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Flower Lady
Regular Member


Date Joined Nov 2005
Total Posts : 79
   Posted 11/11/2005 6:01 PM (GMT -7)   
Hi! I have been sick for three months! Started off with cramps (severe pain),nausea and diarrhea/ constipation w/blood. I thought that I had caught a bug that was going around. So I finally went to the doctor.  He let it run for two weeks, Kept checking my blood ( I had high white cells) and had me on antibotics. By the end of the second week he put me in the hospital, running ivs through me with antibotics and potasim. I stayed in the hospital for 2 days. My mouth had also broke out with bumps and was very hard to eat or drink anything. Two weeks later I was back in the hospital and stayed 5 days with antibotics. They have done a colonoscopy, barium swallow upper gi,  ct scans, and regular ex rays.
I have had constant pain the whole time at first the pain radiated in my lower abdomin, then moved to the left side w/lap so they thought that I had diverticutilis. That eased off after about a month and then it went to my right side w/ pain still in my lower ab pain. Then it started hurting under my right breast felt like there was a bubble under there with pain. I thought that this was probably gas built up. I have been bloated the whole time.
I went to the Gi for the first time this week and he ordered blood work and another ct scan. He looked at my mouth and said that it was not thrush mouth (what they had been treating me for), but that I had b-12 diffeciency. He thought that I had crohn's!
Well waiting for more results can be stressful!  The nurse finally called today and said that he had looked over all the test and that he thought that I had ibs and functinal abdominal pain. He ordered zelnorm?????    
Everytime that I have put my symptoms in on the puter it comes up crohn's or cancer! Abdominal pain,nausea, bloating, constipation, blood in stool, Mouth breakouts  and weak. Sometimes with dissy feeling when I get up and move around.
I am taking nausea pills, darvocet(only when i can't stand it ), Glycolax and laxatives, premarin.
Can anyone help? I am so sick of being sick! The pain is constant and the nausea just about kills me I can smell food cooking and get sick to my stomach.  
 

dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 11/11/2005 6:30 PM (GMT -7)   
Hi Flower Lady,
Welcome to Healing Well...
I'm so sorry that you are going through a difficult time. I noticed that you mentioned blood in your stool. With IBS, there is no inflammation and there is no blood. There could be blood however from hemmrhoids that you can get with IBS. Have you thought about seeing another doctor for a second opinion? Were all of the tests ordered from the same lab or different ones? How is the zelnorm working for you? Zelnorm wasn't helping me so they had switched me to Miralax (Glycolax) and it helped which I see you are on as well.

We have another member here, Sarita, that is having a very difficult problem as well as her symptoms (blood in the stool, etc) are not consistent with IBS however she is going through a hard time being diagnosed. I'm sure she will be on here later to offer you at least a feeling of not being alone in all of this. IBS can be a very dibilitating problem too and everything you have mentioned is what IBSers go through also (except for the blood and the mouth breakouts).

Take care and keep posting :)
Hugs, Des
Co-Moderator ~ IBS Forum
 
"Sometimes I'm afraid, and I don't feel that tough...But I'll stand back up" - Sugarland
 
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Flower Lady
Regular Member


Date Joined Nov 2005
Total Posts : 79
   Posted 11/11/2005 6:42 PM (GMT -7)   
The first test ct scan, colonoscopy and x-rays were done at one place and the New Gi that I am seeing just done another ct scan and ordered blood. When he looked at the images that I took with me to his office he said that there was narrowing in my small intestins. Then when the nurse called from his office she said all the test were fine! That he wanted me to try zelnorm! When they took the first colonscopy he said that I was all red and irritated inside and that the biopsy came back colitis. The glycolax didn't work for me so I have to use the laxitives.

softy
Veteran Member


Date Joined Jun 2004
Total Posts : 798
   Posted 11/11/2005 6:46 PM (GMT -7)   
Hi Flower Lady. Sorry to hear about what you're going through. I have the functional abdominal pain label, what the heck does it mean anyway!!! The high white blood cell count, canker sores (if this is what these are) and your other symptoms point to more than IBS in my eyes but I don't know what to say. Did you family dr. go through your results also? If you don't feel better with the Zelnorm, maybe you could get a 2nd opinion. Hope you feel better soon.
Take care, Softy
 


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 11/11/2005 6:52 PM (GMT -7)   
Flower Lady said...
When he looked at the images that I took with me to his office he said that there was narrowing in my small intestins. Then when the nurse called from his office she said all the test were fine! That he wanted me to try zelnorm! When they took the first colonscopy he said that I was all red and irritated inside and that the biopsy came back colitis. The glycolax didn't work for me so I have to use the laxitives.
So he noticed something wrong and when the nurse called, he said its fine???  I have UC and it was diagnosed by two doctors visually only.  My biopsies came back inconclusive and because of the inflammation and ulcers, my doc called another GI specialist and they both gave me the diagnosis.  If a nurse told my doc that nothing was wrong, I would have fallen out of my chair.  I would suspect that the blood you have is caused by your colitis and I would assume that it is ulcerative if there is a lot of blood.  I would definitely get a second opinion.
Hugs, Des
Co-Moderator ~ IBS Forum
 
"Sometimes I'm afraid, and I don't feel that tough...But I'll stand back up" - Sugarland
 
Please help Healing Well continue to help others by donating  http://www.healingwell.com/donate
 
 


Flower Lady
Regular Member


Date Joined Nov 2005
Total Posts : 79
   Posted 11/11/2005 6:52 PM (GMT -7)   
I haven't got to try the zelnorm yet. They are sending the prescription thru the mail because I live quite a ways from the Gi that I saw. I really think that it is more than that too! But what can I do????

Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 11/11/2005 7:18 PM (GMT -7)   

Hey Flower Lady, I'm sorry you're going through this. 

The fact that your colon looks red and inflamed means you likely have colitis in some form (ulcerative colitis or possibly Crohn's).  Zelnorm I don't think is indicated in inflammatory bowel disease.  If your doc is telling you your pain is functional, you should find a new doc.  An inflamed bowel will certainly be painful!

As far as going through all this testing with no clear answers, I totally commiserate with you.  I went down to the Mayo Clinic a couple months ago for my problem, the symptoms of which are chronic watery diarrhea, abdominal pain (sometimes extremely severe), low-grade fever, blood in my stool, rectal skin tags, canker sores...all classic symptoms of Crohn's disease and at first that was everyone's guess.  I had plenty of tests; small bowel series showing narrowing in my small intestine as well, upper endoscopy showing gastric erosions, positive fecal occult blood and leukocyte tests.  But my two colonoscopies were clear, as was a CT scan.  The Mayo GIs acknowledged that these are not symptoms of IBS but thought it was some kind of post-infectious process after having a history of parasitic infections from Africa when I lived there for a few months.  But there is little they are doing to help me other than pushing "more fiber, more fiber" (I take six tablets a day of it, plus probiotics, calcium, zinc, etc. all of which are supposed to bind you up).  It's infuriating!

 


7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 11/11/2005 9:05 PM (GMT -7)   
Hi Flower Lady, welcome to HealingWell! :-)
I see you have gotten a lot of great replies. I just wanted to agree with the ladies.... I think you should get a second opinion. IBS should not be causing you to bleed. Furthermore, if your doc even remotely thinks he saw some "narrowing" during the scope he should have investigated further. Do not settle for what the nurse told you.
Keep fighting, keep posting and good luck!
Co-Moderator for the IBS Forum
 
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Flower Lady
Regular Member


Date Joined Nov 2005
Total Posts : 79
   Posted 11/11/2005 9:21 PM (GMT -7)   
I think that I will get a second opinion. I am about at my wits end I thought that this doc was going to actually do something!

Manny
New Member


Date Joined Nov 2005
Total Posts : 3
   Posted 11/21/2005 9:55 PM (GMT -7)   
Im new here this is my first time posting on this site, I have IBS with constipation I do not go to the bathroom sometimes for two weeks at a time my Doctor mut me on Zelnorm 2times a day and Miralax 2 times a day it helps a little. Doctor said if we do not get better results by my next appt. I will have to see a Colo-Rectal specialist. Any info will be helpfull thank you and you all have a Happy Thanksgiving
Manny

dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 11/22/2005 8:30 AM (GMT -7)   
Hi Manny,
Welcome to the site... I'm sorry that you are having a really bad time with your IBS. I used to be a 7-10 dayer on the bathroom and Miralax helped me because Zelnorm didn't do anything. Are you drinking tons of water? Many on here have had success with aloe vera also because it can act as a laxative. You may want to ask your doctor about it. Check around the forum and see if any posts may help you. Please continue posting!
Hugs, Des
Co-Moderator ~ IBS Forum
 
~My reality check bounced
 
 
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Manny
New Member


Date Joined Nov 2005
Total Posts : 3
   Posted 11/27/2005 4:45 PM (GMT -7)   
Hi dbab
Yes I drink tons of water right now my meds are working I hope they keep working.I work out 7 day's a week try to exercise as much as I can Doctor said that would help too I love to go to the track and do my 3 miles a day. I also lost 68 pounds to help with my health problems but after all that Doctor said I had IBS kind of funny you see my Husband has Crohns he was diagnosed in 1990,at least we have a good Doctor. This site really helps thank you all for being here.
Manny

dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 11/27/2005 7:18 PM (GMT -7)   
I'm so glad to hear that the meds are working for you. I think that its really good also that you are getting a lot of excercise because that is supposed to help with the symptoms as well. It is supposed to help things move along. Having a good doctor is very important especially with IBS (since many doctors are still not very supportive to people with IBS). I really like my doctor as well. This site also has a very active crohn's forum as well that you may or want to have your husband post too. Please keep posting here though :)
Take Care
Hugs, Des
Co-Moderator ~ IBS Forum
 
~My reality check bounced
 
 
Please help Healing Well continue to help others by donating  http://www.healingwell.com/donate
 
 

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