another trip to the ER

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

ryleigh
Regular Member


Date Joined Dec 2005
Total Posts : 251
   Posted 6/16/2006 11:32 AM (GMT -7)   
Hi All,   Well another trip to the ER on Wen night...  I could not stand the pain anymore.  My husband to me to drive myself because they will not find anything wrong...  I was fine with that he had to watch the kids anyway..  So in total pain I drove to the ER.. And of course they did blood work and a CT Scan and found nothing... I don't understand how they can find nothing when I am in so much pain...  Does anyone have the pain that I do??  I can handle alot of  pain because I have delt with this for 10 years so when it is so bad I go to the ER thinking that is it something is exploding in my stomach...  Can IBS cause so much pain????  I was getting really bad pressure and rectal pain for 2 days straight before I went in...  I am so embarresed when they find nothing wrong with me...  I am like are you sure???  They look at me like yeah you are just a hyperchondriac...  I know all of you know we are not..  The pain is real!!!!!!  Anyway thanks for listening as usual...  I am so thin no about 105...  I am 5 foot 6 that is skinny...  I don't want to be like this anymore.....  It is so depressing...  I am trying to eat oatmeal for breakfast now instead of my sherreded wheat and bran...  Maybe I need soluble fiber..  Any suggestions????  THanks.....

Ryleigh


7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 6/16/2006 11:46 AM (GMT -7)   
Oh Ryleigh,
I am so sorry about your trip to the ER. I've never had this pain you speak of, but I do understand the hypochondriac feeling. Lots of people think IBS is all in our heads. Did the docs give you any sort of pain medication you can take home with you? If I remember correctly Sarita was given a Codeine (or something of the like) RX so she doesn't have to go to the ER for pain management.
Have you considered going back to your GI and insisting on more tests?
I hope you are feeling better today...
Co-Moderator for the IBS Forum
 
Please donate to help HealingWell continue to help us..... www.healingwell.com/donate


Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 6/16/2006 12:09 PM (GMT -7)   
Have you considered going to a pain managment specialist? That's what the husband of a lady I worked with did when he got bad off. He had terminal prostate cancer, but it was really existing problems plus the medicine they had him on that was making his back and hips and knees hurt past what he could endure. She managed his medicines for him and got him off some duplicate stuff and had him take some different stuff to see if it would work better (not just pain medicine but various heart, blood pressure and fluid pills as well). The first thing she did when he came in was corrected how he held his cane and switched the hand he carried it in to help him walk better. She also helped correct his gait so that would help his pain too. You probably need your regular doctor to refer you to a pain management specialist, but I bet you can get some relief then. Not just from getting pain pills (which regular doctors hate to prescribe because the Feds are breathing down their necks all the time) but the specialist can probably give you suggestions on things to do to help ease the pain.

Gosh, I can't imagine driving to hospital by yourself in that much pain. I couldn't have driven myself to the hospital in the middle of a gall bladder attack if I had wanted to. You're a tough cookie! Personally, I might be inclined to grab my husband by his delicate parts and give them a good hard squeeze and then ask him what he's whining about--it's all in his head because men are known to over-react to that sort of thing. But I don't know that that would be very good for your marriage, lol. Seriously, you should consider going to a marriage counselor so you can talk to him about how much you hurt and that you're not crazy. You've had kids, you know what pain feels like; this is like being in labor continuously. Why isn't he able to understand that? He probably needs to air his feelings too; that he feels helpless because he can't help you and because he doesn't really know what to do with the kids when you can't deal with them. And he's probably feeling lonely and neglected and then feeling guilty about feeling neglected when he knows in his heart that you are sick. Maybe a counselor can help you see each other's sides and come up with some solutions that leave you feeling more supported and him less helpless.

Good luck, hon.

Rene'
Regular Member


Date Joined Dec 2005
Total Posts : 386
   Posted 6/16/2006 1:07 PM (GMT -7)   
Ryleigh,

Goodness, I am sorry you are having so much pain. I can relate. I have IBS as well as a bunch of other medical problems. I was once in so much pain I ended up in the ER. On a pain scale of 1-10, 10 being the worse pain ever mine was at a 12.

I had a CT done with the dye, can't remember the exact name of the test. Anyway, I heard the technologist or the doctor or whoever say her intestines are inflammed. Talk about pain, my intestines were so inflammed it even hurt to pee, it was like someone was twisting the life out of my intestines.

They admitted me to the hospital and did a few more tests and could not fine the cause of my intestines being inflammed. Needless to say they sent me home the next day with no answers.

I still get the same symptoms every now and then it usally happens if I eat something I shouldn't have but unfortunately I don't know what that is until it is too late. Someone suggest I may have IBD (inflammatory bowel disease) such as UC (Ulcerative Colitis or maybe even Crohns). I don't know but luckily it doesn't happen too often.

You may want to see a Gastroenterologist and have them run some test maybe even to a Endoscopy or Colonoscopy to check further.

Good luck to you,

Rene'
Fibromyalgia, Hypertension, Hyperthyroidism, IBS, GERD, Migraines, Vertigo, Osteoathritis, Chronic Fatigue.


Dansky
Veteran Member


Date Joined Mar 2005
Total Posts : 2844
   Posted 6/16/2006 2:34 PM (GMT -7)   
Hey Ryleigh I agree with Rene, if you haven't already, get in and see a Gastroenterologist (GI), who will do a Colonoscopy, when I first went to the doctors with Uc, nothing had shown up on my bloods, but when I finally got to see the GI I was admitted that day as I was in a bit of a mess, thankfully I got diagnosed there and then and didn't get out for 2 weeks, but it was worth it :-)

Don't be embarresed if as you say they find nothing wrong with you, they are getting paid to be there, you are contributing towards their next meal, don't forget that, and if any of the hospital staff ever say's anything untoward take a note of their name and report them, they are there to offer medical care and if they fail, that should be redressed.

As for your husband making you drive, I'm shocked you deserve more support than that, but that's between you 2 to sort out, I'm not too great at saying or doing the right thing when it comes to relationships, so I'll end it here.

Take care.

Dave
Dansky
 TAKE FLYING LESSONS ON A MOUNTAIN BIKE TODAY!
                                                          Actonel
Azathioprine
Balsalazide
Prednisolone
Tramadol Hydrochloride
Tylex
To support HealingWell.com, follow the link: http://www.healingwell.com/donate/

 

 


Floppsey
New Member


Date Joined Jun 2006
Total Posts : 2
   Posted 6/17/2006 5:04 PM (GMT -7)   
Hi,

I am new but just saw our post. I also had on of the hardest times yesterday and last night and during the night. I thought I should go to the Er as well but was too terrified to so so. I could not imagine being in that much pain as that and not being able to get up and try to go to the bathroom. All last night I would get the pain and go in a try to go and nothing. I would come back to bed and then the pain and nausea and sweating etc. I get scared then thinking something awful is wrong. I have had this for many years but it seems to have changed. I also have a plevic floor dysfuction and a rectal tear right now that adds to it. I have trouble believeing that is diorder can cause this much pain but today I feel a little better but have constant ache in lower abdomen. I was so happy to find this forum since I am so stressed out about this whole thing...

I hope you feel better today...

Denise

ryleigh
Regular Member


Date Joined Dec 2005
Total Posts : 251
   Posted 6/17/2006 6:10 PM (GMT -7)   
Thanks ALL!!!   I love you guys!!!!  Thanks for all the support...  Yes I have been going to a gastro for 10 years...  I have had every test known to man..  And all come up neg..  THat I just have IBS...  I do have adhesions..  I had a hysterectomy 5 years ago...  My next step is another laporscopy to see if the adhesions are wrapped around my colon...  I am so sick of pain..  Thanks again... 

Ryleigh


Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 6/17/2006 10:29 PM (GMT -7)   
Wouldn't a CT scan with contrast show if something were wrapped around the colon?

ryleigh
Regular Member


Date Joined Dec 2005
Total Posts : 251
   Posted 6/18/2006 3:06 AM (GMT -7)   
Cannyonbabe,   No for some reason you cannot see adhesions because it is skin..  The only way is to open you up... Thanks anyway... 

Ryleigh


ryleigh
Regular Member


Date Joined Dec 2005
Total Posts : 251
   Posted 6/18/2006 3:08 AM (GMT -7)   
Hey guys,  Does anyone take xanax on a daily basis.   Does it help??   I am a freak about taking drugs..  I barely take asprin...  I do have xanax and have taken it before..   It does seem to calm the colon down..  I am affraid of getting addicted...  Thanks..

Ryleigh


Floppsey
New Member


Date Joined Jun 2006
Total Posts : 2
   Posted 6/18/2006 12:00 PM (GMT -7)   
Don't be afraid of xanax. I have been taking it since the 1980's and it does not become accumulative in your body. You don't need higher doeses to do the trick. I found it to be a great drug...And it really takes the edge off. Good luck

ryleigh
Regular Member


Date Joined Dec 2005
Total Posts : 251
   Posted 6/18/2006 3:56 PM (GMT -7)   
Floopsy,   Thanks How much do you take???  I have .25 tabs..  The lowest dose..  I keep getting the script filled and hardley ever take them..  I do find if I take them to much I get constipated..  I am having a really bad day today with pain...  I wonder if there will ever be and end to it..  I can't stop crying about it..  My poor husband and kids..  THanks

Ryleigh


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 6/18/2006 4:01 PM (GMT -7)   
I take xanax on a daily basis however its a once a day extended release type (xanax xr). It really makes a difference because on the regular xanax I was getting too many ups and downs however I know everyone is different. This med has helped me tremendously and I wouldn't consider myself addicted to it because I am on the one per day. The thing about xanax though is that if you are on a high dosage its very important to go through a weaning process because of the dangers of coming off of it too fast.
Hugs, Des
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, UC 2005, Sjogren's 2006
Meds: Sulfazine EC 1000mg, Mesalamine Enemas, Chlorzoxazone 500mg, Naprosyn 500mg, Symax SL .125mg, Protonix 40mg, Xanax XR 2mg, Miralax 17g, Supplements
 
 
Please help Healing Well continue to help others by donating  http://www.healingwell.com/donate
 


luvdogs
Regular Member


Date Joined Jan 2005
Total Posts : 184
   Posted 6/18/2006 4:59 PM (GMT -7)   

Hi Ryleigh,

Usually, I hang around the pain forum, but I've posted here before (I think...lol).

Our symptoms sound almost identical.  I also deal with bad pain and IBS-like symptoms.  I have severe endometriosis with TONS of adhesions, but I have not yet had a hysterectomy.  Did you have your hyst because of endo?

I've had seven surgeries for the endo, and in each surgery, adhesions are removed using the most advanced techniques that are supposed to lower the chance of them reforming.  Well, each and every time, the adhesions come back more dense and strong.  In my surgery last year, the adhesions had re-arranged the anatomy of the GI tract.  The ascending colon was pulled to the opposite side of my body, and much of the small intestine was pulled downward into the pelvis.  Also, adhesions were sticking all of the loops of bowel together.  So, it was a complete mess. The surgeon tried her best to remove the biggest adhesions, but afterward, she told me that little could be done to completely remove all of them.  Initially, after the surgery, I had dramatic relief of all pain and IBS problems, but within 3 months, I started having all of my symptoms come back.  Now, I never would know that I was ever operated on.  Rather than re-operate, we are trying to control the symptoms.  I can always tell when a new adhesion is forming because it feels like a pair of hands is literally in my belly pulling on my organs.

Unfortunately, adhesions can be impossible to control.  Science still hasn't developed a fool-proof method of removing them and keeping them from re-forming.  The biggest threat from adhesions is bowel obstructions, which I hope doesn't ever happen in my case.

I have found that the best drug for controlling my pain and symptoms is Lomotil.  I have to take it daily to function.  At least with it, I can function on most days.  I also have to take pain meds on some days, but amazingly, that doesn't help my GI pain at all.  But the Lomotil does.  Have you ever tried Lomotil?

If you were diagnosed with endo, there could be some lesions still on your bowel that could also be contributing to your symptoms.  Some doctors incorrectly believe that removal of the uterus and ovaries means that endometriosis will be cured.  Not true!  There are many documentated cases of women with endo undergoing complete hysterectomies with continuing pain and bowel problems.  It is now believed that the endo lesions can produce their own supply of estrogen to keep them thriving.

I hope that this helps some.  I really understand how crippling your pain is.  I hope that you are able to find some relief soon, and I'm keeping you in my thoughts.

Ali   


"The most called-upon prerequisite of a friend is an accessible ear."  Maya Angelou


ryleigh
Regular Member


Date Joined Dec 2005
Total Posts : 251
   Posted 6/18/2006 5:40 PM (GMT -7)   
Luvdogs,  Thanks so much for your reply...  Yes I had the hysterectomy because of endo and pain..  I had it 5 years ago thinking I would be cured..  Well I am not...  I had 5 laporscopies before the hysto to try to get pregnant with no luck..  Everytime they did surgery they would leave more scar tissue...  I would like for a doctor to go in and do a laporscopy but alot of them don't want to because of the liability..  That is what my gastro told me.   She told me I need to go to a teaching hospital like cleveland clinic or mayo..  I am moving to Hudson Ohio this summer and will be close to cleveland clinic..  I will try there...  I would love to talk to you more because you sound alot like me...  Please email me if you want at sully03@bellsouth.net...  How old are you??  I am 42..  I had my 1st surgery when I was 25 yrs old...  I have never tried lomtil..  What is it for???  I can't take pain meds they kill my stomach...  Hope to talk with you soon..  

Ryleigh


carell
Regular Member


Date Joined May 2006
Total Posts : 105
   Posted 6/18/2006 6:12 PM (GMT -7)   
Hi Ryleigh- I'm so sorry about your pain.  This will be the third time I post this tonight!lol.  I guess I'll just complain to anyone who will listen!  haha.  Anyway, I only have occasional pain but when I do, it's BAD.  Today for the second time, I was having such severe cramping - from the good old C - that i was vomiting.  How much fun, huh?  So, while I cannot identify directly with you and your more frequent pain, I can sypathize to a degree. My aunt, who has colitis has had absolutely terrible bouts of pain and has ended up in the ER several times. They've had her on clonadine and bentyl, xanax (which by the way, is fine so long as you take it as presribed as mentioned- I take .5 of ATivan someitmes and after months of agonizing over it, have just surrendered), narcotic pain killers. She now takes something for pain that really works- but i don't want to guess for fear of giving you the wrong med.  HANG IN THERE.  Ok?   that a' girl!

luvdogs
Regular Member


Date Joined Jan 2005
Total Posts : 184
   Posted 6/18/2006 9:33 PM (GMT -7)   

Hi again Ryleigh,

I'll e-mail you in the next couple of days..

Lomotil is a prescription antidiarrheal.  It is stronger than Immodium.  It contains diphenyloxalate and atropine.  The diphenyloxalate is derived from opioids, but it doesn't have the analagesic effects.  It hits the GI receptors but not the opioid receptors in the brain, thus slowing GI motility.  The atropine helps slow gut hypermotility, but it is also added to prevent abuse.  (Atropine is an anticholinergic and causes dry mouth and dry mucous membranes if taken in large amounts.)  I deal with incredibly severe intestinal cramping, and the Lomotil is the only thing I've found that helps the pain.

Talk to you soon, Ali



"The most called-upon prerequisite of a friend is an accessible ear."  Maya Angelou

Post Edited (luvdogs) : 6/18/2006 11:33:06 PM (GMT-6)


ryleigh
Regular Member


Date Joined Dec 2005
Total Posts : 251
   Posted 6/20/2006 7:23 AM (GMT -7)   
Thanks again to everyone!!!  I know I am not alone...  I take one day at a time...  Love you guys!!!!

Ryleigh


Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 6/20/2006 8:14 AM (GMT -7)   
Carell, you need to be careful about vomiting when you are constipated as that can be a sign of an intestinal blockge. They say that when you eat and it can't go down due to the blockage, it will come right back up again. Make sure they check you for blockages and intestinal kinks. Some people are prone to their intestines twisting around and that can cut you off like a kink in a waterhose. Then sometimes they can unkink themselves. In horses they call it "colic", which is different than the kind babies get.

Ryleigh, I too have heard of women with uterine trouble having it move on to their intestines. My mother had a fibroid tumor removed from her abdomen a few years back--a decade after she had had her uterus removed. The best they could figure out was a little piece of detacted endometreosis had been floating around in there all this time and had started to grow a fibroid tumor until it got so big it attached to her intestines and started causing her pain and bowel problems. They got it out and went ahead and took her ovaries too because they were just barely producing enough hormones to grow abnormalaties; not enough hormones to help her. She feels a lot better since getting her ovaries out and getting on hormone replacements. She's 47 now.

You should really look at getting someone to go in there and check everything out and see if you don't have lesions or something else messing you up. I know no one wants to do exploratory surgery anymore, but given your level of pain and the fact that you've had everything else done, you need to find someone who will. If you haven't had your ovaries taken out, you probably need to get those out too or you'll be like my mother, they'll causing more problems than they'll fixi. Hers were so swolllen and covered with cysts they couldn't even get them out laproscopically. They never released the right amounts of hormones anyways, so she suffered with mood swings and depression and all those other things you get with low hormones needlessly; the hormone replacement therapy is far superior to her non-functioning ovaries. Maybe some of your anxiety and depression is a hormone imbalance?

ryleigh
Regular Member


Date Joined Dec 2005
Total Posts : 251
   Posted 6/20/2006 8:23 AM (GMT -7)   
Keriamon,   Thanks for the reply... Yes I had my ovaries out...  I have been on hormone replacement for about 4 years...  I am going off this week to see if it is causing some of my stomach issues...  It is weird when I put a hormone patch on I feel like I am going to get my period crampy and yucky...  That lasts for about a day..  Then when the hormones are wearing off I feel like I am going to get my period again..  So I am playing doctor myself..  I know I need the hormones but if it helps my stomach I am going to stop...  I am going to try to convince a doctor to go in and take a look around..  Maybe I still have endo on my bowel or something.. There is know way I have this much pain everyday and it is nothing..  I do have anxiety but that is because of the IBS...  I would be find if my gut was!!! haha lol...  Thanks again..

Ryleigh


Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 6/20/2006 1:44 PM (GMT -7)   
My mother changed her hormones up several times before she found the right combo to keep her levels normal and to not make her sick. I don't remember if she ever had any IBS-like symptoms with her hormones, but I know there were some combos she definitely couldn't take and some that were only revealed as inadequate when they did her blood tests. Before you go off them cold turkey, why not see your gyno and ask her to find you something different? Or maybe wean you off? After all, what do post-menopausal women take in terms of hormones? They've found they don't help anything at all, so why take them unless you absolutely need them in order to function? My 81 year old grandmother's not on hormones and she's always been very active. I think the key, though, is to wean off gradually, the way your body does (sort of--those hot flashes are caused by jumps in hormone levels up or down).

carell
Regular Member


Date Joined May 2006
Total Posts : 105
   Posted 6/20/2006 6:15 PM (GMT -7)   
Hi Keriamon- thanks for the head's up.  I actually did see my MD (PCP) yesterday as they thought it might be my appendix (I was pretty sure it was not, but just to be safe. . .) Anyway, he checked me up and down and told me that I was fine, but never to go that long again without going.   I felt sort of foolish!  It's normal for me to not go for a week.  Then I have the big D and other times, I drink Citrucel and go normally.  I did absolutely ask about the possbility of a blockage and he said no, I did not have one.  I see my GI this coming Monday.  I can't wait! haha. I am having my very first colonoscopy.  I'm going to try to make it into a little adventure if at all possible.  Again, thank you for pointing that out- I learned a valuble piece of info.  Take care all of you.   

ryleigh
Regular Member


Date Joined Dec 2005
Total Posts : 251
   Posted 6/21/2006 4:52 AM (GMT -7)   
Kerimon,  Thanks for the reply!!  It is hard for me to wean myself off because I am on a patch..  I am on day three of no hormones and have had alittle anxiety...  I just wanted to see of the hormones where giving me any stomach pain..  If so I am going off for good.   The reason I am on them is because of osteoperosis..  I am thin and white..  The perfect canidate for bone loss..  I already had a bone scan and it showed osteopenia..  I can't win..  Thanks again..

Ryleigh


Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 6/21/2006 8:12 AM (GMT -7)   
Just a patch? My mother takes serveral pills including one made from pregnant horse urine, LOL.

You know, I'm beginning to wonder if osteoporosis isn't the new "high cholesterol" scare. Because it seems to me that suddenly every woman has it, yet we really don't seem to be seeing a lot more breakages than before. I think everyone's in panic mode and don't know enough to be telling people what to do. Just like when they discovered cholesterol and they told everyone to stop having any and that eggs were satan. Then, after noticing that a lot of people were having strokes, they figured out that there are two kinds of cholesterol and that only one kind is bad and that if you have too little of the good kind you will have a stroke. Whoops. Sorry about that tiny little piece of misinformation. Oh, and eggs are balanced good with bad, so you can have them again.

I think we're probably seeing a repeat of that disaster with osteoporosis. The fact that studies are now showing that calcium doesn't seem to make much, if any difference (albeit that study was flawed on so many points as to be completely useless--a 7th grader could have organized it better) and that hormones after menopause don't seem to lower risks of either heart disease or cancer, as originally promised, I'm disinclined to believe anything they say about the whole subject. My grandmother's supposedly eaten up with osteoporsis, yet she's fine. She did break her hip, oh, about 13 years ago when she took a bad fall, but she recovered and seems fine for an 82 year old woman who's been smoking since she was 14 or so. What's it matter if you do break something? It's not like you're going to die from a broken leg or hip either one. You just have to keep on plugging on. If you're the type to lay down and quit, then that's not the bone's fault, that's yours; the bone is just a ready-made excuse to be an invalid.

Every woman of age in my family has osteoprosis, but I'm not worried about it. I'll "get it" just like every other white woman on the planet and I will promptly ignore it and get on with my life. The best thing you can do for your bones is weight-bearing exercise (they have found that fat women have better bone density and when they do fall, they are literally cushioned by their fat and less likely to break something). I walk a mile and a half every day and weigh enough to make that qualify as work, so I'm not fussed. I'll be kung-fu fighting when I'm 70, even if I end up with osteoporosis.
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 12:00 AM (GMT -7)
There are a total of 2,735,767 posts in 301,329 threads.
View Active Threads


Who's Online
This forum has 151433 registered members. Please welcome our newest member, teenujohn.
191 Guest(s), 4 Registered Member(s) are currently online.  Details
msOuchie, holo100, joavila92, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer