Shelly, it's understandable how you feel. Rest assured that with all those tests you've had done - and the fact that they are all normal - it is likely Irritable Bowel Syndrome. This does not take away from the fact that you are suffering, but hopefully it will give you peace of mind that they haven't missed anything major.
I remember about a year ago when I went through all those tests myself. I had diarrhea sometimes up to 30x/day; I lost 25 pounds; the pain would hit me like a ton of bricks right in the gut; I had fevers up to 101 daily with no explanation. Sometimes they would find abnormalities in the test results, but they couldn't attribute the abnormalities to any specific illness, so they kind of threw their hands up. I went through months and months of endless tests and docs' visits. Sitting on the toilet half the day and night. I hated it all. I was miserable. Then I decided - I cannot keep being this miserable. I have to move on with my life.
For a while, moving on with my life meant popping Imodium, Tylenol, and anti-spasmodics every day; it was the only way I could continue working and functioning. I drank Ensure and bananas and whatever else felt good. I'd invite my friends over for movie night and they'd drink beer and giggle with me about my bathroom trips. When I felt really sick I'd buy myself a bunch of stupid magazines and rent "Airplane" and "The Goonies" and veg out on my couch with a heating pad, and sometimes I'd cry and sometimes I'd call up old friends to talk about something, anything but my illness. You have to find some way to approach your situation with as much lightheartedness as possible.
You have to take time to breathe in, accept this time in your life (you have to! There is no other choice) and do what you can to face it in the healthiest way possible. You have help here. You will get through this!
By the way...I was treated by a nurse practitioner with a course of anti-parasitic drugs late in my illness (about three months ago) and so far, I have been feeling infinitely better. The symptoms slowly - very slowly, over the course of weeks/months - started to improve once I found a regimen of meds/supplements/foods that worked for me, and then the Flagyl worked its miracle. Now I have diarrhea 20% of the time instead of 95% of the time, and that is fine with me! I can handle the 20%.
Hey guys. i know exactlyyy how you all feel..i used to have such an active social life, now i spend most of the time at home. I go ot work, come home. work,come home...boringgggg. i go out maybeee once a week..Im 25 so i shoudl be going out alot more...My mind constantly thinks of my stomach. I think to myself,what guyyy is gonna want a gf with a stuffed up bowelll and a nervous system that is absolutly crap and wont leave the house...ahhh...im suprised im not more depressed actually.and yeh i can laugh about it sometimes. but when i really think about it, it sucks.am i destined to be at home for hte rest of my life? and singleeeee...thats a scary thought...even going to the movies for me is hard. i get stressed out cos thats where i had one of my first episodes of feeling sick and having Dioreha...yuk.. so now i hate the movies...its like a vicious cycle and i hateee it....
wish things could be alot easier, like 2 yrs ago when i didnt have irritable bowel...
How does everybody come to accept what the Dr. tells you...for example, "We can't find anything wrong with your 100 tests that we've done on you, so you have functional diarrhea (IBS-D)."
Does anybody ever think that the Dr. just hasn't checked everything? It has to be SOMETHING causing this diarrhea / loose stools everyday. Right? How do you accept what the Dr. says? That's what I'm having a hard time doing. I was perfectly normal until March 15...then I've had this diarrhea problem ever since, without 1 days break. I'm just so tired over all of this. I am frustrated, mad, and sad all at the same time.
It's effecting my entire life because I feel so sick. I'm tired, no appetite, lost weight, face is broke out now, foggy headed (most likely due to the elavil the Doc put me on), irritable, crying every day, scared that there is something seriously wrong with me, even though the tests say I'm okay....I just don't know how much more I can take of this.
Ugh... Rough morning. I haven't felt this bad in a long time. It had been about a month that I didn't have the big D. I think I got over confident because yesterday I had pizza and soda. I'm super into the World Cup and watched it with everyone else at Round Table. Bad move! I'm paying for it. Next game I'm bringing soup!
I'm scared to eat now... I still sort of have cramps and my stomach is in knots. Sucks to work like this.