Maybe they found it. Maybe.

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Sarita
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Date Joined Mar 2005
Total Posts : 2486
   Posted 11/28/2005 11:55 AM (GMT -7)   
I got a call from my doctor's office today and they want me to come in this week to talk with Meg.  I figure they must have found something from the parasite guru, otherwise they wouldn't want me to come in, right?  I'm going on Wednesday!  Could this be it???

dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 11/28/2005 12:01 PM (GMT -7)   
Oh gosh Sarita... I really hope so. You are so due for some answers so you can start down the road to recovery. I will be keeping you in my thoughts and will be awaiting your update.
Take Care
Hugs, Des
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7Lil
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Date Joined Apr 2005
Total Posts : 3269
   Posted 11/28/2005 12:51 PM (GMT -7)   
OH MY GOSH, Sarita! I hope this is it. I will really be pushing for them to have found something curable. GOOD LUCK! Please come back and update us ASAP. :-)
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Keriamon
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Date Joined Jun 2005
Total Posts : 2976
   Posted 11/28/2005 1:32 PM (GMT -7)   
Maybe they'll put in you a medical book for having more rare parasites than anyone else in the world! Better to hope they know how to get rid of all of them!! I sure hope they can and that you can be NORMAL again.

Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 11/28/2005 1:46 PM (GMT -7)   
Thanks for the inspiring words, girls...I need 'em today, I'm a total garden hose and pained and nauseated out of my mind.  First day back at work after a week off and look what happens (even though work is like a vacation compared to being at home with the parental units!).  Just took some Zofran and Vicodin - soon I'll be off in lala land, ahh...can't wait. 

roadtrip
Regular Member


Date Joined Nov 2005
Total Posts : 106
   Posted 11/28/2005 3:30 PM (GMT -7)   

Good Luck!!

Hope they can give you some answers -and maybe some good news!! :-)


katydid1994
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Date Joined Oct 2004
Total Posts : 504
   Posted 11/28/2005 7:10 PM (GMT -7)   
Good luck!

softy
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Date Joined Jun 2004
Total Posts : 798
   Posted 11/30/2005 11:07 AM (GMT -7)   

OOOOOOOOhhhhhh Sarita.  I soooooo hope they found the cause and cure.  Post back ASAP after as I want to know if they named a disease after you or not. 

Praying for you.


Take care, Softy
 


7Lil
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Date Joined Apr 2005
Total Posts : 3269
   Posted 11/30/2005 11:58 AM (GMT -7)   
Today is the day.... How'd it go???
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Sarita
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Date Joined Mar 2005
Total Posts : 2486
   Posted 11/30/2005 2:26 PM (GMT -7)   

Drumroll, please!!!

Sigh...don't bother: they found NOTHING.  Nada.  Zilch.  No parasites.  Parasite-free.  Parasiteless. 

You would think I'd be happy for this news, but it's actually depressing.  Can't take a few courses of Flagyl to get rid of parasites that don't exist. 

All they found was a bit of yeast in there and Meg is putting me on a four-week course of Diflucan once a week to get rid of that, but she doesn't think it's causing the illness.  She also went over the food allergy results, which were not very exciting and showed some very mild reactions to most dairy products.  She wanted me to make an appointment with the naturopath at her office to start on an elimination diet, but I just couldn't make that appointment today.  Too tired of all the run-around right now.  I don't think it's food intolerances causing this thing, whatever it is.  She seemed to think it was pretty unlikely as well, but I guess she wanted to offer something.

She did look at my hip and diagnosed me with bursitis; wants an x-ray and then a fluoroscopy-guided cortisone injection to decrease the inflammation.  So hopefully that will start feeling better soon.

I looked at her helpless face and said, "It's bound to get better or worse with time.  Now it's just a matter of waiting." She seemed to agree that's all we can do at this point. 

 


Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 11/30/2005 2:50 PM (GMT -7)   
Owowowowowow a cortisone injection. I think that's like "a new definition of pain and suffering." I've never had one, but everyone I know who's had one nearly cries. Wait, that's not very helpful and uplifting. Though I guess it's better than being unprepared. You may even decide your hip doesn't hurt that bad. But after it's over with, everyone gets pretty good relief and it tends to last several months or more.

Seems weird to put you on an elimination diet when you didn't test for any allergies. Maybe something can mess you up without you actually being allergic to it?

Have you come back around to the conclusion that you have Crohn's? That's probably more depressing to think about than cortisone shots, but I think I'd be worse depressed not knowing what's wrong. I mean, when you can say, "I have X disease," then it validates your being sick. When you're sick all of the time and can't tell people why, some of them will look at you funny. At least some of my doctors did when I went in with my GB pain that wouldn't come up on a test. A lot of them will get suspicious about giving you pain meds and the like too.

Regardless of what you have or don't have, I hope they find something that will help you. I once had this mysterious rash-less itching all over my body that kept me awake all night. I saw a doctor the next morning and he said he had been seeing people with that all of a sudden. Said they didn't know what cuased it--bed-ridden people would have it, but their caretakers and spouses wouldn't--but they knew a certain drug that worked on rashes fixed it, whatever "it" was. Maybe they should just experiment with you on a wide-variety of things just to see if they can find something that helps. The rash medicine worked, even though I didn't have an actual rash. Maybe Crohn's medicine will help you, even if you don't have it. Maybe having similar symptoms is close enough.

7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 11/30/2005 3:05 PM (GMT -7)   
((((BIG HUGS))))
I'm sooooo sorry, Sarita. I was really pushing for you to have some exotic parasite (as bad as that may sound).
In time your "problem" will have a name. Hang in there and hope for the best.
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bunnybabe
Regular Member


Date Joined Sep 2005
Total Posts : 263
   Posted 12/1/2005 5:14 AM (GMT -7)   
I am so sorry Sarita, i offer the biggest hugs i can...

(i too was hoping you had some weird bug, not to wish harm on you, but i wish you had answers...)

big gigantic hugs...
--bunny
what would you attempt to do if you knew you could not fail?


katydid1994
Veteran Member


Date Joined Oct 2004
Total Posts : 504
   Posted 12/1/2005 8:38 PM (GMT -7)   
I'm so sorry, I was pulling for you and pooping right along with you too

softy
Veteran Member


Date Joined Jun 2004
Total Posts : 798
   Posted 12/1/2005 9:01 PM (GMT -7)   
Ugh girl. How frustrating !!! I soooo feel for you Sarita and know the helpless hopeless feeling when nobody can find anything wrong. Big hugs for you. Just read your cortisone post, hope it gives you pain relief.
Take care, Softy
 


ryleigh
Regular Member


Date Joined Dec 2005
Total Posts : 251
   Posted 12/19/2005 10:43 AM (GMT -7)   
Hey Sarita,  I just posted and someone told me I should talk with you...  Please read my post.  Would love to talk about your pain and problems.   I think we have a lot in common..  I have been to every doctor and hospital and all they say is IBS..   I have had it for 10 years and no luck.  I even had a hysterectomy thinking that was the problem.   Still sick.   Hope all is well with you.   Would love to chat.    Ryleigh

Ryleigh

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