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softy
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Date Joined Jun 2004
Total Posts : 798
   Posted 11/14/2005 5:06 PM (GMT -7)   
I'm soooo tired of hurting and frustrated  sad  .  I never know from one day to the next how I'll be feeling or if it will be a "bathroom day" or not.  The pain varies throughout the day but it's always there to some degree.  Sometimes it's cramping all across but mostly it's on my right side and hip.  I sometimes wonder if appendicitis will one day get me and I won't get help for it.  I'm going to the GI tomorrow to discuss the camera pill results (normal) and the next step (I think he'll give me the IBS dx and send me on my way).  sad Thanks for listening to me whine :-)
Take care, Softy
 


7Lil
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Date Joined Apr 2005
Total Posts : 3269
   Posted 11/14/2005 5:16 PM (GMT -7)   
Oh softy, that's why we're here... SUPPORT. ***BIG HUG TO YOU***
Hang in there. Maybe you can speak to your doc about pain managment.
Co-Moderator for the IBS Forum
 
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Sarita
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Date Joined Mar 2005
Total Posts : 2486
   Posted 11/14/2005 5:37 PM (GMT -7)   

I'm so there with you, girl...it's totally frustrating.  I hope your doctor doesn't just shoo you off without a good talk about dealing with this.  The last time I ended up in the ER with severe pain my PCP gave me a script for Vicodin and I'm grateful to be able to rely on that the next time everything goes to hell (although sometimes it seems like only the injections do anything!).  As far as the daily, run-of-the-mill, annoying pain...are you taking anti-spasmodics?  Forgive me if you've told us a million times. 

Any time you have severe, incapacitating, huddled-on-the-floor-gasping-for-air pain that lasts longer than a couple of hours, it's likely worth an ER visit.  It's a tough call, though, I know.  But when I was seven, I went three days with ungodly pain/fever/vomiting before my parents took me to the pediatrician (my dad, a doctor, thought it was indigestion).  Turned out my appendix had burst!  My parents still feel guilty about that.

I am going to start doing it this way after my last ER visit: if I start getting that kind of pain, and I know it's going to get bad, I'll get myself home, down a dicyclomine and a Vicodin, and wait an hour and a half for them to kick in.  If I am still in excrutiating pain after that long, after those meds, I'll get someone to take me to the hospital and let them decide what to do with me!

Hang in there, softy.  Vent all you need to!


softy
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Date Joined Jun 2004
Total Posts : 798
   Posted 11/14/2005 9:12 PM (GMT -7)   
Thanks girls. I used to take Dicetel which is supposed to help with IBS symptoms but didn't notice any difference so I stopped. Maybe I'll give them another try. Not sure if they should work immediately or take a while to build up in your system. Maybe I didn't give them a good enough try.

I also have T3's hanging around that I take when the pain gets too bad for me to handle.

about the pain tolerance. Funny how when all this started I noticed the slightest pain in my body and had a low pain threshold and paid attention to it, now it takes alot for it to stop me. Anybody else notice this phenomenon?
Take care, Softy
 


7Lil
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Date Joined Apr 2005
Total Posts : 3269
   Posted 11/14/2005 11:31 PM (GMT -7)   
I've noticed both my pain and nausea threshold have gone up. I guess when you live with it so long you just get used to it. Sad really....


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Sarita
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Date Joined Mar 2005
Total Posts : 2486
   Posted 11/15/2005 1:27 PM (GMT -7)   

Softy, how was your GI appointment today?

As far as the pain goes, you might want to check out dicyclomine or hyoscyamine, two anti-spasmodics that some people really respond well to.  They should be taken as needed and you don't necessarily have to take them every day or let them "build up" in the system to be effective.  The dicyclomine helps me on the days I have mild to moderate cramping.  When the pain is severe, the darn stuff won't touch it, but then I go for the big dogs (Vicodin, morphine).  Do your T3s contain codeine? 

My pain threshold has increased as well.  But I'm also somewhat hypervigilant about it - is it new pain?  Familiar pain?  Is it going to leave me a worthless heap of crap on the floor?  Is it time for the ER, or just time for me to hop in bed?  Do I need a heating pad or an Uzi??  So many questions when I start getting pain.  It'll take some time to get used to it!


softy
Veteran Member


Date Joined Jun 2004
Total Posts : 798
   Posted 11/15/2005 6:13 PM (GMT -7)   
The GI appt. today. Well, it went exactly how I thought it would. He basically told me that no disease process has been found after extensive testing and is not sure what route I should go next, whether it be a gynecologist or naturopath or ? for pain control. He pretty much told me his job is done. I told him no offense but at the moment I'm sick of dr.s and tests and procedures and I'm not going near any unless the pain gets severe again. Honestly girls, I could have cried when I left there as I feel so helpless and hopeless with this. I know I have pain but nobody can "see" it or diagnose it and I'm so frustrated and worried it's something bad. It sure feels that way at times. Ugh!

In answer to my T3's containing codeine, yup, they do, so depending on which cycle I'm in (C or D) I can get pretty bunged up after taking them.

I know, I know, keep on keeping on :-)
Take care, Softy
 


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 11/15/2005 10:13 PM (GMT -7)   

Softy, I entirely know how you feel.  You should have seen me during my last day at Mayo...crying rivers in the doc's office.  He was very sympathetic and frustrated too, but it was infinitely worse sitting on the other side.  It's a lonely, alienating, helpless feeling that all too many people know.

I'm so sorry, girly. 


7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 11/15/2005 10:30 PM (GMT -7)   
I remember crying in my doctors office too. After all I had been through they didn't find anything and I was stuck feeling like this forever. It was hard to handle. Then I felt like I was doing the walk of shame (with the puffy red face) when I had to parade myself out of the office, through the waiting room and out to my car.

We sympathize, hon.
Co-Moderator for the IBS Forum
 
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saria
New Member


Date Joined Nov 2005
Total Posts : 6
   Posted 11/20/2005 9:24 AM (GMT -7)   
I am with you! I am so frustrated with doctors I just can't take it anymore. It is so annoying to keep hearing, that there is not much more they can do for you! I have not found a doctor yet that has been able to help me. Seeing a new GI on Wed.
Hang in there, you are not alone at all!

Faerun
New Member


Date Joined Nov 2005
Total Posts : 19
   Posted 11/24/2005 2:07 PM (GMT -7)   
i sympathise with you big time 3 months after having a c section i was getting severe pain in my abdomen couldn't eat certain foods couldn't sit an underweight baby on my belly as it hurt i went to see the GP i had drunk some whisky which was my usual tipple before the pregnancy and it had caused me excrutiating cramps and diarhea for 2 hrs she said i must be allergic to whisky and stop drinking she then looked at my stomach and all she did was shake the loose bit where i was saggy after having baby and said i had to get rid of that i left the surgery crying she even said one appointment one problem even though i had numerous complaints but they all seem to be interconnected.  If i went private and paid for my treatment i would have got better service but drs are drs and they should give us all the same care and attention whether they get paid huge amounts or work for the government (based in UK here btw so we don't have the same need for insurane as you do in america) we are people not just numbers and we need to be treated so. sorry starting to rant *takes a deep breath*.

Post Edited (Faerun) : 11/24/2005 2:11:51 PM (GMT-7)

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