I’m desperately looking for any assistance regarding IBS or someone who has symptoms similar to my husband’s. He has been ill for approx. 4 years with chronic abdominal pain (described as dull but intense throbbing in stomach) sometimes this pain radiates to his head causing migraine headaches. Chronic constipation where he only able to evacuate maybe 3x a week at best. When the pain is at it’s worst he experiences shortness of breath as well as chest pain. He is currently on Tylenol 4 to alleviate the pain (works minimally) Clonazapam (chest pain & abdominal spasm) Miralax (assist with constipation this works some days with evacuation but not pain).
My husband is now receiving social security disability due to his debilitating symptoms. He is unable to lead a productive lifestyle, as every morning he’s plagued with this excruciating abdominal pain. We have been to several GI Doctors to which he’s had through gastrointestinal evaluations including upper and lower GI Series. He has been diagnosed and treated for H-Pylori and Gastritis, neither, of which was the cause of his pain. He also had two laproscopic surgeries; gall bladder removal the second was exploratory for lesions or other sources that could be causing the pain. They did not find anything of significance. So we’re back at square one. Dr.’s then advise that we seek help at a pain clinic. He was then put on different combinations of pain meds as well as nerve shots, these also provided little to no relief. One doctor mentioned that he might have IBS (predominate constipation). He was put on several SSRI’s and the side affects were worst than the initial pain so he discontinued use. He was also put on Zelnorm for a short time it proved and it too prove to be ineffective and he stopped taking that as well.
Doctor’s are becoming as baffled as we are, which is very discouraging to say the least. We’re very much on our own trying to find a doctor who will assist him on getting off the pain meds and on something that could relieve the pain. I have read about a new drug Amtiza that works better than Zelnorm. As it treats chronic idiopathic constipation and I believe this maybe something that may work for him but it’s a very new drug. Has anyone tried this new medication and If so please let me know as well as any advice you may have regarding IBS treatments, facilities or doctors that could assist us in the NYC area. Thank you in advance for any help you may be able to provide.
My applogies for the long story just want to ensure i plead my case entirely.