I've had diarrhea / loose stools for 3 months now. Started March 15...can't forget that day! Anyway, I've had all of the tests. I've had a colonoscopy, EGD (they look down your throat & stomach), Upper GI, small bowel series x-rays, CT scan of abdomen and pelvis, ultrasound of pelvis, tons of blood tests (don't know what they were testing for), hemmocult tests, stool cultures...all show nothing. nothing. nothing!
SO, if there is nothing, how come we have to live with this diarrhea and loose stools everyday? What "causes" this if it's nothing?? That's what I have a hard time coming to terms with. That's why I have a hard time believing the doctors. Even though I know this is their job and if they saw anything that looked wrong, they would want to find out why and make me feel better.
I didn't know that this "IBS-D ot functional diarrhea" could cause so much stress and anxiety. It's awful. If I could just tell myself that it's minor and that it's not a big deal because there is nothing seriously wrong with me, then maybe I could find some relief from all of this worry that the doctors are "missing something".
I don't get the D after meals all of the time. My BAD TIME is right when I wake up from a night's sleep. It;s like I"m awake for 5 minutes and my body tells me it's time to have you daily reminder that you have diarrhea every day!
about weight loss and IBS-D. I think it should be included as a symptom of IBS-D. After you have diarrhea for over 3 months STRAIGHT, how can you NOT lose weight? Food just doesn't look good anymore and you lose your appetite. Who wants to eat a lot when you KNOW you'll have diarrhea in the morning?? Also, you aren't usually hungry when you are so worried about WHY you have diarrhea everyday. Us IBS-Ders are bound to loose weight. Don't you think?
I recommend the colonoscopy. I was so scared before I had it because I had never been "put out". They give you a medicine that makes you forget everything temporarily. It doesn't hurt and you don't remember a thing. You should let the Dr. see if there is anything in the colon that shouldn't be there. They didn't find anything abnormal in mine and that made me feel a little better, for a little while anyway. The worst part of a colonoscopy is the prep you have to drink that gives you bad liquid "D" the night before the test. It burns too after a while. That is the worst part. Get a colonoscopy to make sure there is nothing going on in there. They can take biopsies too to check things out. They took 3 biopsies with mine. 1 biopsy showed some inflammation, but my GI specialist said that this was common due to the irritation from the prep that i had to drink that put me in the bathroom most of the night. Boy, was my bottom sore! But, like I said, it was worth it. I know now that there is no tumors or ulcers in there.
Hi sami-jo! (MY IBS-D twin!)
I had a "bad spell" every day...at least since March 15th when this whole nightmare started.
I've tried a lot of medicines. My GI specialist put me on Librax - That didn't touch it and Dr.s put patients on Librax when they have pain, I have no pain. Do you? I just feel gassy sometimes but not all of the time. I don't take that now.
Then they tried Levsin...didn't work.
Then they tried wellbutrin...I was restless with it. I was awake for 2 days straight.
Xanax - GI doctor told me to take a low dose of this. .25mg 3x's day. That was fine and dandy until my social worker (councelor) said that Xanakx only "numbs" part of your brain and for his thearpy to work, he didn't want me on the Xanax, only use it as needed and only if I "had to". He recommended to stick with the Elavil.
Elavil was the next medicine. My GI Dr. and my regular Dr., along wioth my councelor, wants me to be taking this every night. It makes me feel SOOOOOO groggy and tired. They say this is normal until you get used to it in your system. I haven't given it a good chance to work. I always discontinue use because it puts me in zombie mode and I can barely stay awake. (Elavil gives me really bad dry mouth too.)
I HATE taking Rx drugs. I think they can hurt the body. I would prefer natural supplements, but I haven't made it that far yet. It was a big step for me to start seeing a councelor to try to calm my nerves and anxiety about this so called IBS-D.
How have you been?
Hi Shelly1979 (and all),
I can certainly relate to some of your problems. I am also a "newlywed" and added to my stress by moving to another country, let alone another state. I am trying to deal with the bathroom woes in a foreign country where, in most places, you have to pay to go to the bathroom.
I get the feeling of anxiety when the abdominal pain comes on, but when I'm on a good day, I'm good all around. I have been thrown here & there within the medical system & here it is months later and I still have not had the colonoscopy/endoscopy done yet, but it's scheduled in the near future. I had my pre-op and think I had an anxiety attack that night from all the stress of hearing about the procedures. It's like you're out of your mind, literally, and you know you've gone out of control with the "what-if's", but you can't stop it unless you can get yourself to sleep or something. Then it takes a few days to really get better & better after that, for me at least.
I am not interested in any kind of medication that can alter the chemistry of my brain because I feel that once the pain is gone, I will be anxiety-free. I have not ever been prescribed anything for the pain because my doctor doesn't want it to mask any of the tests they have been running (blood tests & scopes), which infuriates me. I have been doing much better with the "D" after starting Citrucel & taking the advice on here by taking Calcium w/ D. I also do a yoga DVD at home to try to help calm my mind, which I really like doing. I idea of accupuncture is very interesting and if anybody has more info, that'd be great. I also try to eat more yogurt, when I can remember it. I am not so keen on herbal meds since they're not regulated by the FDA, but that's just a personal preference.
Thanks for posting about the anxiety - it is nice to not feel alone.
Post Edited (lilrdktp) : 7/1/2006 8:07:42 AM (GMT-6)