I just dont think it is Ibs...

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my4bostons
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Date Joined Apr 2006
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   Posted 4/19/2006 8:35 AM (GMT -7)   
Hi all,  I  just joined this board to try to find out what might be wrong with me.  Ive been sick for almost two years. I dont have insurance so the docs are not to excited to help me.  I would like to know if you all think my symptoms add up to IBS.  Ive been two 2 family docs and 1 gastroenterolgist(sp?) all saying I have Ibs.  All my blood work has come back normal with slightly low wbc.  Here are my symptoms:
 
Low blood pressure(dr says it fine) 90/58
nausea
weakness
fatique
brain fog(this is how it started)
dizziness
changes in bowel habits
loose thick stool(no blood)
go to the bathroom more than usual-4times a day
tons of mucus without stool (pink/skin color)
palpitations(mostly without any other symptoms at the time)
left sided pain under ribs dull ache
I feel like I need to take a deep breath and then the symptoms kick in
switches on and off like a light switch
 
Thank you for your imput and ideas would be appreciated. I cant stand to feeling this way anymore!
 
 
 
 

Post Edited (my4bostons) : 4/19/2006 10:51:55 AM (GMT-6)


dbab
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   Posted 4/19/2006 9:07 AM (GMT -7)   
Have you had any tests besides blood tests? Pink mucus might indicate a slight of blood. The only real way to tell though is to rule everything out which I can understand is probably difficult by not having insurance. Your fatigue and brain fog sounds like a little more than IBS though. Have you been tested for autoimmune (Celiac maybe?) I would really hate to speculate. Are you finding that your diet has made your symptoms worse, better, any change?


Hugs, Des
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Sarita
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   Posted 4/19/2006 9:40 AM (GMT -7)   

Most of your symptoms seem to be non-GI related.  The loose stools and mucous are closely associated with IBS, but I haven't heard of dizziness, brain fog, weakness, etc. being associated with it.  You might get another CBC to check on the status of your WBC.  Your blood pressure is slightly low, but it can fluctuate 10-20 points over the course of a day and so you should be checking that at different points to see what the average is. 

Without insurance, it would be difficult to go through a bunch of expensive tests that might reveal the cause.  How debilitating are these symptoms?


my4bostons
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Date Joined Apr 2006
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   Posted 4/19/2006 9:43 AM (GMT -7)   
Thanks for your reply. I have only been tested with blood work and a hemocult and both are fine. Ive not had and ana yet but that is my next step but im trying to get insurance first. I just am wondering if I should be persuing more tests or should I accept my IBS diagnosis. I have tried the gluten free diet for about two weeks and I also was on adkins a while back. The symptoms disapeared for about 4 days and then came right back. I dont seem to be triggered by anything in particular. I will just be shopping or on the sofa etc. and bam I feel as though I might pass out. I really feel like Im going to come down with the flu. Then just as quickly it will lift and Im fine again. The bad times are far more often this month and It is really effecting my life.
 
I have checked my blood pressure over the course of a week and the highest it gets is 103/63 average reading is 90/58

Keriamon
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   Posted 4/19/2006 10:28 AM (GMT -7)   
Low blood pressure can make you dizzy and, I would think, also account for your fogginess and weakness and maybe even your nausea. A vitamin defciency can also cause those problems and maybe even your low white blood count.

Pain under the rib cage is common with IBS because of trapped gas. Mucous is also common, although I think most everyone's is clear. Even the palpitations happen in some people with IBS, mainly because of chest pains because of gas and/or panic attacks.

Have you been checked for diabetes? The American Diabetes Association often has blood screenings for free at different times in cities of a little size. You can also go to the public health clinic and get your blood sugar tested there for very little to nothing (cost is based on your income but regardless is still much cheaper than a regular doctor's office). Sometimes even pharmacies will sponsor a blood sugar and blood pressure check.

And while you're there at the public health clinic, ask if you can be tested for a vitamin defciency. I don't know if they draw blood and do workups there, but I think they do.

If neither of those tests comes up with anything, go to a GP and tell him that you are having weakness and dizziness and nausea that comes and goes suddenly and that you have been tracking your blood pressure and it's been showing as low a lot. Don't mention your stomach problems at all--make him treat you for the one thing first because low blood pressure has nothing at all to do with IBS (sometimes doctors can't see the forest for the trees). Then if after getting rid of the nausea, dizziness, fogginess, etc. your bowels are still off, then treat them as if you have IBS and try calcium and probiotics and allergy tests and the other usual recommendations on this board.

Keriamon
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   Posted 4/20/2006 3:47 PM (GMT -7)   
Here's some additional news I found out for you. The mother of a lady in my office was having dizziness, nausea and her heart was racing and/or fluttering and she was having a few bowel problems as well (nothing major on that account). They did an angioplasty on her, thinking it might be her heart, but that was perfect. They just found out today that she has an inner ear condition; the fluid in her ear isn't level. That causes dizziness, then the dizziness causes nausea and general stomach upset, and apparently it was linked to her heart flutterings too somehow (possibly due to stress over it).

So if no answers are forthcoming with the low blood pressure thing, then you may want to get your inner ear looked at. It takes a little physical therapy, but it is treatable.

7Lil
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   Posted 4/20/2006 6:58 PM (GMT -7)   
Keri, my grandpa gets that... It's called Vertigo. He takes Dramamine for it.
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dbab
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Date Joined Jan 2004
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   Posted 4/20/2006 7:04 PM (GMT -7)   
Yes, its caused by Meniere's disease. It can be horrible for the patient and sometimes requires strong meds. The Dramamine will help and there is a stronger Dramamine (rx strength called Antivert). I had to take that before when I was having a 3 day ongoing panic attack. Helped the panic attack but I slept for 2 days straight.
Hugs, Des
Co-Moderator ~ IBS Forum
 
~My reality check bounced
 
 
Please help Healing Well continue to help others by donating  http://www.healingwell.com/donate
 
Dx: IBS 1989, Diverticulosis 2004, UC 2005, Sjogren's 2006
Meds: Sulfazine EC, Mesalamine, Chlorzoxazone, Oxaprozin, Symax SL, Protonix, Xanax XR, Supplements


my4bostons
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Date Joined Apr 2006
Total Posts : 17
   Posted 4/21/2006 6:09 AM (GMT -7)   
you know Keri, I have been waking up with very sore, wet earson and off for the past month. I went to the dr. thinking I had an ear infection and she looked but said they looked fine to her. Would I need to see an ear,nose and throat dr? The only thing is that I will be nauseaus without the dizziness and vice versa.

I forgot to mention that my hearbeats can be seen and felt in my stomach. If this makes sense. You can see my stomach move up and down because it beats so strong. The dr noticed and gave me an EKG and said all came out normal.

my4bostons
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Date Joined Apr 2006
Total Posts : 17
   Posted 4/21/2006 6:12 AM (GMT -7)   
dbab- Im so sorry for you that you had to suffer a panic attack like that. My best friend suffered from those and she couldnt stand them anymore and was so depressed. She is on a med now that has controlled them. In June it will be a year since she has had one.

dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 4/21/2006 6:17 AM (GMT -7)   
Thanks my4bostons...
Actually I'm on xanax xr now (different from regular xanax) and I am doing wonderfully (touch wood).
It was horrible for some time when I was in the peak of all of that and I always fear a relapse but I think monitoring my symptoms and managing my medication is the key. I'm sorry for your best friend, unfortunately for most it can cause severe depression and sometimes agoraphobia (which I did have a slight case before). I'm so glad the meds are helping her too. :)
Hugs, Des
Co-Moderator ~ IBS Forum
 
~My reality check bounced
 
 
Please help Healing Well continue to help others by donating  http://www.healingwell.com/donate
 
Dx: IBS 1989, Diverticulosis 2004, UC 2005, Sjogren's 2006
Meds: Sulfazine EC, Mesalamine, Chlorzoxazone, Oxaprozin, Symax SL, Protonix, Xanax XR, Supplements


Keriamon
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Date Joined Jun 2005
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   Posted 4/21/2006 7:50 AM (GMT -7)   
You might need to see an ear, nose and throat specialist, but you may just try going to a different G.P. and tell him that you are having dizziness and nausea and feel foggy and you are draining liquid out of your ear at night. My collegue's mother had a hole in somewhere in her ear workings and they thought maybe that was causing her fluid imbalance. I don't know if she leaked anything out of her ear, though. Des had the right name for her condition, Meniere's disease. I couldn't remember what Kim had said.

I think they are going to treat her with physical therapy; she didn't say anything about meds. The husband of a lady I worked with at my last job had his ear fluid crystalize on him and he was so drunk from it he couldn't drive himself to work. He finally had to see a neurologist to get it diagnosed. They put him into therapy where he had to rock himself certain ways--I think they even put him on an inversion board--and that reliquified his inner ear fluid. Whenever he started to get dizzy after that, he would just do his rocking exercises to get it balanced again.

LondonGirl22
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Date Joined Jan 2006
Total Posts : 1629
   Posted 4/21/2006 7:59 AM (GMT -7)   
Hi,
Just wanted to post this to tell you about my experience which sounds a bit like yours. I was a healthy person till 2 years ago and got glandular fever and then an inner ear prob called labyrinthitis. It made me lightheaded and very fuzzy headed and dizzy. You cant see anything by looking in the ear as its an inner ear prob and you need to see an ear nose and throat specialist. I had balance physio to help me. I had loads of viral infections after this and felt ill for ages and then started with he IBS with solitary rectal ulcer syndrome which is ulcers that ocur in the rectum for no apparant reason - they just happen and need to be treated with steriod suppositiories. I get loose stools frequently and lots of mucus. Its usually yellow but when i have an ulcer it is sometimes pinky red. I see a gastoentorologist at the hopsital for this. I had nearly a year off work with all this but im doing better now.
I hope you manage to sort your probs out. I really do feel for you.
Victoria

my4bostons
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Date Joined Apr 2006
Total Posts : 17
   Posted 4/23/2006 3:28 PM (GMT -7)   
Victoria said...
Hi,
Just wanted to post this to tell you about my experience which sounds a bit like yours. I was a healthy person till 2 years ago and got glandular fever and then an inner ear prob called labyrinthitis. It made me lightheaded and very fuzzy headed and dizzy. You cant see anything by looking in the ear as its an inner ear prob and you need to see an ear nose and throat specialist. I had balance physio to help me. I had loads of viral infections after this and felt ill for ages and then started with he IBS with solitary rectal ulcer syndrome which is ulcers that ocur in the rectum for no apparant reason - they just happen and need to be treated with steriod suppositiories. I get loose stools frequently and lots of mucus. Its usually yellow but when i have an ulcer it is sometimes pinky red. I see a gastoentorologist at the hopsital for this. I had nearly a year off work with all this but im doing better now.
I hope you manage to sort your probs out. I really do feel for you.
Victoria
 What kind of symptoms do you get with an ulcer?  I often wonder if I may have that but I do not get bad stomach pains. Just a dull ache and sometimes a burning feeling.

Canyonbabe711
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   Posted 4/23/2006 7:45 PM (GMT -7)   
Your symptoms are probably more than one thing. I have never heard of pink mucous without stool. Did you tell the GI dr. that. I am more concerned about the heart beating that hard. I would suggest you get an ECHO, not an ekg but an ECHO and rule out a blood pumping problem. The nausea can be from just about anything as can the weakeness. I think you have to rule out the most serious thing first and that would be heart. Ulcers can bleed but that is pretty easy to diagnose. You can do a stool sample to see if it is blood. It must be but you can do a stool sample for ulcer bacteria, or a breath test or an endoscopy. In your case I would say an endo is in order to rule out bleeding ulcers. The burning feeling can be that. It is not always bad pain. The other test would be a colonscopy to rule out lesions or bleeding polyps. Hermoroids are not hard to check for. Good luck.

CathyA
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Date Joined Mar 2005
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   Posted 4/24/2006 4:27 AM (GMT -7)   
Hi my4bostons,
I just wanted to remind you that I responded to you over on the post "IBS and fatigue". I do think you should pursue the Lyme diagnosis.

LondonGirl22
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Date Joined Jan 2006
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   Posted 4/24/2006 11:02 AM (GMT -7)   

Hi My4Bostons,

 

In answer to your question, the symptoms I get when i get a rectal ulcer are

Pain, pressure and burning in rectum

Mucus with or without stool

blood in mucus but not alwys

I never get any stomach pain - only usual cramping

Victoria


my4bostons
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Date Joined Apr 2006
Total Posts : 17
   Posted 4/24/2006 2:14 PM (GMT -7)   
what is the cause of a rectal ulcer? h pylori?

LondonGirl22
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Date Joined Jan 2006
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   Posted 4/24/2006 2:22 PM (GMT -7)   
With solitary rectal ulcer syndrome, the cause is unknown - it just happens.  Mine happen they think because my anatomy of rectum is a bit abnormal so when I starin to go to loo, everything doesnt go straight to pass a stool, its curved.  So when i get cpnstipated and strain, im causing ulcers apparantly.  Its all a bit wierd but thats what the consulatant told me.  He said they can also occur for no reason aswell but can be easily treated with prednisilone steriod suppositories

rachelstar96
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Date Joined May 2006
Total Posts : 2
   Posted 5/8/2006 9:08 AM (GMT -7)   
Hi Poster -
 
I think you should consider visiting a very good rheumatologist, as these docs tend to work with auto-immune disorders.  Your symptoms sound as varied and unrelated to one another as mine.  The docs restled with a diagnosis for me for years.  Your symptoms could be Chronic Fatigue, Fibromyalgia, Lupus, you name it.  Not to scare you, but perhaps I can help you save some time.
 
The key is your primary doctor.  If they do not seem skilled or concerned enough, you may need to look into obtaining another one. 
 
Although you maybe haven't heard of Fibromyalgia, there are tons of sites and orgs dedicated the the disease.  Same thing with Chronic Fatigue and Lupus.  Visit these sites and check your symptoms against what is listed.
 
God bless!
 

rachelstar96
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Date Joined May 2006
Total Posts : 2
   Posted 5/8/2006 9:10 AM (GMT -7)   
BTW, I was later diagnosed with what is either Fibromyalgia or the beginning of Lupus.

my4bostons
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Date Joined Apr 2006
Total Posts : 17
   Posted 5/15/2006 6:58 AM (GMT -7)   

Hi rachelstar,  I just had an ANA done and it was normal but I was also checked for lyme antigens and that came back borderline so my Dr. is sending it off to get a western blot.  So... Im in waiting right now. 

canyonbabe-  I will ask about the echo because the palpitations is one of the scariest symptoms. Yesterday after my bath I was super lightheaded and my husband could see my heat beating in my neck. 


whitedog
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Date Joined May 2006
Total Posts : 160
   Posted 5/15/2006 8:17 AM (GMT -7)   
Sorry to hear about your situation and the severity of your symptoms. 
 
What caught my eye is your brainfog, low BP, dizzyness, etc.  I, too, think it sounds like Fibro.  One thing to keep in mind is that in IBS, Fibo, CFS, etc., part of our problem is that our autonomic nervous system doesn't function properly in regulating our system.  Kind of like working for someone who isn't qualified to run a department and you have to teach him the job. 
 
Here's a link [have to copy it to your browser] about the autonomic nervous system dysfunction--notice how IBS, Fibro and the like all fall under this heading. http://heartdisease.about.com/cs/womensissues/a/dysautonomia_3.htm
 
Start a list of all of your symptoms including the really oddball stuff.  You should have seen the lists I had:
  • craved salt when getting sick
  • can't find nouns and use the wrong word even though I'm think the right one.
  • have become dyslexic with the letters B & P
  • freakish creepy/crawly spells in my back--freakish form of restless leg syndrome

Well, you get the idea.  What you're going through probably is part of one over-riding illness like mine.  I have Fibro, IBS, hypthyroidism, IBS, RLS, atypical migraines, sleep apnea, hangnails, chapped lips and even fallen arches!!!!

 


Hayley


whitedog
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Date Joined May 2006
Total Posts : 160
   Posted 5/15/2006 8:21 AM (GMT -7)   
Admin:

Hope the link I just posted is okay. It's to a site run by a cardiologist who specializes in Dysautonomia that so many illnesses are a manifestation of.
Hayley


dbab
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Date Joined Jan 2004
Total Posts : 4151
   Posted 5/15/2006 8:59 AM (GMT -7)   
Its fine Hayley... it's a broken link however so you will have to copy and paste it. Thanks for the post. :)
Hugs, Des
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, UC 2005, Sjogren's 2006
Meds: Sulfazine EC 1000mg, Mesalamine Enemas, Chlorzoxazone 500mg, Naprosyn 500mg, Symax SL .125mg, Protonix 40mg, Xanax XR 2mg, Miralax 17g, Supplements
 
 
Please help Healing Well continue to help others by donating  http://www.healingwell.com/donate
 

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