Please help!!!!!!!!!!!!!!!!!!!!!!!!

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stace16
New Member


Date Joined Oct 2003
Total Posts : 8
   Posted 1/25/2007 4:07 AM (GMT -7)   
hi people,
 
I know it's been a while since i was last on here but i've really gone as far as i can go....
 
I'm a 19 year old female and I've had IBS for nearly 4 years now and the pain is no easier than when i was first diagnosed. The pain is literally unbearable, I writhe in agony almost every day. The pain is at it's worst early in the morning. It is usually on the right hand side in the lower part of my abdomen.
 
I have taken all kinds of medication i.e. Buscopan, Mebravine, Mintec, Peppermint oil capsuals, colphermin etc etc and none have these have relieved the symptoms.
 
I keep a food diary and am aware of some triggers; as below
 
Spicies
Fried foods
too many carbs
Dairy
 
The rest of my symptoms are;
 
Vomiting
Dizziness
Headaches
Nausea
severe pain
 
I lost my job today because I am unable to get out of bed most of the time...
 
I really don't know how much longer I can bear this....
 
I have been to my local A&E many times and seen my GP even more... they basically told me to live with the pain and just grin and bear it. I have seen a specialist before and have recently been referred again. It just seems to me that the medical profession does not take this seriously.....
 
I really need any advice that anyone has...
 
Please help
 
Lots of love
 
Stacey
 

7Lil
Veteran Member


Date Joined Apr 2005
Total Posts : 3269
   Posted 1/25/2007 8:58 AM (GMT -7)   
Hi Stacey,
I sympathize for you... I can't imagine being in such pain all the time. You shouldn't have to live with such pain. Out of all those docs have you seen a pain management doc? I wonder if people in the Chronic Pain forum might be able to give you some tips.
Because you mention vomitting, headache, severe pain and dizziness, makes me wonder about IBS. It just seems extreme. Have you tried taking an anti-depressant or an anti-anxiety med? Sometimes those can really help the gut function regardless of whether you are "depressed" or not.
I wish I had answers for you...
Co-Moderator for the IBS Forum
 
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Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 1/25/2007 9:43 AM (GMT -7)   
I agree about trying to find a pain management doc. And also that vomiting is not very common at all with IBS. I would ask you if you've had your appendix checked, but after four years, it surely would have already ruptured by now and someone would certainly know it then. Gall bladder is another thing that can hurt anywhere on your right side, but I don't even know of anyone having pain that constant with it; a gall stone will eventually either dislodge or send you to the hospital, and even a malfunctioning gall bladder will let up sometimes.

Make sure you go to get unemployment. If they say you don't qualify because your employer had legitimate reason to fire you (e.g. you didn't show up consistently), tell them that you have a medical condition that caused your frequent absence and you can prove it with doctor's reports/letters. That should allow you to draw unemployment. While you're getting that, you need to see if you can get social security disability. But you really need to have a doctor on your side that's willing to tell SS that yes, you definitely have a medical condition that's so serious, it keeps you from working a regular job.

Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 1/25/2007 1:10 PM (GMT -7)   
Stace, have you ever had any scopings done, like an EGD or colonoscopy?  Or tell us any other tests they've run...I'm just curious because it seems like there'd be a reasonable explanation for your seemingly severe symptoms!

stace16
New Member


Date Joined Oct 2003
Total Posts : 8
   Posted 1/26/2007 9:52 AM (GMT -7)   
Thanks for the tips people
 
No other than the tests i've already mentioned i've had no other tests.
 
The pain does ease occasionally but for no longer than a day... but a day can fly by if you know what I mean....
 
When the spasms are at their worst it's just so unbearable. It really helps to know I have someone's support. Thanks guys.
 
Stacey
x

hohoyumyum
New Member


Date Joined Jan 2007
Total Posts : 1
   Posted 1/28/2007 8:12 PM (GMT -7)   
Vomiting and dizziness are not symptoms of IBS. Don't accept IBS as a diagnosis that will explain these symptoms. If your doc is saying that these are caused by IBS, get a new doc.

Canyonbabe711
Veteran Member


Date Joined Mar 2006
Total Posts : 1451
   Posted 1/28/2007 8:27 PM (GMT -7)   
Oh, please get some tests. You are way too young to be going thru this without an answer. IBS is usually only the diagnosis when all the other things have been ruled out and it doesnt sound like in your case they have done the tests necessary. Have you also been checked by a gynocologist as some of the symptomes could be related. I didn't have as much pain as you have but in my 20's I went thru a couple years of nausea, vomiting and in the end they had to do exploratory surgery and it turned out my appendix was all entangled in my intestines. I didn't have it 24/7 but I had it more and more frequently. Now they have scans that would show that. Please ask for tests. I don't know your health system but I think it is shameful for anyone to say you have to live with this when they dont' know what it is.

stace16
New Member


Date Joined Oct 2003
Total Posts : 8
   Posted 1/29/2007 4:44 AM (GMT -7)   
Hi guys
 
My doctor is refusing to do anymore until I have seen the IBS specialist. I now have to wait around 13 weeks before I can have an appointment.
 
I have asked to see a gynocologist but he said no more will be done until I have seen this guy. The pain has been better over the last couple of days.
 
The last time I went to see him he gave me strong pain killers and diazapam along with another strong anti-depressant.
 
I have had several blood tests, urine tests and x-rays and as far as they are concerned it is 'just IBS'; they're words not mine, no more and no less. So I guess I just have to wait and see this doctor and 'live with it' in the mean time.
 
You support is appreciated, thanks for listening and if I can help anyone else I would be glad to.
 
stacey
 
xx

cmom94
New Member


Date Joined Jan 2007
Total Posts : 2
   Posted 1/29/2007 8:16 AM (GMT -7)   
Hi there,
 
I read your post and I wonder too if it could be gall bladder.  I had gall stones for almost three years before they figured it out.  I went to the ER the first time buckled over and crying, hardly able to breathe and they told me it was "exhaustion" due to having my son a few months earlier.  The next time I went in with horrible pain again I was told it was "gas".  (which made me look like an idiot) The pains eventually subsided each time so they sent me home.  The next time I went in they were sure it was my stomach so I was given a cup of nasty to drink and it froze my mouth, throat and stomach.  They then ruled out my stomach.  Finally after almost 3 years of this one doctor wondered if it was galllstones and 6 months later when they did the ultra sound they found out it was.  Don't let them make you feel bad about your pain, my  12 year old son has abdominal problems right now with horrible pains too and we have been through many doctors who are complete jerks who didn't know what the cause was but wouldn't investigate either.  Please keep trying and insisting on tests until you find out what it is.  I am glad you will see a GI.  Good luck!

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 1/29/2007 10:36 AM (GMT -7)   
Why do you need a referral from your PCP to go to a gynocologist?? I've not known an HMO to require that, given that a gynocologist is just assumed to be a doctor that a woman needs to go to. Screw your PCP; go to the gyno. Ovarian cancer, although very rare in a young woman, looks like IBS, so it never hurts to get looked at. They may find that you have endometreosis or ovarian cysts or something else female-related that could be causing your pain. And hormones out of whack from those things can cause dizziness and vomiting.

stace16
New Member


Date Joined Oct 2003
Total Posts : 8
   Posted 1/30/2007 5:09 AM (GMT -7)   
thanks guys
 
you would not believe how invaluable your support is...
 
it makes it easier to cope with the pain knowing that I have your support along with my family and boyfriend's. I will keep trying to get more tests and push my gp to see a gyno.
 
Thank you once again
 
stacey
xxxxx
 
P.s. if i can help anyone please feel free to contact me
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