I am a newbie on this site...I have been welcomed by the fibromyalgia group (thank you) and would like to meet some of you guys! It is so nice to hear encouraging words, and more, to know that there are others that deal with this...I would like to give history if that would be ok...I am seeking others that have the same problem I do because I believe there is more going on than standard IBS, and I would like to have it confirmed or denied. Maybe all IBS sufferers deal with this, I don't know!
I had a horrible flu. You know, the both end kind. It lasted for several days. On the 4th evening, I tried to eat some crackers. I had slept for 4 days, so I was up late. As I am eating the crackers, my whole stomach is swelling. Not a little. Within 20 minutes (the time it takes for food to hit your stomach) I looked 9 months pregnant. I woke my husband, who freaked when he saw me!!! I was huge!!! He took me to the doctor the next morning and he decided he wanted to run some tests the next week (assuming gall bladder). By Sunday, the swelling was so bad that the stretching caused horrible pain, just like my first pregnancy. I couldn't breathe because it pushed on my diaphram. My husband took me to the emergency room. They admitted me and I stayed for the better part of January. In the end, they had removed my gall bladder and told me I was obese. I gained 33 pounds in that month and maintained less than 500 calories a day. Where did the weight come from???? How did I become obese? No one knew.
They tried several medications throughout the next year and a half, ran more tests than I can count, and sent me to countless doctors. KU told me I had a virus in my intestines and would get over it in 6 months to a year. Lay and bed and rest. Right!! We have 5 children and 4 yorkies (I breed and show my dogs) who in the world can rest for 6 months? Several tests don't come out right, even now, but not enough to be alarming, so I cope, right? I wear maternity clothes because EVERY time I eat or drink anything, I go from a normal flat stomach to a huge maternity stomach! I eat very little because if I do indulge in a normal meal, the diarrhea is so bad, I can't leave the house.
The migraines start. The first came on in 30 seconds flat. My husband was afraid I had an anurysm, so he calls an ambulance. My stomach starts swelling without food or drink that night. They admit me again and I spend two lovely weeks in Hotel Hospital with the same migraine. No meds can get rid of it. My family thought I was brain damaged because I was unintelligable and out of it. They decide to send me to Mayo. They do measurements on my stomach and see that I swell NINE inches in 30 minutes!! I had been subjected to horrible head tests and they were baffled as to why the headache would not subside. My blood pressure was 210/140(related to the pain) so they wanted me to head to Minnesota. By the grace of God, Mayo had an appt. the following Monday (3 days later), so I was released from the hospital, packed my 6 year old up, and my mother-in-law (thank you SOSO much) drove me to Minnesota for the first of two weeks.
Bottom line...infectious onset severe spastic colon. Or, IBS. Fibromyalgia...yes, I knew that. Been living with that for 6 years. Learned alot of valuable information about fibromyalgia and they put me on 120 mg of Cymbalta because their studies showed it helped with the symptoms (an antidepressant), in addition to two migraine meds and meds for stomach spasms. The prognosis is not good. The flu caused this problem, but it would have fixed itself within 6 months if it was going to. It didn't. I know live with this and will forever. Right along with fibromyalgia. Another inexplicable condition. I am 35 years old and live like an old woman in my heart. Doctors can't help, and I believe they just don't know. I have talked to 3 other woman with basically the same stomach experience, and I am curious if there are any others??? I am making it my mission to find others. Alone we are a single case...together we are an epedimic. Anybody out there have this, or know of someone who does? Please pass the word around and I will post the same message in IBS.
I will get off the soap box now and say that I am grateful to have a place to deal with the daily issues of IBS. Thank you for accepting me so graciously! Of course, the story is much more in depth, but I don't want to bore anyone, but if you have this, we can personally compare notes. Thank you for your time!
Hi Celticgirl. I have been diagnosed with IBS and when I eat I swell up 3 inches and I thought that was bad but 9 inches...WOW !!!
Are you migraines under control now? Is there a family history of them?
i have huge swellings of the stomach too, everytime i eat a normal sized meal and when i mean normal its still small i go from a flat ok stomach to an obese 9months pregnant thing!! its so bad if i no i have to go out anywhere i tend to try and not eat so that i can fit into my clothes, or just end up not going out!! luckly im a PE teacher so at work i can get away with it with huge baggy t shirts and jumpers, but when i have to actually teach and move its not so great as feel i weight double what i was before i ate!! my boy friend also has asked if pregent which is quite embarrasiing as really not what either of us want at mo!!!it also plus plays havock with any kinds of relationships as hate how huge i look if i eat!! frankly i sucks!
any hints of how to reduce the swelling that isnt just not eating which i consider all t hetime, then would b v grateful!!
Re: stomach swelling after eating. After years and years I found an osteopath who practises Visceral Manipulation. Some Chiropractors also do this. I suggest you Google it. He diagnosed me with a hiatal hernia of the lower esophagus. Google Hiatal Hernia. This can be helped by a simple action of pulling down the stomach. Call round all your local chiropractors and ask if they do this. Then you can do it yourself.
There is a Chinese version of this called Chi Nei Tsang. Depending where you live you may find a practitioner. Google that too.
I have been going through this for a year, the hard swelling of the stomach right in the middle above the belly button, and have had several tests done and they all say IBS, took medication for that and it did nothing at all to help, If i eat anything a lot of times before i am even done eating i am in the bathroom, makes it really hard to go anywhere. my stomach up at top center looks lke am pregnant, and hurts and i feel full all the time, I have had the upper scope done several times with stretching of the esphoscus and it dont work, i had gained a lot of weight and dont know how because whateveer i eat, i loose as fast as i eat it....anyone else have this huge swelling right in the center of your stomach and it is hard as a rock? i am new here so any information will be helpful,
i have had swelling now for 7 weeks and feel sick all the time. no energy. My doctor thinks it is ibs but i havn;t had symptoms like this before. I feel as is if i have a ballon stuck in my stomach and even in the morning just after getting up it is swollen. Do you have discomfort all day as well?
Celticgirl - I deal with the exact same bloating problem. At times, it looks like I'm nine months pregnant and carrying triplets!
Over time, the bloating was getting worse, in addition to my IBS-like symptoms. Finally, my doctors arrived upon a diagnoisis that explained my growing abdomen and GI problems - endometriosis of the small intestine.
Endometriosis is very common in women, and the only way to diagnose it is through laparoscopy. I've been battling severe endometriosis for my entire life, and when I turned 30, the GI symptoms began. Two endo experts finally figured out that the endometriosis was invading my small intestine and causing it to expand and bloat up.
With the bloating, I have severe pain, much like you describe. When I'm having a period, my bloating is very severe, but the bloating decreases after it's over. For about a week every month, it looks like I'm about to give birth at any minute.
Do you have any menstrual pain? Women sometimes don't experience menstrual pain when they have endo though, so that doesn't necessarily rule it out.
If you're interested, you can google "endometriosis in the small intestine" and read up on the symptoms. Usually, most sites list the classic bloating problem.
Anyway, this is just a thought. Hopefully, I'll be able to have surgery with an endo specialist soon, and he is going to do a bowel resection. I am praying that my swollen tummy deflates after the surgery!
Good luck, and let me know if you have any questions.
I need to say what I meant by alcohol was if I go out to eat I drink a drink before I eat. Seems to relax my stomach so I dont swell and it doesnt go through me so fast. I have tried enzymes and a long list of medicines. Instead of taking alot of medicine on a regular basis I would rather have a drink occasionally. I dont go out alot because of my stomach . To be honest if it wasnt from having to work I would only take medicine when I leave the house. But without something in my system I will just be sitting at work and have an accident before I even realize it. YUCK. All of my Drs. just want me to take medicines all the time to work and I am really worried about long term damage to my liver and the rest of my body. Can tell you that a few months ago I was so tired of feeling bad all over that we went on a steamed vegs. and chicken diet. Fresh fruit too. Of course we are suppose to stay away from fruit but I felt really good. I cannot have milk products, they really make me bad. Just cheese and yougurt.I was waling and running on treadmill. Now I have a tear in my shoulder and bursitus and my knee has a softball on the side of it. So much for running. They also said I have DDD in my neck causing my headaches. What a basket case. I cannot find one DR. to treat all. I was going every week to someone to be functional. SOOO I just want one Dr. not really a quack. I was really in a bad mood last night when I wrote that and had 3 beers without eating. Take care.