Shelley, it is amazing how similiar our experiences are! My attack happened last year in June (I can still remember the date, what I ate that day, the day before, how I felt, EVERYTHING!!). I honestly thought I had food poisoining because of how often I was going to the bathroom. But all tests came back negative for food poisoning, bacteria, etc. So, I was stuck with no answers. I lost my insurance shortly after having this happen and just recently got new insurance and am finally going to a specialist the end of this month.
I cant believe how much my self esteem has gone down. I don't want to go do anything anymore. I just want to stay home and lay in bed! I was married for a short time before I had that first attack and it was so saddening for me to know what I was putting my new husband through. It has put a damper on our marriage, but luckily he understands as much as he can. We used to go out all the time and now we never do. I have become a boring home body!
I hope that one day they find a cure for all of us!!! I pray that all the time! Or just to wake up the next morning and be back to my normal self!!!!!!!