Keri, you're right. I don't want to be on medications I don't need to be on; but even a trial of something, like one of those 5-ASA drugs used to treat Crohn's disease - could it do significant harm, really? I have been through the ringer with various drugs/concoctions/voodoo cures that had more potential for dangerous side effects, I'm sure, than a single drug would. I'm just not sure how to approach him about that. I just wish there were some way to be sure about what this is to treat it effectively and not have a piecemeal approach to it.
I feel like absolute crap garden-hose today. I'm getting back into one of my "poor me" modes instead of my usual "blow-it-off-and-make-garden-hose-jokes" attitude; hopefully just for today. I'm going to go home early and take a nap and drink chicken soup and Gatorade and cancel this afternoon's violin lesson.
Thanks girls :)
I'm going back to the same GI here in Anchorage. Even though his bedside manner left a lot to be desired, he was thorough when I saw him (he was the one who ordered the capsule study, as well as the various blood/urine tests for lymphoma) and he, if anyone, would probably be the most proactive...although you never know, I suppose. I think I will ask him point-blank if he can help me anymore and if not I will see a new GI. I don't want to take any steroids, that's for sure! That's just going way too far unless there is a definitive diagnosis.
Yesterday wasn't such a bad day, only had 5 garden hose episodes. Towards the end I was in the middle of clinical supervision at work and my whole department had to stifle their giggles when I hobbled back in, you know that walk we do after our bathroom trips, trying to relieve the searing pain of the burning a**!!! It helps that I work in the children's mental health department at a social services agency - our sense of humor is quite deranged (we see some crazy stuff, so I guess it has to be).
I am going out of town this weekend with my very deserving Adam and six friends to celebrate Adam's 26th birthday. He has no clue where we are going (Homer). It's going to be so wonderful and beautiful - spring is springing here, finally! We have about 13 hours of daylight now and it won't stop until we have 20 hours of it on June 21!
Our bad guts are so in sync, it seems! I just saw my GI here in the states to get the results of my last 3 stool samples, and only one showed a few white blood cells. So, basically, I still have no answer or solution. He wants me to try and deal with the D until the baby comes and then see how I feel. He also thinks the pregnancy is making the post-infectious IBS worse. He said he doesn't expect me to have normal bm's with all the infections I've had anytime soon. Ithink by visiting your GI and checking things out again you'll at least have a bit of peice of mind that you do in fact have IBS (if they can rule out everything else)
It still sucks tho!
Oh girl, no answers again I have skin tags also and apparently I read somewhere that there is a difference between the skin tags of crohn's and those of "nothing". Don't know though.
Now I'm not a brain surgeon but mocturnal diarrhea, fevers, skin tags, hmmmmm.... How frustrating!
Another little update...I was minding my own business today at work when I got hit with that awful upper abdominal pain again. Hasn't happened in a few months this badly. It comes on like gangbusters. Definitely 10/10 pain. Called the GI and he said to go to the ER. I haven't been there since November - but off I went and like always they pushed the fluids, gave me the "GI cocktail" of lidocaine, Maalox, and Pepcid, none of which touched the pain at all. Couple hours later they gave me a dose of morphine, I had another nasty wave and they gave me another dose, and then the doc came in to tell me my bloodwork was normal and that she was "kicking me out" with a script for Protonix with the hopes it would heal my gastric erosions that may possibly be causing the pain. All in all I was there for about seven hours and, at least, left feeling better than I did when I came in.
Now I have a morphine hangover and am battling the ever-present nausea that accompanies all narcotic interactions. Adam was by my side the whole time, rubbing my back while I cried into my pillow. His presence, more than any doctor's, was the most comforting treatment, even if it didn't make the pain go away.