Is this really just ibs? chronic abdominal pain for 7 months?

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msmakita28
New Member


Date Joined Sep 2006
Total Posts : 6
   Posted 9/27/2006 4:18 PM (GMT -7)   
  :-) hi,I'm new here! I've had ibs for years,but it wasnt anything I couldnt deal with or tolerate..few times a month get bad cramps,bm's altered,or get bad "gas diarrhea" attacks at night that would wake me from a sound sleep,but usually it was a food that triggered those episodes.Usually having bowel movement relieved pain back then.This severe stabbing pain started in april,never went away totally but in july was pain free.In april was in hospital for 3 days, morphine didnt touch this pain!had many trips to er for this pain,I have had colonscopy,endoscopy (mild acid reflux)ultrasounds,hida scan,catscans,kidney ivp (prone to kidney stones) and laparscopy aug 9 to check for endometriosis,no endo.All test came back good,being tested for toxin poison now.I've lost 50lbs in 4 months,hair loss,appetite loss,cant tolerate most solid food eating makes pain worse,get low grade fever,night sweats or chills and nausea 24/7,even my breast hurt! (not on birth control)Live on ensure,yogurt,apple sauce,rice,juice,crackers,turkey, and vitamins .Pain is belly button area radiates to lower left and right side sometimes upper area too  with severe rectal/pelvic,lower back pain,severe bloating,trapped gas (havent been able to pass gas in months) loud rumbling bowel sounds,BM's are altered,sometimes constipated,prone to fecal impactions or what I think..plug? sorry to be so graphic,but those are rare.In past I managed it with otc meds and careful diet,but NEVER in past have pain like so bad for so long,even after a  bowel movement no relief,and always feel like I'm not "done" with pressure.It isnt crampy pain like in past..bad stabbing pain daily constantly in tears and at my wits end..anyone else experience this and just told its IBS? I fear I'm heading for eating disorder because of pain I dont wanna eat and if I do I'm sorry.I had to leave work (cosmetologist) because I cant stand up for too long,I'm 28,moved back home to help take care of my mom who is handicapped with emphysema ,not under great deal of stress as my dr claims its all just stress..well stress from this pain! duh! was on paxil in past for ibs and it did seem to help with anxiety level,but been off of it,take xanax for anxiety.I'm housebound most of time cuz im afraid of "accidents" (happen few times on the road and now im phobiac about it ) I use to be active,have a social life,work,even during ibs flare -ups,but whatever this is has hit me hard.My family and friends are getting fed up not being understanding,mostly cuz of appetite loss and rapid weight loss which im not doing on purpose,I use to love food and it,showed, lol ,was 200lbs now 150lbs..id give anything to be 200lbs like last yr cuz I felt alot better.My dr refuses anymore testing since all my other test results are normal, i asked for barium studies to see if i had slow gut see how my stomach empty's or check to see if it is small bowel giving me probs. I should be relieved all my test are normal,but im not ,pain is still here getting worse everyday.Any idea's,advice,similar stories would be greatly appreciated,ty,I needed to vent! ~Stephanie

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 9/28/2006 7:53 AM (GMT -7)   

The fact that you have a fever says that there is definitely something wrong with you.  Have you had the breathalyzer test to check for bacterial overgrowth?  And did they take a stomach sample when they did the endoscopy to check to see if you have h.pylori? 

Hopefully Sarita will be along shortly.  She too has had problems with running a low grade fever and has had nothing show up as wrong with her on tests--even when she went to the Mayo Clinic.  She also suffers from very bad diarrhea.  One of her doctor's nurses tried her on an antibiotic on the off chance that it would work and it did help her quite a bit.  She's still not normal, but things are (or at least were, last I heard) manageable for her. 


Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 9/28/2006 11:07 AM (GMT -7)   
Hey Stephanie, welcome to HealingWell.  Sorry you are having so many problems; sounds pretty rough for you right now.  I do have some advice, though, that may help you weather the storm of your illness.  It is good that all your tests have come back normal, even though that doesn't mean you don't feel cruddy. 
 
First of all: start a journal.  You will write in this every day - what you eat, in detail (amounts, too); any symptoms you have (how many BMs, pain, etc.); your weight (only weigh yourself once a week); and your mood.  You have to be really introspective to determine your mood adequately!  You might start finding a pattern that wouldn't be apparent otherwise.
 
Fever is a tricky thing - are you taking your temperature every night?  A fever is defined as 99.5 degrees or above.  You might find that you feel feverish even if you don't have a fever, or that your temperature of 99.2 or whatever might just be a normal variation in your body temperature (which can go from 97-99.5 depending on the time of day).
 
As far as food goes, you really need to eat.  The reason you have loss of appetite is because you are not eating enough.  Sounds weird, but it's true.  Food will give you energy, and that will help your body heal.  You'll want to eliminate the apple sauce and juice - this can cause diarrhea and cramping in people with sensitive stomachs.  Ensure is good, but also eat things like plain baked potatoes, soups, etc. 
 
If you were on Paxil in the past and it helped, you should go back on it.  You are living with your mother who has a difficult chronic illness herself and even if you don't "feel" stressed emotionally, it is a stressful situation.  Do you have a good support network of friends/family?  That is very important in your situation.
 
If your doctor is not paying attention to your pain, you might want to try another physician or a nurse practitioner.  Have you heard of osteopathic medicine?  D.O.s are equivalent to M.D.s (same length/content of medical education, with added musculoskeletal emphasis) and they are trained to look at the body systems as truly integrated, not independentally functional.  There are some neat techniques they have to alleviate pain.  Or you could call a local pain clinic to see if they may be able to help you.
 
 
 
 

msmakita28
New Member


Date Joined Sep 2006
Total Posts : 6
   Posted 9/28/2006 1:57 PM (GMT -7)   
Hi! ty keriamom and sarita for your reply's and advice.I havent been tested for bacterial overgrowth yet,but i did have test celiac sprue and lactose which were negative.Been having metal taste in mouth (why dr wanted to do mercury/lead poison test)still waiting on those results,but wondering if metal taste is from my diet or lack of diet.Only biopsy I had was during colonscopy showed a lil inflammation April.Endoscopy was just mild acid reflux.
      I think I'm also having rectal problems too,bad spasm during bm's (procatlgia fugax? ) I feel like I live in the bathroom,not so much diarrhea,it alternates,this is embrassing,but takes me 3-5 hrs to complete a bm because of rectal spasm,I cant get off the toilet so I sit and wait till I know I'm done cuz it hits me every 5-10 mins.,Forget keeping appts,I never know when I can leave the house.This isnt normal and has been this way for last 5 yrs really bad,told my dr,and Gi,didnt say much.I have found a new dr I'm seeing oct 3 who seems willing to get to bottom of this.I hurt worse after bm's and never feel done,is this common? today my lower abdominal area is rock hard and its very painful,I'm trying to force myself to eat.Any ideas on how to get rid of trapped gas? I've tried laying on my stomach,gas x,nothing works.
stephanie


poobear
Veteran Member


Date Joined Jan 2006
Total Posts : 629
   Posted 9/28/2006 6:32 PM (GMT -7)   
I had alot of the same problems as you.. Bad cramps (finally ended up in the ER which gave me th dx of crohn's disease), d (very explosive), in the potty every 10-15 mins or so so I was there pretty much all day.. Did have an accident on the way to work.. Luckily it was not bad.. I was diagnosed with no doubt after sbft. And they could see inflamation in the colonoscopy. Hope this helps.
TCCIC
29 y/o Female Diagnosed with Crohn's October 2005 (symptoms for as long as I can remember) & Gerd 1996 Currently taking - 6mp 50mg per day, Pentasa 1000mg 2x per day, Remicade every 8 weeks (but need it sooner), Tramadol prn, Phenergan prn, Nexium, Prozac, Nordette, Multi-Vit, and Digestive Advantage for IBD.

"What doesn't kill us - sometimes drop kicks us into a new and better place - a place we mightn't have gotten to any other way." - Unknown
http://www.myspace.com/chroniechick


7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 9/29/2006 9:32 AM (GMT -7)   
This may sound silly but I noticed that if you're having trouble passing a BM it helps to lean back. I don't know if that aligns things or what, but it works. The old theory was to rock back and forth, but I think leaning back is better. Stephanie, it might help get you off the pot for 3-5 hours at a time.
I used to have a metallic taste in my mouth and it was caused by 2 things - too much sodium in my diet and taking Folgard (VITAMIN B12/FOLIC ACID/VITAMIN B6). I cut the sodium, kept the vitamin, and now it's gone.
The best way to get rid of trapped gas is to exercise. Go for a brisk walk after a meal.
Take care.
Co-Moderator for the IBS Forum
 
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msmakita28
New Member


Date Joined Sep 2006
Total Posts : 6
   Posted 9/29/2006 5:34 PM (GMT -7)   
Ty you all for your advice! it really helps to talk to other ppl going through same thing.This is something I dont feel comfortable to discuss with my friends or family even though they know what is going on and that I'am in pain.Today was rough ended up in er again,they think its ovarian cyst causing pelvic pain.Just wondering on my colonoscopy few months ago biopsy did show some inflammation,but gi never mentioned chrons or colitis? is inflammation common for ibs too?
I'm trying to eat more,on and off since april been on ensure,I would have 3 a day and crackers seems its all i could tolerate.Havent had real food since end of July.I relize now I'm just making it worse,and now I have to get use to food again and my gut is rebelling,and after few bites I'm stuffed,found taking few bites every 2-3 hrs is working out,gradually working soild food back in diet,and fiber,I feel the worst for it,but I brought it on myself going on ensure.I was having jaw problems (tmj) and jaw would lock couldnt chew so at times I had no choice to have a ensure or slim fast for some nourishment.I have the loudest stomach and bowel noises..sometimes keeps me awake at night.I go to store and ppl stare ..lol,is that my stomach getting use to food again ? it is just annoying!
Time to try some chicken now,this is gonna be a fun night! lol
stephanie


7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 10/1/2006 11:06 AM (GMT -7)   
Hi Tummyblogger,
Welcome to HealingWell! :-)
Thank you for sharing what you've learned and posting such helpful information.
Hopefully we'll continue to see you around.
Take care.
Co-Moderator for the IBS Forum
 
Please donate to help HealingWell continue to help us..... www.healingwell.com/donate


msmakita28
New Member


Date Joined Sep 2006
Total Posts : 6
   Posted 10/1/2006 12:23 PM (GMT -7)   
Tummyblogger
Ty for your advice,I'm gonna try those idea's.I have no doubt I have ibs but I also have gut feeling something else is going on too,I'm not going to give up finding out yet,like you said ,this pain may not be just ibs.It acts up like appendicitis,but then again ibs can mimic so many things too.Today is bad..severe lower left and right pain,right is worst,and those area's are swollen and feel really hot plus i have fever,pelvic pain, and bad nausea,sounds like some kind of infection? I see my new dr tues so I'm gonna tough out and see what he thinks this could be.I dont remember running high fever in past episodes of ibs,so I think my body is trying to tell me something.
stephanie


msmakita28
New Member


Date Joined Sep 2006
Total Posts : 6
   Posted 10/2/2006 11:12 AM (GMT -7)   
Tummyblogger

Hi! Another rough day..this is awful! I cant wait till tomorrow to see new dr,I'm going nuts, lol ,I try to relax but it is hard.I think pelvic pain is due is because I'm starting my period less than a week..and I've always noticed ibs symptoms worse during this time.I'm trying to make it out to store today, but not sure,one of those "I think I gotta" go and cant,urge is so strong, when I get like this I just wanna stay home so afraid of having accidents! I never use to let this control me or cause me anxiety,I miss being social and going shopping,now I keep track of every public bathroom on routes I go!,I know I'm not only one with this fear and was amazed when I came to this site other ppl had same fear,reading other ppl stories is really helpful.I will keep you updated,ty so much for your support,better days ahead!
Stephanie (:
stephanie


Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 10/2/2006 11:28 AM (GMT -7)   
Stephanie, you may want to see your gyno and tell her you want to go on birth control that will stop you from having a period. A lot of doctors now will prescribe low-dose BC pills and give you enough so that you can skip that placebo week and skip having a period if you ask them. I'm on Depo Provera injections which stop mine. Scientists are finally coming around to the decision that 1, there's no real reason why a woman who doesn't want to get pregnant should have a period and 2, it's actually not natural to have as many periods as modern women have. Back in the cave man days (and up until the middle ages or so), most women started having babies soon after starting their period and between that and breastfeeding, periods were kept to a minimum.

Anyways, if your IBS is unbearable because of your period, then try eliminating it and see if you at least quit vacillating between bad and even worse.

Of course someone--I think Lil--found that her BC actually made her IBS symptoms worse and that when she went off it, her IBS symptoms, including during her monthly, weren't nearly so bad.

7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 10/2/2006 11:40 AM (GMT -7)   
This is true, BC made my IBS worse. I only figured this out after everything else I tried didn't work. BC was the last thing for me to give up. The doc told me he'd prescribe a low dose one for me, but I didn't want to bother with experimenting. I still have IBS (fairly mild) but I've been able to manage it really well with diet and probiotics. I eat Dannon Activia everyday and I take probiotics (Culturelle & Kyo-Dophilus) everyday.
Steph, hope you feel better! Take care.
Co-Moderator for the IBS Forum
 
Please donate to help HealingWell continue to help us..... www.healingwell.com/donate


katie_s
New Member


Date Joined Oct 2006
Total Posts : 1
   Posted 10/26/2006 2:20 PM (GMT -7)   
hey there...
hopefully, you've figured out what's going on by now. if not, and i don't want to alarm you, have you been tested for ovarian cancer? i have had a lot of the same experiences, and i've been to the doctor 5 times over the last 7 months and they have yet to do an ultrasound. two different doctors at that. so i've been searching the internet...i may be overly paranoid...but you may want to check into it.
katie

IBSer
New Member


Date Joined Oct 2006
Total Posts : 1
   Posted 10/28/2006 1:02 PM (GMT -7)   
Hi, the symptoms are brutal as I have suffered for over 15 years with them.  Fortunetly for me, I have been able to aleviate most of the symptoms thru a TON of research.  I found that a low dose of an antidepressant medication along with a blend of vitamins/herbs and minerals have helped me control these awful symptoms.  I don't have the bloat that I used to have years ago.  I can acutally  button my pants, workout and eat alot of foods that I couldn't for years.  Do your research.....  Let me know if I can answer some questions.  I will do my best to help.
 
Good Luck!
Laura 
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