If you are like me, can you give me some advice?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

shelly1979
Regular Member


Date Joined May 2006
Total Posts : 164
   Posted 5/30/2006 2:30 PM (GMT -7)   
Hi,
Since being Dx by a GI specialist with IBS with diarrhea (and I've had the diarrhea every day for 3 months now without 1 normal BM) about a month ago after having a colonoscopy, upper GI, small bowel series x-ray, blood tests, stool cultures, etc. I have become VERY jittery, nervous, ANXIOUS, depressed, tense, looking endlessly for an "answer" to why I'm having this chronic diarrhea and becoming VERY anxious, thinking that i have cancer, inflammatory bowel disease...basically, I just wasn't believing my GI specialist doctor.  I wasn't accepting what he was telling me bacause he hasn't been able to "fix" it.  I still have the diarrhea every day.  When I wake up in the morning, it starts....I have to run to the bathroom amd "go" then I cry and become depressed because I realize that I have to live with this another day.  Then my stomach starts and it's a viscious cycle.  After doing this for 3 months now, I believe that I have anxiety and depression.  I have lost weight because I believe my mind has "talked me into" not eating as much because I KNOW I'll get diarrhea from it.  I am losing more hair than normal too because I am not eating as I should.  My GI specialist has checked me for inflammatory bowel diseases and all are negative, I have no blood in the stool, but A LOT of mucus everyday.  I have no pain at all with this IBS-D.  I jsust get the "urge" to go and it "hits me" out of nowhere.  I wasn't believing my GI specialist doctor so I went to my regular Dr. today and she showed me my test results that the GI doctor had ordered to PROVE to me that I was okay.  I just want to know whay I'm having this mucus diarrhea/loose stool EVERYDAY.  I thought IBS comes and goes.  Has anybody had IBS with diarrhea for this long that just came on suddenly??
 
Does anybody have this battle with themselves too?  I think that anxiety/depression go hand in hand with IBS-D.  It's like I've lost all interest in everything that I used to enjoy.  This site helps because I can get this out and maybe get some feedback that always makes me feel better.  I am thankful for this site.
 
My regular Dr. put me on Wellbutrin XL 150 mg and Buspar today...any luck with taking this??
The Librax & Levsin that the GO doctor Rx for me did not work.  I am not taking it anymore...just the Wellbutrin & Buspar now.
Thank You!

softy
Veteran Member


Date Joined Jun 2004
Total Posts : 798
   Posted 5/30/2006 4:03 PM (GMT -7)   
Hi Shelly. Although I suffer the opposite, constipation, I sympathize with you and your struggle for answers. I'm in the same boat though I experience pain and cramping but my dr. said if it's inflammatory bowel disease even though I've had many tests, it will show up sooner or later.

I was wondering if you've tried Questran (think that's the name) or any other products that are supposed to lessen the diarrhea? Here and the crohn's board may have some suggestions.

Hope the wellbutrin works for you. Hang in there, it WILL get better.
Take care, Softy
 


sami-jo
Regular Member


Date Joined Apr 2006
Total Posts : 326
   Posted 5/31/2006 7:58 AM (GMT -7)   
Hi Shelly-

Since our problems are very much alike, here are some things I have been doing that have helped me alot:
For the Anxiety/Panic:
Seeing a therapist once a week
Reading up on it- "the anxiety & phobia workbook" by Edmund Bourne has been especially good; it
teaches deep breathing exercises, meditation, progressive muscle relaxation, etc.
Going to holistic chiropractor (a very relaxing experience) I NEVER imagined me doing this but was
willing to try anything (I go at least once a week)
I have been taking Ativan for about a month and am tapering off of it now. I was taking 1.5mg per
day, am now down to .75mg. I know it was beneficial in calming me down at first.
For the (?) IBS-D (or whatever it is we have)
Acidopholus & Yogurt every day
No dairy other than the yogurt
Caltrate 600D once or twice a day
Tums extra strength (the kind with NO MAGNESIUM)
White rice, cooked carrots and bananas daily
Try to eat. I know it's hard, but I found when I try to eat 2000 cals it helps alot.
I am alot better, both the anxiety and the diarrhea have improved alot. After losing 20-25 pounds since February when I "got" this; my weight has been stable this past month. OH, and remember, I think I mentioned once before, I did go to a psychiatrist who told me LOTS of people with anxiety have diarrhea. Her telling me that decreased my anxiety over the D. I hope you feel better.

Sami

Cooper48
Regular Member


Date Joined Mar 2006
Total Posts : 31
   Posted 5/31/2006 11:54 AM (GMT -7)   
Shelly, I totally understand.  Yes, I have d every day of my life.  I have been dealing with this for about 10 years.  I currently use Lomotil (prescription) and Imodium (over the counter) every day.  I do not eat until after 4:00 every day.  Having a couple of drinks of vodka before I eat allows me to eat without having d.  I am now 50 years old, so it is getting harder to go all day without eating anything.  It does so limit your life.  I have gone throught the anxiety and depression with this.  But it has been going on so long, I have just learned to live with it.   One other note, I have short term help by taking Elavil (prescription antidepressant) but it doesn't last for very long.  I still take it when I have d without eating to try to break the cycle.  Good luck, I know how hard it is.

shelly1979
Regular Member


Date Joined May 2006
Total Posts : 164
   Posted 5/31/2006 1:11 PM (GMT -7)   

Thanks Cooper...

This is one of the hardest things I have ever had to deal with.  Maybe I will just get used to it too.  I need to get my anxiety about my IBS-D in check, and maybe I will feel better.  It's just the SAME routine everyday.  I wake up and then it starts all over again. 


Cooper48
Regular Member


Date Joined Mar 2006
Total Posts : 31
   Posted 5/31/2006 1:58 PM (GMT -7)   
I know Shelly. Even if you get into some terrible routine like mine, not eating all day and taking meds, anything that is off your normal routine throws you. Life is supposed to be about living and doing new things and being spontaneous. With this condition that is hard to do. I am lucky that I have my husband because I would never drink and drive. So if we have things at night, I can have a couple of drinks, eat, take extra meds (just in case) and go. It took me years to figure out how to deal with whatever comes up. Post anytime you just want to talk or get feedback.

Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 5/31/2006 4:14 PM (GMT -7)   
Shelly, I have been experiencing the same thing for a couple of years now.  Diarrhea every day, sometimes up to 30x/day.  I had a ton of weight loss, fevers, and abdominal pain as well.  There was some evidence of infection, but no one had any idea what it was.  Sometimes, as much as we wish and hope that medical science has an answer for everything, there is no great explanation for what ails us.  And docs need to be humble enough to admit that.  After a while, you realize that your only option is to learn to deal with it the best way you can.  You have to, out of necessity.  And you will!  It will come slowly. 
 
The people on this board have tons of advice, some of which will help you, some of which will have no benefit.  It took me months to go through trying all the treatments - different diets, fiber supplements, fish oil, calcium, antibiotics, probiotics, anti-diarrheals, anti-spasmodics, narcotics, you name it - and some had some effect and others had no effect.  Recently I was on a course of anti-parasitic drugs that seemed to help more than anything else has.  It's likely that my problem is, in fact, a parasite since I have traveled to many extremely rural areas in Africa and South America for extended periods of time, but parasites are a beast to find and sometimes they just never go away like they should.
 
Anyway...my advice is to be patient with your illness, to really take time to try different things (calcium has worked wonders for some people on this board, as well as dietary changes; some people take Imodium or Lomotil for years, or they try Lotronex - has your doc talked to you about that one?), and to try to embrace the other aspects of your life, outside of the illness, that occupy your time and energy.  You also might want to consider some therapy to address your anxiety, or even an anti-anxiety medication, so that you are not all-consumed with this. 

carell
Regular Member


Date Joined May 2006
Total Posts : 105
   Posted 5/31/2006 6:54 PM (GMT -7)   
Hi Shelley1979- Boy did I have similiar issues and to be quite frank, it has taken me time and patience to deal with the dual issues.  Because they so easily can tie in and become intertwined.  It is not a nice feeling though!  I found myself in a pretty dark place at one point and it was enough to scare me into action.  Please treat all symptoms- address your depression and anxiety as well as your physical symptoms. Recognize them separately as well as how they are also together.  I myself see a therapist, take a low level antidepressant (never thought I would but honestly, it changed my life), follow the IBS diet (well, lots of soluble fiber first), exercise, etc.  My main symptom at first was severe nausea.  It was wicked bad.  I could barely choke down soda at first without gagging.  I lost a load of weight in a very short period of time.  The D has come and gone and continues to come and go. Of course, since the nausea is so prevalent, every darn time I have D, I get very nauseous afterwards and this can go on for days.  So, there's where the anxiety totally kicks!  Everytime I feel the D, the anxiety starts,  then the nausea, and then they join together and pretty soon, I 'm a nauseous anxious mess!  However, over the past several months, I have begun to handle things a bit better.  Because as john lennon once said, 'life goes on within and without you' and so I am doing everything I can to get back to mine.  And I know you have the strength inside of you to do it too- you'll  surprise yourself at how strong you are.  Keep your head up. hope this post made some sense!  I tend to get carried away.  Sorry.

Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 5/31/2006 10:29 PM (GMT -7)   
My husband never had diahrea after he ate when he had his vodka on the rocks before. But he had it after breakfast and lunch unless we were out for one of those and he had a bloody mary or something for lunch but he couldnt' do this when working so always had to run to john before we got out the door of the restaurant. Unfortunately this really isn't a good solution long term. I think the vodka acts as a relaxant and there must be some med like Donnatal with phenobarbital in it that might work instead. Not as much fun though.

Nausea was my main problem and ginger capsules took care of that very fast and safely. Pepto helped too.

shelly1979
Regular Member


Date Joined May 2006
Total Posts : 164
   Posted 6/1/2006 10:11 AM (GMT -7)   
yeah  Thank you all for your encouraging words of support!
 
Maybe there really is a light at the end of the tunnel.  All I'm saying is, I'm 26 years old, recently married and I have so many plans and it's like my life has been put on "hold"...all because of IBS-D.  I know they say it isn't "serious"...but in truth, it really IS serious.  It changes your life, makes you lose weight because you're so worried that the Dr.'s and GI specialist aren't "catching" what it "really is".  You just KNOW it's a terminal illness or something like that because why would you have diarrhea for months straight?  Now my hair is falling out!  I mean it's REALLY falling out.  I dread taking a shower because I know I'll have a handfull of hair.
 
I went to my regulalr Dr. on Monday.  She said I had fallen into depression and put me on Wellbutrin and Buspar for anxiety (a low dose).  It seems to help me function.  I'm not so "negative" now.  She said my hair is most likely falling out because I have had diarrhea for so ling and since all foods give me diarrhea, I haven't been eating properly.  She said that if I can get me "head" back to normal, my colon most likely would follow.  Before mid-March I typically weigh anywhere between 117-122 lbs.  I now weigh 112.
 
If anybody has anymore advice, I'm all ears!  Thanks!
 
 

shelly1979
Regular Member


Date Joined May 2006
Total Posts : 164
   Posted 6/1/2006 10:16 AM (GMT -7)   

Just had a thought... :-)

Don't you think "Oprah" needs to do a show on IBS and the people who have to live with it?  I just remember that she had the show about "colon health" one time, but they didn't talk about IBS, I don't believe. 

I just htink people need to know more about and understand how it changes people's lives because a lot of families, husbands, wives, mothers, & fathers, don't fully nderstand how IBS makes us all feel.

 


Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 6/1/2006 12:58 PM (GMT 0)   
Shelly, have you changed meds at all. Stress can cause hair falling out. It did with me big time. You might try a vit B supplement as it helps with nerves as well as hair and nails. Other suggestion would be to check side effects of all meds even the the ones that are not common. Tagament and antiacid over the counter can cause hair loss but I would also ask for a complete blood workup and the complete thyroid blood test not just the screening one. It just could be that you are not absorbing enough vitamins so need to increase your vitamin intake. Losing your hair is not fun. Fortuantely I had enough for 5 people so all I got was very uneven places but it started 5 months after two severe stressful episodes in my life that happened at once. I also had a ridge on each of my nails that eventually grew out. Hope you get it solved. Not fun.
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 04, 2016 5:42 AM (GMT -7)
There are a total of 2,732,455 posts in 301,021 threads.
View Active Threads


Who's Online
This forum has 151186 registered members. Please welcome our newest member, debbixij.
229 Guest(s), 5 Registered Member(s) are currently online.  Details
Psilociraptor, maria2016, ks1905, Buddy Blank, ljimd


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer