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sophieWVU
Regular Member


Date Joined Dec 2005
Total Posts : 85
   Posted 5/19/2006 10:25 AM (GMT -7)   
Hey everyone, I was wondering how they test for endometriosis?  I've heard it can mimik IBS and I've had horrible female problems and I was wondering if I should talk to my GYN doc when I'm in there this month.  Thanks!

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 5/19/2006 10:48 AM (GMT -7)   
I think they do an ultrasound to look for it, but I'm not certain (there are other ladies on here, though, that have had it). But you are right that "female problems" can cause symptoms that are similar to IBS, including diarrhea or constipation. Definitely talk to your gyno and tell him or her that you want a thorough going-over.

luvdogs
Regular Member


Date Joined Jan 2005
Total Posts : 184
   Posted 5/19/2006 3:33 PM (GMT -7)   

Hi Sophie,

Yes, endometriosis can cause symptoms very similar to IBS!  I have severe endometriosis, which causes me to have horrible GI problems.  Many women with endometriosis deal with IBS symptoms.  When endo lesions are located on the bowel, they can cause cramping and diarrhea.  Also, adhesions are a common complication of endometriosis, and they can also cause many GI problems.

The only definitive test for endometriosis is a laparoscopy, in which they insert a tiny camera through your belly button and look around.  If you have an ovarian cyst due to the endometriosis (called endometriomas), they can detect them with an ultrasound.  For the most part, however, the endo lesions cannot be seen with the ultrasound.  Also, gynecologists can sometimes determine if you may have endo through a pelvic exam.  The uterus can become retroverted (pulled backward) because of the adhesions, and they can also detect this through the pelvic exam.

I would definitely recommend talking to your OB/GYN about the possibility of endometriosis.  Some of the other symptoms of endo are chronic pelvic pain that may increase at the time of menstruation and abdominal bloating.  A good website that talks about endometriosis is www.endometriosisassn.org

I hope this helps some, and please keep me updated.  Also, if you have any questions, let me know.  Good luck, and I'll be thinking of you.

Take good care,

Ali


"The most called-upon prerequisite of a friend is an accessible ear."  Maya Angelou


7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 5/19/2006 8:37 PM (GMT -7)   
Hi Ali,
Thanks for popping in and giving us the endo info. :-)
Take care.
Co-Moderator for the IBS Forum
 
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ryleigh
Regular Member


Date Joined Dec 2005
Total Posts : 251
   Posted 5/20/2006 4:25 AM (GMT -7)   
Hi Sophie,  I had endo also...  I had alot of infertility problems as well.   After years of pain and trying to get pregnant I had a complete hysterectomy...  That did help with the pelvic pain but I still have bad IBS...  My adhesions are near my bowel...  Sometimes they do unessesary hysterectomies because of this...  Make sure you find a really good gyne...  Any questions please feel free to email me direct..   Sully03@bellsouth.net...  

Ryleigh


Durby
Regular Member


Date Joined May 2006
Total Posts : 29
   Posted 5/22/2006 11:33 PM (GMT -7)   
Hey Sophie!
I have severe Ulcerative Colitis, IBS and endometriosis. My endometriosis was initially found on an ultrasound (they saw a fluid where there shouldn't be any). The only way to ensure that it really is endometriosis though, is to have the laparascopy described in a post above. When I had mine, the gyno. went ahead and burned off all the deposits he saw. I woke up sore, but I felt better over time. Unfortunately in my case, they've all grown back. But it gave some temporary relief! Good luck!
Stephanie
Severe UC (diagnosed May 2005), Endometriosis and Celiac's
Prednisone...tapering!  Hopefully off by the end of June!
Salofalk 3 pill/3x daily; 1 enema each night.
Calcium with Vitamin D 2x daily; Mulitvitamin;
Metamucil 6 capsules daily, but increasing;
Didrocal...3 more cycles at least;
Waterpill 1xday;
Effexor 150mg daily; Tricyclen daily.


luvdogs
Regular Member


Date Joined Jan 2005
Total Posts : 184
   Posted 5/23/2006 8:46 AM (GMT -7)   

Hi again, Sophie.

I agree with an earlier post that it is vital to find a doctor that either specializes in endometriosis or has a strong interest in it.  Regular OB/GYNs are adequate in treating the disease, but in my experience, the best care comes from specialists.

I have a friend that recently had a laparoscopy because she was experiencing chronic pelvic pain.  Her regular OB/GYN performed the surgery.  He found some endometriosis lesions, but rather than removing them, he just left them and advised her after surgery to take Lupron shots.  To anyone familiar with endometriosis, Lupron is an incredibly powerful drug with dangerous side-effects.  It baffles me that her doctor did not remove her lesions.  I feel that she would have received some relief from her pain if he had removed her endometriosis.

New advances have been made in the treatment of endometriosis, including refined surgical techniques.  In previous years, surgeons used to just burn the endometriosis lesions with a laser.  Researchers found, however, that burning lesions is ineffective because it does not completely remove all of the endo.  Now, surgeons that specialize in endo excise (cut out) the lesions rather than burn them.  This techniques has proven to be much more effective.  Many regular OB/GYNs continue to burn the endometriosis, or just leave it in the patient, as what happened to my friend.

When you see your OB/GYN, I would definitely ask if he/she thinks you may have endo.  If a laparoscopy is recommended, ask what surgical technique is used - burning or excision.  Good luck, and keep us updated!

Take good care,

Ali


"The most called-upon prerequisite of a friend is an accessible ear."  Maya Angelou


starrnr
Veteran Member


Date Joined Dec 2005
Total Posts : 1782
   Posted 5/23/2006 3:59 PM (GMT -7)   
I also have severe endo and I have Crohn's (newly diagnosed a month ago). I was diagnosed via laparoscopy and was cauterized at that time (20 years ago). At that time, my right ovary and pelvic cul-de-sac were covered. It has since returned (about 3 years after the cauterization) and I'm covered from right to left. I have such bad adhesions that they can't find my left ovary (even via trans-vaginal ultrasound), but it's there.

I was put on Lupron twice in a 5 year period of time (about 10 years ago). Best thing I ever did. Of course, it put me at greater risk for osteoporosis and with my having Spondylitis, I, for obvious reasons can't take any sort of steroidal medicines for my CD.

Do see a gyn that has a clue about endo and discuss ALL therapies available.

Good luck.
My "Trifecta" - CD, AS & RA...

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