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sophieWVU
Regular Member


Date Joined Dec 2005
Total Posts : 85
   Posted 8/18/2006 2:16 PM (GMT -7)   
I've completely given up on everything, nothing, not even a combination of anything, works.  I eat as healthy as you can (which is impossible in college).  I've taken fiber, Zelnorm, probiotics, aloe vera, digestive enzymes, I drink tons of water, nothing.  So I don't take any of it anymore.  Why spend the money??  I am a recluse anymore, it's move in day at WVU and everyone is out having a good time and I'm going to lay in my bed alone all day.  To make matters worse my boyfriend and I broke up and now I'm as sick as ever.  I'm sorry, but no one else has to stratigize about going to the bathroom.  I'm so envious of people who go everyday without making it the center of their day...it just happens LIKE IT'S SUPPOSED TO...digestion is supposed to be an involuntary body function.  I would never go to the bathroom if I didn't plan out all my time around making sure I have 3 hours were I can walk around until I feel like I have to go, along with laxatives...I would just eventually just die.  I'm so jealous of people who can have roomates, go on vacation, etc without their digestive systems just completely shutting down.  I guess I'm doomed to live a crappy life all by myself.  And I'm only 21...why even live if this is how it's going to be.  I need an answer.....a REAL one...so what if it's in my head...what now?? what do I do to correct it??

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 8/18/2006 3:21 PM (GMT -7)   
Have you seen the post (just recently) where someone recommends a product for intestinal nerve damage? Maybe that's worth a try? Because if nothing at all works for you, then maybe that's what's wrong with you. You might need to talk seriously with a doctor about figuring out which part of your intestines is not functioning and see if a resection might not be what it takes. That's always, always the last-ditch attempt (it is dangerous), but that sounds like where you're heading. I was just reading--a link someone put on here, I think--about a large intestine resection where they basically take out your large intestine and connect your small intestines directly to the rectum so you don't need a colostomy bag. The Osties forum would be the place to go to talk about that sort of thing if you want to think about it.

I was sick all through college too, but with the opposite problem--diarrhea and very painful gall bladder attacks. Part of what got me through it was living off campus and being able to have my own bathroom. I didn't have much of a social life either--in fact, I was pretty miserable after my first year in college--but after I got my GB out (a year after I left college), I was able to start doing reenacting and found me a man and everything. So my life did move on and get better, but man, it was hard to keep hoping that it would when I was sitting on the toliet and holding a trashcan at 3 in the morning, all by myself and 6.5 hours away from home, so sick I felt like I was about to die.

You go to a big school; I bet there are others on campus with IBS. Maybe you should go to the clinic and see about arranging some sort of support group for people who also have bowel problems. That way you could have people to hang out with and not be embarrassed to be around. One of the worst things a friend can say to you is "Too much information" and a lot of them will if you try to open up about your bowel problems. And one of the best things anyone can say to an IBSer is "Oh, yeah, I get like that when I eat_____" or "Oh, God, I was so sick I thought I was going to die when I was in Haiti last year. Parasites, you know." I don't know why, but talking about bowel problems makes you feel better. I guess because you realize you're not alone and that this person who is nodding in a "been-there-done-that-myself" way won't make you feel ashamed or humiliated.

rgrwfe
Regular Member


Date Joined May 2006
Total Posts : 43
   Posted 8/19/2006 3:05 AM (GMT -7)   
Along the same lines, I felt completely alone after having to leave everything that I know as NORMAL to me & move to Italy. Diarrhea and paying to use the toilet ....somebody should make that illegal!! However, I have noticed that once I came out of my shell a bit & swallowed all pride & decided to tell people what I was going through, IBSers were right there next to me & I didn't know it. You feel like a social nightmare because you think that you're the only one who thinks 'where's the bathroom' while other people think you're listening to them. You also get tired of turning down invites to this & that. I have decided to help myself out & tell people what I'm going through & I was able to attend a pizza & wine girls night last night & they all knew why I didn't eat or drink & they asked how I was doing instead. Eventually the embarrassing part goes away & you find that people offer support a lot more. If it IS all in our heads, then that support can go a long way.
Best of luck to you in college!
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