Petrified............HELP

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JHP
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Date Joined Feb 2006
Total Posts : 128
   Posted 2/17/2006 9:31 AM (GMT -7)   
Hello,
Today is my first day posting here and I want to say, I am so amazed how many people are affected by "bowel" issues.  I was diagnosed w/IBS at my first visit with my gastro......interesting.  At this time he wanted to perform a colonoscopy which I was ok with, until I spoke to my Hematologist and he wanted to know why at my age (30).  I tore my ACL and I needed to have this repaired, so I cancelled my Colonoscopy.  I didn't have any problems (that I can remember) except occassional cramping, diarrhea.....then I was good for several months.  This past summer I started to experience constipation problems, so in August I went to see my gastro doc again.  At this point, he put me on Zelnorm....which didn't help, but then added Glycolax the second month, which did help!  He still mentioned the "colonoscopy" and after telling him that my Dad passed away suddenly after his colon had perforated (long story) not sure why or how...he thought by me having this colonoscopy would make me feel more at ease.  He told me to think about it.  I have and I have spoken to my Hematologist at The Cleveland Clinic which states unless absolutely necessary.....there are other tests that can be done first.  For some reason I have felt my gastro doc has pushed the "colonoscopy" since the first time I met him. 
 
I have a very rare bleeding disorder "Glanzmanns Thrombasthenina" www.glanzmanns.com  in which my platelets are lacking the sticky glue that helps perform clots.  The mucousal areas are more affected........as what I have been told. 
 
I am not 32 yrs old soon to be 33 next month and am literally petrified thinking I will go through what my Dad had gone through.  I know this is a total different situation, but my Dad's death was horrible. 
 
Last Sunday I woke up with a bloating feeling and then had diahrrea three times until the Imodium kicked in.  I was ok, but did not have much of an appetitte, until Thursday.  I did eat toast and butter, chicken soup, bagel and drank 7-up and water!  Thursday I ate whatever I wanted......I really was hungry!  I woke up this morning at 4:00a.m. bloated, full, tight feeling and then rushed to the bathroom.....explosion x 4, until the Imodium kicked in.  BTW-I did have two accidents on the way to the bathroom.  Now I am having gas and gurgling along with starting to form small bowel movements.  I have always had a "gas" issue, but more so the past several months.  Man my "gas" smells awful sometimes...is this normal?
 
I did call my gastro's office and I am waiting for a phone call back.
 
I am sure many of you can relate...........any suggestions?

missie1227
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Date Joined Nov 2005
Total Posts : 751
   Posted 2/17/2006 9:43 AM (GMT -7)   
boy i can sure sympathize with the way you are feeling.
 i too, wouldbe fearful if i was you.
i had a scope done back in 1989 andit was no fun. before during and afterwrds.
now they wanna do it again as i have ibs-dddddddddd watery for 5 days now after taking prilosec otc for 4 days, it knocked out all my stomach acid and now am on flagyl. i had heard stories like what happened to your dad.
this is what scares me also.
i wouldnt mind having the endoscope done first to see if there was anything going on as i have gerd also.
but the other way is not so nice.
they are going toi check my blood for illac sprue and if  is positive i would rather not have to have the scope.
 
i have PA psoriatic arthritis which can attack the bowels, skin, eyes, kidneys and heart.
 
9-02 crash w/ C-5-6-7 anterior/posterior fusion in neck w/11 screws and 4 metal plates. multilevel HNP at T & L section. FMS, PA in dec 05. SSI approved after 2.5 yr wait. sezuires, CTS, etc. on norco, xanax etc. i dont know what else is wrong with me and neither does anyone else!!!


dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 2/17/2006 9:54 AM (GMT -7)   
Hi JHP,
Welcome to Healing Well :)
I'm sorry that you are going through such an ordeal. I am 30 years old and have had a total of 4 colonoscopys. This last one I was diagnosed with ulcerative colitis. Its very hard to say whether you need one of not, a doctor would be the best bet for that. It sounds like your gastro might be concerned and wants to rule everything out which is how IBS is diagnosed. There are other tests you can do such as a barium enema however a colonoscopy is the only way to take biopsies to check for IBD or polyps, etc. Polyps were found and removed on my last colonoscopy at 29 years old. Yes this is unusually young but that goes to show that age is not always a factor. I would definitely suggest to you to get a second opinion through another gastroenterologist. I hope things go well and please keep posting.
Take Care
Hugs, Des
Co-Moderator ~ IBS Forum
 
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7Lil
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Date Joined Apr 2005
Total Posts : 3269
   Posted 2/17/2006 10:09 AM (GMT -7)   
Hi JHP,
Welcome to HealingWell! :-)
It sounds like what you have is IBS, however, there are a lot of ailments that present with the same symptoms. It seems as though your doc just wants to rule out anything more serious. In my opinion (I'm not a doc), I feel the scope is your best bet. The risks are so minimal, but the outcome is so great. I had my scope when I was 26 (now 27) and I don't regret it. Even though they found nothing and the plumbing seems to be in ship shape - I would do it again to put my mind at ease. The prep isn't even all that bad. It actually felt nice to afterwards know that I was all cleaned out and starting anew.
Anyway, talk more to your doctor and ask him/her to explain the reasons behind his/her decisions. "Why do you want a scope?" "Why do you want that blood test?" Why do you want that ultrasound?"
"Knowledge is power"... Not sure who said that, but it is true.
Take care.
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roadtrip
Regular Member


Date Joined Nov 2005
Total Posts : 106
   Posted 2/17/2006 1:34 PM (GMT -7)   

Hi JHP,

just to add to what Lil said - i didn't find my colonocopy too bad. The prep was okay - you just have to put up with some D before hand, in actual fact this D was better than the normal type i have, normally it is 'explosive' or at least caught up with some wind, but with the prep it was quite painless.

The test itself is pretty okay, you should be quite well sedated and shoudn't remember too much of the details.

Of course everyone is different and reacts differently to things - i can understand you being anxious with what happened to your father. But the chance of something going wrong is very slim, and by the sounds of your symptoms perhaps it would be a good idea to have it done.

Hope you find some answers tho and keep posting!

roadtrip


CiCi
New Member


Date Joined Feb 2006
Total Posts : 10
   Posted 2/17/2006 2:57 PM (GMT -7)   
Hey All,
I am only 22 and I had a colonoscopy just last November. I also didn't find it that bad. They knocked me out and I don't remember anything! I have to admit though that I was terrified prior to the scope but after I realized that there was nothing to worry about. The Doc. just wanted to make sure everything was in order before deciding that it was infact IBS that I had.
Though in your case JHP I see why you are even more worried.
CiCi

JHP
Regular Member


Date Joined Feb 2006
Total Posts : 128
   Posted 2/17/2006 5:50 PM (GMT -7)   
Thank you all so much for adding your two cents.....I don't feel so alone any longer.  My b/f probably thinks I am nuts....well that I am tongue    I received a phone call back from my gastro docs office nurse, he wanted a stool sample/culture, so this I did with no problem.  I hope to find the results Monday or Tuesday.  He wants to r/o an infection then I will have the colonoscopy. 
 
I just ate a sandwhich potato bread, mustard and 2 slices of turkey, then I had a poop which was long, thin and formed......what the heck.  I will continue to watch what I am eating and stay away from carbonated drinks, dairy products, whole wheat, veggies that cause lots of gas and so on.  This will take time to adjust too and figure out what I can eat.  I still have gas all the time, I am just gassy!
 
I will continue to post!

JHP
Regular Member


Date Joined Feb 2006
Total Posts : 128
   Posted 2/27/2006 7:14 AM (GMT -7)   
Well, I was good for a week, no problems going to the bathroom, watching what I eat, having regular bowel movements.  Saturday felt fine, but Sunday I felt horrible in the early evening.  I was extremely full and much "rotten" smelling gas along with being nausea, but more so after I lied down for an hour and woke up.  I want to throw up, but of course I didn't.  My heart was racing, I got hot and all of a sudden bam........diarrhea......the plop, plop.....regulart stool.  I was shivering........don't know if it was my nerves or what?  I went back to lay down after I took an Ativan........then I was up again within 15-20 mins lots of stool, but normal....forceful coming out.  I am extrememly exhausted today, but came to work.  I ate plain oatmeal w/a touch of Honey and Propel Fitness Water.  I am afraid to eat anything. 
 
I am trying to pin point what caused this attack.......???  I had some gavy on Saturday over mashed potatoes and turkey, then a cinnabon...later Pizza w/cheese?  I was not that good on Saturday, as we were away on a day trip.  I am thinking the cheese from the Pizza? 
 
I had a c-diff test, and stool cultures, which were negative!  Do you think I have heard from my gastro's office.........NOPE.  I am waiting to hear when my Colonoscopy is for?
 
I am not sure if anyone else experiences these kind of attacks?  I don't get cramping, but fullness, bloating and nausous........then diahrrea?
 
I feel so alone and am very scared.

bunnybabe
Regular Member


Date Joined Sep 2005
Total Posts : 263
   Posted 2/27/2006 7:42 AM (GMT -7)   
i am 26 and i had a colonoscopy and they found a polyp. i am pro-tests, only if you trust your doctors! for me tests can be good, they rule stuff out...i am not a huge fan of "lets try this drug, now this one, now this one" a few months a go i had so many drugs i wrote out an xcell spreadsheet--AND my GI was perscribing me drugs that had interactions AND that had warnings for symptoms i had, AND he gave me expired samples!!! he was a jerkface...
anyway if you trust your doctors, get the scope--wasn't that bad... before and after kinda sucks--but i am glad i had one.
i used to have "explosions" too, once i cut out gluten i have been poop in the pants free, i notice you do eat gluten, could you have a sensitivity? careful with dairy, tomatoes and also honey and sugar. Propel is great, i drink that too, especially after a run or nausea and diarrhea...
as for the smellyness, i think that is often equated with parasites. there are a lot of icky things that can screw you all up, i hope you get the right tests soon.
i understand your lonliness, but this is a great forum group--they have helped me so much, words can't describe. take care of yourself, keep a food log, and keep posting.
best of luck,
--bunny
what would you attempt to do if you knew you could not fail?


JHP
Regular Member


Date Joined Feb 2006
Total Posts : 128
   Posted 2/27/2006 8:05 AM (GMT -7)   
parasites..........what the heck? I linked it too dairy? I have no clue on what I can or can not eat. Is there a website of foods, nutrients, we should eat?

m&ms
Regular Member


Date Joined Oct 2005
Total Posts : 51
   Posted 2/27/2006 8:07 AM (GMT -7)   
I agree with Bunnybabe - try to cut gluten out of your diet and see what happens. I am trying to follow the specific carbohydrate diet and it is helping me get thing somewhat under control, but my poo is still not normal. I am going to see my GI in the states in March to find out if my c-diff is back. I am also going ot demand test to rule out absolutely everything.

JHP
Regular Member


Date Joined Feb 2006
Total Posts : 128
   Posted 2/27/2006 8:11 AM (GMT -7)   
What problems are you having? So, all FAT?

Keriamon
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Date Joined Jun 2005
Total Posts : 2976
   Posted 2/27/2006 9:15 AM (GMT -7)   
Have you looked at my post on gall bladder disease? Your symptoms sound similar to mine and I was brushed off as having IBS for 5 years before I finally had it show up bad on a test and got it taken out.

And before you had your attack, you ate the foods of death: pizza and gravy. Fatty, greasy, fried foods will all trigger a gall bladder attack. Also, caffeine and carbonation. You need to give up the colas. Those two things bother IBSers, but they also bother people with a bad gall bladder because caffeine was one of my triggers and the carbonation just makes the gas and cramping worse. Also stay away from alcohol, decaf coffee (too much acid), apples and apple juice and sugarl alcohols (found in low-sugar and sugar-free products).

I'm going to bump my post up (The Definitive Guide to Gall Bladder Disease) so you can see it. I had a colonoscopy back when I was having my problems--a lot of good it did me. Can't see a gall bladder coming up from that end! You have to have a different series of tests to show a bad glal bladder (they're listed in my post).

JHP
Regular Member


Date Joined Feb 2006
Total Posts : 128
   Posted 2/27/2006 9:35 AM (GMT -7)   
Thanks, I will read your post on gall bladder. I don't have cramping or pain, just full, bloating and nausous....then D followed by regular poo. I do have gurgling.

7Lil
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Date Joined Apr 2005
Total Posts : 3269
   Posted 2/27/2006 11:17 AM (GMT -7)   
JHP, I am exactly the same way you are. It must be the pizza. I get full, bloated and nauseous when I eat too much (or the wrong greasy things). I take those last few bites of food because it tastes so good and I don't want to waste - but then I pay for it later. Try eating smaller, healthier meals. However, when you do have an attack, try drinking some tea and walking a bit. Those are the only things that help me.
Co-Moderator for the IBS Forum
 
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JHP
Regular Member


Date Joined Feb 2006
Total Posts : 128
   Posted 2/27/2006 11:58 AM (GMT -7)   
7Lil,
So you don't have the cramping either? I wanted to throw up so bad last night. Not sure what is going on, but I have somewhat of a nasty taste in my mouth today.

Keriamon
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Date Joined Jun 2005
Total Posts : 2976
   Posted 2/27/2006 12:01 PM (GMT -7)   
Well, not everyone is the same with a bad gb; some people don't hurt a lot before they find out it's bad. A lady I work with said she got sick once or twice before she ended up going to the doctor on a friend's recommendation and it turned out she had stones that would block her duct sometimes, but not get fully lodged in, which is what causes pain.

Your poop will be a good indicator, though. If it's just brown, watery diarrhea, then you almost certainly have IBS (I don't think I know of a gall bladder attack that doesn't dump a lot of bile into your intestines). If, however, it is yellow and burns, then you might have a bad gb (although some IBSers have some bile in their stools too).

7Lil
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Date Joined Apr 2005
Total Posts : 3269
   Posted 2/27/2006 12:30 PM (GMT -7)   
Nope, no cramping. I get the "oh my god, I better run cramp" but then I go and it is over. No pain.... usually. I get the bad taste too. I attribute that to indigestion. Did you know that probiotics are supposed to help with that yucky taste? I always take probiotics - but more so when I have an attack. It helps the recovery.
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JHP
Regular Member


Date Joined Feb 2006
Total Posts : 128
   Posted 2/27/2006 12:34 PM (GMT -7)   
Dunno, but I put a call into my gastro's office today, but do you think his nurse(whatever you call her) would phone back........nope.  I am in the process of chaning docs, they aren't applicable and I can't tolerate this.
 
I think last night, poo was yellow/brown.  Normally it is brown.  I don't recall bile?  What kind of tests are done to see?  I am going to bring this up to my Internal Medicine doc.  I also notice gas almost all the way up to my breast........how strange.

7Lil
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Date Joined Apr 2005
Total Posts : 3269
   Posted 2/27/2006 12:42 PM (GMT -7)   
If you were having biley D it would burn.
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JHP
Regular Member


Date Joined Feb 2006
Total Posts : 128
   Posted 2/27/2006 12:47 PM (GMT -7)   
Nope, no burning.

Keriamon
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Date Joined Jun 2005
Total Posts : 2976
   Posted 2/28/2006 12:12 PM (GMT -7)   
Hmm, a bad taste in your mouth? Bacterial infections--like c.difficile or yeast overgrowth--can cause bad breath and/or a coating on the tongue. Yeast especially likes to coat the mouth and tongue white. Food allergies may also cause bad breath (not really sure). Since the probioitics seem to help you, when you go to the doctor, make them test you for bacterial overgrowth (breath test), yeast overgrowth and c.difficile (stool sample). If nothing comes of that, then go to an allergy specialist and see if you are allergic to any foods.

JHP
Regular Member


Date Joined Feb 2006
Total Posts : 128
   Posted 2/28/2006 3:03 PM (GMT -7)   
I had a c.difficile a week ago friday...negative. When I had my attack two weeks ago Sunday, I started with the bad taste in mouth/white coated tongue. It started again yesterday again, after my attack? I have never heard of probiotics, but I will do some research.

My gastros office called....the nurse or whatever she is.....not very nice. They are waiting on records from my hematologist in Cleveland, so they can schedule the colonoscopy. I went on to tell her about my attack on Sunday.....nothing.....what kind of doctors office is this?

7Lil
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Date Joined Apr 2005
Total Posts : 3269
   Posted 2/28/2006 4:27 PM (GMT -7)   
Probiotics will for sure help with the bad taste... Also your D. Probiotics are the best thing to take when you've had a case of the poops.
I bought some enteric coated "pearls" and they seem pretty great, much better than the plain high dose Acidophilus that gives me gas. If you buy probiotics try getting a blend of probiotics (meaning, don't just buy acidophilus - get one that has several probiotics in that 1 pill). I take a few kinds, 2 of which are a blend:
Acidophilus (no blend)
Phyto Pharmica Probiotic Pearls (2 kinds)
Kyo-Dophilus (3 kinds)

There are so many out there - don't be afraid to experiment until you find one you love.
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JHP
Regular Member


Date Joined Feb 2006
Total Posts : 128
   Posted 3/1/2006 7:31 AM (GMT -7)   
Hmm, where do you buy these?
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