Cholestyramine/ Questran questions...

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auxano
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Date Joined Feb 2007
Total Posts : 12
   Posted 2/7/2007 7:47 PM (GMT -7)   
I had my gall bladder removed 3 months ago and since then I have suffered from diarrhea every morning.  I have been taking metamucil twice a day and that wasn't enough to help.  I understood that Questran/Cholestyramine was only for constant and exsplosive diarrhea so I thought it wasn't for me but when I asked my dr she happily gave it to me to try.
 
 I take 1 sachet (4g) every day and it's now been 4 days and I find that it is working.  I am still taking 1t of fibre a day too.
 
My question is
 
-I am trying to work out WHEN I should take questran>  I started at lunchtime, but this is a nuisance if I am not at home and so think that after breakfast would be a good time.  However, my diarrhea was always first thing in the morning until lunchtime (maybe 2 or 3 times).  My Dr thinks the bile was probably sitting around from night.
 
If I take Questran in the morning after breakfast, will it still be there by night to soak up the bile to prevent diarrhea the next morning?
 
Does it have to be taken after food?
 
Thanks

auxano
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Date Joined Feb 2007
Total Posts : 12
   Posted 2/7/2007 7:49 PM (GMT -7)   

also, forgot to mention:  do I need to keep taking Metamucil?  I would like to be able to stop it if I no longer need it.

Thanks


Sarita
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Date Joined Mar 2005
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   Posted 2/7/2007 8:24 PM (GMT -7)   

Cholestyramine is supposed to work pretty quickly, so you might find that taking it at breakfast helps you more.  However, you could also take it at night, before bed, to see if it works better that way.

I'd taper off the Metamucil to see if it makes any difference.

As always, trial and error seems to be the ticket to some medication issues, as long as you are not prescribed the medication at a specific time.

That's awesome that the Questran works for you!


auxano
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Date Joined Feb 2007
Total Posts : 12
   Posted 2/7/2007 9:09 PM (GMT -7)   

Has anyone tried taking this on an empty stomach?  I'm a bit scared to try it redface

 

Thanks for your help Sarita


Keriamon
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Date Joined Jun 2005
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   Posted 2/8/2007 9:39 AM (GMT -7)   
I take Welchol (pills) which is in the same family as the Questran. I take mine in the mornings about an hour before breakfast and have never had a problem. Questran does have a bad reputation for causing painful gas cramps, so I don't know if it would be equally well tolerated on an empty stomach. I guess you won't know until you try it. I definitely have to have mine very first thing, since I too get D in the mornings without it.

I don't know what dosing instructions your doctor gave you, but mine gave me 100 pills and said start out with one a day and take more as you need them until you stop having diarrhea. If you start getting constipated, take a little less. I take one in the morning, plus one calcium pill, and that's usually enough for me. If I eat a bunch of stuff and get my guts upset (like this past weekend), then I take one every 30 minutes until the diarrhea stops. Monday I took three. Tuesday I took two. Yesterday I went back to just my normal one a day. There have been a couple of ladies on here who took as many as 6 pills a day to control their bile. Inape (Linda), on the other hand, can treat hers with just the calcium supplements. It all depends on how much excess bile your body is producing whether you need a lot of medicine or a little.

I seriously doubt the fiber supplements are helping your diarrhea problem any. The first and only supplement I tried a few years ago managed to make my constipation worse and my diarrhea worse, so I haven't fooled with fiber anymore. Because your diarrhea is caused by bile acid, not water, fiber won't help you as much as it will help people with non-bile diarrhea. Of course, if you stop taking it and find you have more diarrhea, gas, or any other problems, then, by all means, get back on it. Everyone's different, so fiber may benefit you.

The other thing of benefit is calcium. You can get this from milk, yogurt or the Caltrate w/ vitmain D supplements. Not only is calcium mildly constipating (a good thing when you have D!), but they've found that it soothes intestinal inflammations (people who eat 3 or more servings of dairy a day have a lot lower chances of colon cancer--calcium, rather than dairy itself, is probably the real benefit). Bile is an acid, and just as acid reflux can damage your esophagus, so too can excess bile irritate your intestinal lining and cause you pain and more diarrhea. I have found that calcium is really great at making my guts better fast after I have aggrevated them.

The last thing to do for yourself is to watch your diet. If some food item caused you distress before your got your gall bladder taken out, it will probably still cause you distress now. My number one trigger was caffeine. I still can't have caffeine, except for the little amounts in herbal teas and chocolate. Anything more than that--a coke, for instance--will give me diarrhea. I am careful with my fried foods too--I never eat fast food anymore--and I have to be careful about pizza. I can eat pizza made at home (but not fast food pizza), but I can't eat it two days in a row, or combine it with other foods, like greasy mexican fajitas. That's what got me this weekend; too much pizza and too many fajitas. You need to eat a lot of non-greasy home cooking and keep your indulgences to singular occurences spaced wide apart. You may have some luck controlling your D with a low-fat diet, but when I tried this I encountered two problems: I was hungry all the time and 2, it made me unbearably constipated. I found it was easier on me to eat a normal diet and take my Welchol than to eat a low fat diet and struggle with constipation and constant hunger.

auxano
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Date Joined Feb 2007
Total Posts : 12
   Posted 2/8/2007 12:53 PM (GMT -7)   
Thanks for all this information Keriamon!
With the Calcium tablets, how many do you take a day?

My biggest worry is - what is normal now??? Should I expect to have a BM every day? Does constipation relate to whether they are "soft" or the time between BM's? I can't believe how much I stress about my bowels, it's crazy!!

And the biggy: just how safe is it to take Questran and Calcium long term? I'm only 40 and I imagine I'm going to be taking it forever - are there any long term studies showing safety?

Also: after living with diarrhea for 3 months I have lost alot of weight (15kg/33lb). I am healthy but I know I don't have the stamina that I used to have. yesterday I cleaned out my kitchen cupboards and I was exhausted!!! I wondered about taking Spirilina but I am so worried about taking anything that could possibly upset my digestion/bowels.

do you have any suggestions on how to boost my system and get my body stamina back - something gentle to the system!?

Thanks. This is awesome having you guys to support us newbies, I really appreciate it.

Sarita
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Date Joined Mar 2005
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   Posted 2/8/2007 1:23 PM (GMT -7)   

Keri is the post-cholecystectomy Queen.  She is awesome!

As far as your energy goes, that's a lot of weight to have lost, especially if you were a normal weight to begin with!  Jeez...I would say start drinking a lactose-free Ensure every day, which has lots of vitamins and minerals and is easy on the gut.  Also, try exercising 4-5 times a week for half an hour at a time; this will probably boost your energy levels, even if it's difficult in the beginning.


auxano
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Date Joined Feb 2007
Total Posts : 12
   Posted 2/8/2007 2:09 PM (GMT -7)   
Yeah she is amazing isn't she!

I have not ever seen Ensure in New Zealand. I wonder if you have another suggestion.
Thanks

Keriamon
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Date Joined Jun 2005
Total Posts : 2976
   Posted 2/9/2007 10:03 AM (GMT -7)   
Ensure is a drink they make, namely for older people, that has a lot of calories and vitmains in it. They give it to older people who have trouble eating as much as they should. It's also used a lot for people who can't handle solid food, like people that have had dental work done, people who are sick from chemo, and people who are just not getting enough food for whatever reason (you). So just ask your pharmacist about "meal replacement drinks". You probably have access to Slim Fast too, which contains good amounts of vitamins, but not a lot of calories. You should find that with your medicine and by being a little careful with your diet, you can eat normal amounts of food again, so you shouldn't need a calorie-heavy meal replacement drink, but the vitamins and minerals in Slim Fast and its like probably wouldn't be a bad idea for you for a couple of weeks while you work your way back to normal eating levels. If you find, though, that you still don't seem able to eat enough, then you should consider Ensure, Boost or whatever calorie-rich meal replacement drinks are available in your country.

You will probably find that "normal" for you now is more bowel movements than before your GB was removed. I used to go about every other day, but now I go everyday, oftentimes twice. I define "normal" as a bowel movement that's not hard to pass and not feeling the constant need to go to the bathroom. As long as I am not annoyed by the feeling of constantly needing to go, and I don't have to strain a lot when I do go, then I accept however many poops I have (or don't have) per day. You shouldn't look for consistency or predictibility, because you're not likely to find it; you should just shoot for what you can tolerate.

Seeing how it's getting close to spring here, you guys down under are getting ready for fall, correct? You may find help during the waning of the season with a light therapy lamp. They're pricey, but I really like mine and I can tell a difference in my energy levels since using it. Mine also has a dawn feature, which gradually gives you more light until your wake-up time; that helps me get out of the bed. But I think your energy levels will return best when you get back to eating normally again. Exercise can help, but if you've been real run down, you may want to try and do 10 or 15 minutes of moderate exercise and work your way up. Also, you don't have to do it all at once, so if you did 15 minutes in the morning and 15 minutes at night, that would be real good.

As far as I know, calcium supplements have been approved for long-term use, provided you don't get more than 1800mg a day. Long-term use of more than 1800mg a day can damage your kidneys. But many doctors are putting women on calcium supplements permanently in the hopes that it may fight off osteoporsis. Unfortunately, they don't seem to help a lot in that department, but they're better than nothing at all. And there is a tentative link between calcium and a decreased risk of colon cancer, so they're very good on that front.

I don't know about the long-term use of Questran or Welchol. We're not taking it to treat cholesterol and we don't even take it as it is prescribed for cholesterol use, so who knows? I just know that no Welchol = diarrhea. I'm big into quality of life right now, and I can't live well if I have diarrhea everyday. If the use of the Welchol long term increases my chance of getting some dread disease, then I'll just take my chances, because NOT using it will definitely give me diarrhea everyday for the rest of my life. I'm not going to throw away a sure cure for a known problem based on "maybes" sometime in the distant future. Who wants to live to be 100 if you have to live in the bathroom all day and can never go anywhere because you're crippled with diarrhea? To me that's no life and it's certainly not worth living for. I also take a birth control shot that keeps me from having periods, even though it's known to increase your chances of osteoporsis. But, you know what, every woman in my family has osteoporsis AND they had to endure having periods too. If I'm doomed to get it anyways, then why not enjoy the flower of my youth with white pants, swimming pools, and rustic camping? Besides, I have so many gynocological problems among the women in my family, I think it's best if my reproductive organs are kept in hibernation as much as possible; if they had to work, they might go haywire. They weren't doing too well before I started the shot, that's for sure.

Anyways, work on getting your guts straightened out so that you can go back to eating normally again and I think that will get you back to normal. Having diarrhea, even for part of a day, is very draining on the energy levels, even if you do manage to eat enough. I don't know what Spirilina is, but I agree that you should be cautious about what you take with your guts. You should stay away from anything that's touted as a stimulant, especially if it has caffiene in it. Stimulating the body usually includes stimulating your bowels too. You have to think of yourself as being like a pregnant woman who is eating and medicating for two. There is you, and there are your bowels. Like with a fetus, you have to be cautious with what you put in your body becuase the bowels are sensitive and can't handle just anything. Think of your Questran and calcium as pre-natal vitamins which make your bowels healthy. Lol.

auxano
New Member


Date Joined Feb 2007
Total Posts : 12
   Posted 2/9/2007 5:21 PM (GMT -7)   
GAS!!! ... I now know what it is!

I have been taking the Questran after lunch but by bedtime I have gas pains and feel so uncomfortable. I seem OK during the daytime - maybe it's becasue I'm moving around alot so I don't notice or it is expelled easier. Today I am moving my Questran time to after dinner and I'm hoping that the gas build-up will not be so prominant at bedtime.

Are there any secrets to preventing the gas? If only we had Welchol over here! I have put off my GI drs appointment until I've been on Questran for a while because it's so expensive to see this Dr that I need to know if it works for me and if I have any problems/questions to ask. My GP and the Pharmacists looked on their computers and said that Questran was the only choice of cholestyramine in NZ, so I'm guessing the GI dr will not have any secret stash of anything else!

Last night I ate a piece of cake that was quite dense. I immediately got the worst indigestion. and to top-it-off I was not at home but out visiting my husband's work collegue, so I had to act like nothing was wrong and talk politely for the next half hour! I got home and popped 2 Quick Eze tablets which eased it a little.

Is this a common problem?? I used to take Losec (omeprazole 20mg) for digestion woes (which were probably just my GB issues), and was tempted to take one of those but wasn't sure if it would interfere with the Questran so didn't.

Gee, Gall Bladders really are worth their weight in gold aren't they!!!

auxano
New Member


Date Joined Feb 2007
Total Posts : 12
   Posted 2/11/2007 1:38 PM (GMT -7)   
Keriamon,
I've just got another thing to run by you. I know I'm posting alot and asking questions non-stop but I have been searching for answers for 3 months and at last I've found someone who is going through the same!

Did you ever feel unwell during all this?
I have had about 4 times in the past 3 months when I've woken in the morning and felt not well. I would then have diarrhea which was more watery than "normal". I would feel very light headed, dizzy, very very thirsty and would have to go to bed because I felt terrible. No pain, in fact I just felt plain awful. This could last just the morning or a couple of times leave me feeling terrible in the morning, but for the next few days feel not 100%.

I was hoping that taking Questran would sort this problem out as well as the diarrhea. My dr didn't know why I had these "bouts".

Anyway, I have started taking the questran and it's working well for the diarrhea. But I wake some mornings feeling yuk. I know I need to eat breakfast but don't feel like it and have to force myself. I feel tired and generally yuk but cannot put my finger on what is wrong.

What on earth could be wrong with me??
I actually feel anxious sometimes because I want my old life back. I want to wake up in the morning, bound out of bed, sing the happy morning song and bounce around. Instead I now wake up, wonder if I'm going to be OK today - ugh, it's not a good way to be really.

Keriamon
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Date Joined Jun 2005
Total Posts : 2976
   Posted 2/12/2007 2:39 PM (GMT -7)   
One, I don't force myself to eat when I feel bad. Invariably I will just feel worse and have diarrhea. Sometimes I don't eat until lunchtime if I am having a bad morning. Unless you are diabetic, or otherwise have blood sugar control issues, there's no reason why you can't skip breakfast when you're feeling bad. Everyone says eating breakfast is good for your body, weight, etc., but there are sometimes when eating is not good for you, and this is one of those times.

Are you a woman? Do your odd bouts come about with any regularity? Periods are notorious for messing up a woman's bowels. I'm on Depo Provera, which keeps me from having a period all together, so I don't have these problems myself, but a lot of people on here do.

Can you order medicines online through an American or Canadian pharmacy? If your doctor would be willing to let you get the Welchol from outside the country, that would be a way to try it. It's expensive too (about $80 American for 100 pills), but I've never had gas problems with it, nor have I heard of anyone complain of gas with it.

Have you tried chewable gas relief pills? I took those a lot back when I still had my gall bladder and had problems with a lot of trapped gas and overly-full sensations. I don't see why you couldn't excuse yourself (and your purse) to the restroom while at someone's house, and chew those pills. Maybe they're something you just have to take every morning, along with your Questran, to keep the gas at bay. Ask your doctor about them, but I don't think there are any problems with using any gas pills long term.

I don't know about Welchol, but my doctor told me that Welchol didn't interact with most medicines because you never absorb it. However, it can keep you from absorbing other medicines. But an anti-gas pill is meant to get in the guts and cut gas, so they shouldn't bother each other. I don't know what the Losec does, but if it's something that needs to be absorbed into the blood to work, then you need to take the two medicines far apart in the day. You can always ask your chemist if they interact, or Lil on here has a link to a place online where you can look up your drugs interactions yourself.

auxano
New Member


Date Joined Feb 2007
Total Posts : 12
   Posted 2/12/2007 5:36 PM (GMT -7)   
Yeah I'm a woman :-)

Good news, the gas hsn't been a problem the past few days - maybe my body has adjusted to the questran?

I just have this weird thing happen nearly every morning. I start to feel a little light headed and then I feel really tired. It seems to disappear later in the morning and I'm fine the rest of the day.

I wonder if it's my iron levels are too low. I have started taking iron to see if it helps. It's so annoying not being able to fully describe how I feel. when I get my GI appt he's going to think i'm crazy trying to say that I feel weird in the mornings but OK the rest of the day.

I wonder if it has something to do with emptying my bowels because I feel like it has something to do with that. Once I'm done doing BM it seems to sort itself out.

Keriamon
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Date Joined Jun 2005
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   Posted 2/13/2007 3:38 PM (GMT -7)   
Be careful with the iron supplements, because I think that's one of those things you can have too much of. 
 
Most IBSers feel worse in the mornings.  Something to do with waking up yourself and your bowels.  Also, some people don't feel great in the mornings until they eat.  Of course, if eating makes you feel worse, then that's not a good thing to do.  You might try eating supper later or having a snack right before bed and see if that keeps your stomach from being quite so empty in the mornings. 
 
Also, ask your doctor if light-headedness after lying down for an extended period of time is a sign of low blood pressure.  I get low blood pressure sometimes, like when I stay bent over or squatted down for a while, but it clears up on its own when I am back to my normal position.  I don't know if there's anything to be done about it, but you may try a bit of light exercise (just don't do anything that causes you to bend over or lay back down, like yoga--try walking instead) to see if that doesn't clear you up a bit faster.  And exercise can sometimes perk you up when you're feeling tired. 

7Lil
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Date Joined Apr 2005
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   Posted 2/13/2007 3:55 PM (GMT -7)   
Be careful with Iron as upset stomach is a main side effect of taking the supplements. Unless you're diagnosed Iron deficient you should not take the supplement.... Or at least talk to your doc or pharmacist first.
Co-Moderator for the IBS Forum
 
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auxano
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Date Joined Feb 2007
Total Posts : 12
   Posted 2/13/2007 10:56 PM (GMT -7)   
I have a history of low iron and right after my operation it was checked and I was 13. I have been as low at 5 and that is not fun at all! My Dr said she would like to see me above 20. she has checked reasons for low iron and it seems it is due to periods. So, I went to the health shop and the guys said that the ferrograd that the Dr prescribes really messes with your stomach and is inferior. He recommended one that is gentle on the stomach. So, I'll give it a go and see what happens, today is day 2 of taking it.

My naturopath put me on minerals becasue she said I am low (looked at my tongue). They are a very concentrated liquid mineral which she said will be OK for my stomach. I know I'm low on something as I have an eye that keeps twitching!! Drives me crazy the last few days.

That's interesting info about IBS sufferers being worse in the morning. My Dr is not sure what it could be - she wondered if the bile was "pooling" during the night and that's why I got diarrhea in the morning and then my body was having water-shifts causing me to feel unwell.

Weird, I woke this morning feeling well and you know what....I felt great all day! That's when you wonder if it's all in your head!

On a good day I feel like life is all back to normal.

Keriamon
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Date Joined Jun 2005
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   Posted 2/14/2007 8:44 AM (GMT -7)   
I too have no GB and I have worse problems in the morning. Your doctor may be right about the bile pooling up, but even if she's not right about the cause, the symptoms are still real! Definitely not in your head. And, like I said, most people with any type of bowel problem, even not caused by bile, is worse in the morning. The best we can figure is that "starting up" your colon in the morning when you wake up is really rough--like starting a car in cold weather makes it vibrate and run rough. As the day goes on, though, it usually settles down a bit--both your guts and your car.

Kittencat
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Date Joined Feb 2007
Total Posts : 2
   Posted 2/14/2007 9:23 AM (GMT -7)   
Sorry to jump in on your topic but I'm new and it seems to make sense to post a reply here than start a new topic!

I started taking Questran on Friday after my doctor agreed I could try it to see if it helped. I've had problems with urgency and loose stools for ten years or so now which was always primarily in the morning and then I'd be fine for the rest of the day. I went through bouts of being fine though. I had my gall bladder removed in July due to gall stones (apparently the biggest ones the nursing staff had seen so I guess my gall bladder can't have been in great shape!) and was fine for a while but in the past few months it's all just got worse.

I've had yellow loose stools and then diarrhea which has lasted all day mostly but guaranteed 20 minutes or so after I ate anything and with burning so when I started finding people with similar problems post gall bladder removal I was pretty excited at the prospect there may be an end in sight.

I think it's helping a bit, really I just wanted some reassurance that it's too early to deem Questran a failure. I know now is a bad time to be trying a new medication as I've just finished a course of antibiotics for a kidney infection so would likely have bowel problems anyway. The last couple of days were better and my stools were much more formed, I went twice this morning and both were formed and a lot more than usual but then I've just had to dash to the bathroom a third time following a sandwich and although it was only a small amount it had the familiar burning.

I just need some encouragement I guess that all is not lost. I was taking one sachet in the morning an hour or so before breakfast and then yesterday I added in an evening dose about 9pm which left me feeling pretty bloated. Did I overdo it? Should I stick with two doses for a few days and see if it settles as I'm far from constipated!

Thanks, and sorry for the rambling! It's just so nice to see people here who are going through the same!

7Lil
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Date Joined Apr 2005
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   Posted 2/14/2007 11:32 AM (GMT -7)   
Hi Kitten,
Welcome to HealingWell! :-) You've come to a great place.
Are you taking probiotics to help you recover from the antibiotics? That might be a good idea... Or maybe eating plenty of yogurt would do the trick too.
As for the Questran, I can't help you there. I do know, however, that taking Calcium (caltrate + vitamin D) will also help bind your stools.
If you think Questran isn't working for you, you might be able to try Welchol. I'm pretty sure they are similar meds. Keriamon is extremely familiar with these meds and will probably be on to share her opinion.
Good luck!


Co-Moderator for the IBS Forum
 
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Keriamon
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   Posted 2/14/2007 12:09 PM (GMT -7)   
Yes, I'm on the Welchol. It has the benefit of being a pill, which is much easier to deal with, in my opinion, than the mix. Questran seems to work just as well in terms of forming up the stools, but it gives most people bloating/cramping/gas. So no, I don't think you "overdid" it; I think that's just a normal side effect of the medicine. I always personally recommend the Welchol because, for me, it has been so wonderful, but everyone reacts to meds a bit differently, especially when it comes to the bowels, so Questran may be better for some people. Also, Auxano lives in New Zealand, and Welchol isn't available down there, so it's Questran or nothing for her.

I take one Welchol pill a day, on average, but if I eat something I shouldn't, or have to take antibiotics, as you did, then I find that I do need more and may take two or three a day. I once had to take four, but that was because I had a big Southern breakfast of biscuits and gravy; boy, no more gravy for me! I can't vouch positive that you can dose Questran like I dose Welchol, but I know they're in the same family of drugs, so I highly suspect that you can. You can always ask your doctor if you can take more than he recommended, but both of these meds are cholesterol meds and we're using them for off-label puposes, so no one really knows what you can and can't do because this medicine was never developed for or studied with people with bowel (bile) problems. I have met people on here who had to take as many as 6 Welchols a day in order to control their bile. Me, that would constipate me up forever. So, at least for Welchol, there are no hard and fast rules about how much to take, because not everyone has the same amount of bile that needs to be absorbed. You pretty much take as needed.

Definitely follow Lil's advice with probiotics. The last round of antibiotics I was on gave me diarrhea problems--even with my Welchol. I started eating an Activia yogurt a day and my bowel problems immediately stopped. I had to stay on the yogurt for 3 weeks before I could go off it and stay normal. I now drink acidophillus milk for breakfast for a bit of maintenance. I also take a calcium pill a day. Calcium cured another bad spell I got into a couple of years ago that wasn't really a bile problem (and so the Welchol didn't fix it). I had accidently ingested some sugar alcohols and it got me all tore up and I just stayed torn up, for two months. When I found out about the calcium here, I tried it and boom! normal stools again and no more pain. Calcium has been shown to reduce non-specific inflammation in the colon, and I think that is what my problem was. I think I had something like an allergic reaction to those sugar alcohols and my intestines got all irritated and it took the calcium to get them soothed back down to normal. So now I take one a day in addition to my Welchol just for a bit of maintenance. Too much bile in your intestines can cause irritation too, so it never hurts to have a bit of calcium too. You can take up to 1800mg a day safely (three pills, but you should probably only do 2 pills if you also consume a lot of dairy products), so you may want to try taking a calcium pill morning, noon, and night and then see how much--if any--Questran you need. Inape (Linda) only needs calcium to keep her bile in check. I definitely need the Welchol, though. Like I said, everyone has different amounts of bile. But if calcium helps, to the point you only need one packet of Questran a day, then that can definitely lower the amount of gas/bloating/cramping that you experience with it.

auxano
New Member


Date Joined Feb 2007
Total Posts : 12
   Posted 2/14/2007 12:23 PM (GMT -7)   
Hi and welcome to the diarrhea club!

I found that when I started Questran I really had bloating and gas - it was awful. But after a few days it really settled down. I take my one sachet after dinner (around 6pm) and that's all I need.

I think it is important to up your dose SLOWLY! Start with one sachet for a week and let your system get used to it, then the 2nd sachet in the 2nd week etc.

The advise you get here is amazing, but the support is more amazing. I searched for 3 months and found empty boards but at last found this board.

You guys are great!

7Lil
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Date Joined Apr 2005
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   Posted 2/14/2007 12:49 PM (GMT -7)   

LOL auxano - "Hi and welcome to the diarrhea club!"  That is too funny.  So true.  We should all wear brown bracelets.

 

It is so important to start slow with supplements such as fiber and probiotics... and now we can add the med Questran to the list.  Your body needs time to adjust to the changing gut flora.


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Kittencat
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Date Joined Feb 2007
Total Posts : 2
   Posted 2/16/2007 4:08 AM (GMT -7)   
Thanks for the warm welcome and advice! :-)

I'm in the UK so I'm not sure if we have Welchol here or not. I tried calcium in the past with slight success but I probably didn't stick with it for long enough, can't hurt to add one in I guess!

I've been taking the probiotic drinks in the morning for the past month or so and haven't noticed a difference. When I've tried capsules they seem to have made things worse, maybe it has to get worse before it gets better though? I think I will go and get some decent quality capsules and give those a go as unfortunately the infection doesn't seem to have cleared up so I have to have another few days worth of antibiotics.

The good news is that I'm back to having better stools in that they are formed but the urgency is still there with mild cramping when I have to go sad I wonder if part of the problem is anxiety, I am the worst that I have ever been for worrying that I am going to have an accident, the slightest twinge anywhere and I'm counting how many seconds away the nearest bathroom is. Over the past two months it's totally taken over my life and I don't feel like I can tell whether I need to use the bathroom or not anymore. I don't know if that sounds weird or not. Previously I've always just had a bad days and good days but now it's permanently bad days and it's getting me really depressed.

Thing is the second I tell my doctor I think that part of it is anxiety (which wasn't there to start with, I'm just anxious because I've been unwell!) then she'll decide it's all in my head eyes

Anyway, sorry for rambling, and thanks again!

Keriamon
Veteran Member


Date Joined Jun 2005
Total Posts : 2976
   Posted 2/16/2007 9:44 AM (GMT -7)   
Like I said, the calcium by itself isn't always enough for the bile. But now that you are on the Questran, try some calcium in conjunction with it and see if it helps your cramping and urgency. It helped mine a couple of years ago, but it all depends on what's causing it.

Probiotics can cause gas and gas pains when you first start taking them, just like fiber, so you are right, you do have to get used to them. You may want to start out with some yogurt once, then twice a day, and, if available, acidophillus milk, and after a week or two of that, switch over to ONE probiotic pill a day (don't take more, even if it says to). You need to gradually work up to the full doseage so your body doesn't complain so much. Also, I have found that it works best to take a probiotic right before bed because I can sleep through most of the gassiness.

auxano
New Member


Date Joined Feb 2007
Total Posts : 12
   Posted 2/16/2007 12:20 PM (GMT -7)   
Kittencat,
 
I totally understand your anxiety.  I too suffer with this - not for diarrhea but becasue I seem to have days when I don't feel well and there seems no rhyme or reason why, my Dr cannot work out why.
 
This makes me nervous every morning when I wake - am I ok today?  It really makes me feel anxious and fearful.
 
I'm not sure how to overcome this.  It really is a mind-game
 
But, I do know how you feel.
 
 
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