Post Edited (7Lil) : 1/6/2007 1:05:07 AM (GMT-7)
I haven't tried the Benefiber tablets - I use the powdered one and just add a spoonful to my cereal in the morning. I really should use it more often during the day but don't usually remember. I had to stop taking the Zelnorm - it quit working after the third day anyway. But I got terribly dizzy and yesterday morning was nauseaus- thought I might have to leave work, but it finally passed. Canyonbabe 711, have you tried anti-spasmodics? I don't know anything about them except that they were recommended on one IBS website. I guess I will try the Quaker oats breakfas bars and see if they will hep - at this point I don't know what else to try. Sorry to hear about your dad, and your financial problems, Scared 2getsick - I know how you feel though. When my husband got very ill last year, and was stuck in a cubicle in the hospital emergency ward, waiting for a bed, I spent a whole day running back and forth to the washroom. What an awful day!! I have been fortunate enough though to be able to keep working - especially since my husband can't anymore. I tried to explain to my doctor about the anxiety this ibs causes - but I really don't think anyone can understand if they haven't had it themselves. That is why I am so grateful for this message board. Just being able to share experiences with all of you helps. And I am learning some things. Like I used to wonder why I would get stomach problems at the same time I got my period - now I know. I am realizing now that I have had this a lot longer than I thought - just didn't know it. Hopefully, one of us will come across something that works on this thing - we'll just have to keep trying!
I have IBS-C and I have been on Zelnorm for four years. 4 years. It's helped me live my late 20s in relative normalcy. It's also been there for me through 2 pregnancies - including breastfeeding. I thought I should share my story.
Five or six years ago, I just stopped "going". Over the course of the next year or so, I tried it all; fiber, fruit, water, and laxatives (both ends - ew). These things would work for a little while, and then my body would get used to them and the results would go away. After months of going through the same motions again for my doctor to prove I had tried it all, he finally gave me the lovely flex sigand diagnosed me with IBS-C. and it all was worth it, because I got this wonder drug.
I started at 6 mg 2x/day. Half an hour after the first pill, I was in the bathroom. (This was a miracle for someone who at that point had resorted to taking three correctol with her breakfast of apricots and shredded wheat every morning.) Sure there was be cramping and a little D once in a while, but good God! I was pooping!!
I was worried that my body would get used to the zelnorm, too - actually I was terrified. However, the opposite happened. The longer I took it, the less I needed to get the job done. There were periods of weeks that I didn’t have to take any at all and I was still regular!
Now comes the problem… it has stopped working. As recently as three weeks ago, I was taking 1.5mg (one-fourth of a 6mg pill) once every four or five days and it was enough. Now nothing. Beginning birth-control pills again and a long weekend out of town with air travel, lots of stress, big meals and tons of wine kicked me into a 3 week bout of C. I am back up to the full 6 mg 2x/day and still nothing. Honestly, I had forgotten what this was like.
After the past week, I can tell you that it is possible to live on Kashi GoLean Crunch cereal and Plumsmart juice– which are both actually very good, so go get some! But it's not quite doing the job.
As suggested by some of your postings, I will try less of the drug for a while and hope.
Good tummy health to you all!