Hi Stacy's mom,
Welcome to HealingWell!
Sorry to hear about
your daughter. I am a little skeptical to believe your daughter has IBS. How are her bowel habits? I have never heard of these extremety problems as extensive as hers with IBS.
I don't want to scare you but... Has she had a full blood work up? I think I've heard Lupus does this. (not sure though)
Hopefully someone will come along with better answers for you.
Take care and please keep us posted.
Co-Moderator for the IBS Forum