IBS SUFFERERER NEW TO THIS SITE - help!

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LondonGirl22
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Date Joined Jan 2006
Total Posts : 1629
   Posted 1/26/2006 9:08 AM (GMT -7)   
Hi, my name is tori and i'm 23.  Just found this site yesterday and am hoping it will help me.  Ive had ibs 2 years and havnt found many people with the same symptoms as me.  I have ibs with solitary rectal ulcer syndrome so pass a lot of blood and mucus when I have a flare up.  I get v constipated and suffer with abdo pain which is like colic pain.  Does anyone else suffer like this????
 

LondonGirl22
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Date Joined Jan 2006
Total Posts : 1629
   Posted 1/26/2006 9:37 AM (GMT -7)   
thanks for the welcome beth. im quite nervous but everyones been nice to me!!

dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 1/26/2006 11:00 AM (GMT -7)   
Hi Tori,
Welcome to the site :) Please don't be nervous and feel free to ask any questions.
I don't have solitary rectal ulcer but I do have ulcerative colitis on top of my IBS. I know exactly the feeling of passing blood and mucus. I actually pass it without knowing it sometimes and get unfortunate surprises when I use the restroom. I have started wearing pantiliners towards the back of my undies for that just in case. I have mostly D however I have suffered with IBS-C for years and the gas pains are horrible. Hopefully someone will come by shortly to add.
Take Care :)
Hugs, Des
Co-Moderator ~ IBS Forum
 
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7Lil
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Date Joined Apr 2005
Total Posts : 3269
   Posted 1/26/2006 11:15 AM (GMT -7)   
Hi Tori,
Welcome to HealingWell! :-)
I'm sorry, I'm not familiar with rectal ulcers. Can you tell us a little about it? Is there a cream for it? Diet? Cure? Is your IBS and ulcer completely unrelated?
Sorry for all the questions - I can't help you but I would love you to help me understand your situation.
Take care.
Co-Moderator for the IBS Forum
 
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roadtrip
Regular Member


Date Joined Nov 2005
Total Posts : 106
   Posted 1/26/2006 4:31 PM (GMT -7)   

Hi Tori!

Don't worry about asking weird stuff here because anything goes- mainly because everyone on this board is going through the same sort of thing! My ibs involves a fair bit of gas and bloating which can often be painfull too, so i know how you feel on that front...

Hope you find some answers and keep posting!

Roadtrip :-)


blondie15
Regular Member


Date Joined Aug 2005
Total Posts : 185
   Posted 1/26/2006 5:54 PM (GMT -7)   
hey Tori!!

I dont have a rectal ulcer but I do have external hemrroids if thats any comparison at all!? haha I used to have very severe IBS-C..so I totally know how those extreme-i-cant-even-uncurl-my-body-or-get-off-the-floor pains are!! Have you ever tried mineral oil for the constipation? Or simethicone pills (a.k.a Gas-X) for the gas? Those have helped me in those icky times of the C!

LondonGirl22
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Date Joined Jan 2006
Total Posts : 1629
   Posted 1/27/2006 7:17 AM (GMT -7)   

Thankyou all for your kind messages.  It's so helpful to hear other people's problems and how they cope.  My IBS is just so wierd and in reply to what it entails, I get so constipated that the pressure causes rectal ulcers so i have something called tenesmus which is a feeling of wanting to go all the time but really i dont!! The feeling is caused by the rectal ulcer and I pass a lot of mucus on its own and with the stool.  I find it hard at work when I feel like I need to go!!  How does everyone else cope with work????

I think this site is going to be very helpful to me.

Thankyou to you all,

Tori tongue


Tammra
New Member


Date Joined Oct 2005
Total Posts : 16
   Posted 2/2/2006 7:46 AM (GMT -7)   

Hi Tori and everyone else out there

I have been dealing with similar problems for the past 5 years.  In 2001 I was diagnosed with Celiac Disease and in 2002 I was diagnosed with IBS.  My IBS caused severe diahrea (?) I was losing so much weight, the doctors I have been seeing thought for sure I had Intestinal lymphoma.  Something showed up in the CT scan and my grandmother died of lymphoma and I have already had cancer, so with three strikes against me even I thought it was intestinal lymphoma.  I had surgery last Feb where they took out all my bowel and took biopsies which came back negative.  Since the surgery I have had the opposite problem.  Now I can't go without taking tones of laxatives such as, colase, lactulose, fleet soda and enemas.  Right now I am going through what is called a marker test where you swallow 12 pieces of plastic tubes and I have to go to the hospital every day to have xrays to see where the tubes are.  I started this on Monday and today is Thursday and I know they are still there because I haven't had a bm since Saturday.  I would rather have IBS - d rather than IBS-c.  I can't believe how painful constipation can be.  And my main problem is getting enough fiber because I have CD I can't eat most fibers.  I do eat a lot of fruit and vegetables and I take a lot of metamucil daily.  I have been off work since August of 2004 and I can't see me going back unless some miracle happens and they find some kind of drug that will help me.  I am going to go to a pain clinic, mainly because I hate taking narcotics for the pain.  When I get really bad flare ups the only thing that takes the edge off is morphine.  NOt a good thing especially since it causes constipation.  Kind of like being stuck between a rock and a hard place.

Tammra

 


dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 2/2/2006 10:00 AM (GMT -7)   
I have to respectfully disagree on your view. Not everyone, including me, can tolerate all the foods that are fiber enriched so a supplement is important in my daily routine (I take the generic form of metamucil). Fiber has a ton of health benefits including lowering your chances of heart disease, certain cancers (colon mainly) and preventing diverticulosis. It works for both IBS C and D to aid in the regularity of your digestive system. It works by binding the stool so its easier to pass. Water intake is very important when taking fiber by food and supplements.
Hugs, Des
Co-Moderator ~ IBS Forum
 
~My reality check bounced
 
 
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Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 2/2/2006 1:12 PM (GMT -7)   
I too am in disagreement with you on this ..I have crohns and I take a fiber supplement to slow down my D ....and for me it works.......Des you are so right about the health benefits of Fiber..........Please all check with your Doctor about this and the benefit it could or may have for you .........God Bless and be well .....Lyn


 
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I know there are great things out there for you .....and it is within your power to make them happen ..I believe in all of you and know you have what it takes to follow your dreams..Let that strong Spirit of yours be your guide.........Lyn 

Post Edited (Lyn Emerick(Howlyncat)) : 2/2/2006 2:57:23 PM (GMT-7)


Jeannie143
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Date Joined Apr 2004
Total Posts : 6056
   Posted 2/2/2006 10:37 PM (GMT -7)   
Jumping in here with my 2¢, psyllium fiber found in fiber supplements has also been proven to improve the health of diabetics by leveling out the postprandial blood glucose highs experienced after meals. It works in a purely mechanical way without medicinal side effects.

And as far as the "hardening and clogging of the colon wall"... that's a sales pitch for selling "special health enemas" that may or may not be beneficial. If you do a search on WebMD for 'colon plaque' the phrase doesn't exist. Somebody out there decided to start marketing high colonics as alternative health treatments but the claims about hardening of the walls of the colon are questionable. If you want some true information about the makeup of the intestinal walls go to Mucous Colon Epithelial Tissue or for some in depth discussion of the mucosa of the epithelial layers of the colon go to Microbial modulation of innate defense: goblet cells and the intestinal mucus layer. If you can read 'medical' these articles explain that the mucous that is found in the intestines is produced constantly and is very helpful in disease prevention and nutrient absorption.

Before anyone gets their bloomers in a bunch please show me a website that is connected to a university where medical research is being done that includes studies on 'colon wall hardening'. Until that happens I will not think of it as a true medical issue. Like I said... just my 2¢.
~ Jeannie

"People are like stained glass windows: they sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."

- Elizabeth Kubler-Ross


7Lil
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Date Joined Apr 2005
Total Posts : 3269
   Posted 2/3/2006 12:35 AM (GMT -7)   
Jeannie,
Thank you so much for pointing this out and providing the links. How informative.... Love it! :-)
Co-Moderator for the IBS Forum
 
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Tammra
New Member


Date Joined Oct 2005
Total Posts : 16
   Posted 2/5/2006 4:57 PM (GMT -7)   
Hi Wendell, Jeannie, Des & Lyn
Thanks for all your input. Today is sunday and I have been going through the marker test all week. Most of the markers stayed in my descending colon for about 4 days. Today my xrays showed that there are only 4 (out of 12) left in that area. I wasn't sure whether I could use laxatives while taking this test and not one of the xray personnel could answer that question. When I got home today I had to do something because the pain was so bad. It took a bottle of fleet soda, two suppositories and an enema to get things moving. I have I didn't screw up the test but I am sure the due to the fact that most of the markers stayed in the descending colon for so long should tell them the story. Especially since when having the colonoscopy my DR couldn't get the scope up through the colon. So this must be where the problem lies. I just hope that they can fix me so I can get me life back.
Tammra

firecracker9922
New Member


Date Joined Feb 2006
Total Posts : 5
   Posted 2/10/2006 11:53 AM (GMT -7)   
i am new to this my doc didnt tell me aythin really after sending me for every test in the book this is what thay desided i have i went to bed one night with a six pack and woke up looking like i am 7 months pregnent that was 5 months ago i hardly leave the house now i leave town to just go to the store i had to buy all new cloths that will cover it up i dont know what i can eat i have found lists of things not to eat i have never been one to eat very well anyway anything anyoine can tell me the doc put me on zelnorm i dont think it does anything i think its a waste

dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 2/10/2006 12:04 PM (GMT -7)   
Hi firecracker,
Welcome to Healing Well
I know where you are coming from. The bloating is terrible. I am not encouraging you to eat bad by saying this but your triggers may not be all bad foods. Most of my triggers are vegetables (cooked or raw). I try to eat lean meats and good carbs because the others make me blow up and miserable. The best thing you can do is keep track of what causes you problems in a food diary and just stick to that.
Hugs, Des
Co-Moderator ~ IBS Forum
 
~My reality check bounced
 
 
Please help Healing Well continue to help others by donating  http://www.healingwell.com/donate
 
 


Tammra
New Member


Date Joined Oct 2005
Total Posts : 16
   Posted 2/10/2006 12:24 PM (GMT -7)   
Hey Firecracker
 
I found that Zelnorm did nothing for me either.  The foods I find that bother me the most are fatty, greasey foods like fries, actually anything deep fried or pan fried does me in, also coffee, junk food and certain meats.  I pretty much stick with chicken.   I'm the same as you when it comes to my belly.  I look and feel like I'm pregnant.  I wear long baggy tops and I don't go out very ofter either.  I hope your doctor is a gastronentrenoligist (I hope I spelled that right).  Anyone if this is just your general doctor ask to see a specialist.  I went to a gastro 4 years ago and I was diagnosed with Celiac Disease, IBS and lactose intolerant.  I am still going through tests because they (the doctors) think there is more going on.  I have been off work for 1 1/2 years now.  That is the second time I have been on disability in the last 4 years.  This time it may be permanent, which is weird for me because I have never been without work.  Last year I decided I had to keep busy doing something so I started doing crafts.  It kept my sanity.  Keep your chin up and try to stay busy it seems to be working for me.
Tammra

7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 2/10/2006 12:26 PM (GMT -7)   
Hi firecracker,
Welcome to HealingWell! :-)
I take it you have IBS-C - and that is why you are on Zelnorm? How long have you been on it? Did you not see any change with it?
I agree with dbab, keep a food diary to track exactly what is bothering you. Try staying away from cabbage, onions, peppers (bell and others), cauliflower and beans. When you eat veggies try cooking them thoroughly first. Stay away from apples, unless you know they don't bother you.
Hang in there, things will get better.
Take care.


Co-Moderator for the IBS Forum
 
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firecracker9922
New Member


Date Joined Feb 2006
Total Posts : 5
   Posted 2/11/2006 9:10 AM (GMT -7)   
a food diary might work if i could get straighted up in the first place i just cant find any help at this point nothing helps my stomach is so swollen that my back is killing me yes i went to that gstro. doc he is the one that gave me the zelnom that does nothing and he referred me back to may regular doc to take it from here i just want to know what I do to get back to normal or at least get some kind of life back
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