Symptoms getting worse

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Deb65
New Member


Date Joined Jun 2005
Total Posts : 4
   Posted 11/18/2005 2:20 AM (GMT -7)   
Hi there,
I wrote a few months a go about going to see my doctor with symptoms of IBS. I still have not actually been diagnosed as having IBS, but my doctor has said that my symptoms appear to point to that of IBS. When I went to him two months a go he said that he didn't want to send me for investigations just yet. He put me on fybogel to see if it would help me, which it did a little.
 
Now for some reason and this is quite strange, I keep getting pains in both sides of my waistline which moves around into my back, it almost feels like kidney pain. I have been tested for a kidney/urinary infection which was negative. This is quite new (over the past two months), and is quite severe, but I don't no whether it is actually caused by IBS.
 
Does anyone get pain in both their sides and into their back? Is this another symptom of IBS? 
I am going back to my doctor because it is quite troublesome now, even though it is not here all the time. Another thing I have noticed it's worse when I am lying in bed. The trouble is I am thinking it could be all sorts of things. If anyone else has this would you please let me know.
 
Thanks for reading  confused   
 
 

marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 11/18/2005 6:29 AM (GMT -7)   

Hi there this is the exact same pain as i have been having for over 3 months. my pain is constant on my right side from my waistline right up under my ribs. Pain on both sides of lower back.i was actually convinced it was my appendix or gall bladder. But i got my urinology checked and had an ultrasound scan which showed no problems with those organs. The pain is like an intense dull burning pain which usually starts 2 or 3 hours after i wake.

 I have IBS and UC. I have not worked for 3 months.I have lost nearly 60 pounds o weight and have been having a rough time. I have tried every form of pain relief but to no avail.Only today my doctor has put me on a 5 day course of Diazepan and strong antispasmotics. The diazepan is to try and relax me and my bowel . I am at my wits end with these horrible diseases.

Do you have spasms or does pain spread down your legs? I often cant sleep because i cant lie on my side or back due to pain does this ever happen to you. I think that you are suffering from IBS but get your doctor to run more tests, because it is a matter of ruling out other disorders or diseases.

I hope this is of some comfort to you to know that your not alone.

Marty


Deb65
New Member


Date Joined Jun 2005
Total Posts : 4
   Posted 11/18/2005 9:10 AM (GMT -7)   

Hi Marty, thanks for the reply. Yes my pain does seem to be similar to yours, but mine is on both sides and in my lower back. I also have trouble sleeping on either of my sides and when I lie on my back my back aches too.

I do get spasms in my abdomen especially when I am really suffering with IBS. I do get pain in my legs too, but that tends to be more when I am going through the time of the month and I am even more sensitive then with IBS.

This in my sides I have never had before up until a couple of months ago. I like you thought of appendix or gallbladder, but mine is on both sides. I am going to go back to my doctors, but can't get in until next week.

Sorry you are going through a bad time too. I hope you start feeling better soon.

Take care

Debbie  


Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 11/18/2005 9:17 AM (GMT -7)   
Don't forget that an ultrasound is not definitive for diagnosing a gall bladder. Everyone must also have a hydascan to test for gall bladder function. Not all gall bladders have stones; some just don't work properly (mine). Gall bladder pain can also radiate to other parts of the body, although it does tend to stay above the waist.

Unless you have the other symptoms of a bad gall bladder, you probably have IBS, but if they're going to bother checking the gall bladder, they might as well check it properly and that includes both the ultrasound and the hydascan.

kiml
Regular Member


Date Joined Sep 2005
Total Posts : 38
   Posted 11/18/2005 10:57 AM (GMT -7)   
Hi,

I have had a similar pain, only on the upper right side fro about 3 months. I had every test in the book: hida scan, ultrasound, mri, ct scan, liver biopys, colonscopy & all was normal. My dr said my colon looked great, but i was sure it was not working. So, he concluded this was ibs. The pain does change from day to day, depending what i eat. I had a bout with this back in June & it evntually went away, but this time it is lasting much longer. IBS is a very frustrating thing. I hope this helps.

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 11/18/2005 1:20 PM (GMT -7)   
Kim, you don't have burning, yellow diarrhea, do you? Pain that wakes you up in the middle of the night? Sudden onset of diarrhea and/or vomiting? An inability to lay down without feeling sicker when you're flaring? Chills when you're flaring? Tenderness where you hurt? A feeling of being stuffed even though you haven't finished a normal meal? Pain that radiates into your right arm and elbow?

I ask because those are all additional signs of gall bladder diesase. It took them five years to find out mine was bad, despite having two hida scans, an ultrasound and then an endoscopy and colonoscopy. Finally, the third hida scan showed a dysfunctional gall bladder. After I had it out, they analysed it and it came back as being "chronically inflamed." I think it just wasn't inflamed when I had my first tests done and that's why it came back as working. It really was working, only it just stopped working from time to time and that's what caused me problems.

kiml
Regular Member


Date Joined Sep 2005
Total Posts : 38
   Posted 11/18/2005 2:01 PM (GMT -7)   
Hi,

Thanks for the reply. Actually I do sometimes have yellowy diareaha, but I take a laxative daily so this might be why )enulose & now the dr wants me to take Miralax. I dont have pain in my arm & my appetite is good except when I get soo bloated. I had a regular hida scan in June-nornal, an ultrasound in June & October-normal & a hida scan with CCK in October-all normal. I have no fever or vomtting. I have not felt completely normal since Aug 28. At first, my friend who is a dr thought is was galbladder, so that is why i had all the tests done. My side hurts more when I am sitting. Is the IBS or something else?? Now I am nervous. Please respond back. Did you feel better when they took it out? Should I get another opinion. Its either something I am doing or NOT doing.
KIm

Post Edited (kiml) : 11/18/2005 2:06:13 PM (GMT-7)


Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 11/18/2005 2:30 PM (GMT -7)   
I noticed on one of your other posts that you have constipation. Constipation is not a symptom of gall bladder disease. However, if you are normally constipated and then have off-the-wall episodes of diarrhea, then maybe the gall bladder is causing it (I've always tended to be slightly constipated my whole life--until the gall bladder messed up). All of my diarrhea burned because the bile in there is a type of acid (it's also yellow).

I took spells where I had a perfectly normal appetite and spells where everything I ate made me feel slightly nauseated, so I didn't eat much. I think bloating can be gall bladder, but that's not really something I'm in tune to (I don't ever know if I'm bloated or not).

Most people don't have a fever when they have a bad gall bladder, unless it's infected (a stone blockage can do that). All the same, a lot of people get chilled when they get a flare. And you can hurt worse sitting down than standing up, although excess gas may cause you to feel that way too.

I would say if you can lay flat on your back when you feel sick (when you're bloated and/or when you're having diarrhea), and given the tests you've had, it's not your gall bladder. That's about the only universal symptom for symptomatic gall bladders (asymptomatic gall bladders have stones or sludge but don't bother you). When your gall bladder is bad and it's hurting, you have to sit up. Over the course of five years I learned to sleep sitting up in bed.

kiml
Regular Member


Date Joined Sep 2005
Total Posts : 38
   Posted 11/18/2005 2:38 PM (GMT -7)   
Hi,

Is galbladder pain constant? I thought it just comes & goes depending on what you eat. I really dont know what other tests to pursue , since all was normal. My dr said that gas, stool forms on the right side where my discomfort is. I am just soo frustrated, I used to be able to enjoy what I was eating (Everything i eat is very healthy) but no I am trying to figure out what is causing this; ice cream, dairy, cheese, , etc... I just want this to go away. I have been thru so many invasive testing. I have lost 6 lbs in 2 months, & my weight is not high to begin with. I hope this is just a phase my body is going thru.

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 11/18/2005 3:55 PM (GMT -7)   
Gall bladder pain can come and go, but right before I had mine out, I felt pain/lump on my right side continuously for a month or more. I had diarrhea some all of the time too. Before that my longest stretch before that had been three solid weeks of really bad diarrhea and constant, excruiating pain.
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