Does this REALLY sound like IBS-D?

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shelly1979
Regular Member


Date Joined May 2006
Total Posts : 164
   Posted 5/22/2006 8:35 AM (GMT -7)   
confused  I guess I have 4 questions...
1.  Does IBS-D just start one day and never stop like mine is?
2.  How do you deal with this frustration?
3.  Why isn't the Levsin and Librax working if this is IBS-D?
4.  Would an inflammatory bowel syndrome such as Crones or    ulcerative colitis show up in a colonoscopy OR upper GI & small bowel series x-ray (I've had all 3 tests and the doc still says I have IBS-D.) 
 
I have no pain with this like most IBS-Ders have.  I have no signifigant bloating either...just loose stools or diarrhea.  I just get the normal urge to "go".  After I go, I feel better.  Eating a meal really doesn't trigger the urge t go....it has before, but not a lot.  I was going 3-8 times a day in the beginning.  I'd say I'm going 1-2 times a day now, but I am taking 1/2 of an immodium a day. (it's what the doctor suggested I take with the1/2 tablet of Levsin before meals.) 
 
Help if you can...I thought that IBS-D comes and goes.  I've had CONSTANT loose stools/diarrhea for 2 1/2 months now!  I think it's starting to depress me and I have the "what if's" really bad...like "what if I have cancer"..."what if I have an inflammatory bowel disease?" , "what if this NEVER goes away?"  Even after the GI doctor tells me it's IBS-D. 
 
Is this normal to feel this way???  I'm about at my wits end!  It seems like the more I read things on the internet about my symptoms, I worry more because I think I have something else, etc.  Help me if you can.

dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 5/22/2006 5:52 PM (GMT -7)   
Hi shelly,
IBS can wax and wane and can last for a long time and then you can also go into a sort of "remission" (for lack of term). It also can affect people in very different degrees. Yes it CAN be very debilitating for some and just a nuisance for others. If you had the scope and the doc didn't see any inflammation, chances are that its not an IBD. The barium xrays are to see if there is any narrowing or obstructions in your upper tract that would point to Crohn's. A lot of docs don't do these tests and sometimes can dx you based on your symptoms alone. There are certain things that you need to watch for that could point to IBD or cancer and the biggest thing is blood in your stool. Blood is not seen with IBS and can be seen with hemmroids. IBS symptoms do mimic those of IBD though so its normal to worry that you may have an IBD. If this is still bothering you and you are not convinced, then I really suggest that you have a serious talk with your GI and bring a list of all your concerns. Make sure that the doc has a genuine answer for everything.
Hugs, Des
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, UC 2005, Sjogren's 2006
Meds: Sulfazine EC 1000mg, Mesalamine Enemas, Chlorzoxazone 500mg, Naprosyn 500mg, Symax SL .125mg, Protonix 40mg, Xanax XR 2mg, Miralax 17g, Supplements
 
 
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KELLYY
New Member


Date Joined May 2006
Total Posts : 17
   Posted 5/23/2006 11:46 AM (GMT -7)   
 hi, i'm so sorry your going through this right now.  i too had the same problem a couple of years ago.  my diareah came from out of nowhere and was all day every day for 4 months straight.  i lost 20 pounds from all that and then of course anxiety and deppression developed from that.  the doc eventually put me on paxil 40mg a day and that made my bowels very normal after about a couple of weeks.  i keep reading too that a lot of doc's now are perscribing paxil to people with ibs d because somthing in it really controls the symptoms.  ever since then it has worked like a miracle for me. now i got pregnant and went off the paxil for four weeks and had diareah constant all over again.  so now i'm back on the paxil almost in my second trimester.  so maybe try asking your doc about paxil cause it could really help you.  good luck.
 
kellyy

shelly1979
Regular Member


Date Joined May 2006
Total Posts : 164
   Posted 5/24/2006 7:43 AM (GMT -7)   
hi KELLYY!
 
Thank you for responding.  So your diarrhea/loose stools lasted for 4 months?  Mine has been going on now for 2 1/2 months and I am so nervous that my GI specialist missed something and that there is something seriously wrong with me.  I suppose that is natural?  I've had all of the tests, colonoscopy, upper GI, small bowel series x-ray, blood tests, stool cultuers, hemocult tests.  My GI specialist STILL thinks it's IBS with diarrhea.  HE put me on Librax, which made me sooo sleepy.  Then he put me on Levsin an antispasmatic.  That didn't work, so I called my regular doctor and she put me on Elavin, an antidepressant.  She said I would be tired for 4-5 days but give it a chance for my body to get used to it. 
 
Any more advice to make me feel better about all of this??
Thanks.

sami-jo
Regular Member


Date Joined Apr 2006
Total Posts : 326
   Posted 5/24/2006 10:09 AM (GMT -7)   
HI SHelly,

I've had diarrhea/loose stools for 4 months now. Weight loss 20 pounds. Very anxious and worried over all this. I've had all the tests and GI doc says IBS-D. WIsh I could just believe him and go on with life.

Sami

shelly1979
Regular Member


Date Joined May 2006
Total Posts : 164
   Posted 5/24/2006 10:54 AM (GMT -7)   

sami-jo,

I know exactly how you feel.  That's why this message board is so helpful.   It's nice to talk about it with others that REALLY understand.  It makes it a little easier to deal with and eases your nerves a bit. 

Do you have pain with the IBS-D? (that's what the GI doc says we have anyway.)  I don't have pain or bloating.  I just get the urge to "go" and I go, then I feel better for a while. Are you like this?  I always feel like this right when I wake up of a morning, then it lets up until the next morning. 

Maybe we really DO have IBS-D and we need to trust our doctors.  The hard part is believing what they tell us because there is no "reason" why we have IBS-D.  We just do...that's the hard part to accept.  Do you do anything to make yourself feel better?

 

 


Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 5/24/2006 1:00 PM (GMT -7)   
Oh, I firmly believe everyone has a reason/cause for having IBS, be it D, C or A.  The thing of it is, they just haven't discovered what that reason/cause is.  It's kind of like in the middle ages--they knew there was this disease and they called it the pox, but they had no idea why people got it or where it came from and they had little if anything to treat it with.  You either lived, or you didn't.  Now there's this dysfunctionality with the guts and it's called IBS, but they don't know why some people get it and some don't and we have very little to treat it with.  You either learn to live around it, or you don't.  But, just as the pox eventually was understood, treated and even erradicated from the world, so too will they eventually figure out what causes IBS and how to fix it and, depending on what causes it, maybe even prevent it altogether. 
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