Just been diagnosed

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samantha19
New Member


Date Joined Dec 2005
Total Posts : 7
   Posted 12/18/2005 6:35 AM (GMT -7)   
Hi all,
  Two weeks ago I was diagnosed with IBS, the doctors have been very vague with me. These last 3 months have been the worst in my life and it seems my family does'nt understand (they think it's all in my head).
  I'll be as brief as I can but I feel I have a lot to get off my mind.
       I went on holiday in Sept to Gran Canaria and fell ill with what the doctors think was Samonella, I lived only on a drip and couldn't eat or even sip water for 4 weeks (in total ive lost 2 stone). I had bad D with awful pains that made me feel like I was going to faint. I had a colonoscopy and the doctors said they thought I had Chrones as my bowel was very ulcerative but the biopsys showed I didnt.  I eventually got flown BK home to UK were I spent 2 more weeks in hospital. I have been out of hospital for 6 weeks and have just been told I have IBS, but still feel awful and all my boyfriend can say to me is why can't he have a normal girlfriend?
 I get very sick and dizzy I wondered if this is normal? The Doctors have not explained anything to me they put me on buscopan, omeprazole, codiene phosphate and painkillers.
   I still get bad pains and am scared to go out, I just get
really upset and find it hard to eat because i'm worried that i'll have a bad reaction.
  Help!

7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 12/18/2005 9:44 PM (GMT -7)   
Hi samantha19!
Welcome to HealingWell! :-)
I am sorry to hear about your ordeal will this diagnosis roller coaster. What a nightmare! I'm not a doctor, nor an expert, but wouldn't finding ulcerations during a colonoscopy mean you have Ulcerative Colitis (UC)? It definitely would explain your pain and D (and probably nausea and vomitting?). Have you had more than 1 doc look over your colonoscopy results?
Right now I'm assuming your stomach has shrunken considerably considering you haven't been able to eat. Your best bet is to introduce food gradually. Eat lots of small meals and eat healthy. Not to mention, taking a good multi-vitamin would be great for you (if you're not already). Are you on probiotics? It is so important to take after a nasty bout of food poisoning or samonella, or when on antibiotics.
about going out... I would start to venture to places nearby at first. Know where you are going, know the route and know where the bathroom is there and on the way. This will always put your mind at ease. Are you allowed to take Imodium? If so, I would take a small dose of Imodium and go about your day (out of the house).
I wish there was more I could say to help, but that is all I have for now.
Take care of yourself and keep posting.

BTW - Did you know there is a UC Forum here as well? You might want to check it out and post any questions you may have there too.


Co-Moderator for the IBS Forum
 
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samantha19
New Member


Date Joined Dec 2005
Total Posts : 7
   Posted 12/19/2005 3:36 AM (GMT -7)   

Thanks for the advise, it's nice to know there are people to talk to. about the ulceration the doctors confirmed it was probably due to the samonella and that it wasn't UC. I had symptoms of IBS for over a year before any of this happened. Currently i'm not taking probiotics or multi-vitamins but will try and i'll keep you posted of any improvements.

Thanks again


mrmagoo
Regular Member


Date Joined Oct 2005
Total Posts : 78
   Posted 12/19/2005 8:28 AM (GMT -7)   
Well you stumbled into the right place, all us poor saps seem to suffer from this stupid unsolveable syndrome. Some worse than others, some for years, some for days. I know the feeling about family and other halfs, my wife is somewhat understanding, but at the same time she wants to go do things that there is no way I am going to even attempt.

On the good side though, there are some meds out there that seem to help, and with the growing number of people suffering from this syndrome, more and more money is getting spent on finding out something about it, so hopefully they will find something to help us all out soon.

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 12/19/2005 9:52 AM (GMT -7)   
How can your family think it's in your head when you have ulcers in your colon and have pictures of them to boot?? Maybe you should use the toilet at their house and "forget" to flush so they can see hey, that's not normal poop coming out of that girl! Or get really sarcastic and say, "Oh yeah, I'm making all of this up. I don't really have ulcers in my colon; the doctor faked that picture. I haven't really lost 2 stone; I'm just wearing clothing two sizes too big for me. I'm not really pale and wane; that's just makeup. I'm not really in the bathroom a dozen times a day pooping my guts out; I just wanted a quite place to read. That's not really stinky diarrhea in the toilet bowl; that's just rotten food I threw in there so I wouldn't have to take the trash out. I didn't really need that stay in the hospital and IV drip to replace lost fluids; they were just doing that to me so they could get more money from the health system. I haven't really lost my appetite; I'm just dieting like every other girl. I'm not really dizzy; I'm just drunk. I'm not really doubled over in pain; that facial contortion that looks painful is just my way of laughing." I think if you listed out all of your problems that way, they'd start to realize that you couldn't possibly have all of that "just in your head."

As for being a "normal" girlfriend, tell Mr. Significant Other right now that that's a pipe dream. There's no such thing as a "normal" woman, period, lol. He might get one that's healthy, but she'll probably have some neurosis like she's insanely jealous or talks incessantly about her weight. Dealing with you being sick is better than dealing with a woman that rings his mobile constantly just to see where he is, and who hates his friends, and who thinks football is stupid and won't let him watch it on the tele. (Of course, I assume you don't do that yourself, lol.)

If you get mad with people who dismiss you and your problems, I think you'll find people take you more seriously. Don't ask me why you have to do that, but I think sometimes people are just naturally somewhat dismissive and unkind without thinking about it. To no think about something is easier than to have to deal with it. When you get mad, you draw attention to yourself and people start to actually think about things and figure well, maybe, you really do have something wrong with you. Why else would you be mad? At the very least you may get some stress relief by venting on family.

samantha19
New Member


Date Joined Dec 2005
Total Posts : 7
   Posted 12/19/2005 11:07 AM (GMT -7)   
Thanks all for the advise, I think I will use some of the comments above, when you look at it like that its quite funny, made me laugh!
I'm going BK to the doctors on Wednesday so i'll keep you posted.

7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 12/19/2005 11:13 AM (GMT -7)   
Good luck, Samantha!
I suggest writing down some questions you may have and taking the list with you. Don't be shy. You are paying top dollar, you should not leave there with questions unanswered.


Co-Moderator for the IBS Forum
 
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Post Edited (7Lil) : 12/19/2005 11:26:11 AM (GMT-7)


Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 12/19/2005 1:49 PM (GMT -7)   
Definitely write out a list of symptoms, dates you got sick, questions you have, etc. and take it with you. Doctors like to know histories because it helps them figure out what's wrong with you better. And of course questions help you out.
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