it appears, overall, like I'm doing a bit better these days.  Other than the vicious attack that brought me to the ER 10 days ago, I haven't had a 10+ day in quite some time, and even had those 4.5 days of formed BMs last week.  She praised my optimistic attitude (little does she know the cursing/spitting/fuming that goes on at home, and sometimes here online!).  And she thinks it is the fiber and probiotics that are starting to firm me up.  Hey, I'll take whatever I can get.  Going to collect the parasite puppies in another week and then...who knows?  Maybe an answer?  Some semblance of an answer? 
 
I told her I want this to go away so I can go to med school.  She seemed to think that was a reasonable idea.  And seemed optimistic that maybe it'll happen.  Oh my god!  What will I do if I don't have craps all day long?  What would YOU do?  I'm going to start a poll!

dbab
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   Posted 11/3/2005 4:57 PM (GMT -7)   
Did she say anything about the skin tags? I thought anal skin tags were a symptom of Crohn's?
Hugs, Des
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Sarita
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   Posted 11/3/2005 5:02 PM (GMT -7)   
Yeah, I thought about it, but didn't bring it up.  She said that hemmies can be the result of constant diarrhea and skin tags can come along too.  I'm not really sure about that...do other people have skin tags (not hemmies)?  The skin tags are like little flaps, flesh-colored, not painful, just hangin' out, so to speak...ew!  I'm getting grossed out.  Sorry y'all.

7Lil
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   Posted 11/3/2005 5:02 PM (GMT -7)   
Thanks for the update!
I don't mean to continue on a sour note.... but what about the aches? Isn't joint pain (and stuff like that) associated with Crohn's?
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Sarita
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   Posted 11/3/2005 5:05 PM (GMT -7)   
Well, some people with Crohn's get achey joints.  And anal skin tags.  And yes, low-grade fevers.  But without that colonic inflammation...I don't know.  It just doesn't seem to fit altogether.  Although at a recent visit to her she did say she was surprised they didn't find evidence of Crohn's in my colon.  I just keep thinking, if it's Crohn's, it's bound to get worse, and they're bound to find it eventually...right?

dbab
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   Posted 11/3/2005 5:06 PM (GMT -7)   
My doctor mentioned what he thought was skin tags on my colonoscopy but he said that they could be something else since they are associated with Crohn's not UC... I'm assuming that if skin tags are not associated with UC, then they wouldn't be associated as normal.
Hugs, Des
Co-Moderator ~ IBS Forum
 
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7Lil
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   Posted 11/3/2005 5:07 PM (GMT -7)   
You're right, Sarita. Hopefully all you have is a nasty little parasite that the guru will find and miraculously cure. Hope for the best....
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dbab
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   Posted 11/3/2005 5:10 PM (GMT -7)   
When they did biopsies on you Sarita, did they take biopsies from all over or just certain spots... Crohn's I hear is hard to detect because it could be anywhere that there is not necessarily a pattern like there is with UC. I'm not an expert on the subject though so I could be wrong. Ugh, didn't mean to cause all of this frustration again. *slapping hand as I type
Hugs, Des
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Sarita
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   Posted 11/3/2005 5:19 PM (GMT -7)   
Well, it's something to keep in mind, don't slap yourself Des!  It's always in the back of my mind, unfortunately.  I hate being in that hypochondriacal mindset; I don't want to imagine the worst, I don't want to diagnose myself with a serious debilitating chronic disease (although what I've been through has been pretty serious and debilitating and chronic!).  I don't know.  I just figure I'll keep on goin' and hope for the best.  Even Crohnies sometimes can get by without all those hardcore meds and steroids and crap...even some of them can get their disease into remission with plenty of supplements and dietary changes.  I'd rather go that route before I have to go into the hardcore stuff. 

Ides
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   Posted 11/3/2005 5:42 PM (GMT -7)   
Sarita, did you do the Prometheus IBD First Step test? If so, what were the results? Skin tags can occasionally be found outside of CD but most often are indicative of CD. Not trying to give you CD, only trying to help. Ides
CD for 25+ years; finally Dx 2004. SpA diagnosed soon after.
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dbab
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   Posted 11/3/2005 5:53 PM (GMT -7)   
Oh yeah, I forgot, Ides was going to become the skin tag guru (remember Ides? LOL)... she was the first person I went to when my doc mentioned skin tags because everyone told me that thats not from UC. She's a smart lady. :)
Hugs, Des
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Sarita
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   Posted 11/3/2005 7:49 PM (GMT -7)   
Hi Ides!  Nice to see you again!  No, I haven't done the Prometheus tests yet.  My doc was like, "Well, we COULD do them, but let's do these allergy/parasite tests first." She didn't seem too alarmed by the skin tags.  I don't know what to think!

Ides
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   Posted 11/3/2005 8:43 PM (GMT -7)   
I think you have a doctor trying her best to help you. Keep the Prometheus test in the back of your mind. I apologize Des for not getting back to you on the skin tags. I did look around about that but have since misplaced the info. I will try to do that again....
CD for 25+ years; finally Dx 2004. SpA diagnosed soon after.
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softy
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   Posted 11/3/2005 9:08 PM (GMT -7)   

Hey Sarita.  I have a lovely bunch of skin tags and the GI says I don't have crohn's so ?????.  They are gross aren't they tongue .  Also have right sided hip pain with no known cause.  Again, no crohn's diagnosis here (sarcasm intended).  I have your mindset, if it's crohn's, it's bound to get worse with time.


Take care, Softy
 


dbab
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   Posted 11/3/2005 9:20 PM (GMT -7)   
No problem Ides... I forgot too LOL. Actually my memory has gotten worse and worse lately (I think I'm overworked-note to self: mention to boss). I have done some research and it has been really conflicting but most things that I have read is that perianal skin tags are only present with Crohn's disease but the medical field will never all agree so like everything else its all up in the air. Since my doctor said that it may be something else (however never gave me a clue what that something else might be), I just figured he'll check it on my next scheduled scope coming up in May. Thanks for giving support to us over here Ides, I appreciate it.
Hugs, Des
Co-Moderator ~ IBS Forum
 
"Sometimes I'm afraid, and I don't feel that tough...But I'll stand back up" - Sugarland
 
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softy
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   Posted 11/4/2005 9:18 AM (GMT -7)   
Hey Des. Just thought I'd add that a friend of mine has UC (or had, has a j-pouch now) and she has lots of skin tags from the constant D she used to suffer with. Apparently they never go away unless surgically removed.
Take care, Softy
 


dbab
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   Posted 11/4/2005 9:40 AM (GMT -7)   
Thanks for that info softy. I will be curious to see about them when I go for my scope. There are no pictures of them so I don't even know what they look like. I wish I did, because my brother in law is a doctor and I could have asked him... although, my hubby would probably just cringe at the thought of showing pictures of my anal skin tags to my brother in law LOL.
Hugs, Des
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Ides
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   Posted 11/4/2005 3:12 PM (GMT -7)   
OK, did my homework again. Perianal skin tags [PST to make it easy] seem to occur most often in Crohn's Disease with a couple of exceptions. PSTs are seen in chronic granulomatous disease [this is a rare disease]. PSTs are also seen in those with a history of hemorrhoids. From the Atlas of Internal Medicine: "External or perianal skin tags are soft, fleshy folds of fibrous connective tissue. They are often the sequelae after the clot from a thrombosed external hemorrhoid has resolved." From what I read, this is why there seems to be more PSTs in the elderly population.

Therefore, I would suggest that PSTs in a younger person with gastrointestinal problems should be investigated for Crohn's. Just my own opinion...Ides
CD for 25+ years; finally Dx 2004. SpA diagnosed soon after.
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Sarita
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   Posted 11/4/2005 3:29 PM (GMT -7)   
Thanks, Ides!  Do you have a link to that information from the Atlas?  I'd be curious to read it and maybe bring it to my doc.  Or I could stop being lazy and research it myself! :)

Ides
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   Posted 11/4/2005 4:00 PM (GMT -7)   

Sarita, I can give you the link but it is a site you must register to access. Below is the link to the page to register. Once registered, you will be able to get to the source I referenced easily. The comment I made about PSTs occuring among the elderly was not from the Atlas of Internal Medicine. I read that in several places discussing skin care in the elderly.

https://www.merckmedicus.com/pp/us/hcp/hcp_registration.jsp


CD for 25+ years; finally Dx 2004. SpA diagnosed soon after.
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m&ms
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   Posted 11/4/2005 7:50 PM (GMT -7)   

Hi Sarita-

I have to chime in because I also freaked out when the doctor said I had a skin tag.  He seemed not the least bit worried- I guess because it must be more common than what is portrayed on the internet.  I ended up having C-Diff, and I am sure the constant diarrhea made it worse.  I also had major hemmorhoids during my pregnancy, so maybe that brought it on.  I believe that anal fissures, rather than skin tags, are more indicative of Crohn's.


Sarita
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   Posted 11/5/2005 7:37 PM (GMT -7)   

Thanks m&ms!  That's reassuring...

So in an effort to help my doctor understand how much I appreciate her diligence with me, I gave her two tickets to my symphony concert tonight.  We are playing Dvorak's New World Symphony (one of my favorites).  I hope she doesn't think I am crossing the doctor-patient relationship line; I just wanted her to know I appreciate her help.  Think that's going overboard? 

Here's hoping I have a garden hose-free night tonight for my concert!  Probably will pop some Lomotil...


dbab
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   Posted 11/5/2005 9:42 PM (GMT -7)   
Hey Sarita,
Did you ever tell us what you play?? I love going to the symphony. When my sister in law (violin) and brother in law (cello) were younger they would play in the symphonys and I would love to go see them. We haven't been in a long time :( Maybe that's a good date night idea. :)

I think you did a nice gesture with the tickets and I don't think its going overboard at all. Its not like you invited her over for dinner (that would be different). I think you probably made her feel appreciated since a lot of doctors ruin it for the good ones with giving doctors a bad name.
Hugs, Des
Co-Moderator ~ IBS Forum
 
"Sometimes I'm afraid, and I don't feel that tough...But I'll stand back up" - Sugarland
 
Please help Healing Well continue to help others by donating  http://www.healingwell.com/donate
 
 


Sarita
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   Posted 11/6/2005 2:21 PM (GMT -7)   
Des, I play the viola and violin.  Have been for almost 20 years now!  It's a huge part of my life spiritually, and I rely on it for about a quarter of my income (playing in the symphony and teaching).  Love it!

7Lil
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   Posted 11/6/2005 5:26 PM (GMT -7)   
Sarita, did your doc show up?
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