How to get diagnosed with Irritable Bowel Syndrome.???

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josey
Regular Member


Date Joined Mar 2006
Total Posts : 117
   Posted 6/24/2006 4:41 PM (GMT -7)   
Hi all,
My specialist believes i have IBS,and has tryed many meds on me,which some of have worked.
But unfortunately i couldnt tolerate any of them because of rediculous sideeffects.  And i was just wondering, how were you officially diagnosed with IBS??
My gastroentenologist wants to me to drink some thich liquid stuff and then go get a kind of exray,
ithink he called it a small bowel fallow throught? Is this how you guys were diagnosed?
thanks

7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 6/24/2006 5:26 PM (GMT -7)   
Hi josey,
All of us were diagnosed through exclusion. Doctors will do all sorts of tests (for IBD, parasites, gallbladder, cancer, etc.) and then when they all show nothing they say "you have IBS." Here is what I have had done (most others have had many of these tests too): blood work, stool tests, abdominal ultrasound, bone density test, upper GI (barium swallow), EGD (upper endoscopy) & colonoscopy.
You're right about the test your doc wants you to do, SBFT - You will have to drink barium and have several x-rays so the docs can see how it passes through your digestive system. It's a way to catch any abnormality. If they are inconclusive, or doc sees any irregularies, you will be asked to have a colonoscopy.
Sorry you're having a difficult time with meds... But it's good to see you are looking further into your problems. I hope your docs can get to the bottom of it soon.
By the way, what are your symptoms?
Take care.

PS - I'm sure others will be along shortly to share their stories as well.


Co-Moderator for the IBS Forum
 
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Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 6/24/2006 7:52 PM (GMT -7)   
I also had the abdominal and pelvic CT scan with contrast as my last test which was for me the final test before diagnosis.

josey
Regular Member


Date Joined Mar 2006
Total Posts : 117
   Posted 6/24/2006 9:17 PM (GMT -7)   
thanks 7lil,
my specialist is a very good one, but its been me putting off getting afinal diagnosis.
i also have endometriosis, and gallstones, after i get my gallbladder remouved, then im going to go back to him, and do the SBFT, he said hes pretty sure that IBS is what i have. He tryed me on a few differnet meds, and most of them worked. I didnt have to go to the bathroom suddenly, or have the horrable cramps i had before, unfortunately that particularmedication cause lactation, which was obviously unacceptable for me, especially sincei was 18 at the time. So after that one, and about 6 other ones that had equilly badreactionsi decided to give it a break. But hopefully after i have this gallbladder surgery, andstart these endo hormones, ill be able to consentrate on that.
My symptoms are especioally after eating having horrable cramps in my stomich fallowed quickly by having to use the bathroom, and different kinds of stool'ssome painful,some not.
I think that is all the symptomsi have, but again, i do have alot of oter stomich problems, sosometimes its hard to tell the difference.

thanks forall the info

Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 6/25/2006 7:23 PM (GMT -7)   
What meds did he try you on that worked cause there aren't many for IBS. Some to help the symptoms a bit but nothing really for IBS. It sounds like you may have been given Motilium if it caused lactation. that is to move the contents out of the stomach more rapidly. It doesn't sound like that is your problem. Am curious as to waht meds helped you and how.

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 6/26/2006 8:01 AM (GMT -7)   
Wait, you have gall stones? Why on earth does he think you have IBS? Gall bladder problems will interefere with your bowels. I technically don't have IBS myself; I have post-gall bladder surgery problems. Once the gall bladder goes bad, there's not much help for it, but your body does seem to respond better to diet changes than people with IBS and there is medicine out there for people with excess bile that causes diarrhea. IBS is really bowel problems without any known cause; if you have a bad gall bladder, then you have a known cause for your bowel problems; that's why it's not technically IBS, even if we all do have the same symptoms. From what you have said about your symptoms you sound everything in the world like a person with a bad gall bladder. When they take that out, you should stop having the cramping, but urgency and diarrhea may remain. But they have medicine out now for that. That really makes us the lucky ones because there isn't much out there--nothing, really--to help people who have diarrhea from IBS.

Also, endometreosis will spread to your intestines and cause a lot of problems in its own right. There are a number of ladies on here who have gotten hysterectomies, but whose adhesions and endo got so bad beforehand it was all over their intestines as well and they still have problems, even after the hysterectomy. It seems to me that the longer you wait to get your uterus out, the more time it has to ruin your intestines, but that's something you'd definitely need to talk to your gyno about, especially if you want to try to have children or are young (they hate to take it out of young people). But you mentioned hormones, which perhaps will keep that at bay and keep you from getting your guts messed up on that account.

josey
Regular Member


Date Joined Mar 2006
Total Posts : 117
   Posted 6/29/2006 12:01 AM (GMT -7)   
because i had this IBS for YEARS before i ever had a gallstone, they believe my gallstones were from a medication. ( oh, and i dont have diahreeas, bile or not, that isnt a main symptom at all usually)
and i was tested by ultrasound many many times and i never had one until very recently when i started hormones and other meds for endometriosis that do cause gallstones, in some situations..

also i just had surgery for my endo, and i only had stage 1 endo ( which for anyone who really knows ANYTHING about endo) means basically nothing, other than there is only a little bit. and they coterised it all out, of corse it is growing back as i type this, but it was not in my intestines, or colon at all,they spacifically checked that on reccomendation from my gastroenternologist.

they all think i have IBS because this is affecting me going to the bathroom more than anything elce.
i eat normal diet, and i doest make a difference. i tryed a certain IBS med, and 1 caused lactation, and another causesd seizures, another caused faining spells and dizzyness, and the others kist caused dizzyness at all times.

I have 6 very good specialists working with me, and i know they are all the best, and are very capable, and ive known and been seeing them for years now.
Also- i just turned 20 and from my last lapriscopi they said that they think hormones will work in the future, and that i an 100% fertile still. That is how small amount there is. Of corse, as i said before, that makes no difference, you can have stage 5 endo, and have NO pain ,and have stage 1 endo, and have DAILY excruciating pain like me.
My endo was found when i was about 15 so i am very lucky and it will not mess my 'guts' up too much i think

but thanks for all the info anyways :)

goodie2shoes
New Member


Date Joined Jul 2006
Total Posts : 11
   Posted 7/1/2006 9:47 AM (GMT -7)   
hi all, im the new guy, i was wondering if one has IBS do the attacks come every day, sometimes all day, or is it just when you eat a meal, or can it be on and off all day long, and also is the pain severe, from what i read sounds like alot of people are on the edge, i can surely understand why.

Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 7/1/2006 9:30 PM (GMT -7)   
All of the above at times and none of the above at times. It seems to be a little different for everyone as to when and how it affects them which I am sure is why it is so hard to cure.

goodie2shoes
New Member


Date Joined Jul 2006
Total Posts : 11
   Posted 7/2/2006 9:52 AM (GMT -7)   
Canyonbabe thanks for getting back, seems that you just have to take it day by day, will I hope all your days are good ones, feel better...MJA

goodie2shoes
New Member


Date Joined Jul 2006
Total Posts : 11
   Posted 7/2/2006 9:54 AM (GMT -7)   
thats WELL not will,,,sorry later MJA

ryleigh
Regular Member


Date Joined Dec 2005
Total Posts : 251
   Posted 7/2/2006 10:12 AM (GMT -7)   
Josey,   Hi let me give you my history...  I was dx with endo stage 1 when I was 25 yrs old..  I did all the hormones and had 4 laproscopies to try to get rid of it...  Then pain was terrible.  I had to have a hysterectomy at age 35..   THinking that would solve my pain..  Well I am 42 and it did not...  I have pain everyday..  I also go to a gastro and had all the tests..  They say IBS...  So my next step is Cleveland CLinic..  TO have a team of doctors try to figure out my pain...  Do you have pain everyday??   Do you have rectal pain???  Try to do everything not to have a hysterectomy it really does not solve your problems..  Sometimes the endo is so microscopic they cannot see it..  Mine is on my bowel...  I have been really bad for about 10 years..  I hope and pray you never get this bad..  I am glad to hear you have good doctors..  Make sure you go to a endocrinologist that speciallizies in endo...  They are the best..  Also Try to go to a teaching hosptial they are up on all the latest stuff...  Feel free to email me if you want..  Take Care.. 

Ryleigh

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