Thanks for your replies gals.
Keriamon, Yes, the Colestid is definetly slowing down the "D".
I still have a loose stool everyday...nothing solid yet and it's been over 4 months now (sigh). BUT, I will take only having diarrhea 1-2 times a day versus 5-8 times a day! I am able to go watch my husband's volleyball games and work a summer job now. Before, I was a prisoner on my own home and I was having anxiety and I think I was mildly depressed and chronically worrying that I had something terribly wrong with me like cancer or something horrible like that. I felt "doomed" (that's the perfect word for it). In the mean time, my hair started falling out and my weight began to fall, so you can imagine how worried I was!
The Colestid has slowed it down, but I am not "normal". (Bless that Colestid for slowing it down!) I had a 6 week follow up with my GI doctor yesterday and he said that he suspects IBS-D because he cannot find anything "physically" wrong with me...just GERD and he put me on Prilosec. All tests are normal. I just have a colon that moves way too fast, I suppose. I don't have a lot of pain though. The "poop pain" just hits me and I have that "urge" to go. It usually hits me about 5-10 minutes upon waking up in the morning which I hear that is typical of IBS-D.
In Jan. I weightd 117.5 lbs. I weighed 112 yesterday. I guess that's not a lot of weight lost, right? I did weigh 109 at my lowest. My appetite is getting better, but who feels like eating when you have diarrhea all day? I know I didn't.
Thanks for your replies everybody.
I've been wondering how you are doing! Sounds like things are calming down for ya' both physically and mentally; I am glad to hear that!
As for weight loss- I've lost over 20 but it all happened from Feb til April when my D was at it's evil worst- going up to 10 times a day and not feeling like eating at all. I have pretty much stayed the same since late April. I don't get it either how they think you could have D all the time and NOT lose weight! I remember that being one thing the GI's said to me before I got all checked out that it probably wasn't IBS since I lost so much weight. But after all the checking, that's what they are telling me I have! I do believe alot of my lost weight and diarrhea to be stress and anxiety related, though.
I have been doing a little bit better. I started taking ativan in april and that slowed things down quite a bit. I actually have had "normal" BM's once in a while. This is really weird, but if I can force myself NOT to go to the bathroom in the morning, I have a solid BM later in the day. I don't understand it, and it's really hard to force myself to "not go" but the times I have been successful, that's what happens. Weird, huh? Oh, and I have tried to get off the ativan (I take a very low dose) but every time I get under a certain dosage things get really bad again.
I'm glad to hear from ya' and good for you getting out and doing things!
Take care and stay in touch!
Sami (your IBS twin!)
It is normal to lose some weight. When I first had my onset a year ago, I lost 20 pounds. You just need to make sure you eat a few small meals throughout the day. I know it is easier said then done, but it will help keeping some weight on. You can even try the protein shakes they sell in health food stores. I tried them bu the dairy didn't do good in my belly.
Check out the post I wrote on the hydrogen test. I was thinking about you when I posted it, you situation sounds soo similiar to how I was (and still am). I have alot of sympathy for you. It is tough to deal with 24/7. Good luck with the weight.