Someone Help Please

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scared2getsick
Regular Member


Date Joined Aug 2006
Total Posts : 126
   Posted 12/25/2006 11:20 AM (GMT -7)   
HI,
 
I was diagnosed with IBS several years ago after I started taking Birth Control Pills.  Up until then, I had been fine.  The pills caused me to have diharrea pretty much every day with horrible cramping.  This also started a rash of anxiety and panic attacks. I was petrified all the time that I was going to throw up and couldn't be alone.
 
I have since stopped taking the pills the IBS did improve. I have pretty much overcome my anxiety thru my faith in the Lord. my loved ones and trying to think rationally.  Of course, I still have a moment from time to time.
 
My IBS however still can be a problem.  I have lost ten pds and tried to change my diet a bit, cut our caffeine etc...  I have started taking Levsin .125 every day a couple of times a day and for the most part do ok.  However, I still have problems.  Like today, I had not gone to the bathroom in days and had an awful attack, sweating, diharrea and horrible pain.  The attack took hours to finish.  I took two Levsin and still had pain.  Low back pain as well as cramping.  ITs awful, takes your breath away almost.  I know my period is coming and that is most likely what it is.
 
Other times I will get intense pain in my shoulders and an awful headache.  The headache almost feels like sinuses.  Then shortly there after I will sometimes have an attack.  I also suffer from constipation with headaches.  I just don't know what to do. I want to get my life back on track so I am not worried about an attack occurring.  I want to be normal again and a fully functioning part of society. Help Please.  I know some of this can have a lot to do with an extreme amount of stress in my life right now, but unfortunately its not the kind that you can eliminate. 
 
 

Always grateful for the blessings I do have!


Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 12/25/2006 3:20 PM (GMT -7)   
A heating pad is the best thing for me to relieve the pain. Sometimes I put in on my stomach or pelvic area and sometimes on my back or whereever it hurts. I hope you find an answer for the total problem. Levsin has never helped me with pain. You might ask to try Donnatal as it is also has phenobarbital in it that will help the body relax but try the heating pad or one of those you warm in microwave.

7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 12/25/2006 6:58 PM (GMT -7)   
Scared,
It sounds like you described me. I had those exact problems with BC. When I got off BC the attacks continued to a much lesser degree and frequency. Now I take probiotics daily, I watch what I eat, I drink lots of tea, and I try walking at least a few times per week. That routine really has helped keep me regular and the number of attacks down. I do still get them, but probably only 1 every 6 weeks.
What Canyon suggests is great... A heating pad. I keep 1 at home and 1 at work. I use them for menstrual cramps AND "IBS cramps". If you know when you're going to get your period you could try taking a couple Advil (Midol, whatever) 2-3 days beforehand. My doc suggested it helps keep the aches, headache, and cramping to a minimal if you attack it a couple days ahead of time.
I also learned that if I can stay regular, I can prevent D attacks. I used to not go for days at a time, and then when I did finally go it would be an attack. I started eating yogurt (Activia) daily and taking probiotics. Those have now kept things moving which I suspect have helped keep the D at bay. My theory is that now when I get an attack there is less in there that has to come out. Instead of making 5-6 painful trips to the restroom, I will now only make 1-3 at most. When I get those attacks I try to relax with a heating pad and some type of calming tea. Like you mentioned, I think anxiety plays a lot into IBS. If you can relax, you can begin to feel better.
Again, like what Canyon mentioned, if your current antispasmodic isn't doing anything for you, ask for another.
I hope you feel better soon.


Co-Moderator for the IBS Forum
 
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CathyA
Veteran Member


Date Joined Mar 2005
Total Posts : 1431
   Posted 12/25/2006 7:45 PM (GMT -7)   
Scaredtogetsick,
May I ask how long you've been off the BC pills, and also how old you are? Were you taking the BC pills for birth control, or were you having some other problems with GYN stuff?

scared2getsick
Regular Member


Date Joined Aug 2006
Total Posts : 126
   Posted 12/25/2006 9:38 PM (GMT -7)   
Thank you all for replying! I could use all the support I can get. What kind of probitotic should I take? Where can I get it. Im not a big fan of yogurt, but I guess I need to try it anyway. I will try the heating pad as well. Ive been using ice. You are right about doing your best to relax. I have thought about using hypnosis, but insurance doesn't cover it. I am calling my dr. in the am about getting a different px for pain.

Cathy, I was put on BC Pills when I was 18. It was for polycystic ovaries. I stopped them after the anxiety, weight gain and IBS started. Lil, I am so glad to hear I am not alone. My drs all think im nuts and that the BC pills had nothing to do with all this. I was never like this before!!!!! I used to travel and never worry. Now all I do it seems is worry. Its awful. I am now 30 and have been on and off of the pills twice. I do find that chiropactic can help as well!!!

There is a lot of stress in my life right now as well. My dad and mom are really struggling financially and my dad has been sick and in and out of the hosptial with lung problems. He is much better now! Also, my love life is amazing but has it challanges. I also am struggling with a churfh, not my faith but with the church. so needless to say I am a little stressed.

I am so glad to have people to talk to. I use the chat room a lot at night when i have attacks but theyre aren't a lot of ibs people on. Sleep well ladies. I hope I do. Do you any of you guys get the headaches?
Always grateful for the blessings I do have!


7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 12/26/2006 12:31 AM (GMT -7)   
Scared,
There are various types of probiotics out there... You just have to find one you like. I take Culturelle and Kyo-Dophilus, and I also eat Dannon Activia (tastes great!) and pop Digestive Advantage every now and then. I take quite a probiotic list BUT I'm almost certain you can't OD on it. The more the merrier. :-) Lots of folks recommend Acidophilus as I think it is the easiest to find. I found it left me bloated with an abundant amount of flatulance and cramps, sometimes even D if I took too much. Remember that if you start taking a probiotic supplement you have to give your body time to adjust to it. Being bloated and gassy at first is not uncommon. Start with smaller doses and work you way up over the course of a week or 2 (depending how you handle it).
Anyway... No real headaches here. Are you getting them after a D attack? Could be dehydration. I took a stress management course where the instructor said that 9 out of 10 headaches can be cured by drinking a couple glasses of water or with deep breathing exercises. I'm pretty sure the deep breathing part must have something to do with stress.


Co-Moderator for the IBS Forum
 
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Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 12/27/2006 9:17 AM (GMT -7)   
It's not all in your head! There is a very big connection between bowel problems and hormonal problems. There are SO many women on here who developd IBS after developing PCOS or uterine cysts or fybroid tumors or menopause or endometreosis, etc., etc. There's a reason why more women than men have IBS.

There are a bunch of different kinds of birth control out there. You're probably going to want to be on something to avoid the ovarian cysts (which I have heard are exremely painful, and which can mess up your intestines in their own right), but you may just have to shop around in order to find something which stops the cysts and gets your hormones back in balance enough that your bowels aren't going crazy too.

scared2getsick
Regular Member


Date Joined Aug 2006
Total Posts : 126
   Posted 12/27/2006 8:05 PM (GMT -7)   
I am so greatful to have all this great advice.  We should all set up a time to chat together live some time.  I would like to try this advantage stuff.  Where can I get it?  The doc described a new narcotic for pain but im not sure if i will try it or not.  I am going to back on activia as well and start exercising again.  I will try the water and breathing for headaches too.  as far bc goes I am not only any at the moment and hope to NEVER be again. They did horrible things to my body.  thanks for everything ladies. 

Always grateful for the blessings I do have!


Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 12/28/2006 9:42 AM (GMT -7)   
Don't forget that narcotics cause constipation; you have to be careful using them to make sure you don't mess yourself up even worse.

Digestive Advantage can be found at Walgreens, Eckerd or probably any other chain drug store. You might can even find it in the pharmacy section of your large grocery store. Culturelle is another probiotic in that same line and can be found in all those places, as can simple acidophillus. The first two are to be found in the bowel medicine section of the pharmacy; the acidophillus pills are usually in with the other herbal medicines. You can also order digestive advantage online; I think if you buy it in bulk online, you get a better discount, but you may want to wait and see if you like it and if it helps before buying it in large quantities.

scaredtogetwsick
New Member


Date Joined Aug 2006
Total Posts : 2
   Posted 1/2/2007 9:30 PM (GMT -7)   
ok, bad attack again today. no diharrea but first bowel movement in days.  I got stuck in the bathroom at Chick-fil-a doubled over in pain for almost an hour.  My poor mom had to wait.  Left work and went to the doc.  Says he thinks its almost all related to stress, which i certainly have a lot of that!  He put me on Clarinex, Zolnorm and Levsid.  Tell me the info on these drugs please.  I bought some activia yogurt, went to the chiropractor and have a gi referral.

Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 1/3/2007 7:35 PM (GMT -7)   
Zelnorm is for constipation and like all meds works well for some and does take a while for your body to adjust. I was only given a half dose and it cramped me up so bad I couldn't handle it so I cut it to half of that and could not get out of bed because of vertigo for hours so I just gave up. Levsin is an antispasmotic and here again helps some and not others. It is a mild one, there are stronger. Not sure why you were prescribed the Clarinex as it is for allergies, a non drowsy type of allergy med. For better info you can "google" each but that is the basics. Levsin helps me if I have cramps but usually I want cramps as that means I am going to go which makes me feel better so I don't try to stop them unless I have them with nothing happening and then I take Levsin and a heating pad.

scaredtogetwsick
New Member


Date Joined Aug 2006
Total Posts : 2
   Posted 1/3/2007 9:07 PM (GMT -7)   
Yes i am nervous that the zelnorm will be too much. today i ate chicken soup and crackers. i haven't had a bowel movement but the intestines are making such loud noises. was does that mean? i feel fine. i ate two ativita yogurt today as well. he gave me clarinex b/c i have had awful sinus headaches lately. i took the first one around seven thirty tonigt. im sure if i were going to have a reaction i would have. i am just worried. i don't think i can handle another attack and no one to help me thru it.
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